-
Exploring the Lived Experiences of Young Women With Congenital Heart Disease Through Adolescence: A Qualitative Feminist Study Using Focus Groups Health Expect. (IF 3.0) Pub Date : 2024-09-18 Anna Tylek, Charlotte Summers, Ellen Maulder, Lindsay Welch, Lynn Calman
ObjectivesThe overarching aim of this study is to explore, examine and identify the experience that young women with congenital heart disease face as they transition through adolescence into womanhood.DesignThis is an empirical qualitative study conducted in the form of three focus groups. The study design and analysis adopted a feminist ontological positioning to elucidate the voice of women and offer
-
Social Determinants of COVID‐19 Pandemic Control: Participatory Learnings From Everyday Experiences in Cape Town, South Africa Health Expect. (IF 3.0) Pub Date : 2024-09-17 Frederick Marais, Erna Louisa Prinsloo, Christi Niesing, Petra Bester
IntroductionAs countries adapted their disaster responses to the COVID‐19 pandemic, South Africa responded with an alert‐level risk approach based on epidemiological principles that impacted all societal levels. We explored the everyday experiences of people in Cape Town whose basic needs were met and who could report on the realities of the COVID‐19 pandemic control. Gaining insight into their perspectives
-
Transitions: Living With Young‐Onset Alzheimer's Disease: A Qualitative Interview Study Health Expect. (IF 3.0) Pub Date : 2024-09-17 Malin Aspö, Leonie N. C. Visser, Miia Kivipelto, Anne‐Marie Boström, Berit Seiger Cronfalk
IntroductionPersons with young‐onset dementia (YOD) are confronted with specific challenges. Due to the neurodegenerative nature of the disease, people diagnosed with YOD face many changes with different consequences, for example, regarding their life perspective. These changes can give rise to transition processes and strategies for coping, hopefully stimulating well‐being and acceptance. However
-
Attitudes and Behaviours Regarding COVID‐19 Mitigation Strategies in Australians With an Underlying Health Condition: A Cross‐Sectional Study Health Expect. (IF 3.0) Pub Date : 2024-09-12 Sze‐Ee Soh, Darshini Ayton, Amelia Bevins, Helen Skouteris, Mallory Trent, Raina MacIntyre
BackgroundPublic health strategies have focused on preventing and slowing the transmission of COVID‐19 by promoting the uptake of mitigation strategies. However, little is known about the uptake of these strategies in the presence of underlying health conditions.ObjectivesTo describe the attitudes and behaviours of a sample of Australians towards COVID‐19 mitigation strategies, and determine if uptake
-
A Novel Content and Usability Analysis of UK Professional Regulator Information About Raising a Concern by Members of the Public Health Expect. (IF 3.0) Pub Date : 2024-09-12 Gemma Ryan‐Blackwell, Louise M. Wallace, Francesca Ribenfors
BackgroundHealth and social care regulators ensure that professionals have the correct qualifications and experience to practice in their profession. Globally, there are over 130 regulators of nursing alone and 13 health and social care statutory regulators in the United Kingdom. The public are the largest source of concerns to regulators about the registrants' fitness to practise (FtP).AimThis study
-
Building Relationships, Forming Collaborations: Lessons Learned From an Unconference Seeking to Cultivate Solutions in Healthcare Health Expect. (IF 3.0) Pub Date : 2024-09-12 Brenda M. Y. Leung, Helen Kelley, Angie Nikoleychuk, Gabrielle Kirk, Fatemeh Salehi Shahrabi, Victoria Hecker, Nolan Schaaf
IntroductionCalls for a ‘major rethinking’ of the delivery of healthcare services are echoed across Canada as the healthcare crisis continues. Proposed strategies to address the challenges of this crisis include: a transdisciplinary approach that is patient‐focused and community‐based; a representative team composed of patients, caregivers, healthcare providers, decision makers and policymakers; and
-
-
A Patient and Public Engagement Project to Inform Dementia Care in a UK Hospital Trust Health Expect. (IF 3.0) Pub Date : 2024-09-10 Rachel K. Marrow, Camille Cronin, Victor Ashby, Thomas Currid, Marie Alexander
IntroductionThe increasing prevalence of dementia in the United Kingdom presents significant challenges for healthcare, with projections estimating over a million affected individuals by 2025, costing the NHS £6.3 billion annually. Hospital admissions among dementia patients are common, occupying about 25% of UK hospital beds and leading to prolonged stays and diminished health outcomes.MethodThis
-
Exploring General Practitioners' Management of Self‐Harm in Young People: A Qualitative Study Health Expect. (IF 3.0) Pub Date : 2024-09-10 Faraz Mughal, Benjamin Saunders, Martyn Lewis, Christopher J. Armitage, Lisa Dikomitis, Gillian Lancaster, Ellen Townsend, Carolyn A. Chew‐Graham
