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Using a Capability Approach to Explore How People With Intellectual Disabilities Can Lead Flourishing Lives J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-09-13 Sara Ryan, Rosaleen O'Brien
BackgroundPeople with intellectual disabilities remain disadvantaged in many aspects of everyday life. Capability approach is an underused approach in social care research and has at its core the importance of having capabilities or opportunities to do what we value. We use this approach to explore how people with intellectual disabilities can be supported to lead flourishing lives.MethodsInterviews
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Negative and Positive Experiences During the COVID‐19 Pandemic in Canadians With Developmental Disabilities: A One‐Year Ontario‐Based Survey J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-09-11 Caroline Kassee, Patrick Jachyra, Vijitha Mahalingam, Ami Tint, Hsiang‐Yuan Lin, Stephanie H. Ameis, Adriana Di Martino, Yona Lunsky, Meng‐Chuan Lai
PurposeUnderstanding the experiences of people with developmental disabilities during the initial period of COVID‐19 pandemic.MethodsIndividuals with developmental disabilities and their caregivers completed baseline and up to five follow‐up online surveys using the CRISIS‐AFAR measures, between July 2020 and September 2021. We used qualitative (thematic analysis) and quantitative (MANOVA) analytic
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‘It's Not Like a One‐Way Street’: Using Photovoice to Understand How College Students With Intellectual Disability Experience Interdependence J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-09-11 Jessica N. Hoyle, Jan Warren‐Findlow, Lauren Wallace, James N. Laditka, Sarah B. Laditka
BackgroundMany people view people with intellectual disability primarily as needing help. That perspective limits relationships and can promote discrimination. We sought to better understand social relationships among young adults with intellectual disability.MethodSeven postsecondary students with intellectual disability participated in a photovoice study, sharing photos and stories about giving and
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Barriers and Facilitators to Sustainable Technology Implementation in Care for People With Disabilities—Real World Data From a Three‐Year Implementation Programme J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-09-06 Sanne van der Weegen, Agnes van der Poel, Eva Kagenaar, Ilse Bierhoff, Brigitte Boon
BackgroundImplementation issues often impede the realisation of the potential benefits of technology in disability care organisations for people with disabilities. Therefore, we conducted a longitudinal study to gain insights into the barriers and facilitators to implementation.MethodsFrom 2019 to 2022, data were collected using questionnaires and interviews during 28 implementation projects in 26
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Integrated service delivery for individuals with fetal alcohol spectrum disorder J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-09-05 Katherine Flannigan, Devon C. Edwards, Lisa Murphy, Jacqueline Pei
BackgroundIndividuals with fetal alcohol spectrum disorder (FASD) experience complex needs that often necessitate support from multiple systems. There is growing evidence that people with FASD may benefit from integrated service delivery (ISD), but little is known about ISD elements and processes for this population.MethodUsing a multi‐method approach involving a literature review, analysis of programme
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The Use of Snoezelen to Support People With Profound Intellectual and Multiple Disabilities: An International Survey Describing the Perspectives of Support Persons J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-08-30 Gemma Testerink, Annet ten Brug, Gerdine Douma, Annette van der Putten
BackgroundSnoezelen is often used for people with profound intellectual and multiple disabilities, but scarcely evaluated. This study aimed to provide insight into the application and perceived effects of snoezelen from the perspective of support persons.MethodWe conducted an international survey with professionals (n = 130) and relatives (n = 8) supporting people with profound intellectual and multiple
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‘A potentially ticking time bomb’ – barriers for prevention, diagnosis, and treatment of cardiovascular disease in people with intellectual disabilities J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-08-30 Tanja Plasil, Ellen Margrete Iveland Ersfjord, Kim Berge, Line M. Oldervoll
BackgroundResearch suggests that people with intellectual disabilities have a higher risk for cardiovascular disease than the general population. The aim of this study was to identify barriers for the prevention, diagnosis, and treatment of cardiovascular disease for people with intellectual disabilities.MethodWe conducted individual interviews with relatives and general practitioners and focus group
