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Evaluation of a nature-based virtual reality intervention to support hospice caregivers: a pilot feasibility study BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-09-18 Rebecca H Lehto, Arienne Patano, Mohammed Alanazi, Gary Bente, Andrew Mason, Grace Caldwell, Dawn Goldstein, Gwen Wyatt
Objectives Hospice family caregivers (CGs) may experience poor emotional health and diminished quality of life (QOL) secondary to stressors that accompany home-based end-of-life caregiving. Innovative flexible strategies are needed to support hospice CGs in their homes. Being outdoors in nature enhances well-being but is often not accessible to home-based CGs. The purpose was to evaluate the feasi
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Do not attempt cardiopulmonary resuscitation decision-making process: scoping review BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-09-10 Owen Doody, Hope Davidson, John Lombard
Objectives To conduct a scoping review to explore the evidence of the process of do not attempt cardiopulmonary resuscitation (DNACPR) decision-making. Methods We conducted a systematic search and review of articles from 1 January 2013 to 6 April 2023 within eight databases. Through multi-disciplinary discussions and content analytical techniques, data were mapped onto a conceptual framework to report
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Physical activity and prognosis and factors associated with low physical activity in patients with advanced or recurrent lung cancer: a retrospective, observational study BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-09-05 Takuya Fukushima, Utae Katsushima, Naoya Ogushi, Kimitaka Hase, Jiro Nakano
Objectives To investigate the relationship between physical activity and prognosis, and the significant factors associated with physical activity in patients with advanced or recurrent lung cancer. Methods This retrospective, observational study enrolled 50 outpatients with lung cancer who received chemotherapy. Patients were evaluated for physical function, physical activity (International Physical
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Severe itch from miliaria managed with propantheline: a case report BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-09-05 Ronald Wai, Brodie Sheahen, Benjamin Thomas
Itch is a common symptom faced in palliative care. In this case report, we present a patient in his 80s with a background of prostate and bladder cancer who fell and was subsequently immobile following a resultant vertebral fracture. He experienced persistent and distressing pruritis during his hospital stay. This case highlights the assessment and management of pruritis in a palliative care setting
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Rethinking palliative care inside a cancer centre BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-09-03 Silvia Tanzi, Francesca Sassi, Cinzia Cavalli, Cristina Autelitano, Sara Alquati, Simona Sacchi, Elisabetta Bertocchi, Loredana Buonaccorso
We read the article by Bandieri et al 1 with great interest, and found our own experience as an in-hospital palliative care unit very much in agreement with their findings: ‘In clear antithesis to the common perception of end-of-life palliative care being synonymous with death and the absence of hope, EPC interventions have instead been described as an intervention that effectively counteracts pain
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Parenteral lacosamide for complex neuropathic pain BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-09-03 Helen Crispin, Andrew Jenks
In palliative care, we have a small number of parenteral medication options for the management of neuropathic pain; including sodium valproate, clonidine, methadone, ketamine and clonazepam.1 As a specialty, complex clinical situations may require us to innovate and use unlicensed medications or routes of administration to manage patients. Here, we present the case of a patient in whom parenteral lacosamide
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Palliative care healthcare professionals’ perspective on the Assisted Decision-Making (Capacity) Act 2015 in Ireland BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-08-31 Hannah Joan Featherstone, Regina McQuilllan, John Lombard, Geraldine Foley
Objectives People receiving end-of-life care often require assistance with decision-making. We aimed to ascertain from the perspective of palliative care healthcare professionals in Ireland, the impact of the Assisted Decision-Making (Capacity) Act 2015 (as amended) in Ireland on their practice for end-of-life care decision-making with patients and family caregivers. Methods A qualitative study comprising
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Anti-fibrinolytics for mucosal bleeding in adults with life-limiting illnesses: a systematic review BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-08-30 Emma Hooson, Fiona Hargreaves, Emily Holdsworth, Sarah Longwell, Alice Pullinger, Andrew Gill
