-
Self-reported hearing loss and health during a pandemic: Findings from a cross-sectional analysis using a 2021 household survey Disabil. Health J. (IF 3.7) Pub Date : 2024-09-06 Eunice Y. Park, Erin R. Nelson-Bakkum, Amy A. Schultz, Lauren K. Dillard
The COVID-19 pandemic differentially impacted individuals with hearing loss, likely in part due to increased communication difficulties from masking, a commonly implemented protective measure. This study examines the association between self-reported hearing loss and health during the pandemic. This study uses data from the COVID-19 Survey collected by the Survey of the Health of Wisconsin from February
-
The role of perceived social support in subjective wellbeing among working-age U.S. adults with and without limitations in activities of daily living Disabil. Health J. (IF 3.7) Pub Date : 2024-08-28 Nastassia Vaitsiakhovich, Scott D. Landes, Shannon M. Monnat
Perceived social support may enhance subjective wellbeing (SWB) for adults with activities of daily living (ADL) limitations. However, little is known about how social support may mediate (explain) and/or moderate SWB differences among U.S. working-age adults with versus without ADL limitations. This study examines the role of perceived emotional and instrumental support in hedonic, eudaimonic, and
-
“I'm completely off base here on what this child is capable of”: A qualitative analysis of how medical ableism manifests in PICU clinicians' care of children with severe neurological impairment Disabil. Health J. (IF 3.7) Pub Date : 2024-08-23 Ellie Oslin, Roberto E. Montenegro, Stephanie A. Kraft, Alisa Van Cleave, Jori Bogetz
Children with severe neurological impairment (SNI) are at heightened risk of experiencing medical ableism from clinicians in the pediatric intensive care unit (PICU), where barriers such as time scarcity and heavy workloads limit clinicians’ ability to provide personalized care. To examine medical ableism and strategies to support PICU clinicians in understanding the lives of children with and their
-
Utilization of special services among children and youth with special healthcare needs: A time-to-event analysis of the national survey of children's health data, 2016–2022 Disabil. Health J. (IF 3.7) Pub Date : 2024-08-20 Suman Kanti Chowdhury, Jennifer Marshall, Janice Zgibor, Russell S. Kirby
Special services including physical, occupational, speech, or behavioral therapies are associated with enhanced long-term functioning and well-being of children and youth with special healthcare needs (CYSHCN). Yet, there is a lack of recent evidence on the utilization of these services, and the age at which CYSHCN first receive them. This study assessed the distribution, timing, and determinants of
-
Examining outpatient occupational therapy utilization among children and youth with special health care needs in South Carolina: A structural equation model of individual- and community-level factors Disabil. Health J. (IF 3.7) Pub Date : 2024-08-16 Caitlin Koob, Sarah F. Griffin, Kathleen Cartmell, Lior Rennert, Kerry Sease
Children and youth with special health care needs (CYSHCN) comprise 23 % of the pediatric population in South Carolina (SC), compared to state prevalences of 13.6 %–24 % nationwide. While occupational therapy (OT) is critical to maximizing CYSHCN's participation in daily activities, there are significant disparities in rehabilitation access in the Southeast region. This study examines associations
-
Still Missing Disabil. Health J. (IF 3.7) Pub Date : 2024-08-16 Margaret A. Turk MD, Monika Mitra PhD
-
Athlete identity in para-sport: A comparative study of athletes with congenital and acquired disabilities Disabil. Health J. (IF 3.7) Pub Date : 2024-08-15 Kathryn M. Rougeau, Stephen R. Koziel, Angelina M. Gjorgjevski, Joshua L. Joines
Identity development explores how individuals perceive themselves based on their life experiences, including their current self and aspirations. Athlete Identity has been studied using a 4-factor framework across various sports and ability groups. However, there is limited research on how individuals with physical disabilities perceive themselves as athletes and how an acquired disability impacts identity
-
Understanding disability benefits decision-making among adults with self-reported work disabilities: A qualitative study Disabil. Health J. (IF 3.7) Pub Date : 2024-08-14 Lila Rabinovich, Doerte Junghaenel, Tabasa Ozawa
Take-up gaps in safety net programs, long documented in the US, are an important policy problem as non-take up compromises the equity objectives and efficacy of programs. The Social Security Disability program is an example of this: more than 20 million adults report a work disability, but only around 11 million currently receive disability benefits through the Social Security Disability Insurance
-
Fetal alcohol syndrome and population level health care usage in British Columbia, Canada Disabil. Health J. (IF 3.7) Pub Date : 2024-08-14 Sandra Marquis, Yona Lunsky, Kimberlyn M. McGrail, Jennifer Baumbusch
The literature indicates that youth with Fetal Alcohol Syndrome (FAS) may experience high rates of both physical and mental health issues compared to youth without FAS. However, there is little population level health data available for youth with FAS, particularly for youth transitioning from pediatric to adult healthcare services. The objective of this study was to compare health care usage of youth