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Easy read health information for people with intellectual disabilities: A linguistic discourse analysis. What happens to language when it is simplified? J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-08-29 Susan Buell, Gabrina Pounds, Peter Langdon, Karen Bunning
IntroductionEasy Read health documents prepared for people with intellectual disabilities are often generated from Standard Texts. Language in Easy Read versions is typically assumed to be simpler. However, simplification of language may have unintended consequences. This study aimed to explore the differences in language used between Easy Read health material and the Standard Text versions of the
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Understanding capabilities, opportunities and motivations to engage in physical activity for adults with intellectual disabilities: A qualitative evidence synthesis J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-08-29 Sophie C. Westrop, Laura Maenhout, Craig A. Melville, Arlene M. McGarty
BackgroundThere is a paucity of theory‐informed physical activity research with adults with intellectual disabilities. This study aimed to address this by synthesising existing literature and applying the COM‐B model to understand capabilities, opportunities and motivations.MethodsA qualitative evidence synthesis was conducted and reported in accordance with PRISMA guidelines and the ENTREQ. Three
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A systematic review and meta‐analysis of the effectiveness of interventions targeting the parent–child relationship in families of children with an intellectual disability J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-08-28 Freya Westlake, Meryl Westlake, Vaso Totsika
BackgroundThe review aimed to investigate the effectiveness of parent–child relationship interventions for families of children with intellectual disability up to 12 years old.MethodsQuasi‐experimental or randomised controlled trials (RCTs) of interventions targeting the parent–child relationship where ≥50% of children had an intellectual disability were included. Meta‐analyses of parent–child relationship
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The association between aggressive behaviour and non‐suicidal self‐injury and shared risk factors in adults with mild intellectual disability J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-08-28 Marlieke van Swieten, Peter de Looff, Joanneke VanDerNagel, Robert Didden
BackgroundAggressive behaviour (AB) and non‐suicidal self‐injury (NSSI) are common in people with mild intellectual disability or borderline intellectual functioning, leading to adverse consequences for themselves and those around them.MethodWe investigated the relationship between AB (both total and physical in particular) and NSSI and risk factors in 125 residents in a treatment clinic using incident
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Process evaluation of a parenting intervention for pre-schoolers with intellectual disabilities who display behaviours that challenge in the UK. J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-09-01 Tamara Ondrušková,Kate Oulton,Royston Royston,,Angela Hassiotis
BACKGROUND Stepping Stones Triple P (SSTP) is a complex parent-mediated intervention aimed to reduce behaviours that challenge in children with moderate to severe intellectual disabilities, aged 30-59 months. METHODS To formulate a comprehensive understanding of SSTP implementation in the UK, we conducted a process evaluation collecting stakeholder views and considering intervention fidelity, dose
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Including significant others in psychological therapy with people with intellectual disabilities: A national survey of the practice of UK psychologists J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-08-22 Laura Surley, Dave Dagnan, Kate Lawson, Andrew Jahoda
BackgroundTalking therapy for people with intellectual disabilities is often specifically adapted. One adaptation is the involvement of significant others in therapy, however, there is no systematic description of the use of this adaptation in routine clinical practice.MethodAn online survey of UK psychologists regarding the inclusion of significant others in individual therapy with people with intellectual
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Attitudes of direct support professionals and management staff towards intellectual disability in specialised services J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-08-22 Isabelle Assouline, Diane Morin
BackgroundAttitudes towards intellectual disability play an important role in the social inclusion and well‐being of persons with intellectual disability. Few studies have examined attitudes of staff working in the specialised service industry, which may have an even greater impact. This study aimed to better understand these attitudes.MethodsA sample of 157 direct support professionals and 38 managers