Introduction Patients with life-limiting illnesses are at increased risk of mucosal bleeding. Usual management includes anticipatory planning and sedation, alongside anti-fibrinolytics, despite a lack of evidence for their use. Anti-fibrinolytic agents (tranexamic acid and aminocaproic acid) produce effective haemostasis in different clinical settings. Our aim was to synthesise the evidence for anti-fibrinolytic
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Myofascial pain syndrome in patients with cancer: a narrative review BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-08-29 Naruaki Kawasaki, Hiroto Ishiki, Sayaka Arakawa, Eriko Satomi, Hiromichi Matsuoka, Hideaki Hasuo
Purpose Myofascial pain syndrome (MPS) is a chronic musculoskeletal pain syndrome. The purpose of this review is to describe the epidemiological and treatment evidence and to address the future research agenda in patients with cancer. Methods A narrative review of previous reports investigating the prevalence and treatment of MPS in the oncology field is presented. The target population is patients
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Nutritional support clinical efficacy in tuberculosis: quasi-experimental study BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-08-28 Yi Li, Hong Zhou, Chuan Zhao, Min Tan, Li Shu, Feng Yang
Objective This study aimed to investigate the impact of nutritional support on the clinical efficacy in hospitalised tuberculosis patients with nutritional risk. Methods We selected a total of 266 eligible patients with tuberculosis for the experimental and 190 patients for control groups. The patients in intervention group received adjusted dietary structure, enteral nutrition via oral intake or gastric
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Incidence and outcomes of falls in an inpatient palliative care unit: a single-centre retrospective study BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-08-28 Paul Stack, Amanda Fischer, Phillip Good
Background Falls are a significant concern in healthcare settings. While comprehensive strategies to prevent falls are employed in hospitals, there is a lack of information regarding falls within inpatient palliative care units. Method This retrospective cohort study analysed fall incidence, characteristics and outcomes in a metropolitan inpatient palliative care unit over a 1 year period. Falls were
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Repeated radiological procedures in the last 6 months of life in old age: a retrospective study BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-08-27 Joseph Hawkins, Sam Beardsmore-Rust, Myra Adra, Zoe Halford
Objectives This novel study looks at the use of radiological procedures in an elderly cohort of patients in their last 6 months of life. Radiological imaging plays a central part of clinical investigations, but too many may override the judgement of benefits, risks and resources. There is little information on the burden of radiological procedures performed towards the end of life in patients of old
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Correction: Palliative care screening tools in Japan: cross-sectional utility study BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-08-24 British Medical Journal Publishing Group
Minato M, Kosaka S, Higuchi M, et al . BMJ Supportive, …
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Palliative care screening tools and patient outcomes: a systematic review BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-08-24 Meiying Zhang, Yuxia Zhao, Mengyun Peng
Background Palliative care (PC) refers to providing patients with physical, psychological, mental, and other care and humanistic care services in a multidisciplinary collaborative mode with end-of-stage patients and family members as the centre. The PC screening tool (PCST) was developed to identify individuals who may benefit from PC services and is widely assumed to improve patient outcomes. Objectives
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Private sector business interactions with bereaved people: UK Commission on Bereavement secondary analysis BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-08-24 Jodie Crooks, Rachel Warren, Briony Hudson
Objectives Evidence suggests that 61% of adults who were bereaved in the past 5 years had difficulties with at least one practical or administrative task following bereavement. We aimed to explore individual’s experiences of interacting with private sector businesses following a bereavement. Methods Qualitative secondary analysis of data collected via an online survey within the UK Commission on Bereavement
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Mindful breathing for cancer pain: efficacy of a single 20-minute session – a randomised controlled study BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-08-20 Seng Beng Tan, Chee Shee Chai, Diana Leh Ching Ng, Sheriza Izwa Zainuddin, David Paul Capelle, Chee Loong Lam, Chui Munn Ang, Win Lin Chai, Nik Natasha Nik Ishak, Yu Xiang Ong, Ying Xi Ngu
Objectives Cancer pain is a prevalent and challenging symptom affecting a significant number of patients globally, with inadequate control remaining a substantial challenge despite advancements in pain management. Non-pharmacological interventions, including mindfulness-based approaches, have shown promise in alleviating cancer-related pain. This study aimed to explore the efficacy of a single session