-
Age, sex, and multi-morbidity stratified mortality risk estimates for adults with cerebral palsy to inform clinical decision making Disabil. Health J. (IF 3.7) Pub Date : 2024-08-14 Daniel G. Whitney, Lillian C. Min, Edward A. Hurvitz
While research has provided key insights into mortality rates and risks for individuals with cerebral palsy (CP), clinically useable mortality risk estimates remain unreported for adults with CP, especially by key patient-level factors. The objective of this study was to generate clinically useable mortality risk estimates among adults with CP to inform clinical decision making. This retrospective
-
Relation between work hours, work control, work stress, and quality of life in persons with spinal cord injury Disabil. Health J. (IF 3.7) Pub Date : 2024-08-13 Renée van Dinter, Michiel F. Reneman, Marcel W.M. Post
Work participation is related to a better quality of life (QoL) for people with spinal cord injury (SCI), however, the specific work characteristics that are related to QoL in people with SCI are largely unknown. To investigate which work characteristics are related to QoL in people with SCI. Cross-sectional survey of people with SCI in the Netherlands. The survey consisted of demographic, SCI-related
-
Peer mentor contributions to an early intervention vocational rehabilitation specialist service following trauma: A qualitative study Disabil. Health J. (IF 3.7) Pub Date : 2024-08-13 L. Barclay, G. Hilton, E. Fossey, J. Ponsford, M. Downing, P. Analytis, P. Ross
Peer mentors have a role in facilitating the participation, health and well-being of people who have had a traumatic injury. Few studies have explored the involvement of peer mentors in an early intervention vocational rehabilitation (EIVR) service following trauma. This study aimed to explore the experience of implementing peer support within the context of an EIVR service from the perspectives of
-
Disability's absence from admissions nondiscrimination and recruitment initiatives in Top-Tier US allopathic medical schools Disabil. Health J. (IF 3.7) Pub Date : 2024-08-08 Allison Kessler, Samantha L. Schroth, Leslie Rydberg
Diversity in medical school students is essential to ensure that future physicians can care for a range of patients from different backgrounds. However, disability is often overlooked and there are potential examples of discrimination in US medical schools. To determine if students with disabilities are included in online recruitment, diversity equity and inclusion (DEI), or nondiscrimination materials
-
Inequities in medicaid home- and community-based services waiver enrollment among people with intellectual and/or developmental disabilities: A nationwide claims-based analysis Disabil. Health J. (IF 3.7) Pub Date : 2024-08-02 A. Alex Levine, Megan B. Cole, Amy Lynn Michals, Na Wang, Eric Rubenstein
States use Medicaid 1915(c) waiver programs to enable access to home- and community-based services for people with intellectual and/or developmental disabilities (I/DD). However, enrollment rates and potential inequities are not well documented, impeding efforts to improve care access and quality for waiver program enrollees, especially for racially minoritized beneficiaries experiencing compounded
-
Research ethics for all: Development of a social-behavioral research ethics education program for community research partners with developmental disabilities Disabil. Health J. (IF 3.7) Pub Date : 2024-07-31 Ariel E. Schwartz, Katherine McDonald, Research Ethics for All Consortium, Kaitlyn Ahlers, Emily Anderson, Karla Ausderau, Jesse Corey, Brendan Durkin, Micah Fialka-Feldman, Dena Gassner, Karen Heath, Jennifer Jones, Brenna Maddox, Jacob Myers, Tia Nelis, Maria Paiewonsky, Casey Pellien, Dora Raymaker, Pamela Richmond, Benjamin C. Silverman, Pamela Terrell, Ivy Tillman, Mariana Vetoulis-Acevedo
People with developmental disabilities make important contributions to research. However, inaccessible research ethics trainings present a barrier to them taking on some research roles. We developed a social-behavioral research ethics training that leads to certification tailored to the accessibility needs and roles of community research partners with developmental disabilities. We collaborated with
-
Unmet needs for long-term services and supports and associations with health outcomes Disabil. Health J. (IF 3.7) Pub Date : 2024-07-30 Joseph Caldwell, Elad Daniels, Kaitlin Stober
The availability of population-level data on unmet needs for long-term services and supports (LTSS) is limited at state and national levels. Data on unmet LTSS needs can improve our understanding of disparities and relationships with health outcomes. 1) Explore differences in unmet LTSS needs by socio-demographic characteristics, including age, sex, race/ethnicity, metropolitan status, sexual orientation
-
Experiences with care coordination and backup plans in home and community based services during the COVID-19 pandemic in Kansas Disabil. Health J. (IF 3.7) Pub Date : 2024-07-27 Tracey A. LaPierre, Carrie L. Wendel, Jennifer Babitzke, Darcy L. Sullivan, Lora Swartzendruber, Danielle M. Olds