BackgroundGeneral practitioners (GPs) are key to the frontline assessment and treatment of young people after self‐harm. Young people value GP‐led self‐harm care, but little is known about how GPs manage young people after self‐harm.AimThis study aimed to understand the approaches of GPs to self‐harm in young people and explore their perspectives on ways they might help young people avoid repeat self‐harm
-
Impact of Interventions on Medication Adherence in Patients With Coexisting Diabetes and Hypertension Health Expect. (IF 3.0) Pub Date : 2024-09-09 Pauline Tendai Maniki, Betty Bouad Chaar, Parisa Aslani
BackgroundThe coexistence of diabetes and hypertension is prevalent due to shared risk factors. Pharmacological treatment has been reported to be effective in managing both conditions. However, treatment effectiveness depends on the extent to which a patient adheres to their treatment. Poor adherence to long‐term treatment for chronic diseases is a growing global problem of significant magnitude. Several
-
A World Café Approach to Exploring Perspectives on Diabetes Stigma in the United Kingdom Health Expect. (IF 3.0) Pub Date : 2024-09-06 Amy Elizabeth Burton, Alison Owen, Jennifer Taylor, Sarah Elizabeth Dean, Rachel Povey
IntroductionResearch has found that a high percentage of people with diabetes experience stigma, with perceptions of stigma being significantly higher among people with Type 1 diabetes compared to those with Type 2 diabetes. These experiences of diabetes stigma can lead to psychological, behavioural and medical consequences. The aim of the current study was to explore the perceptions of diabetes stigma
-
The Dutch Citizen's Understanding and Perception of the Actors Involved in the Netherlands' COVID‐19 Pandemic Response: A Focus Group Study During the First Pandemic Wave Health Expect. (IF 3.0) Pub Date : 2024-09-06 L. S. Kengne Kamga, A. C. G. Voordouw, M. C. De Vries, E. Belfroid, A. E. M. Brabers, J. D. De Jong, L. C. van Eck, M. P. G. Koopmans, A. Timen
IntroductionThe COVID‐19 pandemic was a public health emergency (PHE) of unprecedented magnitude and impact. It provided the possibility to investigate the Dutch citizens' understanding and perception of the actors involved in the Dutch pandemic response as a PHE unfolded.MethodsThree focus groups (FGs) were held with 16 Dutch citizens in June 2020. Citizens were recruited using the Dutch Health Care
-
‘But … Would I Be Able to Toast With Friends?’ When Service Users Ask for New Care Pathways Health Expect. (IF 3.0) Pub Date : 2024-09-06 Michele Rocelli, Ludovica Aquili, Arianna Palmieri, Diego Romaioli, Lea Ferrari, Elena Faccio
IntroductionThe WHO European Mental Health Action Plan (2013–2030) emphasises the need to generate services that are more inclusive and attentive to the co‐construction of care practices. This exploratory research investigates the needs of young substance abusers shown during their stay in residential communities; in particular, it explores the idea that treatment may include a new phase focused on
-
What Do We Know About Sharing Power in Co‐Production in Mental Health Research? A Systematic Review and Thematic Synthesis Health Expect. (IF 3.0) Pub Date : 2024-09-05 India Hopkins, Max Verlander, Lucy Clarkson, Pamela Jacobsen
BackgroundGuidance on co‐production between researchers and people with lived experience was published in 2018 by the National Institute for Health and Care Research (NIHR) advisory group, previously known as INVOLVE. This guidance described sharing power as a key principle within co‐production. Authentic sharing of power within co‐produced mental health research does not always occur however and remains
-
Aripiprazole/Sertraline Combination: Clinical and Cost‐Effectiveness in Comparison With Quetiapine for the Treatment of Bipolar Depression (ASCEnD Trial)—Protocol for a Nested Qualitative Study Health Expect. (IF 3.0) Pub Date : 2024-09-04 Isobel Hoppe, Stuart Watson, Caroline Kemp, Fiona Turnbull, Firoza Davies, John Gibson, Lumbini Azim, Lauren Wall, Niraj Ahuja, Sarah Al‐Ashmori, Sally Keys, Thomas Kabir, Carolyn A. Chew‐Graham
IntroductionBipolar disorder is a recurrent mental health disorder with a prevalence rate of 1.4%. On average, there can be a delay of 9.5 years from the initial presentation of symptoms to a confirmed diagnosis. Individuals living with bipolar disorder have a reduced life expectancy. There is limited evidence regarding the effectiveness of antidepressants in treating bipolar disorder. The ASCEnD clinical
-
Experiences of Inpatient Healthcare Services Among Children With Medical Complexity and Their Families: A Scoping Review Health Expect. (IF 3.0) Pub Date : 2024-09-04 Tammie Dewan, Lyndsay Mackay, Lauren Asaad, Francine Buchanan, K. Alix Hayden, Lara Montgomery
BackgroundChildren with medical complexity (CMC) have high healthcare utilization and face unique challenges during hospital admissions. The evidence describing their experiences of inpatient care is distributed across disciplines. The aim of this scoping review was to map the evidence related to the inpatient experience of care for CMC and their families, particularly related to key aspects and methodological