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Osimerinib haematological toxicities in non-small cell lung cancer: a randomised controlled trials meta-analysis BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-08-19 Fangfang Xiong, Yunzhu Shen, Ting Liu, Yin Zhang, Xuehui Jiang
Objective Osimertinib plays a crucial role in patients with non-small cell lung cancer (NSCLC). However, the haematological toxicities caused by osimertinib in such a population have not been well characterised. This analysis was performed to determine the incidence of osimertinib-related haematological toxicity in patients with NSCLC. Method A literature search was conducted in PubMed, Embase, Cochrane
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Palliative care screening tools in Japan: cross-sectional utility study BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-08-19 Mami Minato, Shintaro Kosaka, Masaya Higuchi, Kei Ouchi
Objectives In Japan’s ageing society, the utility of US-based and UK-based palliative care screening tools in the inpatient setting is unknown. The purpose of this study is to identify the unmet palliative care needs of patients who are admitted to an acute care hospital using the US-based and UK-based screening tools. Methods This single-centre, cross-sectional study included patients who were admitted
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Dyadic advance care planning: systematic review of patient–caregiver interventions and effects BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-09-01 Xiaohang Liu, Tongyao Wang, Denise Shuk Ting Cheung, Pui Hing Chau, Mu-Hsing Ho, Yuanxia Han, Chia-Chin Lin
Introduction Family caregiver’s involvement in advance care planning (ACP) is essential to provide high-quality end-of-life (EOL) care and to ease the surrogate decision-making burden. However, no systematic review has focused on existing ACP interventions involving patients and their families. Aim To systematically summarise current ACP interventions involving patients and their families. Methods
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Screening instruments for early identification of unmet palliative care needs: a systematic review and meta-analysis BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-09-01 Zhishan Xie, Jinfeng Ding, Jingjing Jiao, Siyuan Tang, Chongmei Huang
Background The early detection of individuals who require palliative care is essential for the timely initiation of palliative care services. This systematic review and meta-analysis aimed to (1) Identify the screening instruments used by health professionals to promote early identification of patients who may benefit from palliative care; and (2) Assess the psychometric properties and clinical performance
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Gabapentinoids for chemotherapy-induced peripheral neuropathy: systematic review and meta-analysis BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-09-01 Tsung Wei Chang, Fu-Yu Yang, Yu-Chang Liu, Cheng-Hsien Hung
Introduction Chemotherapy-induced peripheral neuropathy (CIPN) affects patients’ quality of life and treatment effectiveness. Gabapentinoids, like gabapentin and pregabalin, are often used for CIPN treatment, but their efficacy and safety remain uncertain. This study reviews and analyses randomised controlled trial data on this topic. Materials/methods We searched PubMed, Embase and Cochrane CENTRAL
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How can existential or spiritual strengths be fostered in palliative care? An interpretative synthesis of recent literature BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-09-01 Marc Haufe, Carlo Leget, Marieke Potma, Saskia Teunissen
Background Patients receiving palliative care may benefit greatly when their existential or spiritual strengths are fostered. To date however, there has not been a comprehensive literature review of patient and care professional approaches that are available. Aims To describe and synthesise existential or spiritual strength-based approaches within the context of palliative care. Methods Literature
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Early palliative care versus usual haematological care in multiple myeloma: retrospective cohort study BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-09-01 Davide Giusti, Elisabetta Colaci, Valeria Pioli, Federico Banchelli, Monica Maccaferri, Giovanna Leonardi, Roberto Marasca, Monica Morselli, Fabio Forghieri, Francesca Bettelli, Angela Cuoghi, Paola Bresciani, Andrea Messerotti, Andrea Gilioli, Anna Candoni, Luca Cassanelli, Elena Sbadili, Ilaria Bassoli, Giuseppe Longo, Fabio Gilioli, Eleonora Borelli, Sarah Bigi, Roberto D'Amico, Carlo Adolfo Porro
Objectives Although early palliative care (EPC) is beneficial in acute myeloid leukaemia, little is known about EPC value in multiple myeloma (MM). We compared quality indicators for palliative and end-of-life (EOL) care in patients with MM receiving EPC with those of patients who received usual haematological care (UHC). Methods This observational, retrospective study was based on 290 consecutive