The COVID-19 pandemic was an emergency event during which backup plans became widely relevant. Although backup plans are required for Medicaid-funded Home and Community Based Services (HCBS) as a key risk management strategy, we know little about their effectiveness. The purpose of this study was to explore whether backup plans and care coordination met the needs of HCBS consumers during the COVID-19
-
Effect of COVID-19 on livelihoods of people with and without disabilities: Results from a cross-sectional survey in 3 urban areas of Viet Nam Disabil. Health J. (IF 3.7) Pub Date : 2024-07-26 Lena Morgon Banks PhD, Divya Goyal MSc, Luong Anh Ngoc MSc, Sara Rotenberg PhD, Sarah Marks MSc, Xanthe Hunt PhD, Shaffa Hameed PhD, Hoang Van Minh PhD, Vu Quynh Mai MSc
The COVID-19 pandemic has had widespread health, social and economic impacts worldwide. In many contexts, it has likely exacerbated existing inequalities. This study compares the economic impacts of the COVID-19 pandemic amongst people with and without disabilities in Viet Nam. A telephone survey was conducted in the three largest cities of Viet Nam (Da Nang, Ha Noi, and Ho Chi Minh City) between December
-
Additive interaction of disability with chronic conditions on mortality risk in middle-aged and older adults in Spain Disabil. Health J. (IF 3.7) Pub Date : 2024-07-20 Roberto Pastor-Barriuso PhD, Iñaki Galán MD PhD, Javier Damián MD PhD
Disability and chronic diseases are prevalent conditions associated with mortality, but little information is available on their potential synergistic effects. This study aimed to describe additive interactions between disability and chronic diseases on mortality risk in middle-aged and older adults. A representative cohort of 22,800 community-dwelling Spanish people aged 50 years or older were interviewed
-
Disability severity and risk of new or recurrent intimate partner violence – Evidence from a cohort study in rural Pakistan Disabil. Health J. (IF 3.7) Pub Date : 2024-07-20 Amanda Collins, Joanna Maselko, Ashley Hagaman, Lisa Bates, Sarah C. Haight, Aparna G. Kachoria, Sugandh Gupta, Sonia Bhalotra, Siham Sikander, Amina Bibi
People with disabilities are more likely to experience intimate partner violence (IPV) than those without. Most research examining the relationship between disability and IPV, however, is cross-sectional and approaches disability as a binary variable. This relationship is also important to consider in a South Asian context, where it may be affected by cultural norms surrounding IPV, and resources for
-
Development of a single-item physical activity intention measure for adults with intellectual disabilities: Evidence of validity and reliability Disabil. Health J. (IF 3.7) Pub Date : 2024-07-05 Yetunde Marion Dairo PhD, Johnny Collett PhD, Helen Dawes PhD
Physical activity (PA) is important for overall health and well-being, but adults with intellectual disabilities often struggle to achieve adequate levels of PA. Therefore, it is necessary to understand their PA behaviour. To develop a Single-Item Physical Activity Intention Measure (SPAIM) to assess PA intentions of adults with intellectual disabilities and preliminarily analyse its psychometric properties
-
Time in childhood extracurricular activity and mental health of young adults with developmental disability Disabil. Health J. (IF 3.7) Pub Date : 2024-07-05 Jessica N. Hoyle PhD MMT, Jan Warren-Findlow PhD, Lauren Wallace DrPH MPH MPA, James N. Laditka DA PhD, Sarah B. Laditka PhD
People with developmental disability have higher rates of mental health problems such as anxiety, depression, psychological distress, or a limited sense of belonging to a community. Extracurricular activity can help children and adolescents build social connections beyond family, increasing social capital, which may promote mental health in the transition into adulthood. Little is known about such
-
Responsible inclusion: A systematic review of consent to social-behavioral research with adults with intellectual disability in the US Disabil. Health J. (IF 3.7) Pub Date : 2024-07-02 Katherine E. McDonald PhD, Ariel E. Schwartz PhD OTR/L, Robert Dinerstein JD, Robert Olick JD PhD, Maya Sabatello LLB PhD
In recognition of their status as a health disparities population, there is growing emphasis on conducting research inclusive of adults with intellectual disability to generate new knowledge and opportunities to improve health and equity. Yet they are often excluded from research, and human research participant protection experts and researchers lack agreement on effective consent protocols for their
-
Developing a mobile exercise program for individuals with Spinal Cord Injury: Stakeholder perceptions of app features and implementation determinants Disabil. Health J. (IF 3.7) Pub Date : 2024-06-28 Sara Nataletti PhD, Anushua Banerjee BSc, Rebecca Macaluso MSc, Sara Prokup PT/DPT, Arun Jayaraman PT PhD, Alex W.K. Wong PhD DPhil
Individuals with Spinal Cord Injury (SCI) often experience physical deconditioning, leading to long-term health challenges. While regular exercise can offer substantial health benefits, adherence to exercise guidelines among individuals with SCI is hindered by barriers such as inaccessibility. Exercise programs using the mobile application (App) tailored to individual needs present a promising solution
