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Psychometric properties of two ADHD rating scales used in children with ADHD and intellectual disability J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-09-07 M. Palmer, Z. Fang, V. Carter Leno, E. Simonoff
BackgroundAttention deficit hyperactivity disorder (ADHD) is often present in people with intellectual disability (ID) and autism. However, few ADHD measures have been developed specifically for individuals with these conditions. There is little literature exploring how well ADHD measures are performing at picking up specific symptoms at the item level.MethodsAnalyses were conducted on data from 122
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An exploration into self‐reported inactivity behaviours of adults with an intellectual disability using physical activity questionnaires J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-09-04 L. Lynch, M. McCarron, P. McCallion, E. Burke
BackgroundInactivity is a correlate of adverse health. Adults with an intellectual disability (ID) are more inactive than the general population and often present with more complex health issues. Self‐reported activity questionnaires such as the International Physical Activity Questionnaire – Short Form (IPAQ‐SF) and Rapid Assessment of Physical Activity (RAPA) questionnaire are the predominant source
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Digital motor intervention effects on motor performance of individuals with developmental disabilities: a systematic review J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-08-30 J. Corey, J. M. Tsai, A. Mhadeshwar, S. Srinivasan, A. Bhat
BackgroundIndividuals (i.e. children/young adults) with developmental disabilities (DDs) and intellectual disabilities (IDs) often display a variety of physical and motor impairments. It is well known that participation in motor activities can positively impact the development of children's cognitive and social skills. Recently, virtual and digital technologies (e.g. video conferencing applications
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Drug burden index of people ageing with intellectual disability and cognitive complaints attending a specialist memory service J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-08-27 R. M. Vaughan, M. O'Dwyer, J. Tyrrell, S. P. Kennelly, M. McCarron
BackgroundMedications with sedative or anticholinergic properties should be prescribed with caution in those with cognitive complaints. This is particularly relevant in people ageing with an intellectual disability (ID). Higher drug burden index (DBI) scores are associated with increased frailty and falls and reduced quality of life in older people and increased risk of adverse effects (daytime somnolence
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Age and sex‐specific risk in fractures with Down syndrome in a retrospective case–control study from Germany J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-08-26 S. Krieg, A. Krieg, K. Kostev
BackgroundThe increasing life expectancy of individuals with Down syndrome has led to a growing awareness of mid‐ and late‐life conditions.MethodsBased on the Disease Analyser database (IQVIA), this retrospective cohort study compared adults ≥18 years of age with Down syndrome (ICD‐10: Q90) in general practices in Germany with a propensity score‐matched cohort without Down syndrome. The outcome was
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SSBP 26th International Research Symposium, Bali, Indonesia: Abstracts for presentation J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-08-22
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SSBP 26th International Research Symposium, Bali, Indonesia: Keynote Abstracts for presentation J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-08-22
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Early identification and treatment of genetic and neurodevelopmental disorders J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-08-22 T. I. Winarni, A. Utari, N. Maharani, T. A. Sumekar, N. R. B. Sihombing, R. J. Hagerman
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Issue Information J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-08-22
No abstract is available for this article.