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Drug dependence epidemiology in palliative care medicinal cannabis trials BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-09-01 Chee Yen Lee, Phillip Good, Georgie Huggett, Ristan Greer, Janet Hardy
Objectives Drug dependence is becoming increasingly common and meeting palliative care patients with substance use disorders is inevitable. However, data on substance use in these patients are lacking. This study aims to evaluate the prevalence of drug dependence in palliative care patients with advanced cancer and correlate with symptom distress and opioid use. Methods Palliative care patients with
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Medical oncologist stereotypes among medical students, residents and physicians: a national cross-sectional study BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-09-01 Max Piffoux, Matthieu Delaye, Evan Gouy, Franck Rolland, Linh-Nam Truong, Ariel Frajerman, Florent Vinchon, Nawale Hadouiri
Objectives The perception of oncologists could impact the attractiveness of the specialty and dialogue between oncologists and other physicians. The aim of the study was to describe and understand the stereotypes and social representation (SR) associated with oncologists among medical students, residents and physicians in France. Methods This nationwide web-based survey conducted in 2021 was based
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Subcutaneous tranexamic acid for bleeding associated with a mycotic aortic aneurysm BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-09-01 Mhairi Kilpatrick, Susan Bateman, Amy Baggott, Anna Sutherland
We describe the case of a 64-year-old woman with haemoptysis due to a mycotic thoracic aneurysm, with probable fistulation into the lung and oesophagus. Continuous subcutaneous tranexamic acid was used at the end of life to minimise bleeding associated with this, once the oral route was lost. A 1.5 g of tranexamic acid was administered, diluted with 23 mL water for injection in a 30 mL syringe, as
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Propofol for palliative sedation in catastrophic bleeding BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-09-01 Shalini Ponnampalam, Heidi Gregory
Catastrophic bleeds are life-threatening events. This case report describes the successful use of intravenous propofol infusion in order to facilitate palliative sedation in the context of a catastrophic bleed where traditional medications did not yield the necessary level of effect as the patient survived another 72 hours after the onset of the bleeding event. Given the prolonged period post onset
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Nutritional status and primary tumour site in incurable cancer BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-09-01 Livia Costa De Oliveira, Emanuelly Varea Maria Wiegert, Lara Azevedo dos Santos, Larissa Calixto-Lima
Objectives We aimed (1) to assess the nutritional status (NS) using different methods, according to the primary tumour site and (2) to evaluate the performance of these methods in patients with incurable cancer from a reference centre in Brazil. Methods Cross-sectional analysis of data from patients admitted to the palliative care unit of a reference cancer centre in Brazil, between July 2016 and March
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Prostate cancer: unmet supportive and palliative care needs: national survey of patients and family carers BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-09-01 Miriam J Johnson, Chao Huang, Hong Chen, Lesley Jones, Maureen Twiddy
Objectives Men living with prostate cancer have supportive and palliative needs. However, few studies detail unmet needs (vs quality of life measurement) or include data from those with advanced disease. We aimed to identify unmet needs of people living with prostate cancer (men, family carers), including those with advanced disease. Methods Mixed-methods national survey (patient Supportive Care Needs
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Skeletal muscle mass recovery after oesophagectomy and neoadjuvant chemotherapy in oesophageal cancer: retrospective cohort study BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-09-01 Tsuyoshi Harada, Tetsuya Tsuji, Takumi Yanagisawa, Junya Ueno, Nanako Hijikata, Aiko Ishikawa, Keiichi Hiroshige, Daisuke Kotani, Takashi Kojima, Takeo Fujita
Objective Skeletal muscle mass (SMM) is an important biomarker for prognosis and health in older patients with cancer. Limited information is available on the recovery course of SMM after oesophagectomy following neoadjuvant chemotherapy (NAC) in older patients. This study was performed to investigate the recovery course of SMM after oesophagectomy following NAC and the preoperative predictors of delayed
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What does the general public know about palliative care? A population-based survey BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-09-01 Marjolein Matthys, Kenneth Chambaere, Kim Beernaert, Joachim Cohen, Leen Van Brussel, Benedicte Deforche, Bert Quintiens, Luc Deliens, Naomi Dhollander