-
Relationships of self-reported opioid and benzodiazepine use with health-related quality of life among adults with spinal cord injury Disabil. Health J. (IF 3.7) Pub Date : 2024-06-27 James S. Krause, Nicole D. DiPiro, Clara E. Dismuke-Greer, Jon Laursen-Roesler
There is limited understanding of the relationships between prescription opioid and benzodiazepine use and indices of health-related quality of life (HRQOL) among those with spinal cord injuries (SCI). To identify the relationships between self-reported prescription opioid and benzodiazepine use and two indicators of HRQOL, number of days in poor physical health and poor mental health in the past 30
-
Advocating for transportation equity: A critical examination of paratransit service reductions in St. Louis and its impact on health and community social participation Disabil. Health J. (IF 3.7) Pub Date : 2024-06-25 Rachel Heeb Desai PhD OTD, Seyoon Choi, Aimee Wehmeier MBA, Jeanette Mott Oxford M.Div, Kerri A. Morgan PhD OTR/L ATP
-
Heatwave frequency and disability status: Thermal inequities in the U.S. South Disabil. Health J. (IF 3.7) Pub Date : 2024-06-24 Jayajit Chakraborty
Although extreme heat has been found to be disproportionately distributed with respect to socially disadvantaged and marginalized groups, persons with disabilities have received limited attention in previous research on heat exposure disparities. This gap is addressed by analyzing the relationship between local heatwave frequency and the percentages of people with a disability and specific disability
-
Impact of COVID-19 on psychoactive medication use among individuals with intellectual and developmental disabilities in Ontario, Canada: A repeated cross-sectional study Disabil. Health J. (IF 3.7) Pub Date : 2024-06-12 Qi Guan PhD, Ria Garg PharmD, Daniel McCormack MSc, Yona Lunsky PhD, Mina Tadrous PhD, Tonya Campbell MPH, Tara Gomes PhD
Evidence for worsening mental health among individuals with intellectual and developmental disabilities (IDD) during COVID-19 sparked concerns for increased use of psychoactive medications. To examine the impact of COVID-19 on psychoactive medication use and clinical monitoring among individuals with IDD in Ontario, Canada. We conducted a repeated cross-sectional study among individuals with IDD and
-
From the “backburner” to the forefront: Qualitative analysis of medical and physician assistant students’ reflections on Crip Camp Disabil. Health J. (IF 3.7) Pub Date : 2024-06-10 Lydia Smeltz BA, Jaden Sacks, Ami DeWaters MD MSc
Disability-focused health professions education must evolve to portray the lives of disabled patients, lived experiences of ableism, and disability history more accurately and authentically. Methods of education that utilize first-person perspectives of disabled people to deliver authentic representations are limited in the current literature. To explore first-year medical and physician assistant students'
-
Leisure time physical activity in middle-aged and older adults aging with long-term spinal cord injury: Changes over six years Disabil. Health J. (IF 3.7) Pub Date : 2024-06-07 Mikael Waller MD, Jan Lexell MD PhD DPhil hc, Kathleen A. Martin Ginis PhD OMC, Sophie Jörgensen MD PhD
Regular leisure time physical activity (LTPA) has beneficial health effects in people with spinal cord injury (SCI). Yet, participation in LTPA is low, and little is known about changes many years after injury. To determine changes in LTPA in middle-aged and older adults with long-term SCI over six years, investigate associations with gender, age, injury characteristics and changes in secondary health
-
Pattern of contraceptive use among reproductive-aged women with disabilities in Bangladesh: Evidence from multiple indicator cluster survey 2019 Disabil. Health J. (IF 3.7) Pub Date : 2024-06-07 Md Badsha Alam BSS, Md Shohel Rana BSS, Md Awal Kabir PhD, Shimlin Jahan Khanam MSS, Md Nuruzzaman Khan PhD
Contraception is crucial for reproductive-aged women with disabilities, empowering them to manage reproductive choices and enhancing overall health, autonomy, and well-being. The objective of this study was to examine the usage patterns of contraceptive methods among reproductive-aged women with disabilities in Bangladesh. We analyzed data from 47,465 reproductive-aged women from the 2019 Bangladesh
-
The hidden crisis: Long COVID's association with housing stability and home accessibility among people with disabilities Disabil. Health J. (IF 3.7) Pub Date : 2024-06-07 Kelsey Goddard PhD, Andrew Myers MA, Catherine Ipsen PhD
The COVID-19 pandemic has given rise to the emerging phenomenon known as Long COVID, characterized by persistent symptoms long after the acute infection has passed. However, the relationship of Long COVID on housing stability and home accessibility remains underexplored. This manuscript aims to comprehensively examine the association of Long COVID on housing stability and accessibility, identifying
-
“As a parent, I want to do more for my child”: A phenomenological approach to understanding the experiences of parents involved in surgical decision-making for children with congenital hand anomalies Disabil. Health J. (IF 3.7) Pub Date : 2024-06-07 Xiaojie Lian MM, Baoming Li MM, Liling Su MM, Yang Wang M.D.