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Immersive virtual reality is more effective than non‐immersive devices for developing real‐world skills in people with intellectual disability J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-08-22 A. Franze, T. Loetscher, N. C. Gallomarino, A. Szpak, G. Lee, S. C. Michalski
BackgroundPeople with intellectual disability (ID) demonstrate persistent challenges around developing life skills. Immersive virtual reality (IVR) is gaining interest as a tool for training life skills as it enables individuals to engage in hands‐on learning in a safe, controlled and repeatable environment. However, there are concerns about the potential drawbacks of IVR, such as cybersickness and
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Feasibility and findings of electrocardiogram recording in older adults with intellectual disabilities: results of the Healthy Ageing and Intellectual Disabilities study J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-08-16 M. J. de Leeuw, M. N. Böhmer, M. J. G. Leening, J. A. Kors, P. J. E. Bindels, A. Oppewal, D. A. M. Maes‐Festen
BackgroundOlder adults with intellectual disabilities (ID) have a high risk of cardiovascular diseases (CVD). At the same time, challenging diagnostic work‐up increases the likelihood of underdiagnosis of CVD in this population. To limit this underdiagnosis, it would be beneficial to use objective measures such as the electrocardiogram (ECG). However, little is known about the feasibility of ECG recording
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Description and predictors of self‐determination in males and females with fragile X syndrome on the verge of adulthood J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-08-13 L. Friedman, C. Moser, A. J. Thurman, J. L. Taylor, L. Abbeduto, J. Klusek
BackgroundSelf‐determination refers to setting goals and making decisions regarding one's own life with support from others as needed. Research on people with intellectual and developmental disabilities has established the importance of self‐determination for quality of life outcomes, such as increased independence and life satisfaction. However, self‐determination has not been characterised specifically
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Stressful life events, post‐traumatic stress disorder symptoms and mental health in individuals with intellectual disabilities: a scoping review J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-08-12 M. Rouleaux, N. Peters‐Scheffer, R. Lindauer, L. Mevissen, R. Didden
BackgroundStressful life events are events that do not fulfil the A criterion of PTSD in the DSM‐5(TR) but are perceived as negative by the person. There is an ongoing debate about the usefulness of the A criterion as a gate criterion for PTSD, and especially regarding which events qualify as traumatic or stressful life events. This debate is particularly important for individuals with intellectual
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Laboratory‐based measures of executive function and daily living skills in young children with Down syndrome: informing future interventions J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-08-08 K. Van Deusen, M. A. Prince, M. M. Walsh, A. J. Esbensen, L. R. Patel, M. E. Pinks, A. J. Thurman, L. Abbeduto, L. A. Daunhauer, D. J. Fidler
BackgroundAdaptive behaviour refers to the practical skills necessary for independence and is considered a high‐priority intervention target for children with neurogenetic conditions associated with intellectual disability, like Down syndrome (DS). Daily living skills (DLS) are a critical aspect of adaptive behaviour, but they have received little intervention attention, possibly because they involve
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Characterising repetitive behaviours in children and adolescents with Down syndrome J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-08-06 E. Fucà, F. Costanzo, S. Vicari
BackgroundIndividuals with intellectual disability, including people with Down syndrome (DS), often exhibit restricted and repetitive behaviours (RRBs). However, RRBs have not been deeply characterised in children and adolescents with DS.MethodThe study encompassed a cohort of 151 participants aged 4 to 18 years with DS. RRBs were assessed utilising the Repetitive Behaviour Scale‐Revised. Additionally
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Issue Information J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-07-30
No abstract is available for this article.
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Issue Information J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-07-30
No abstract is available for this article.
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Sexual support and education for adults with mild intellectual disabilities: a Delphi study on multiple perspectives J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-07-18 W. de Wit, N. Frielink, D. Roeg, P. J. C. M. Embregts
BackgroundProviding appropriate sexual support and education for adults with mild intellectual disabilities (IDs) is a source of considerable debate, resulting in diverse, non‐funded and potentially adverse practices. This study aims to identify a consensus among experts regarding what conditions are conducive to successful sexual support and education for adults with mild IDs.MethodsA Delphi study
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Feasibility study of a parent‐driven intervention for youth with Down syndrome J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-07-09 M. Stone‐Heaberlin, A. Blackburn, E. K. Hoffman, A. J. Esbensen