Objectives The need for public education on palliative care has been widely argued for. To develop effective educational strategies, a stronger evidence base is needed on what exactly is known and unknown about palliative care as well as what the differences are between subgroups. Methods We conducted a cross-sectional population-based survey. Mail questionnaires were sent to a random sample of 4400
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Medical cannabis for refractory cancer-related pain in a specialised clinical service: a cross-sectional study BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-09-01 Haggai Sharon, Yara Agbaria, Silviu Brill, Jesus de Santiago, Uri Hochberg
Background and objectives Cancer-related pain management in advanced stages presents a significant challenge that often requires a multidisciplinary approach. Although advancements in pharmacological and interventional therapies, a considerable number of patients still suffer from refractory pain, leading to unmet clinical needs. This study shares our experience with medical cannabis (MC) as a potential
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Anticipatory prescribing in community end-of-life care BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-09-01 Charlotte Lee, Theresa Tammy Tran, Joy Ross
Objectives Our work aims to critically review the use of anticipatory medicines in our inner-city hospice community population and whether our current practices are fit for purpose. Methods Retrospective audit of community palliative care patients at the end-of-life prescribed anticipatory medicines within a 3-month period. Anticipatory charts and case notes reviewed. Intervention included updating
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Palliative care simulation for internal medicine trainees: development and pilot study BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-09-01 Felicity Dewhurst, Kate Howorth, Hannah Billett, Jolene Brown, Maxwell Charles, Elizabeth Fleming, Craig Gouldthorpe, Amy Huggin, Emily Kavanagh, Rachel Kiltie, Lucy Robinson, Grace Rowley, Lauri Simkiss, Donna Wakefield, Elizabeth Woods, Deepta Churm, Rowan Warmsley, Kerry Waterfield
Objectives Shape of training has recognised that ‘Managing End-of-Life and Applying Palliative Care Skills’ is a key competency for internal medicine trainees. It provides the opportunity and challenge to improve palliative care training for generalist physicians. Simulation has been recognised internationally as a holistic teaching and assessment method. This study aimed to produce a palliative medicine
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A Spiritual care department: practical experience BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-09-01 Nadereh Memaryan, Fatemeh Rezaei Khodadadi
Spiritual care identifies and responds to humans’ spiritual needs, including the need for communication, emotional support, respect for values and beliefs, and search for meaning in life.1 This type of care may consist of respecting the patients’ beliefs, communicating effectively by reflective listening and talking to the patients, accompanying them through compassionate care, supporting them, showing
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Destitute and dying: interventions and models of palliative and end of life care for homeless adults – a systematic review BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-08-17 Megan Rose Coverdale, Fliss Murtagh
Background Homeless adults experience a significant symptom burden when living with a life-limiting illness and nearing the end of life. This increases the inequalities that homeless adults face while coping with a loss of rootedness in the world. There is a lack of palliative and end of life care provision specifically adapted to meet their needs, exacerbating their illness and worsening the quality
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Burn trauma management: palliative care integration BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-08-15 Ram Singh, Rupavath Ramkumar, Brajesh Kumar Ratre
WHO defines palliative care as, ‘an approach that improves the quality of life of patients—adults and children—and their families who are facing problems associated with life-threatening illness. It prevents and relieves suffering through the early identification, impeccable assessment and treatment of pain and other problems, whether physical, psychosocial or spiritual’.1 Regardless of the illness
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End-of-life care in multiple system atrophy: UK survey of patients and families BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-08-13 David Oliver, Andy Barrick, Christopher Kobylecki, Jalesh Panicker, Niall Quinn, Emma Rushton, Anette Schrag, Karen Walker, Kailash Bhatia
Objectives People with multiple system atrophy (MSA) and their carers may have many concerns about their disease and the future. This survey of people with MSA and their carers aimed to increase understanding of end-of-life care and palliative care for this group. Methods A survey was undertaken by the MSA Trust of people living with MSA and carers of those with the condition between August and October