A congenital anomaly of the hand can affect both function and appearance, and places a stressful psychological burden on the family, especially parents. Surgery during infancy may prevent later disabilities, but little is known of the importance of parents’ involvement in these decisions in terms of psychological adjustment or treatment satisfaction. To understand parents' perceptions of involvement
-
Predictors of COVID-19 infection and hospitalization in group homes for individuals with intellectual and/or developmental disabilities Disabil. Health J. (IF 3.7) Pub Date : 2024-06-05 Julie H. Levison MD MPhil MPH, Vicki Fung PhD, Anna Wilson MPH, David Cheng PhD, Karen Donelan ScD EdM, Nicolas M. Oreskovic MD MPH, Ronita Samuels PhD. MS. MPH, Paula Silverman MPH, Joey Batson, Ahmed Fathi MPH, Stefanie Gamse, Sibyl Holland MA, Jessica E. Becker MD MPH, Kenneth A. Freedberg MD MSc, Lisa I. Iezzoni MD MSc, Amy Donohue MSW MBA, Mark Viron MD, Carley Lubarsky LICSW, Terina Keller MPA
More than seven million people with intellectual and/or developmental disabilities (ID/DD) live in the US and may face an elevated risk for COVID-19. To identify correlates of COVID-19 and related hospitalizations among people with ID/DD in group homes in Massachusetts. We collected data during March 1, 2020–June 30, 2020 (wave 1) and July 1, 2020–March 31, 2021 (wave 2) from the Massachusetts Department
-
Document analysis of adaptive sport opportunities at Division-1 universities in the United States Disabil. Health J. (IF 3.7) Pub Date : 2024-06-05 Connor Fultz MD, Ryan Nussbaum DO, Samantha L. Schroth PhD, Yetsa A. Tuakli-Wosornu MD MPH, Allison N. Schroeder MD
Individuals with disabilities are less likely to participate in physical activity, with the greatest decline in participation during college years. Despite known health benefits, there are significant barriers that limit sport and exercise participation for students with disabilities, including adaptive access. To our knowledge, there has been no comprehensive review conducted to examine the number
-
Bridging research and policy: The Disability and health journal and the Final Rule of Section 504 of the rehabilitation act of 1973 Disabil. Health J. (IF 3.7) Pub Date : 2024-05-31 Monika Mitra PhD, Margaret A. Turk MD
-
Systemic barriers hinder person-centered home and community based services (HCBS): Perspectives of service users and professionals Disabil. Health J. (IF 3.7) Pub Date : 2024-05-28 Niveda Tennety, Bridgette M. Schram, Jacqueline Kish, Tonie Sadler, Ross Kaine, Katie Kaufman, Steve Lutzky, Allen Heinemann
In response to the 2014 Final Settings Rule issued by the Centers for Medicaid and Medicare Services, home-and-community based services (HCBS) provider organizations strengthened person-centered (PC) planning for HCBS to improve participants' choice and control over their services. Despite the call for widespread adoption of PC services, systemic barriers influence service users’ and professionals'
-
Elevated blood pressure in children with cerebral palsy and its relationship with adiposity and physical activity Disabil. Health J. (IF 3.7) Pub Date : 2024-05-24 Junsoo Lee BS, Trevor Batson MS, Kevin K. McCully PhD, Ye Shen PhD, Christopher M. Modlesky PhD
There is a high prevalance of hypertension in adults with with cerebral palsy (CP). However, less is known about blood pressure in children with CP. The aim was to determine if blood pressure is elevated in children with CP and whether it is related to adiposity and physical activity. Thirty children with spastic CP (5–11 y) and 30 age-, sex-, and race-matched typically developing control children
-
Cesarean birth and adverse birth outcomes among sub-populations of deaf and hard-of-hearing people Disabil. Health J. (IF 3.7) Pub Date : 2024-05-23 Tyler G. James PhD MCHES, Kimberly S. McKee PhD MPH, Tiffany A. Moore Simas MD MPH Med, Lauren D. Smith MPH, Michael M. McKee MD MPH, Monika Mitra PhD
Deaf and hard-of-hearing (DHH) people are at higher risk than their non-DHH counterparts of experiencing adverse birth outcomes. There is a lack of research focusing on social, linguistic, and medical factors related to being DHH which may identify groups of DHH people who experience more inequity. Examine difference in prevalence of cesarean and adverse birth outcomes among diverse sub-groups of DHH
-