-
Survey of General Practitioner Perspectives on Endometriosis Diagnosis, Referrals, Management and Guidelines in New Zealand Health Expect. (IF 3.0) Pub Date : 2024-09-03 Katherine Ellis, Alina Meador, Anna Ponnampalam, Rachael Wood
IntroductionThere is a growing body of literature concerning endometriosis patients' perspectives on the healthcare system and endometriosis care in New Zealand. However, there is little research available on the perspectives of general practitioners (GPs) internationally, and none currently in New Zealand. The purpose of this study is to address New Zealand GPs' understanding of and approach to endometriosis
-
Patient Perceptions of Weight Stigma Experiences in Healthcare: A Qualitative Analysis Health Expect. (IF 3.0) Pub Date : 2024-09-03 Kathleen M. Robinson, Kimberley A. Robinson, Aaron M. Scherer, Melissa Lehan Mackin
BackgroundWeight stigma is the social devaluation and denigration of individuals because of their excess body weight, resulting in poorer physical and mental health and healthcare avoidance. Attribution Theory and Goffman's theory of spoiled identity provided a general overarching framework for understanding weight stigma experiences.ObjectiveOur purpose was to explore weight stigma experiences from
-
Establishing Quality Indicators and Implementation Priorities for Post‐Stroke Aphasia Services Through End‐User Involvement Health Expect. (IF 3.0) Pub Date : 2024-09-03 Kirstine Shrubsole, Marissa Stone, Dominique A. Cadilhac, Monique F. Kilkenny, Emma Power, Elizabeth Lynch, John E. Pierce, David A. Copland, Erin Godecke, Bridget Burton, Emily Brogan, Sarah J. Wallace
BackgroundCurrently, there are no agreed quality standards for post‐stroke aphasia services. Therefore, it is unknown if care reflects best practices or meets the expectations of people living with aphasia. We aimed to (1) shortlist, (2) operationalise and (3) prioritise best practice recommendations for post‐stroke aphasia care.MethodsThree phases of research were conducted. In Phase 1, recommendations
-
Understanding Co‐Creation in a Research Partnership Programme Exploring Patient‐Driven Innovations: A Qualitative Longitudinal Study Health Expect. (IF 3.0) Pub Date : 2024-08-30 Hanna Jansson, Jamie L. Luckhaus, Henna Hasson, Pamela Mazzocato, Terese Stenfors, Carolina Wannheden
BackgroundResearch indicates that successful co‐creation depends on a shared understanding of co‐creation and its related concepts. However, it also shows that, in practice, views on co‐creation and how to do it differ. This study aims to explore how patient innovators and researchers in a partnership research programme understand co‐creation and how this understanding changes over time.MethodsAn explorative
-
Exploring Healthcare Paradoxes in Hospital Haemodialysis—A Qualitative Study Health Expect. (IF 3.0) Pub Date : 2024-08-30 Tone Andersen‐Hollekim, Torstein Hole, Marit Solbjør
IntroductionThe complex logics of healthcare systems inherit paradoxes that can lead to interpersonal conflicts impacting both patients and professionals. In this study, we aimed to identify and explore tensions and conflicts arising from paradoxes within hospital haemodialysis.MethodsWe conducted a secondary supplementary analysis to previously collected qualitative data, including individual interviews
-
Evaluating Experiences in a Digital Nutrition Education Program for People With Multiple Sclerosis: A Qualitative Study Health Expect. (IF 3.0) Pub Date : 2024-08-29 R. D. Russell, J. He, L. J. Black, A. Begley
BackgroundMultiple sclerosis (MS) is a complex immune‐mediated disease with no currently known cure. There is growing evidence to support the role of diet in reducing some of the symptoms and disease progression in MS, and we previously developed and tested the feasibility of a digital nutrition education program for people with MS.ObjectiveThe aim of this study was to explore factors that influenced
-
Sexual Interventions in the Metaverse: Attitudes Towards Novel Therapeutic Approaches, a Qualitative Study Health Expect. (IF 3.0) Pub Date : 2024-08-29 Ariana Vila, Rosa Romero‐Moreno, Celia Nogales‐Gonzalez, Andrew J. Ritchey, Juan Ardoy‐Cuadros
Background and ObjectiveMental health treatment for psychosexual problems is effective, but treatment rates are low. Metaverse‐based therapy offers one solution to increase overall treatment rates. Understanding attitudes towards this novel approach could lead to wider adoption of metaverse‐based therapy, resulting in higher treatment rates for psychosexual problems.MethodsTwenty‐one participants across
-
Physical Health Checks and Follow‐Up Care in Deprived and Ethnically Diverse People With Severe Mental Illness: Co‐Designed Recommendations for Better Care Health Expect. (IF 3.0) Pub Date : 2024-08-28 Easter Joury, Edward Beveridge, Judith Littlejohns, Angela Burns, Gemma Copsey, Justin Philips, Shanaz Begum, David Shiers, Carolyn Chew‐Graham, Charlotte Klass, Jackie Chin