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Herb-antitumour drug interaction risks: retrospective integrative oncology study BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-08-13 Noah Samuels, Shir Shapira, Eran Ben-Arye
Objectives The use of herbal medicine is widespread among oncology patients, with potentially negative interactions with anticancer drugs. This study identified herbal products being used among a cohort of oncology patients, assessing the risk for an herb-drug interaction. Methods Herbal medicine use was examined among 42 oncology patients, identifying potential herb-drug interactions using four online
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Symptom burden among men treated for castration-resistant prostate cancer: a longitudinal study BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-08-08 Ulrika Rönningås, Per Fransson, Maja Holm, Lars Beckman, Agneta Wennman-Larsen
Objectives Despite rapid expansion of treatments for metastatic castration-resistant prostate cancer (mCRPC) and the importance of symptom management for enhancing quality of life, few studies have focused on men’s experiences of symptom burden over time when receiving one or more lines of treatment in a real-world situation in this phase. The aim was to investigate changes in the multidimensional
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The European Certificate in Essential Palliative Care in Lebanon: Adaptation and Pilot BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-08-08 Silva Dakessian Sailian, Farah Demachkieh, Janane Hanna, Najibe Khalil, Marie Claire Mouhawej, Celine Bakri, Max Watson
Despite the growth in specialised palliative care services in Lebanon, integrating a generalist palliative care approach remains limited due to challenges in education and awareness, communication skills, death literacy, supportive policies and regulations and cultural factors. Healthcare providers are often uncomfortable in incorporating palliative care as it is associated with end of life, failure
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Sympathetic blocks in cancer pain: coordinate based step-by-step fluoroscopic-guided transdiscal approach BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-08-06 Victor M Silva-Ortiz, Rodrigo Diez Tafur, Ricardo Plancarte-Sanchez, Christopher L Robinson, Alaa Abd-Elsayed
The transdiscal approach, as previously described, represents a significant advancement in interventional pain management.1 Our study introduces a novel coordinate system designed to enhance the safety and precision of sympathetic nerve blocks by using the transdiscal approach. By implementing this technique, our aim is to ensure patients receive optimal pain relief while mitigating the risk of inadvertent
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Intensive care unit interventions to improve quality of dying and death: scoping review BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-08-01 Kazuaki Naya, Hideaki Sakuramoto, Gen Aikawa, Akira Ouchi, Yusuke Oyama, Yuta Tanaka, Kentaro Kaneko, Ayako Fukushima, Yuma Ota
Background Intensive care units (ICUs) have mortality rates of 10%–29% owing to illness severity. Postintensive care syndrome-family affects bereaved relatives, with a prevalence of 26% at 3 months after bereavement, increasing the risk for anxiety and depression. Complicated grief highlights issues such as family presence at death, inadequate physician communication and urgent improvement needs in
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High early mortality after percutaneous liver biopsy in metastatic cancer: national analysis BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-08-01 Dominic Stephen King, Benjamin Coupland, Jemma Mytton, John Speakman, Anna Lock, Nikhil Sanyal, Louisa Nelms, Sophie Rayner, Veronica Nanton, Amandeep Dosanjh, Prashant Patel, Nigel Trudgill
Objective The study aimed to assess outcomes in patients undergoing liver biopsy for metastatic cancer, focusing on mortality rates and chemotherapy following their biopsy. Methods Hospital Episode Statistics data from 2010 to 2019 identified 30 992 patients with metastatic cancer who underwent percutaneous liver biopsy. Primary outcomes included 14-day and 30-day mortality rates, as well as the proportion
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Repeated intrathecal phenol injections for cancer pain BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-07-31 John Michael Pallot, Steve Young, Christian Egler
Intrathecal phenol neurolysis is a treatment of last resort for specific refractory cancer pains. However, there is a paucity of evidence in the academic literature and no recent documented evidence of repeat injections on the same patient. We aim to present our experience and learning from repeat interventions on the same patient in order to further the evidence base for medical professionals managing
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Ancillary hospital workers experience during COVID-19: systematic review and narrative synthesis BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-07-30 Sarah Louise Kearsley, Liz Walker, Miriam J Johnson, Alison Bravington