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Item‐validity analysis of the SED‐S in a multicentre study of adults with intellectual disabilities J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-08-16 Hauke Hermann, Annemieke Witte, Gloria Kempelmann, Brian F. Barrett, Sandra Zaal, Jolanda Vonk, Filip Morisse, Anna Pöhlmann, Paula S. Sterkenburg, Tanja Sappok
BackgroundValid and reliable instruments for measuring emotional development are critical for a proper diagnostic assignment in individuals with intellectual disabilities. This exploratory study examined the psychometric properties of the items on the Scale of Emotional Development—Short (SED‐S).MethodThe sample included 612 adults with intellectual disabilities (Mage = 37.35, SDage = 13.27; 59.8%
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What does ‘feeling at home’ mean for adults with intellectual disabilities living in group homes in England? J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-08-15 Deborah Chinn, Tony Levitan, Andrew Power, Katy Brickley, Shalim Ali
BackgroundShared housing for adults with intellectual disabilities with staff support, is a common housing model internationally. We explored an overlooked aspect of group homes, namely the extent to which they enable a sense of ‘feeling at home’ for residents.MethodA diverse group of 19 housemates participated in a photovoice study. Participants took photos in their homes and discussed them in individual
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Preliminary feasibility study of a cognitive stimulation therapy programme for older adults with an intellectual disability J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-08-15 Rosemary MacHale, Emma NíNeill, Cathy Wyer, Emma Corley, Brian E. McGuire
BackgroundDespite the increased risk for people with an intellectual disability developing dementia, post‐diagnostic psychosocial supports such as cognitive stimulation therapy (CST) are not routinely offered and there is limited research examining this intervention with people with intellectual disabilities. The aim of this study was to explore the feasibility of CST for older adults with intellectual
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How are medical students learning to care for patients with intellectual disabilities? A scoping review J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-08-12 Hana Anderson, Amy C. Studer
BackgroundIndividuals with intellectual disabilities experience barriers to quality healthcare. To reduce this disparity, equipping medical trainees with the knowledge and skills required for treating this patient population is critical. Our aim is to describe the breadth of instructional interventions and identify gaps in intellectual disability medical education curricula.MethodUsing scoping review
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Feasibility and acceptability of a culinary nutrition programme for adults with mild‐to‐moderate intellectual disability: FLIP Food and Lifestyle Information Programme J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-08-06 R. C. Asher, V. A. Shrewsbury, B. Innes, A. Fitzpatrick, S. Simmonds, V. Cross, A. Rose, E. Hinton, C. E. Collins
BackgroundCulinary nutrition education can support improved diet‐related health and wellbeing. This pre‐post pilot study aimed to assess feasibility and acceptability of an eight‐session culinary nutrition programme, the Food and Lifestyle Information Programme (FLIP), for adults with mild‐to‐moderate intellectual disability. A secondary aim was to evaluate preliminary programme effectiveness.MethodParticipants
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Medicaid long‐term services and supports and caregiving needs of caregivers of individuals with intellectual and developmental disabilities J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-08-06 Ariana M. Mastrogiannis, Caren Steinway, Telmo C. Santos, Jack Chen, John Berens, Thomas Davis, Michelle Cornacchia, Jason Woodward, Ilka Riddle, Brittany Spicer, Charmaine Wright, Lee A. Lindquist, Sophia Jan
BackgroundLong‐term care services are funded primarily by Medicaid long‐term services and support in the United States, where eligibility is based on care needs of the individual with intellectual and developmental disability alone. Impact of Medicaid waiver services on self‐reported caregiver needs is not well understood.MethodCaregivers (n = 405) of individuals with intellectual and developmental
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Exploring the experience of working relationships for support workers of adults with intellectual disabilities J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-08-02 Rachel D'Sa, Ian Fletcher, Stephen Field
BackgroundResearch suggests that a better awareness of how staff who directly support people with intellectual disabilities experience their working relationships, will contribute to understanding staff wellbeing and the quality of care they offer. This study aimed to gain insights into the lived experiences of support workers in supported living services in England.MethodSix support workers participated