BackgroundThere is wide variation in premature mortality rates in adults with severe mental illness (SMI) across London, with Tower Hamlets (a highly deprived and ethnically diverse area) scoring the highest.ObjectiveTo identify examples of best practice and co‐design recommendations for improving physical health checks and follow‐up care amongst people with SMI in Tower Hamlets.MethodsData were collected
-
-
Public Engagement in Health Policy‐Making for Older Adults: A Systematic Search and Scoping Review Health Expect. (IF 3.0) Pub Date : 2024-08-27 Jeonghwa You, Rebecca Ganann, Michael Wilson, Soo Chan Carusone, Maggie MacNeil, Carly Whitmore, Andrea Dafel, Roma Dhamanaskar, Eugenia Ling, Lance Dingman, A. Tina Falbo, Michael Kirk, Joyce Luyckx, Penelope Petrie, Donna Weldon, Katherine Boothe, Julia Abelson
IntroductionAs the world's population ages, there has been increasing attention to developing health policies to support older adults. Engaging older adults in policy‐making is one way to ensure that policy decisions align with their needs and priorities. However, ageist stereotypes often underestimate older adults' ability to participate in such initiatives. This scoping review aims to describe the
-
Young People Talk About Digital Support for Mental Health: An Online Survey of 15–30‐Year Olds in New Zealand Health Expect. (IF 3.0) Pub Date : 2024-08-27 Susan M. Garrett, Jo Hilder, Rachel Tester, Abby Dunlop, Tracey Gardiner, Tony Dowell, Soraya Kamau Brady, Nicole Gilbert, Maggie Shippam, Shay Tanirau, Neo Kenny, Caitlin McBride, Joana Wilson, Ellie Rukuwai, Niusha Aryan, Maria Stubbe
BackgroundMental distress is on the rise for young people, and there are high levels of unmet need for support. Increasingly, young people are engaging with online mechanisms of support to avoid cost and wait times; however, online support does have its limitations. We surveyed young people, 15–30 years of age, in Aotearoa New Zealand to explore their views of digital support for mental health. The
-
Preferences for Peer Support Amongst Families Engaged in Paediatric Screening Programmes: The Perspectives of Parents Involved in Screening for Type 1 Diabetes in Children Aged 3–13 Health Expect. (IF 3.0) Pub Date : 2024-08-27 Ian Litchfield, Lauren M. Quinn, Felicity Boardman, Olga Boiko, Parth Narendran, Shivam Choundhary, Naga Setti, Veer Sheth, Sheila M. Greenfield
IntroductionThis work describes a secondary analysis of a qualitative data set originally used to understand parent participants' preferences for the design and implementation of a screening programme for paediatric Type 1 diabetes (T1D). From this, their spontaneous preferences for peer support emerged, described here in the context of existing peer support programmes for the newly diagnosed alongside
-
Evaluation of a Faith‐Placed Health Education Service on Bowel Cancer Screening in Mosques in East London Health Expect. (IF 3.0) Pub Date : 2024-08-24 Salman Waqar, Dharani Yerrakalva, Thomas E. Duffy, Jake Chambers, Zohra Ali, Paul Thomas, Caroline Cook, Sufia Alam, Leena Khagram, Samantha Quaife, Stephen W. Duffy
BackgroundBowel cancer screening using faecal immunochemical testing is provided in the United Kingdom with the aim of reducing mortality from colorectal cancer. However, there are low participant rates among ethnic minorities across the United Kingdom. Faith‐placed interventions have the potential to improve screening rates among such populations, but studies examining their effectiveness are scarce
-
Identifying Facilitators and Inhibitors of Shared Understanding: An Ethnography of Diagnosis Communication in Acute Medical Settings Health Expect. (IF 3.0) Pub Date : 2024-08-24 Caitríona Cox, Thea Hatfield, Janet Willars, Zoë Fritz
Background and AimsCommunication is important in determining how patients understand the diagnostic process. Empirical studies involving direct observation of communication within diagnostic processes are relatively limited. This ethnographic study aimed to identify communicative practices facilitating or inhibiting shared understanding between patients and doctors in UK acute secondary care settings
-
Patients' and Therapists' Views of Integrated Online CBT for Depression Health Expect. (IF 3.0) Pub Date : 2024-08-22 Fiona Fox, Nicola Wiles, David Kessler, Debbie Tallon, Laura Thomas, Christopher Williams, Roz Shafran, Paul Lanham, Katrina Turner
BackgroundCBT is an effective treatment for depression, but access varies across the United Kingdom. Online CBT increases access. The INTERACT platform was designed to support patient engagement in CBT, enabling therapists to deliver high‐intensity CBT via typed instant messaging and allowing patients and therapists access to an integrated online library of resources during and between sessions.MethodsThe
-
Patient and Staff Insights on Digital Care Pathways for Patients With Low Back Pain in the Emergency Department: A Qualitative Study Health Expect. (IF 3.0) Pub Date : 2024-08-17 Emily C. Bell, Hazel Heng, Nicole Alousis, Matthew G. King, Andrew Hahne, Thomas Collins, Katharine See, Tracey Webster, Elisha O'Dowd, Paul Jackson, Adam I. Semciw