Background COVID-19 overwhelmed healthcare systems worldwide. Its impact on clinical staff is well documented, but little is known about the effects on ancillary staff (cleaners, porters and caterers). Aim To identify the evidence of the impact of COVID-19 on ancillary staff at National Health Service (NHS) hospitals in England. Design Systematic review and narrative synthesis. Data sources Databases
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Home-based telerehabilitation in multiple sclerosis: a scoping review BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-07-30 Shima Shirozhan, Leila Rafiee-Vardanjani, Mahdieh Motie, Shamaneh Mohamadi
Background Introducing home-based telerehabilitation (TR) approaches helps clinical experts to choose appropriate and effective interventions and researchers identify knowledge gaps to design clinical trial studies and systematic reviews. Purpose This study aimed to review the knowledge of home-based TR in multiple sclerosis. Method This scoping review study was conducted based on Arksey and O'Malley’s
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Prion diseases motor and neuropsychiatric symptom cluster pharmacotherapy: structured scoping review BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-07-26 Roseanagh Hogg, John Centola, Eugene Ace McDermott, Francesca Mastaglio, Anna Grundy, Terri Awe, Matthew Carey, Mary Miller, Chloe Antoinette Chin, Rachel Quibell, Tomasz Bajorek, Suvankar Pal, Victoria Bradley
Background Prion diseases are a group of rare, neurodegenerative conditions that are invariably fatal and cause a variety of symptoms, which can prove challenging to control. Through this paper, we aim to review the current evidence regarding pharmacological management of neuropsychiatric and motor symptoms of prion disease as well as draw on experts’ and relatives’ experience, to evaluate the current
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Assisted suicide and euthanasia requests in early palliative care BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-07-24 Elena Bandieri, Erio Castellucci, Leonardo Potenza, Mario Luppi, Eduardo Bruera
Assisted suicide and euthanasia (ASE) represent a legal practice recognised in numerous countries around the world and are on the agenda of legislators in many states including France and Spain. In Italy, sentence no. 242/19 of the Constitutional Court on assisted suicide has started a lively debate on the topic. A recent demographic study1 conducted on 13 countries (8 of them in Europe), in which
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Supportive care interventions in metastatic bone disease: scoping review BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-07-22 Samuel K Simister, Rahul Bhale, Amy M Cizik, Barton L Wise, Steven W Thorpe, Betty Ferrell, R Lor Randall, Alex Fauer
Background Patients with secondary metastatic involvement of the musculoskeletal system due to primary cancers are a rapidly growing population with significant risks for health-related end-of-life morbidities. In particular, bone metastases or metastatic bone disease (MBD) imparts significant adversity to remaining quality of life. No rigorous review of clinical trials on the use of supportive care
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Topical menthol for chemotherapy-induced peripheral neuropathy: a randomised controlled trial in breast cancer BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-07-22 Deniz Ozdemir, Selda Arslan, Mehmet Artac, Fatih Karaarslan
Objectives Chemotherapy-induced peripheral neuropathy (CIPN) symptom is one of the side effects of paclitaxel in breast cancer patients. This randomised controlled study was conducted to investigate the effect of topical menthol applied on the hands and feet of breast cancer patients receiving chemotherapy on CIPN symptoms. Methods 60 breast cancer patients receiving chemotherapy were randomly assigned
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What is known about the role of clinical ethics services in cancer care? A systematic/narrative literature review BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-07-22 Jacob Stevenson, Alexandra Clinch, Maria Ftanou, Clare Delany
The use of clinical ethics services (CES) has been increasing over time, but little is known about the role of CES in cancer care. Cancer diagnosis and treatment are emotionally charged and life-changing experiences, raising existential and ethical questions about the quality and meaning of, living and dying. This narrative review seeks to consolidate the available information regarding how CES are
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High early mortality following percutaneous nephrostomy in metastatic cancer: a national analysis of outcomes BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-07-13 Amandeep Dosanjh, Benjamin Coupland, Jemma Mytton, Dominic Stephen King, Harriet Mintz, Anna Lock, Veronica Nanton, Param Mariappan, Nigel Trudgill, Prashant Patel