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The home literacy environment of school‐age autistic children with high support needs J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-08-02 Marleen F. Westerveld, Stephanie A. Malone, Sally Clendon, Rachael Bowen, Georgia Hayley, Jessica Paynter
BackgroundAs a group, autistic children with high support needs (with adaptive functioning in the range of an intellectual disability) are at risk of significant literacy difficulties. We investigated the parent‐reported home literacy environment of this group of children.MethodSixty‐two parents of autistic children (4.5 to 18.25 years) attending an autism‐specific school completed a home literacy
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The meaning of adulthood for emerging adults with Down syndrome: Parent perspectives on relevant skills J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-07-30 Katherine L. Long, Atefeh Karimi, Antonella Mini, Dionne P. Stephens, Eliza L. Nelson
BackgroundParents' conceptualizations of adulthood for their emerging adults with Down syndrome have the potential to impact the transition planning process as families prepare for life after graduation.AimsThis study aimed to explore parent perceptions of the meaning of adulthood for their emerging adults with Down syndrome.MethodsIn this qualitative study, we interviewed 11 parents of emerging adults
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Behavioural interventions to treat anxiety in adults with autism and moderate to severe intellectual disabilities: The BEAMS‐ID feasibility study J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-07-30 Peter E. Langdon, Magdalena M. Apanasionok, Emma Scripps, Alastair Barrowcliff, Asit Biswas, Karen Bunning, Cheryl Burbidge, Katherine Byron‐Daniel, Alex Cookson, Sarah Croom, Malwina Filipczuk, David Gillespie, Richard P. Hastings, Andrew Jahoda, Rachel McNamara, Lawrence Patterson, Dheeraj Rai, Robyn Steward, Kylie M. Gray
BackgroundThe aim of this feasibility study was to adapt and model a behavioural intervention for anxiety with autistic adults with moderate to severe intellectual disabilities.MethodTwenty‐eight autistic adults with moderate or severe intellectual disabilities, 37 carers, and 40 therapists took part in this single‐group non‐randomised feasibility study designed to test intervention feasibility and
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What makes life better or worse: Quality of life according to people with intellectual disabilities J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-07-29 Holli M. Holmes, W. Ben Mortenson
BackgroundPeople with intellectual disabilities are rarely involved in research on quality of life. The study sought to answer the question: what do people with intellectual disabilities believe improves or hinders their quality of life?MethodUsing an inclusive, accessible research design, 18 participants met in small groups to answer the study's question using their choice of arts‐based media. Participants
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Prevalence of dental caries among children and adolescents with intellectual disability in India: A scoping review J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-07-27 Philcy Philip, Praveen Prasanna, Ravi Vijaya Remi, Reena Samuel, Willy T. George, Martina Shalini Arul Joseph, Mathew Lim, Gregory Armstrong, Nathan Grills
BackgroundChildren with intellectual and developmental disabilities are at a higher risk of developing dental caries. Few scoping reviews have been conducted in India to understand their issues. We aimed to summarise the distribution and risk factors of dental caries among children and adolescents with intellectual disabilities in India.MethodsA scoping review was conducted based on the Arksey O Malley
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What do people with intellectual disabilities, their family members and paid carers understand about psychotropic medication? A rapid review J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-07-23 Dawn E. Cavanagh, Sue Caton, Jodie Rawles, Katherine Runswick‐Cole, Chris Hatton, Umesh Chauhan, Christine Hutchinson
BackgroundPeople with intellectual disabilities are more likely to be prescribed psychotropic medication than the general population and are frequently prescribed multiple medications. Understanding people with intellectual disabilities and carer perspectives is essential to improving the quality of psychotropic medication prescribing and usage.MethodA rapid review explored people with intellectual
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The relationship of stereotypes, social distance and sexuality knowledge with attitudes towards sexuality of people with mild intellectual disabilities J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-07-16 Ana Belén Correa, Ángel Castro, María Dolores Gil‐Llario