BackgroundBack pain is a huge global problem. For some people, the pain is so severe that they feel the need to present to an emergency department (ED). Our aim was to explore patient and staff perspectives for the development of a digital care pathway (DCP) for people with back pain who have presented to ED, including acceptability, barriers and facilitators.MethodsWe used a descriptive phenomenology
-
Professionals' and Intercultural Mediators' Perspectives on Communication With Ukrainian Refugees in the Czech Healthcare System Health Expect. (IF 3.0) Pub Date : 2024-08-16 Jolana Kopsa Těšinová, Karolína Dobiášová, Marie Jelínková, Elena Tulupova, Michal Koščík
IntroductionA growing body of research is examining how healthcare systems are responding to the increasing numbers of migrants and the resulting superdiversity of patients. The aim of this article is to identify and explain communication barriers in the provision of healthcare to Ukrainian war refugees in the Czech Republic from the perspectives of healthcare professionals and intercultural mediators
-
The Mediating Role of Students' Health Information Literacy Skills: Exploring the Relationship Between Web Resource Utilization and Health Information Evaluation Proficiency Health Expect. (IF 3.0) Pub Date : 2024-08-16 Umme Habiba, Foujia Sultana Koli
BackgroundIn an increasingly digital age, students rely heavily on web resources to access health information. However, evaluating the reliability and relevance of such information is crucial for informed decision‐making. This study examines the importance of students' health information literacy skills (HILS) as mediators, particularly their ability to utilize web resources and successfully evaluate
-
A New Process Model for Relationship‐Centred Shared Decision‐Making in Physical Medicine and Rehabilitation Settings Health Expect. (IF 3.0) Pub Date : 2024-08-14 Christina Papadimitriou, Marla L. Clayman, Trudy Mallinson, Jennifer A. Weaver, Ann Guernon, Albert J. Meehan, Trisha Kot, Paige Ford, Roger Ideishi, Christina Prather, Philip van der Wees
IntroductionWe present a relationship‐centred shared‐decision‐making (RCSDM) process model to explicate factors that shape decision‐making processes during physical medicine and rehabilitation (PMR) encounters among patients, their care partners and practitioners. Existing shared decision‐making (SDM) models fall short in addressing the everyday decisions routinely made regarding persons with chronic
-
‘If It Was Easy Somebody Would Have Fixed It’: An Exploration of Loneliness and Social Isolation Amongst People Who Frequently Call Ambulance Services Health Expect. (IF 3.0) Pub Date : 2024-08-12 Lisa Moseley, Jason Scott, Gayle Fidler, Gina Agarwal, Cathy Clarke, Jonathan Hammond‐Williams, Carrie Ingram, Aidan McDonnell, Tracy Collins
IntroductionThe aim of the study was to explore social isolation and loneliness in those who frequently contacted the ambulance service, what factors contributed to this and how unmet needs could be addressed.MethodsSemi‐structured interviews with staff from the ambulance service and service users who were identified as frequently contacting the ambulance service. Service users also completed the UCLA
-
Co‐Design Workshops to Develop a Psychosocial Support Service Model for Refugees in Sweden Affected by Gender‐Based Violence Health Expect. (IF 3.0) Pub Date : 2024-08-12 Anna Pérez‐Aronsson, Elin Inge, Heba Alanbari, Iman Alsalamah, Miras Ghannoum, Zozan Abu Mohammad, Frida Johansson Metso, Frida Holmqvist, Johanna Belachew, Tove Filén, Frida Pålsson Hennoks, Anna Sarkadi, Georgina Warner
BackgroundExperiencing gender‐based violence (GBV) is common among refugees. Intersecting systems of oppression can increase the risk of GBV and of suffering detrimental consequences, while concurrently creating barriers to meaningful support. Despite this, refugees with lived experience of GBV are rarely involved in the development, planning and adaptation of services and policies.MethodsThis article
-
The All Together Group: Co‐Designing a Toolkit of Approaches and Resources for End‐of‐Life Care Planning With People With Intellectual Disabilities in Social Care Settings Health Expect. (IF 3.0) Pub Date : 2024-08-08 Andrea Bruun, Amanda Cresswell, David Jeffrey, Leon Jordan, Richard Keagan‐Bull, Jo Giles, Sarah Swindells, Meg Wilding, Nicola Payne, Sarah L. Gibson, Rebecca Anderson‐Kittow, Irene Tuffrey‐Wijne
IntroductionSupport staff within social care settings have expressed a need for resources to facilitate end‐of‐life care planning with people with intellectual disabilities. This study aimed to co‐design a preliminary toolkit of end‐of‐life care planning approaches and resources that can be implemented in adult social care services for people with intellectual disabilities.MethodsAn adapted Experience‐Based
-
