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An Integrative Pediatric Oncology Program Addressing Parents’ Quality of Life-Related Concerns J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-08-31 Orit Gressel MD, Ruth Ofir RN, Shifra Ash MD, Myriam Ben-Arush MD, Noah Samuels MD, Eran Ben-Arye MD
Parents of children with cancer face bio-psycho-social-spiritual concerns which can significantly reduce quality of life (QoL). We examined the impact of an integrative oncology (IO) intervention on QoL-related concerns among parents of children in a pediatric hematology-oncology department. The study was prospective, controlled, nonrandomized and patient-preferenced. Parents of children recently (≤6
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Effects of Exercise in Adults With Cancer Pain: A Systematic Review and Network Meta-Analysis J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-08-30 Jie Wang BD, Meiling Lv BD, Hongpeng Li MD, Dongqing Guo BD, Xin Chu BD
Pain is one of the most common symptoms of cancer patients, affecting the patient's physical, psychological, behavioral, social relations and other aspects. Previous studies have demonstrated that exercise is effective for cancer pain, and the optimal exercise is still unknown.
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Perceptions Toward Naloxone Among Patients With Cancer Receiving Opioids J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-08-30 Jaya Amaram-Davila MD, Maria Franco Vega MD, Min Ji Kim MD, Shalini Dalal MD, Rony Dev DO, Kimberson Tanco MD, Sonal Admane MD MPH, Aline Rozman De Moraes MD MPH, Lisa A. Thomas BS, Zeena Shelal MD, Meghana Gogineni MD, Patricia Bramati MD, Diana Urbauer PhD, David Hui MD, Joseph Arthur MD, Ali Haider MD, Eduardo Bruera MD, Akhila Reddy MD
Naloxone nasal spray is recommended for patients with risk factors for opioid overdose. However, cancer patients' perceptions and beliefs regarding naloxone prescriptions and their self-perceived risks for overdose are understudied.
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Ketamine for Cancer Pain: Re. Systematic Review by Jiao et al. J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-08-30 Rae Frances Bell BA Hons MD PhD, Peter Poon MBBS PGDipPM CHIA FRACGP FAChPM, Phillip Good MBBS FRACP PhD, R. Andrew Moore MA DPhil FRCA DSc
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Optimizing the Dosing Regimen During Rotation From Subcutaneous to Transdermal Administration of Fentanyl J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-08-29 Bram C. Agema PharmD, Kim Vrielink MSc, Esther Oomen-de Hoop PhD, Frank van Tienen PharmD, Eric C.T. Geijteman MD PhD, Carin C.D. Van der Rijt MD PhD, Birgit C.P. Koch PharmD PhD, Stijn L.W. Koolen PharmD PhD, Astrid W. Oosten MD PhD, Ron H.J. Mathijssen MD PhD
Subcutaneous (SC) administration of fentanyl allows for rapid dose titration to treat urgent cancer-related pain. After establishing the optimal fentanyl dose, patients typically rotate towards transdermal (TD) fentanyl patches. Continuing the SC fentanyl up to 12h after application of the patch led to elevated fentanyl concentrations and fentanyl-related toxicities. Based on these findings, and simulations
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Death Anxiety in Patients With Advanced Cancer and Their Family Caregivers J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-08-29 Charlotte Walbaum MSc, Rebecca Philipp PhD, Carsten Bokemeyer MD, Martin Härter PhD MD, Johanna Junghans MSc, Uwe Koch PhD MD, Karin Oechsle MD, Georgia Schilling MD, Sigrun Vehling PhD
Death anxiety is associated with fears of suffering and uncertainty at the end of life. It is also relevant to patients’ family caregivers, who can experience fears about the patients’ death and dying. This study investigates the prevalence of death anxiety in advanced cancer patients and their family caregivers and its association with sociodemographic and medical characteristics. We recruited patients
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Palliative Care Consults for Clinician Distress: Part of the Job? J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-08-28 Yael Schenker MD MAS FAAHPM, William E. Rosa PhD MBE APRN, Robert M. Arnold MD FAAHPM
Clinician distress is common in serious illness care. Palliative specialists are often consulted for cases involving significant distress among primary teams. Consults involving clinician distress can be challenging to navigate when it feels like 1) palliative specialists do not have the right skills to be helpful or 2) palliative specialists are being asked to ‘fix’ difficult situations that would
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Economic Value of Unpaid Family Caregiver Time Following Hospital Discharge and at End of Life J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-08-28 Brystana G. Kaufman PhD, Wenhan Zhang MPH, Sahar Shibeika MS, Ro W. Huang BS, Ting Xu PhD, Cory Ingram MD, Allison M. Gustavson PT DPT PhD, Diane E Holland PhD, Catherine Vanderboom PhD, Courtney H. Van Houtven PhD, Joan M. Griffin PhD
Family caregivers (FCGs) play a crucial role in care for people with serious illness, yet unpaid care is often overlooked in estimates of care recipient (CR) care costs. This study quantifies the economic value of unpaid caregiving by FCGs between hospital discharge and end of life. Trial participants were rural FCGs of CRs receiving palliative care during hospitalization. Caregiving hours were self-reported
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Addressing Statistical Power and Increasing Diversity in Hospice Research: Electronic Medical Record Participant Identification Compared to Nurse Referral Approaches to Recruitment J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-08-26 Debra Parker Oliver MSW PhD, Mary Ersek RN PhD, Patrick White MD PhD, Lucas Jorgenson MPH, Kyle Pitzer PhD, Abigail Rolbiecki MSW PhD, Masako Mayahara RN PhD, Karla Washington MSE PhD, George Demiris PhD
Recruitment of targeted samples into hospice clinical trials is often challenging. While electronic medical records (EMR) are commonly used in hospital-based research, it is uncommon in hospice research. The community setting and the variability in hospices and their medical record creates unique challenges.