BackgroundChildren with Down syndrome present with behavioural and emotional difficulties, including noncompliance, rule‐breaking, emotion dysregulation and delays in executive functioning. Few behavioural interventions have been designed specifically for children with Down syndrome. The Research Units in Behavioral Intervention (RUBI) Parent Training for Disruptive Behaviors is a structured empirically
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Cardiac autonomic modulation and exercise capacity in older adults with intellectual disability: A 6‐month randomised control trial J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-07-03 M. Font‐Farré, M. Guerra‐Balic, A. C. Farche, A. C. de Medeiros Takahashi, S. Simón‐Siles, G. R. Oviedo
BackgroundDespite reported physical and functional improvements with aerobic and sprint interval training (SIT) protocols in individuals with intellectual disability (ID), it is not known if these interventions' effectivity would promote improvements in cardiac autonomic modulation. This study aimed to investigate if a 6‐month SIT or a continuous aerobic programme could enhance physical performance
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Strength of relationship between body mass index and gross motor capacity in youth with intellectual disabilities J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-06-24 K. Pitetti, F. Bertapelli, R. A. Miller, M. Loovis, W. D. do Amaral‐Junior, M. M. de Barros‐Filho, G. Guerra‐Junior
BackgroundAdequate skill levels of gross motor capacity affect activities of daily living, participation in recreational activities and general physical activity levels of youths (7–21 years). Most studies of typically developing youths have reported significant negative relationships between gross motor capacity and body mass index. The latter findings are especially of concern for youths with intellectual
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Organised and non-organised activities contribute to overall physical activity levels in adolescents and young adults with Down syndrome: a cross-sectional study. J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-06-18 R Izquierdo-Gomez,N Shields
BACKGROUND Participation in organised and non-organised physical activities among adolescents and young adults with Down syndrome is underexplored. This study aimed to examine differences between organised and non-organised physical activities among adolescents and young adults with Down syndrome. METHODS Forty participants with Down syndrome (27 woman; mean age 21.4 ± 4.9 years) were recruited. Data
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The cumulative impact of attention deficit hyperactivity disorder, autism and intellectual disability for young people. J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-06-17 J Hollingdale,E Woodhouse,M S Tibber,E Simonoff,M J Hollocks,T Charman
BACKGROUND Neurodevelopmental conditions frequently co-occur. The aim of this paper was to determine whether there is a cumulative association between (1) the number of neurodevelopmental conditions, specifically hyperkinetic disorder (hereafter referred to as attention deficit hyperactivity disorder), autism spectrum disorder (hereafter referred to as autism) and intellectual disability, and (2) behavioural
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The prospective associations between autonomy support, basic psychological needs, motivation and well-being among people with a mild to borderline intellectual disability: a two-wave study. J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-06-17 N Frielink,C Schuengel,S H G van der Ven,P J C M Embregts
BACKGROUND This study, grounded in self-determination theory, examined how satisfaction of the needs for autonomy, relatedness and competence in people with mild to borderline intellectual disability (MBID) changed over a 4.5-year period. Additionally, it explored the association between life events across various domains (i.e. health, support and living situation, crime, relationships and freedom
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IASSIDD World Congress 2024: Reimagining connections. J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-06-07 K R McVilly,A Buchanan,C Adnams,T Heller
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Validation of the Persian version of the attitudes toward intellectual disability J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-05-30 R. Khalili, Z. Asgari, A. Kamrani, D. Morin
BackgroundAttitudes toward individuals with intellectual disability (ID) are the most important factor affecting their social integration and can cause them to experience a sense of achievement or discrimination. The present study aimed to evaluate the latent factor structure and validity of the Persian version of the Attitudes toward Intellectual Disability (ATTID) Short‐Form questionnaire.MethodsThe
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Behavioural phenotype of SYNGAP1‐related intellectual disability J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-05-24 M. P. Kranak, G. Rooker, C. Smith‐Hicks
BackgroundSYNGAP1‐ related intellectual disability (SYNGAP1‐ID) is a rare genetic disorder presenting with intellectual disability (ID), epilepsy, maladaptive behaviours and communication challenges. To date, few studies have assessed the context in which these maladaptive behaviours occur. This study aims to investigate the prevalence of problem behaviours, characterise the behavioural phenotype and
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The inequity of education, health and care plan provision for children and young people with intellectual and developmental disabilities. J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-05-22 I O Lee,J Wolstencroft,H Housby,M B M van den Bree,S J R A Chawner,J Hall,,D H Skuse