The Co‐Production, Pilot and Qualitative Evaluation of a Cancer Prevention Programme With High‐Risk Women Delivered on Group Walks by Cancer Champions: Shoulder to Shoulder, Walk and Talk Health Expect. (IF 3.0) Pub Date : 2024-08-08 Sarah Hanson, Wendy Hardeman
ObjectivesWomen in the criminal justice system and women who have been subject to domestic abuse are at high risk of cancer but underrepresented in health promotion research. We aimed to co‐produce, pilot and evaluate a health promoting programme delivered on group walks.DesignA programme co‐produced by women, based on motivational interviewing, created the opportunity for supportive conversations
-
Participatory Design in Suicide Prevention: A Qualitative Study of International Students' Experiences of Adapting the LivingWorks safeTALK Programme Health Expect. (IF 3.0) Pub Date : 2024-08-07 Samuel McKay, Christina Ng, Bridget Kenny, Rafi Armanto, Michelle Lamblin, Jo Robinson
BackgroundCurrent suicide prevention approaches are not adapted to international student needs, and participatory design is a method that may facilitate the development or adaptation of appropriate programmes for this group.MethodsThis qualitative study investigated the experiences of international university students studying in Australia who participated in a co‐consultation process to adapt the
-
‘A Meaningful Difference, but Not Ultimately the Difference I Would Want’: A Mixed‐Methods Approach to Explore and Benchmark Clinically Meaningful Changes in Aphasia Recovery Health Expect. (IF 3.0) Pub Date : 2024-08-06 Sally Zingelman, Dominique A. Cadilhac, Joosup Kim, Marissa Stone, Sam Harvey, Carolyn Unsworth, Robyn O'Halloran, Deborah Hersh, Kathryn Mainstone, Sarah J. Wallace
IntroductionOutcome measurement instruments (OMIs) are used to gauge the effects of treatment. In post‐stroke aphasia rehabilitation, benchmarks for meaningful change are needed to support the interpretation of patient outcomes. This study is part of a research programme to establish minimal important change (MIC) values (the smallest change above which patients perceive themselves as importantly changed)
-
Factors Influencing Kidney Transplantation Experiences for Patients From Culturally and Linguistically Diverse Backgrounds: A Qualitative Study Health Expect. (IF 3.0) Pub Date : 2024-08-04 Kimberley Crawford, Catherine Wilson, William R. Mulley, Nigel D. Toussaint, Elaine Kennedy, Narissa Andrew, Andrea Ward, Mandy Truong
BackgroundDisparities in aspects of chronic kidney disease progression and management exist for patients from culturally and linguistically diverse (CALD) backgrounds, including with treatment and outcomes for kidney transplantation.ObjectiveThis study aimed to explore factors that impact kidney transplant outcomes from the perspective of kidney transplant recipients (KTRs) from CALD backgrounds and
-
Witness to Harm; Holding to Account: What Is the Importance of Information for Members of the Public Who Give Evidence and May Be Witness in a Regulatory Hearing of a Health or Care Professional? Health Expect. (IF 3.0) Pub Date : 2024-08-04 Gemma Ryan‐Blackwell, Louise M. Wallace
BackgroundHealth and social care regulators are organisations that seek to maintain public trust in professionals and protect the public from harmful practitioners. For example, they ensure that practitioners have the correct qualifications to practice and investigate any concerns raised about them. Serious concerns can result in a fitness to practise (FtP) hearing where a member of the public may
-
Developing a Consensus Statement to Target Oral Health Inequalities in People With Severe Mental Illness Health Expect. (IF 3.0) Pub Date : 2024-08-04 Masuma Pervin Mishu, Vishal Aggarwal, David Shiers, Emily Peckham, Gordon Johnston, Easter Joury, Carolyn A. Chew‐Graham, Katie Goodall, Emma Elliott, Paul French, Rebecca Harris, Louise Laverty, Jasper Palmier‐Claus
IntroductionOral diseases are more prevalent in people with severe mental illness (SMI) compared to those without mental illnees. A greater focus on oral health is needed to reverse unacceptable but often neglected oral health inequality in people with SMI. This provided the impetus for developing ‘The Right to Smile’ consensus statement. We aimed to develop and disseminate a consensus statement to
-
Patient Characteristics Associated With Disparities in Engagement With and Experience of COVID‐19 Remote Home Monitoring Services: A Mixed‐Methods Evaluation Health Expect. (IF 3.0) Pub Date : 2024-08-02 Nadia E. Crellin, Lauren Herlitz, Manbinder S. Sidhu, Jo Ellins, Theo Georghiou, Ian Litchfield, Efthalia Massou, Pei Li Ng, Chris Sherlaw‐Johnson, Sonila M. Tomini, Cecilia Vindrola‐Padros, Holly Walton, Naomi J. Fulop
IntroductionThe adoption of remote healthcare methods has been accelerated by the COVID‐19 pandemic, but evidence suggests that some patients need additional support to engage remotely, potentially increasing health disparities if needs are not met. This study of COVID‐19 remote home monitoring services across England explores experiences of and engagement with the service across different patient