BackgroundThe present study examines the relationship between stereotypical beliefs about people with intellectual disabilities, desire for social distance, and general knowledge about human sexuality with attitudes towards the sexuality of adults with mild intellectual disabilities.MethodTwo hundred fifty participants from staff, family and community samples completed an online set of questionnaires
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Measurement of basic psychological needs for physical activity participation for college students with intellectual disabilities: A validation study J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-07-10 Myung Ha Sur, Deborah R. Shapiro, Hongli Li
BackgroundMeasurement instruments to understand self‐determined motivation towards physical activity among college students with intellectual disabilities are needed to develop programs to support physical and psychological health and well‐being. The purpose of the current study was to validate a modified questionnaire measuring basic psychological needs towards physical activity among college students
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Experiences of family carers in providing care to children with intellectual disabilities in India: A qualitative evidence synthesis J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-07-09 Kumaresan Cithambaram, D. Corby, Shankar Shanmugam Rajendran
BackgroundIndia has a significant prevalence of people with intellectual disabilities. Despite their higher prevalence, they receive poor support. Therefore, this review aims to explore the experiences of family carers in providing care for children with intellectual disabilities in India.MethodsA qualitative evidence synthesis was undertaken, searching databases such as MEDLINE, CINAHL, Web of Science
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Development of a sexual consent intervention for adolescents with intellectual and developmental disabilities J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-07-05 Alison Greene, Mika Baugh, Catherine Sherwood‐Laughlin, Lisa Greathouse, Jordyn Galyan, Ivanka Simic Stanjovic, Dechen Sangmo, Kristen Jozkowski, Melissa Dubie, Angela Chow
BackgroundTailored sexuality education for adolescents with intellectual and developmental disabilities is a crucial, yet unmet, need as this population is particularly at risk for sexual abuse and victimisation. However, there are no evidence‐based interventions to specifically address this need. This paper presents the development of an intervention framework to address equity in sexuality education
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Optimising the oral midazolam dose for premedication in people with intellectual disabilities and/or autism spectrum disorder. J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-07-01 Hitoshi Higuchi,Kota Miyake,Saki Miyake,Maki Fujimoto,Yukiko Nishioka,Shigeru Maeda,Takuya Miyawaki
BACKGROUND In people with intellectual disabilities and/or autism spectrum disorder, oral midazolam (OM) is very effective as premedication for facilitating medical treatment. In this retrospective study, we investigated the optimal dosage of OM for premedication. METHODS Patients with intellectual disability and/or autism spectrum disorder who were given OM as a premedication were selected from anaesthesia
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Evaluating the effectiveness of the Complex Behaviour Forum-A multisystem approach to supporting people with complex challenging behaviour. J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-07-01 Trent Carberry,Sarah Hutchison,Simon Wardale,Rebeka Demir,Maria Vassos
BACKGROUND This study assessed the effectiveness of a cross-departmental case review panel-the Multicap Complex Behaviour Forum (CBF)-in reducing challenging behaviour exhibited by people with intellectual disabilities. METHODS Thirty participants (15 CBF participants and 15 matched-control participants) took part in the study. Behavioural data was collected for each CBF participant (and their matched
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A personal narrative intervention combined with self-monitoring strategies: Outcomes for Mandarin-speaking adolescents with Down syndrome. J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-07-01 Huan Li,Hongyu Wu,Li Deng,Shuo Zeng,Jing Yu,Yueling Luo,Congyun Guo
BACKGROUND Personal narratives play an essential role in children's social and academic development. However, children with Down syndrome have ongoing challenges with constructing and communicating personal narratives. METHODS Using a single-case multiple-probe across participants design, we examined whether a targeted intervention could improve both micro- and macro-structural aspects of personal
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Barriers and facilitators influencing implementation of care technology for people with intellectual disabilities: A cross‐sectional study among care professionals J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-07-01 Nienke M. Siebelink, Annemarije Gaasterland, Marieke Gielissen, Sanne van der Weegen, Brigitte Boon, Agnes van der Poel