BACKGROUND Children and young people (CYP) with intellectual and developmental disabilities (IDDs) have significant additional educational needs compared with the general population. In England, the government has established a system of education, health and care plans (EHCPs) to support children with special educational needs and disabilities, but disparities exist between the degree of need and
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A retrospective cohort study of prescription drug use among youth with intellectual/developmental disabilities in British Columbia J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-05-22 S. Marquis, N. E. Marquis, Y. Lunsky, K. M. McGrail, J. Baumbusch
BackgroundPeople with intellectual/developmental disabilities (IDD) are known to have high rates of prescription drug use, particularly for psychotropic medications. This is of concern due to the many side effects associated with these medications and because of the risks of polypharmacy. In this paper we compare the most commonly dispensed drugs and all psychotropic medications for youth with IDD
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Validation of a German version of the dementia screening questionnaire for individuals with intellectual disabilities (DSQIID‐G) in Down's syndrome J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-05-17 G. Nuebling, O. Wagemann, S. Deb, E. Wlasich, S. V. Loosli, K. Sandkühler, A. Stockbauer, C. Prix, J. Levin
BackgroundPeople with Down's syndrome (DS) are at high risk of developing Alzheimer dementia (DS‐AD) due to a triplication of the amyloid precursor protein gene. While several tools to diagnose and screen for DS‐AD, such as the dementia screening questionnaire for individuals with intellectual disabilities (DSQIID), are available in English, validated German versions of such instruments are scarce
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Psychometric properties of the Beliefs About Adults with ID Scale in American physicians: Application of classical test and Rasch measurement theories J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-05-14 A. Bacherini, P. Anselmi, S. M. Havercamp, G. Balboni
BackgroundPhysicians' erroneous assumptions about individuals with intellectual disability (ID) negatively impact the quality of care provided to this population. This study aimed to investigate the psychometric properties of the Beliefs About Adults with ID (BAID), an instrument we developed for measuring physicians' erroneous assumptions about adults with ID.MethodsTwo hundred ninety‐two American
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Feeding practices and dietary intake in Brazilian children with Down syndrome: A cross‐sectional study J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-05-14 M. C. R. S. Genovesio, L. S. Monteiro, A. V. da Silva, P. R. M. Rodrigues, A. P. Baumblatt, S. A. Ribas
BackgroundStudies investigating the quality of the diet and dietary intake of children with Down syndrome (DS) are required because the features attributed to the syndrome can affect growth, development and quality of life.MethodsThis cross‐sectional study was conducted with 77 Brazilian children with DS between 5 and 36 months of age receiving care at the multidisciplinary outpatient clinic of the
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Implementation of the International Classification of Diseases 11th revision behavioural indicators for disorders of intellectual development with co‐occurring autism spectrum disorder J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-05-11 K. R. Lemay, C. S. Kogan, T. Rebello, J. W. Keeley, R. Bhargava, S. Buono, S. Cooray, P. Ginige, M. T. Kishore, J. V. S. Kommu, M. Recupero, A. Roy, P. Sharan, G. M. Reed
BackgroundThe classification of mental, behavioural and neurodevelopmental disorders in the World Health Organization's International Classification of Diseases 11th revision (ICD‐11) includes a comprehensive set of behavioural indicators (BIs) within the neurodevelopmental disorders grouping. BIs can be used to assess the severity of disorders of intellectual development in situations in which standardised
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Assessment of dental and periodontal indices and Streptococcus mutans virulence in fragile X syndrome patients J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-05-08 Cristhiane Olivia Ferreira do Amaral, Kamila Rosamilia Kantovitiz, V. C. de Araújo, T. Marega, L. N. Teixeira, E. F. Martinez
IntroductionFragile X syndrome (FXS) is the most common cause of hereditary genetic disorder in a single gene characterised by intellectual disability. Behavioural features such as autism, hyperactivity and anxiety disorder may be present. Biofilm development and pathogenicity of Streptococcus mutans may be altered because FXS renders the dental approach and oral hygiene more complex.ObjectivesThe
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Mortality in French people with polyhandicap/profound intellectual and multiple disabilities. J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-05-01 I Hamouda,K Baumstarck,M-A Aim,A Beltran Anzola,A Loundou,T Billette de Villemeur,L Boyer,,P Auquier,M-C Rousseau
BACKGROUND In recent decades, progress has been made in the care of people with polyhandicap/profound intellectual and multiple disabilities (PIMD) through a better understanding of the pathophysiology and the development of new care management and rehabilitation strategies adapted to these extreme pathologies. Although there is a lack of knowledge about the health status and care management of the
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Issue Information J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-04-25
No abstract is available for this article.