Objectives To assess the outcomes of percutaneous nephrostomy in England for renal decompression, in the context of metastatic cancer. Methods Retrospective observational study of all patients undergoing nephrostomy with a diagnosis of metastatic cancer from 2010 to 2019 in England, identified and followed up within Hospital Episode Statistics. The primary outcome measure was mortality (14-day and
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Collaborative advance care planning in palliative care: a randomised controlled trial BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-07-02 Carola Seifart, Martin Koch, Svenja Herzog, Nico Leppin, Katharina Nagelschmidt, Jorge Riera Knorrenschild, Nina Timmesfeld, Robin Denz, Ulf Seifart, Winfried Rief, Pia Von Blanckenburg
Objective An effective tool for establishing concordant end-of-life (EOL) care in patients with cancer is advance care planning (ACP). However, various barriers, including psychological obstacles, hamper the access to ACP. Therefore, a new conceptual model combining a psycho-oncological approach with structured ACP was developed. The effectiveness and efficiency of this new concept of collaborative
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Deodorant pad for ulcerated breast cancer: safety and efficacy BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-07-02 Toshiyuki Ishiba, Hirohiko Ishida, Michiaki Inoue, Yuki Tazoe, Mami Sakai, Yuki Fujita, Hiroko Kida, Taijiro Kosaka, Sakiko Ishihara, Miyako Nara, Mio Adachi, Chiaki Saita, Risa Goto, Naoko Iwamoto, Noriko Nakatsugawa, Masakazu Toi, Tomoyuki Aruga
Objectives APOLLO study, ‘efficacy and safety of the deodorAnt Pad against Odour and uLceration for LOcally advanced breast cancer’, aimed to assess the safety and efficacy of wearing a deodorant pad in patients with locally advanced breast cancer (LABC) with an ulceration. Methods Komagome Pads were previously developed by Juntendo University and Kao Corporation. In test A, a conventional pad consisting
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Anxiety and resilience in palliative medicine physicians BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-07-02 Cristhian Alexis Velásquez Marín, Carlos Javier Avendaño-Vásquez
Objective To identify the relationship between the degree of anxiety and the capacity for resilience in palliative care physicians. Methods Cross-sectional analytical study with non-probability sampling. We included 42 Colombian Palliative Care Physicians and administered a sociodemographic questionnaire, the Zung Anxiety Scale and the Resilience Scale. Results 42 palliative care physicians with an
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Hospice inpatient care models: cross-sectional inequality survey BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-07-02 Suzanne Tween, Roger William Smith, Charlotte Chamberlain, Jane Gibbins
Objectives Hospices provide a range of services including inpatient units (IPUs) and care in people’s homes. 40 000–50 000 patients use IPUs in the UK per year. Little published data exist on IPU models. This paper explores the structure and funding of IPU across the Southwest (SW) of England (population 5.6 million), alongside impact of COVID-19. Methods An electronic survey of all 13 IPUs. Data collated
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Mechanisms of end-of-life communication contributing to optimal care at the end of life: a review of reviews BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-07-02 Sahar Khonsari, Bridget Johnston, Hannah Patterson, Catriona Mayland
Background End-of-life communication is an essential component of high-quality care, but its potential mechanisms for improving care are not well understood. Objectives To summarise the potential mechanisms by which end-of-life communication may contribute to enhanced end-of-life care in any setting. Design An overview of systematic reviews, with a narrative synthesis of results. The Preferred Reporting
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Regional hospice and palliative care networks worldwide: scoping review BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-06-27 Hanna A A Röwer, Franziska A Herbst, Sven Schwabe
Background Regional hospice and palliative care networks (RHPCNs) are increasingly being established to improve integrative care for patients with life-limiting illnesses. This scoping review aimed at identifying and synthesising international literature on RHPCNs, focusing on structures, outcomes, benefits, success factors and good practices. Method Following Arksey and O’Malley’s (2005) framework
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Artificial intelligence for better goals of care documentation BMJ Support. Palliat. Care (IF 2.0) Pub Date : 2024-06-27 Gina Piscitello, Jane O Schell, Robert M Arnold, Yael Schenker
Objectives Lower rates of goals of care (GOC) conversations have been observed in non-white hospitalised patients, which may contribute to racial disparities in end-of-life care. We aimed to assess how a targeted initiative to increase GOC documentation rates is associated with GOC documentation by race. Methods We retrospectively assessed GOC documentation during a targeted GOC initiative for adult