Cerebral palsy research network community registry adult surveys on function & pain: Successes, challenges, and future directions Disabil. Health J. (IF 3.7) Pub Date : 2024-05-22 Mary E. Gannotti PT PhD, Paul H. Gross, Deborah E. Thorpe PT PhD, Edward A. Hurvitz MD, Garey H. Noritz MD, Susan D. Horn PhD, Michael E. Msall MD, Henry G. Chambers MD, Linda E. Krach MD, Cristina A. Sarmiento MD
-
Gender differences in patient experience among persons with spinal cord injury: A comparison across 22 countries Disabil. Health J. (IF 3.7) Pub Date : 2024-05-17 Olena Bychkovska PhD, Sintip Pattanakuhar MD PhD, Mohit Arora PhD, Karin Postma PhD, Vegard Strøm PhD, Conran Joseph PhD, Piotr Tederko MD, Armin Gemperli PhD
Due to the majority of males within the population of persons with spinal cord injuries (SCI), a male-oriented perception of persons with SCI might affect care provision in the way of prioritizing male needs. The objective of this cross-sectional study is to describe the patient experience of persons with SCI by gender. This study was based on the International Spinal Cord Injury Survey with 12,588
-
The relationship between levels of physical activity and participation in everyday life in stroke survivors: A systematic review and meta-analysis Disabil. Health J. (IF 3.7) Pub Date : 2024-05-16 Cristina de Diego-Alonso MSc, Pablo Bellosta-López PhD, Julia Blasco-Abadía MSc, Almudena Buesa-Estéllez PhD, Patricia Roldán-Pérez PhD, Almudena Medina-Rincón PhD, María Pilar López-Royo PhD, Rafael Giner-Nicolás MSc, Víctor Doménech-García PhD, Natalie A. Fini PhD
Stroke survivors demonstrate decreased physical activity (PA) and take time to return to participation in everyday life, but the relationship between the two variables is unknown. To investigate the correlation and trajectory over time between levels of PA and participation in everyday life in stroke survivors. PubMed, Web of Science, Scopus, SPORTDiscus, Rehabilitation&Sport Medicine Source, and PEDro
-
Psychological distress and mental health diagnoses in adults by disability and functional difficulty status: Findings from the 2021 national health interview survey Disabil. Health J. (IF 3.7) Pub Date : 2024-05-15 Jamie Koenig MSW, Kiley J. McLean PhD, Lauren Bishop PhD
Evidence suggests that disabled people have worse mental health than non-disabled people, but the degree to which disability contributes to mental health is unclear. This paper uses 2021 National Health Interview Survey (NHIS) data to estimate the association between disability and depression and anxiety diagnoses as well as psychological distress among adults. We calculated disability population prevalence
-
Physical activity as a mediator in the relationship between health locus of control and health-related quality of life in multiple sclerosis patients with different disease duration Disabil. Health J. (IF 3.7) Pub Date : 2024-05-01 Maciej Tomczak PhD, Małgorzata Walczak PhD, Waldemar Brola PhD, Aleksandra Walczak MD, Magdalena Koper PhD, Bartosz Chmielewski PhD, Maciej Wilski PhD
The importance of undertaking physical activity for functioning of patients with multiple sclerosis (MS) has been repeatedly highlighted. However, the research on the role of physical activity in shaping the quality of life of patients with different disease duration is scarce. The aim of this study was to identify the mediating role of physical activity in the relationship between health locus of
-
The perceived influence of a physical activity intervention on the intentions of parents of autistic children towards physical activities Disabil. Health J. (IF 3.7) Pub Date : 2024-04-30 Luis Columna PhD, Benazir Meera PhD, Laura A. Prieto PhD, Justin A. Haegele PhD
Autistic children can derive numerous benefits from engaging in physical activity (), necessitating parental support for active participation. However, parents often lack the foundational knowledge to effectively facilitate PA for their children. Despite the significance of this issue, limited research has explored the outcomes of parent-mediated PA interventions for autistic children. The purpose
-
What some physicians say about caring for patients with disability: Responses to open-ended question to nationwide physician survey Disabil. Health J. (IF 3.7) Pub Date : 2024-04-24 Lisa I. Iezzoni MD MSc
For over 50 years, federal disability civil rights laws have mandated that patients with disability receive equitable health care. However, disabled patients continue to experience health care disparities. To explore physicians’ views, in their own words, about caring for patients with disability. Review of responses to open-ended question at the end of a nationally representative survey of 714 outpatient