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Association of behavioural and social–communicative profiles in children with 16p11.2 copy number variants: a multi‐site study J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-04-24 J. Verbesselt, L. K. Walsh, M. W. Mitchel, C. M. Taylor, B. M. Finucane, J. Breckpot, I. Zink, A. Swillen
BackgroundDespite the established knowledge that recurrent copy number variants (CNVs) at the 16p11.2 locus BP4–BP5 confer risk for behavioural and language difficulties, limited research has been conducted on the association between behavioural and social–communicative profiles. The current study aims to further delineate the prevalence, nature and severity of, and the association between, behavioural
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Focused attention and intrinsic motivation using animations for instruction of fundamental motor skills in children with Down syndrome J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-04-22 D. Bridi, N. C. Valentini, A. C. Deslandes, F. Copetti
BackgroundChildren with Down syndrome (DS) demonstrate poorer performance in locomotor and ball skills than children with typical development. During motor assessment, keeping children's attention and motivation is challenging, especially for children with DS, which may affect the test outcomes. This study aimed first to examine the impact of examiner and App‐animation demonstrations during the assessment
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Issue Information J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-04-18
No abstract is available for this article.
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Measurement protocols and determinants of peak oxygen consumption in adults with Down syndrome: a systematic review J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-04-11 T. I. M. Hilgenkamp, V. D. Y. Beck, F. Azar, M. Maloy‐Robertson, A. Matthews, M. Shahani, X. Goodman, A. Oppewal
This systematic review aimed to provide an overview of test protocols used to measure peak oxygen uptake (VO2peak) in adults with Down syndrome (DS) and to determine how generalisable the outcomes are for the entire population of adults with DS by describing the sample characteristics of these studies and their impact on VO2peak. A literature search (PROSPERO CRD42022309560) was performed (18 July
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Impact of the emotional development approach on psychotropic medication in adults with intellectual and developmental disabilities: a retrospective clinical analysis J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-03-28 B. F. Barrett, M. Wehmeyer, J. Kolb, T. Ostermann, T. Sappok
BackgroundCompared with the general population, adults with an intellectual developmental disorder (IDD) are more likely to develop mental health problems and to receive high levels of psychotropic medication, particularly antipsychotics. The emotional development (ED) approach may help to better understand the nature of challenging behaviour (CB) and tailor treatment and support accordingly. The aim
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Celiac disease in children and adolescents with Down syndrome: behavioural, adaptive and sleep profiles J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-03-21 E. Fucà, F. Costanzo, P. Galassi, L. Celestini, D. Valentini, S. Vicari
BackgroundIndividuals with Down syndrome (DS) exhibit higher risk for celiac disease (CD) than general population. Although literature suggests CD could be associated with behavioural problems in both paediatric and adult age, such association has been poorly explored in children and adolescents DS. Therefore, the current study aimed to investigate differences in emotional/behavioural difficulties
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Behavioural, developmental and psychological characteristics in children with germline PTEN mutations: a carer report study J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-03-20 K. Cummings, R. P. Dias, R. Hart, A. Welham
BackgroundPTEN is primarily known as a tumour suppressor gene. However, research describes higher rates of difficulties including intellectual disability and difficulties relating to autism spectrum conditions (ASCs) in people with germline PTEN mutations. Other psychological characteristics/experiences are less often reported and are explored in this study.MethodsThe parents of 20 children with PTEN
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Long‐term effects of environmental dynamic lighting on sleep–wake rhythm, mood and behaviour in older adults with intellectual disabilities J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-03-20 M. N. Böhmer, A. Oppewal, P. J. E. Bindels, E. J. W. van Someren, D. A. M. Festen
BackgroundSleep–wake problems and depressive symptoms are common in people with intellectual disabilities (IDs) and are thought to be related to the unstable sleep–wake rhythm in this population. Previously, we showed that after increasing environmental light exposure, mid‐sleep and sleep onset advanced, and mood improved over a period of 14 weeks after installing environmental dynamic light installations
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Effects of a dual‐task activity on gait parameters of people with and without intellectual disabilities J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-03-19 J. C. Cabrera‐Linares, P. Á. Latorre Román, J. A. Párraga Montilla, K. E. Andrade‐Lara, F. J. Ruiz‐Peralvarez, C. Gutierrez‐Cruz