-
The Bidirectional Engagement and Equity (BEE) Research Framework to Guide Community–Academic Partnerships: Developed From a Narrative Review and Diverse Stakeholder Perspectives Health Expect. (IF 3.0) Pub Date : 2024-08-01 Jennifer Cunningham‐Erves, Tilicia Mayo‐Gamble, LaNese Campbell, Bishop Calvin Barlow, Claudia Barajas, Jessica L. Jones, Karen Winkfield
BackgroundThe engagement of community partners in equitable partnerships with academic teams is necessary to achieve health equity. However, there is no standardized approach to support bidirectional engagement among research stakeholders in the context of partnership equity at each phase of the research process.ObjectiveWe describe the development of a systematic framework along with competencies
-
Culturally Sensitive Perinatal Mental Health Care: Experiences of Women From Minority Ethnic Groups Health Expect. (IF 3.0) Pub Date : 2024-08-01 Angelene Gardner, Sheri Oduola, Bonnie Teague
BackgroundCurrent research has identified how ethnic minority women experience poorer health outcomes during the perinatal period. In the United Kingdom, specialist perinatal mental health services provide mental health treatment for women throughout the perinatal period. Service users have previously highlighted that perinatal services are hard to access and lack cultural sensitivity, whereas healthcare
-
All Good Without Anything Good. Beyond Survival: Understanding the Psychosocial Experiences of Individuals With Chronic Kidney Disease and Their Caregivers in Sri Lanka Health Expect. (IF 3.0) Pub Date : 2024-08-01 Darshika Thejani Bulathwatta, Agata Rudnik, Mariola Bidzan
AimThis study aims to explore the experiences of individuals with chronic kidney disease (CKD) undergoing haemodialysis and their caregivers, focusing on the disease's impact and the treatment process.BackgroundIn Sri Lanka, CKD is a growing health concern, particularly affecting farming communities and contributing to the strain on the biomedical healthcare system. Despite increasing awareness of
-
‘None of Them Know Me’: A Qualitative Study of the Implications of Locum Doctor Working for Patient Experience Health Expect. (IF 3.0) Pub Date : 2024-08-01 Jane Ferguson, Gemma Stringer, Kieran Walshe, Ailsa Donnelly, Christos Grigoroglou, Thomas Allen, Evangelos Kontopantelis, Darren M. Ashcroft
IntroductionThere have been some concerns about the impact of temporary doctors, otherwise known as locums, on patient safety and the quality of care. Despite these concerns, research has paid little attention to the implications of locum working on patient experience.MethodsA qualitative semi‐structured interview study was conducted with 130 participants including locums, people working with locums
-
Ecologising Invited and Uninvited Patient Participation in Russia Health Expect. (IF 3.0) Pub Date : 2024-07-29 Vlas Nikulkin, Yan Vlasov, Olga Zvonareva
IntroductionPublic participation can be both supported and limited by decision‐makers. Therefore, citizens either participate in top‐down approved formats or have to turn towards subversion. These different participation practices, called invited and uninvited, are often treated by researchers as mutually exclusive. In this article, we present the case of patient organisations' involvement in various
-
‘The Norm Is to Not Openly Collaborate’: Using the Lens of Co‐Production to Evaluate the Development of a COVID‐19 ICU Triage Policy Health Expect. (IF 3.0) Pub Date : 2024-07-27 Brett Scholz, Flick Grey, Joyce Graham, Imogen Mitchell, Lucy Kirk, Terri Warner
IntroductionIn 2020, surging cases of COVID‐19 meant that health services had to plan for crisis‐level triage. In the Australian Capital Territory, the Clinical Health Emergency Coordination Centre sought to develop a triage policy in collaboration with a range of consumer, carer and community groups. This study aims to map the collaborative development of the COVID‐19 ICU triage policy onto the principles
-
Implementation Strategies for Quality Improvement in Palliative Care: A Scoping Review Health Expect. (IF 3.0) Pub Date : 2024-07-26 Yunyun Dai, Barbara A. Daveson, Luyu Gan, Jinfeng Ding, Yongyi Chen, Claire E. Johnson
BackgroundQuality improvement (QI) programs based on person‐centred outcome measures (PCOMs) play an important role in promoting optimal palliative care. However, routine use of PCOMs has been slow and difficult to implement, including within QI programs.ObjectiveThis study aimed to identify implementation strategies that support the implementation of PCOMs as routine practice in hospital‐based palliative
-
Equitable Care for Children With a Tracheostomy: Addressing Challenges and Seeking Systemic Solutions Health Expect. (IF 3.0) Pub Date : 2024-07-26 Jules Sherman, Habib Zalzal, Kyle Bower
BackgroundChildren with medical complexity (CMC) often face significant barriers to accessing care, obtaining appropriate insurance coverage for medical devices, technology, supplies, home nursing and social services. These challenges, when viewed through the lens of social determinants of health, highlight concerns about healthcare inequity. These inequities can impact CMC by limiting access to follow‐up