BackgroundImplementation issues often hinder reaching the potential of care technology to improve daily lives of people with intellectual disabilities. We investigated barriers to and facilitators of implementing different technology modalities (app/social robot/sensor/domotics) in long‐term care.MethodCare professionals (N = 83) from 12 Dutch disability care organisations completed a customised measurement
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Organisational culture in ‘better’ group homes for adults with intellectual and developmental disabilities in England: A qualitative study J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-06-28 Diane Fox, Julie Beadle‐Brown, Jill Bradshaw, Christine Bigby, Lisa Richardson
BackgroundPrevious research identifies organisational culture as one of a number of factors associated with the quality of life outcomes of group home residents' with intellectual and developmental disabilities. This study aims to elaborate on the dimensions of group home culture in settings in England.MethodParticipant observations and semi‐structured interviews with staff were carried out in two
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‘Key skills’ building in schools as a possible approach to reducing and preventing challenging behaviour J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-06-28 Heather Armstrong, Claire McDowell, Gerard Leavey, Louise D. Denne
BackgroundBuilding ‘key skills’ may help prevent the development of challenging behaviour in children with an intellectual disability. The aim of this paper was to extend the current limited evidence in this area.MethodWe undertook two studies with children with an intellectual disability in school settings: (1) a cross‐sectional replication study exploring the relationship between ‘key skills’ and
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‘Walk Buds’: A walking intervention to increase physical activity, physical fitness, and emotional wellbeing, in 9–13 year old children with intellectual disabilities. Results of a clustered randomised feasibility trial J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-06-28 Peter Mullhall, Laurence Taggart, Gary McDermott, Paul Slater, Ben Fitzpatrick, Marie H. Murphy, Angela Hassiotis, Anne Johnston
BackgroundChildren with intellectual disability are less physically active and more sedentary than typically developing peers. To date no studies have tested the feasibility of a school‐based walking intervention for children with Intellectual Disability.MethodA clustered randomised controlled trial (cRCT), with an embedded process evaluation, was used to test the feasibility of a school‐based walking
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With the best intentions: Implications on self‐determination during Covid‐19 restrictions J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-05-30 Line Melbøe, Aina Aune Kane
BackgroundIn times of crisis, the interests of the individual might be sacrificed for the health and safety of others. The aim of this study was to explore the situation under Covid‐19 for persons with intellectual disabilities, focusing on implications on the right to self‐determination within health protection.MethodTo understand how the relevant legal framework was governed by authorities and service
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Developing the self‐determination of children and young people with intellectual disabilities in schools: A systematic review of the literature J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-05-27 Sierra Angelina Willow, Iva Strnadová, Joanne Danker
BackgroundSelf‐determination is associated with lifelong positive outcomes. Students with intellectual disabilities typically have lower self‐determination than their peers. Universal basic education access offers schools the opportunity to rectify this disparity. This is the first systematic review investigating the school‐based practices that target self‐determination development for students with
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Experiences of verbal violence among people with intellectual disabilities in Israel J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-05-24 Nirit Karni‐Vizer, Eugene Brusilovskiy, Mark Salzer
BackgroundThis study examines the extent of exposure to verbal violence experienced by people with intellectual disabilities and whether it differs based on their housing situation: living in the community, with family, or in a residential facility.MethodOne hundred and eighty‐nine people with intellectual disabilities were interviewed about their experience with verbal violence.ResultsEighty‐six percent
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A behavioural description of meaningful moments of interaction between people with profound intellectual disabilities and support staff J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-05-21 Wieneke Penninga, Alexander H. C. Hendriks, Hedwig J. A. van Bakel, Petri J. C. M. Embregts