BackgroundThe main objective of this study was to evaluate gait parameters in people with intellectual disability (ID) and without intellectual disability (WID) in two different walking conditions [single task vs. dual task (DT)]. A secondary aim was to evaluate the dual‐task cost (DTC) that the DT causes in each group.MethodsA total of 119 participants joined in this study: 56 ID (30 men) and 63 WID
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Effects of a 12‐week telehealth exercise intervention on gait speed and gait deviations in adults with Down syndrome J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-03-14 T. Hilgenkamp, R. Lum, C. Roys, T. Souza, D. Stopka, S. Mann, K.‐Y. Ho
BackgroundAltered gait patterns and reduced walking speed are commonly reported in adults with Down syndrome (DS). Research on the effects of DS‐specific exercise programmes on adults with DS is lacking. The purpose of this quasi‐experimental study was to evaluate the changes in gait deviations and walking speed in adults with DS after a DS‐specific exercise programme.MethodsTwenty participants underwent
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Issue Information J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-03-08
No abstract is available for this article.
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Translation and validation of prolonged grief disorder (PG‐13) scale in Urdu among bereaved adolescents with intellectual disability J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-03-06 N.‐u.‐a. Haider, N. I. Zaman
BackgroundThe study aimed to translate and validate the Prolonged Grief Disorder (PG‐13) scale from English into Urdu language. This involved examining its psychometric properties, evaluating its factor structure and assessing both convergent and discriminant validity. The study was conducted within the cultural context of Pakistan and focused on the assessment of manifestations of grief, including
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What explains regional variation in privately provided out‐of‐area residential placement costs for people with intellectual disability in Ireland? J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-03-06 J. Cullinan, T. O'Brien, E. Yacoub
BackgroundExpenditure on residential placements for people with intellectual disability (ID) in Ireland is considerable and expected to increase. Despite this, there is limited evidence on the factors driving variation in privately provided ‘out‐of‐area’ residential placement costs, including across Community Health Organisations (CHOs)/regions. This is important to help inform the delivery of services
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Active Support Measure: a multilevel exploratory factor analysis J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-02-27 L. Humphreys, C. Bigby, T. Araten-Bergman, T. Iacono
Active Support is a person-centred practice that enables people with intellectual disabilities (IDs) to engage in meaningful activities and social interactions. The Active Support Measure (ASM) is an observational tool designed to measure the quality of support that people with IDs living in supported accommodation services receive from staff. The aim of the study was to explore the underlying constructs
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Lifestyle modification interventions for adults with intellectual disabilities: systematic review and meta‐analysis at intervention and component levels J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-02-28 D. Rana, S. Westrop, N. Jaiswal, E. Germeni, A. McGarty, L. Ells, P. Lally, M. McEwan, C. Melville, L. Harris, O. Wu
BackgroundAdults with intellectual disabilities (IDs) are susceptible to multiple health risk behaviours such as alcohol consumption, smoking, low physical activity, sedentary behaviour and poor diet. Lifestyle modification interventions can prevent or reduce negative health consequences caused by these behaviours. We aim to determine the effectiveness of lifestyle modification interventions and their
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A systematic review and meta‐analysis of serum lipid concentrations in people with Down syndrome J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-02-26 Carolina Gastelum Guerrero, Yuridia Lizet Cháidez Fernández, Dalia Magaña Ordorica, Heidi Berger, Marilyn Vazquez Landrove, Alma Guadrón Llanos, Carla Angulo Rojo, Javier Magaña Gómez
BackgroundDown syndrome (DS) is the most prevalent chromosomal disorder, being the leading cause of intellectual disability. The increased life expectancy of individuals with DS has led to a shift in the incidence of non‐communicable chronic diseases, resulting in new concerns, particularly cardiovascular disease (CVD) and Alzheimer's disease. This study aimed to analyse the blood lipid profile of
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Supporting active engagement of adults with intellectual disabilities in lifestyle modification interventions: a realist evidence synthesis of what works, for whom, in what context and why J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-02-21 S. C. Westrop, D. Rana, N. Jaiswal, O. Wu, A. M. McGarty, C. Melville, L. Ells, P. Lally, M. McEwan, L. Harris, E. Germeni
Lifestyle modification interventions for adults with intellectual disabilities have had, to date, mixed effectiveness. This study aimed to understand how lifestyle modification interventions for adults with intellectual disabilities work, for whom they work and in what circumstances.