-
Central and Eastern European Migrants in the United Kingdom: A Scoping Review of the Reasons for Utilisation of Transnational Healthcare Health Expect. (IF 3.0) Pub Date : 2024-07-24 Victoria Stepanova, Aaron Poppleton, Ruth Ponsford
BackgroundAn estimated 2.2 million people from Central and Eastern Europe (CEE) live in the United Kingdom. It has been documented that CEE migrants underutilise health services in the United Kingdom and, as an alternative, seek healthcare in their home country. However, reasons for seeking healthcare abroad are not always clear. This review aims to identify the reasons for the uptake of transnational
-
Development of Fewer Falls in MS—An Online, Theory‐Based, Fall Prevention Self‐Management Programme for People With Multiple Sclerosis Health Expect. (IF 3.0) Pub Date : 2024-07-20 Susanna Tuvemo Johnson, Charlotte Ytterberg, Elizabeth Peterson, Sverker Johansson, Marie Kierkegaard, Kristina Gottberg, Maria Flink
ObjectiveThe aim of this study was to describe the process used to develop a theory‐based, online fall prevention self‐management programme for ambulatory and non‐ambulatory people with multiple sclerosis (pwMS).MethodsThe development process was guided by the Medical Research Council framework of complex interventions and began with a scoping review of the literature on self‐management of falls in
-
Listening to the Voices of Aboriginal and Torres Strait Islander Women in Regional and Remote Australia About Traumatic Brain Injury From Family Violence: A Qualitative Study Health Expect. (IF 3.0) Pub Date : 2024-07-20 Elaine Wills, Michelle Fitts
IntroductionIndigenous women experience high rates of family violence‐related head injuries. At present, lived experience accounts from Indigenous women are absent, which results in incomplete understandings and inadequate responses that have detrimental impacts on them and their families. The aim of this study was to gain insight into Indigenous women's personal and family perspectives regarding violence‐related
-
Understanding the Preferences and Considerations of the Public Towards Risk‐Stratified Screening for Colorectal Cancer: Insights From Think‐Aloud Interviews Based on a Discrete Choice Experiment Health Expect. (IF 3.0) Pub Date : 2024-07-19 Rebecca A. Dennison, Reanna J. Clune, Stephen Morris, Chloe Thomas, Juliet A. Usher‐Smith
ContextRisk stratification has been suggested as a strategy for improving cancer screening. Any changes to existing programmes must be acceptable to the public.ObjectiveThis study aimed to explore the preferences and considerations of individuals relating to the introduction of different risk‐based strategies to determine eligibility for colorectal cancer (CRC) screening.Study DesignParticipants completed
-
Engaging With Health Consumers in Scientific Conferences—As Partners not Bystanders Health Expect. (IF 3.0) Pub Date : 2024-07-18 Bronwyn Newman, Janelle Bowden, Rebecca Jessup, Lauren J. Christie, Ann Livingstone, Mitchell Sarkies, Anagha Killedar, Carole Vleeskens, Mashreka Sarwar, Thit Tieu, Saran Chamberlain, Reema Harrison, Alison Pearce
IntroductionIt is now widely recognised that engaging consumers in research activities can enhance the quality, equity and relevance of the research. Much of the commentary about consumer engagement in research focuses on research processes and implementation, rather than dissemination in conference settings. This article offers reflections and learnings from consumers, researchers and conference organisers
-
Evaluation of Public Involvement in Doctoral Research Using a Four‐Dimensional Theoretical Framework Health Expect. (IF 3.0) Pub Date : 2024-07-17 Piotr Teodorowski, Naheed Tahir, Saiqa Ahmed
BackgroundWorking together and co‐production with public advisors have become popular among health researchers. This practice extends to doctoral researchers who involve public advisors at different stages of their research or throughout their doctoral journey.ObjectiveA doctoral researcher and two public advisors jointly evaluated public involvement in doctoral research.MethodsUsing the established
-
‘There's Nothing Wrong With You; You Just Need to Lose Weight’—A Qualitative Exploration of Pelvic Floor Dysfunction Among Women With Multiple Sclerosis and Their Interaction in Seeking Pelvic Healthcare Health Expect. (IF 3.0) Pub Date : 2024-07-16 Christine Addington, Andy Bradshaw, Suzanne Hagen, Doreen McClurg
IntroductionWithin 10 years of multiple sclerosis (MS) progression, nearly all women will have experienced symptoms associated with bladder, bowel and/or sexual health. Yet despite the impact these symptoms have on physical, psychological and social well‐being, it remains an underserved area within the UK healthcare system.Study AimThis research employs a participatory research approach framed within