-
Piloting the effectiveness of the Workout on Wheels Internet Intervention (WOWii) program among individuals with mobility disabilities Disabil. Health J. (IF 3.7) Pub Date : 2024-04-24 Katherine Froehlich-Grobe PhD, Lyndsie Koon PhD, Christa Ochoa MPH, Jean P. Hall PhD
Doing any amount of moderate-to-vigorous physical activity yields health benefits. Individuals with mobility disabilities are among the least physically active Americans and limited evidence indicates effective strategies to promote physical activity among this group. Examine whether a 16-week virtual intervention program (Workout on Wheels internet intervention, WOWii) increases exercise engagement
-
Identifying priorities for Australian disability research using Q methodology Disabil. Health J. (IF 3.7) Pub Date : 2024-04-23 Simon Garbellini PhD, Angela Dew PhD, Christine Imms PhD, Simon Darcy PhD, Keith McVilly PhD, Gisselle Gallego PhD
Globally, there are over an estimated one billion people with disability. Research priorities with a focus on diagnosis and treatment of conditions or policy and service initiatives, traditionally decided by researchers, may not align with priorities of those with lived experience of disability. To explore and inform disability research for Australia, including perspectives of people with disability
-
Personal assistance, independent living, and people with disabilities: An international systematic review (2013–2023) Disabil. Health J. (IF 3.7) Pub Date : 2024-04-17 Breogán Riobóo-Lois, Paula Frieiro PhD, Rubén González-Rodríguez PhD, Carmen Verde-Diego PhD
The article discusses the contribution of personal assistance for the independent living of people with disabilities. This right is evolving at different speeds internationally, presents controversial aspects, and is under continuous debate. To synthesize the evidence relating to the promotion of self-determination and independent living through personal assistance. A systematic review was conducted
-
The design and methodology for a pilot study of home and community-based services outcome measures Disabil. Health J. (IF 3.7) Pub Date : 2024-04-17 Alec Nyce, Matthew A Roberts, Renáta Tichá, Brian H Abery
The Research and Training Center on HCBS Outcome Measurement (RTC/OM) developed and piloted measures in six domains to assess the outcomes experienced by HCBS recipients. These measures were based upon the revised National Quality Forum's HCBS Outcome Measurement framework. The background and rationale for the pilot study are outlined along with the research design, sampling frame, and psychometric
-
Depressive symptoms and activity engagement in autistic adolescents and those with other developmental disabilities Disabil. Health J. (IF 3.7) Pub Date : 2024-04-17 Lisa D. Wiggins PhD MPH, Julie Daniels PhD, Katie Overwyk MPH, Lisa Croen PhD, Carolyn DiGuiseppi MD PhD MPH, Chyrise Bradley MPH, Patrick Powell PhD, Gabriel Dichter PhD, Eric Moody PhD, Karen Pazol PhD MPH
Autistic adults and those with other developmental disabilities (DD) have increased depressive symptoms and decreased activity engagement when compared to those with no DD. Few studies explore activities related to depressive symptoms in autistic people and those with other DD during adolescence. The objectives of this analysis were to describe depressive symptoms and activity engagement among autistic
-
Cancer stages and mortality risk of breast cancer between women with and without disabilities: A national population-based cohort study in Taiwan Disabil. Health J. (IF 3.7) Pub Date : 2024-04-17 Puchong Inchai DrPH, Wen-Chen Tsai DrPH, Li-Ting Chiu MHA, Pei-Tseng Kung ScD
The second-most common cause of cancer-related death for women worldwide is breast cancer. However, there is little information about breast cancer among women with disabilities in Taiwan. This study investigated differences between women with and without disabilities regarding breast cancer stages and evaluated the probability of developing an advanced stage and the mortality risk of breast cancer
-
The physical and psychosocial benefits of a family judo program for parents of children with Autism Spectrum Disorder: A pilot study Disabil. Health J. (IF 3.7) Pub Date : 2024-04-16 Jeanette M. Garcia Ph.D., Debbie Hahs-Vaughn Ph.D., Michelle Murray B.S., Caitlyn Perry B.S., Keith Brazendale Ph.D., David J. Rice Ph.D., David H. Fukuda Ph.D.