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Hospitalisation and mortality among privately insured individuals with COVID‐19 in the United States: The role of intellectual disabilities and Neurogenetic disorders J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-02-19 A. Davis, N. Copeland‐Linder, K. Phuong, H. Belcher, K. van Eck
BackgroundIndividuals with intellectual disabilities (IDs) and neurogenetic conditions (IDNDs) are at greater risk for comorbidities that may increase adverse outcomes for this population when they have coronavirus disease 2019 (COVID‐19). The study aims are to examine the population‐level odds of hospitalisation and mortality of privately insured individuals with COVID‐19 with and without IDNDs IDs
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Analysis of the centre of pressure in bipedal stance among individuals with and without intellectual disabilities, individuals with Down syndrome and dancers with Down syndrome J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-02-13 N. Massó-Ortigosa, F. Rey-Abella, L. Gutiérrez-Vilahú, R. Milà, M. Guerra-Balic, G. R. Oviedo
Individuals with intellectual disabilities (IDs) often present deficiencies in motor, balance and postural control. On the other hand, the practice of physical activity and dance usually reduces these deficiencies. Therefore, in this study, we aimed to compare the control of the centre of pressure (COP) in people with Down syndrome (DS) or other causes of ID in relation to people without disabilities
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Issue Information J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-02-05
No abstract is available for this article.
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Sexual experiences and knowledge of people with moderate intellectual disability J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-02-02 V. Estruch-García, M. D. Gil-Llario, O. Fernández-García
This study addresses the sexuality of people with moderate intellectual disabilities (PMID), a topic that has been little studied. Understanding romantic and sexual experiences is highly relevant for reducing stigma and prejudice related to their sexuality. Additionally, comprehending the level of sexual knowledge of PMID contributes to the development of preventive and sexual health education programmes
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Phenotyping Down syndrome: discovery and predictive modelling with electronic medical records J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-02-01 T. Q. Nguyen, C. I. Kerley, A. P. Key, A. C. Maxwell-Horn, Q. S. Wells, J. L. Neul, L. E. Cutting, B. A. Landman
Individuals with Down syndrome (DS) have a heightened risk for various co-occurring health conditions, including congenital heart disease (CHD). In this two-part study, electronic medical records (EMRs) were leveraged to examine co-occurring health conditions among individuals with DS (Study 1) and to investigate health conditions linked to surgical intervention among DS cases with CHD (Study 2).
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The stigma of intellectual disability in Spain: a nationally representative survey J. Intellect. Disabil. Res. (IF 2.1) Pub Date : 2024-01-23 S. Zamorano, A. B. Santos-Olmo, I. Sánchez-Iglesias, I. Muñoz-Lara, M. Muñoz
Stigma towards people with intellectual disability affects various aspects of their lives, including access to employment, housing, health and social care services. Furthermore, this stigma reduces their social opportunities and is even reflected in laws that diminish their autonomy. Due to the practical significance of this issue, the aim of this research is to explore for the first time the social