BackgroundIt can be challenging for support staff to develop meaningful moments of interaction with people with profound intellectual disabilities. Gathering information on observable behaviour characterising such meaningful moments is expected to be beneficial.MethodThree staff‐client dyadic interactions were videotaped for 30 min. During reviewing the recording, staff members indicated which moments
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Program logic of a service collaboration to support parents with intellectual disability J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-05-16 Elizabeth Jane Doery, Jay Varcoe, Michelle Benstead, Matin Ghayour‐Minaie, Rebecca Sheils, Siobhan Kavanagh, Keriann Little, Allie Pert, John W. Toumbourou
BackgroundThis article describes the Steps to Confident Parenting (SCP) program, developed by an Australian family service consortium. The SCP integrates home‐based and case‐management services to enhance the skills of parents with a diagnosed or suspected intellectual disability/cognitive impairment and to prevent child protection interventions.Method‘Program explication’ methodology documented the
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School‐based targeted prevention for children with mild intellectual disabilities or borderline intellectual functioning and behaviour problems: A pilot implementation study J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-05-16 E. Kühl, M. Deković, S. Thomaes, I. Koning, J. M. Liber
BackgroundWe examined the implementation and potential effectiveness of a school‐based targeted prevention programme addressing behaviour problems, adapted for children with mild intellectual disabilities or borderline intellectual functioning.MethodThirteen children participated. The intervention was implemented in schools. We examined intervention dosage, reach, responsiveness, satisfaction, and
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The use of proxy measurement of internal states in people with intellectual disability: A scoping review J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-05-15 Kristen Webb, Monica Cuskelly, Ceridwen Owen
BackgroundThe measurement of internal states of people with an intellectual disability is challenging. Given these difficulties, proxy respondents are sometimes used. However, the literature provides some caution about the validity of the use of proxy respondents.AimsThis review aims to identify the available evidence regarding the use of proxy respondents in the measurement of internal states of people
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How do people with intellectual disabilities understand friendship? A systematic meta‐synthesis J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-05-11 Isabel Jackson, Dave Dagnan, Laura Golding, Kelly Rayner‐Smith
BackgroundPrevious systematic reviews of the relationships of people with intellectual disabilities have included consideration of intimate relationships. In this paper, we report a systematic review of papers describing friendship only.MethodA systematic qualitative meta‐synthesis of the research exploring experiences of friendship as reported by people with intellectual disabilities.ResultsSeven
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Barriers to physical activity participation for adults with intellectual disability: A cross‐sectional study J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-05-08 Henriette Michalsen, André Henriksen, Gunnar Hartvigtsen, Monica Isabel Olsen, Erlend Refseth Pedersen, Erik Søndenaa, Reidun Birgitta Jahnsen, Audny Anke
BackgroundIdentifying barriers that can be modified to promote physical activity is important for informing health interventions for adults with intellectual disabilities.ObjectivesExploring participation in physical activity considering age, sex, living conditions, and health conditions. Further, identifying barriers significantly associated with sedentary activity after adjustment for physical activity
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Treating traumatized children with intellectual disabilities: Tailoring Trauma‐Focused Cognitive Behaviour Therapy for a vulnerable population J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-05-08 Daniel W. Hoover, Tabitha C. Fleming, Maria Khan
BackgroundChildren with intellectual disabilities are at heightened risk for traumatization, though underserved due to silos of care, diagnostic overshadowing, and lack of adapted treatment. Trauma‐Focused Cognitive Behavioural Therapy (TF‐CBT), an evidence‐based childhood trauma therapy, is described with recommended adaptations for use with children who have intellectual disabilities.MethodWe present