Parents of children with Autism Spectrum Disorder (ASD) tend to have high levels of stress and poor health habits. There is a lack of interventions that focus on improving health outcomes in parents of children with ASD. To examine the physical and psychosocial effects of a family-based judo program on parents of children diagnosed with ASD. This study utilized a pre-post single group design. Eighteen
-
Oral contraceptive use in women with spina bifida in Sweden Disabil. Health J. (IF 3.7) Pub Date : 2024-04-16 R. Samu Mtutu MPH, Ann I. Alriksson-Schmidt PhD MSPH, Johan Jarl PhD
Thanks to improved medical care, individuals with spina bifida (SB) live well into adulthood and go through the process of reproductive maturation and the development of sexual desires. However, access to reproductive counselling and contraceptive use has been reported to be lower for women with physical and intellectual disabilities compared to the general population. We investigated oral contraceptive
-
Digital platforms to facilitate physical activities for people with physical or sensory disabilities: A scoping review Disabil. Health J. (IF 3.7) Pub Date : 2024-04-16 N. Lapierre PhD, C. Huet-Fiola BSc. soc, D. Labrie BSc, E. Vincent-Blouin MD(c), C. Côté BSc MD(c), M. Gagnon MSI, N. Rhéaume BAA, J. Laberge BA, K.L. Best PhD, F. Routhier PhD
People with disabilities (PWD) commonly experience difficulties in accessing their environments, which can lead to restricted participation in outdoor leisure-time physical activity. Participating in outdoor leisure-time physical activity (OLTPA) provides health and social benefits to PWD and benefits to the communities in which they live. The aim of the study was to identify features existing in digital
-
“We need a world we can operate in”: Exploring the relationship between societal stigma and depression among wheelchair users Disabil. Health J. (IF 3.7) Pub Date : 2024-04-09 Toni Saia Ph.D., Emily Vogel Ph.D., Sadie Salazar BS
Stigma looms over the disability community. The aim of this paper is to gain a deeper understanding of how societal stigma impacts depression among wheelchair users. Mixed research methods were used on a sample of sixty full-time wheelchair users ( = 43.78, = 15.50) whose disability was either acquired ( = ) or congenital ( = ). Data was collected via an anonymous Qualtrics survey. Qualitative and
-
Covid-19 patterns among adults with intellectual and developmental disability and the general population in New York state during the first year of the pandemic Disabil. Health J. (IF 3.7) Pub Date : 2024-04-09 Margaret K. Formica MSPH PhD, Ryan Cox BS, Joshua Christiana M.A.Ed. CHC CHSP, Margaret A. Turk MD, Scott D. Landes PhD
People with intellectual and developmental disabilities (IDD) in the US, especially those living in group homes, experienced comparatively higher Covid-19 case/case fatality rates than the general population during the first year of the pandemic. There is no information about the patterns of case/case fatality rates during this time. This study compared Covid-19 case/case fatality rates among people
-
Exploring healthcare barriers and satisfaction levels among deaf individuals in Ecuador: A video-based survey approach Disabil. Health J. (IF 3.7) Pub Date : 2024-04-03 Juan S. Izquierdo-Condoy MSc, Luis Eduardo Sánchez Abadiano MD, Wilson Sánchez MD, Ivonne Rodríguez MD, Kerly De La Cruz Matías MD, Clara Paz PhD, Esteban Ortiz-Prado PhD
Approximately 80% of Deaf individuals live in low- and middle-income countries, where health systems often overlook their specific needs. This communication gap can result in misdiagnosis and inappropriate treatment, impacting their overall satisfaction with healthcare services. This study aims to uncover barriers to healthcare access and preferences among the Deaf population in Ecuador, and the role
-
Resources, relationships, and resilience: The psychosocial experiences of women with lower limb absence during pregnancy and postpartum Disabil. Health J. (IF 3.7) Pub Date : 2024-04-02 Donna Cumming B.A. M.A., Crystal MacKay BScPT MHSc PhD, Clara Phillips BASc., Fae Azhari PhD P.Eng, Brittany Mae Pousett B.Sc M.Sc CP(C)
There is limited research on the unique needs of women with lower limb absence (LLA) during pregnancy and postpartum. The lack of information can negatively impact women's physical and emotional experiences. The purpose of this study is to explore the psychosocial experiences of individuals with LLA through the pregnancy and postpartum periods, and to provide information to women and health care providers
-
An observational investigation of unemployment, underemployment, and competitive integrated employment of people with intellectual and developmental disabilities in 2021-2022 Disabil. Health J. (IF 3.7) Pub Date : 2024-03-29 Lindsay A. DuBois, Valerie Bradley, Nilüfer Isvan
Employment is an important component of community living, and a precursor to economic stability and independence. Despite this, research consistently demonstrates people with intellectual and developmental disabilities (IDD) have low rates of community-based employment. However, little research has been conducted to quantify competitive integrated employment, and which individuals have better employment