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Perceived barriers and enablers to utilising the Australian National Disability Insurance Scheme for adults with an intellectual disability and their families: A scoping review J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-04-24 Alice Zubrinich, Gideon de Jong, Nasim Salehi, Richard Lakeman
BackgroundThe introduction of the National Disability Insurance Scheme (NDIS) in Australia in 2013 promised significant improvements in the lives of adults with intellectual disabilities. Although the scheme enables support, there are challenges associated with establishing eligibility and administering funds. This scoping review explored perceived barriers and enablers to effectively utilising the
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The feasibility of an adapted virtual mindfulness intervention for Special Olympics athletes and their caregivers J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-04-22 Brianne Redquest, Chris A. Clark, Hangsel Sanguino, Yona Lunsky, Sue Hutton, Jonathan Weiss, Tom Davies, Carly A. McMorris
BackgroundVirtual mindfulness may be helpful for individuals with intellectual disabilities in the context of COVID‐related disruptions of in‐person programming, such as Special Olympics (SO). This study examined the feasibility of a virtual mindfulness intervention for SO athletes and their caregivers.MethodSO athletes (n = 44) and their caregivers (n = 29) participated in a 6‐week adapted virtual
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Understanding experiences of ‘Gig Buddies’: A befriending scheme for people with intellectual disabilities J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-04-16 Fiona Brand, Katrina Scior, Alana Loewenberger
BackgroundResearch into befriending for people with intellectual disabilities is limited. This study aimed to explore the impact, mechanisms of change, and limitations of a befriending scheme for adults with intellectual disabilities and/or autism.MethodsParticipants were recruited using convenience sampling. Thirteen individuals with intellectual disabilities and/or autism were interviewed and data
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Initiatives to facilitate the social inclusion of people with intellectual disability in physical activities with others in community‐based sporting, recreation and leisure activities: A scoping review J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-04-16 Eli Ristevski, Fiona McCook, Sharyn Thompson, Zoe Duncan, Bill Lawler, Carole Broxham
BackgroundWhile barriers to participation in physical activity are well documented, there is no consolidated evidence on strategies promoting participation of people with intellectual disability in physical activities.MethodsWe conducted a scoping review to examine initiatives used to facilitate the inclusion of people with intellectual disability in community‐based sporting and recreation activities
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Preliminary translation of ‘Reducing Disability in Alzheimer's Disease’ among individuals with intellectual disabilities and caregiver dyads J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-04-16 Lauren T. Ptomey, Kelli Barton, Emma Swinford, Amy Bodde, Amanda George, Anna M. Gorczyca, C. Michelle Niedens, Susan C. Sprague, Amy Yeager, Brian Helsel, Linda Teri, Eric D. Vidoni, Jaime Perales‐Puchalt
BackgroundThe Reducing Disability in Alzheimer's Disease in Kansas City (RDAD‐KC) intervention has been shown to improve the health of individuals with dementia and caregiver dyads. This manuscript reports the results of implementing the RDAD among individuals with intellectual disabilities and caregiver dyads.MethodsNine community agencies deployed the 12‐week intervention. We assessed changes in
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Prolonged exposure treatment for post‐traumatic stress disorder: Single case studies in a sample of adults with mild intellectual disabilities J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-04-15 Paul Prins, Karin Nijhof
BackgroundPost‐traumatic stress disorder (PTSD) is common in adults with intellectual disabilities. Often there are additional disorders such as substance use, mood and anxiety disorders. The current study focuses on the feasibility and initial efficacy of prolonged exposure (PE) for PTSD in adults with mild intellectual disabilities. The secondary effect of PE on additional mood, anxiety and substance
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Expectant parents with intellectual disabilities in child protection: Risk factors for child safety J. Appl. Res. Intellect. Disabil. (IF 2.1) Pub Date : 2024-04-05 Annick Zijlstra, Tessel Sterenborg, Maroesjka van Nieuwenhuijzen, Bram O. de Castro
BackgroundNewborns of parents with intellectual disabilities face higher risks in their environment for child unsafety, despite parents' good intentions. To help parents prevent unsafe circumstances, a good understanding of the risk factors faced by these parents is needed.MethodsThis casefile study examined (1) which risk factors were present for expectant parents with intellectual disabilities in