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Predictors of Specialty Outpatient Palliative Care Utilization Among Persons With Serious Illness J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-08-22 Paige Comstock Barker MD, Rebecca Liddicoat Yamarik MD, Oluwaseun Adeyemi MBBS PhD, Allison M. Cuthel MPH, Mara Flannery, Nina Siman MA MSEd, Keith S. Goldfeld DrPH MS MPA, Corita R. Grudzen MD MSHS, EMPallA Investigators
Outpatient Palliative Care (OPC) benefits persons living with serious illness, yet barriers exist in utilization.
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Concurrent Care and Use of Advanced Cardiac Therapies for Hospitalized Veterans With Heart Failure J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-08-22 Tander Simberloff MD, Laura Godinez MD, Tiffany Chen MD, Lan Jiang MS, Wen-Chih Wu MD, Jensy Stafford MD, James L. Rudolph MD, Mitchell Wice MD
Concurrent care allows patients to receive hospice while continuing disease-directed therapies. This treatment model is available in the Veterans Administration (VA) medical system, but its use in Veterans with heart failure (HF) is unexplored. To compare use of advanced HF therapies 30 days posthospitalization in Veterans on hospice versus not on hospice following admission for HF exacerbation. We
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Palliative Care in Hematology: A Systematic Review of the Components, Effectiveness, and Implementation J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-08-22 Sophie Hochrath M.Sc., Naomi Dhollander PhD, Luc Deliens PhD, Rik Schots M.D. & PhD, Frederick Daenen PhD, Tessa Kerre M.D. & PhD, Kim Beernaert PhD, Koen Pardon PhD
While the evidence supporting the benefits of integration of palliative care into cancer care for patients and informal caregivers is growing, it poses challenges for hematological cancer patients due to rapidly changing disease trajectories, uncertain prognosis, and diverse care needs. This systematic review aims to provide an overview of the intervention components, the targeted outcomes, the effectiveness
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Efficacy and Safety of Pregabalin and Gabapentin for Pruritus: A Systematic Review and Meta-Analysis J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-08-21 Wenting Xu MD, Hanyue Dong MD, Haolong Ran MD, Huan Liu MD, Lin Wang MD, Hongmin Li MD PhD, Cheng Tan MD PhD
Limited data existed on the efficacy and safety of novel antiepileptic drugs (pregabalin and gabapentin) in treating pruritus. To assess their role in managing either acute or chronic pruritus. A systematic search was conducted in PubMed, EMBASE, the Cochrane Library, and Web of Science databases for relevant randomized controlled trials. Pooled odd ratio (OR) with 95% CI were performed using RevMan5
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Utilization of Palliative Radiation in Pediatric Oncology Patients During the End-of-Life (EOL) J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-08-14 Andrea Cuviello MD FAAP, Angélica F. Figueroa Guzmán BS, Emily Zeng MS, Suraj Sarvode Mothi MS, Justin N. Baker MD FAAP FAAHPM, Matthew J. Krasin MD
Suffering at the end-of-life (EOL) can impact the perception of a “good death” and ultimately affect bereavement for families of children with cancer. Palliative radiation (pXRT) is a tool that can address pain, mitigate suffering and improve quality of life. A retrospective medical record review of pediatric oncology patients who died over an 11-year period was completed. Descriptive analysis and
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Financial Hardship: A Qualitative Study Exploring Perspectives of Seriously Ill Patients and Their Family J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-08-13 Danae G. Dotolo PhD MSW MA, Christina Clare Pytel MPA, Elizabeth L. Nielsen MPH, Jennifer Im MS, Ruth A. Engelberg PhD, Nita Khandelwal MD MS
Seriously ill patients, such as those who experience critical illness, and their families experience a variety of poor outcomes, including financial hardship. However, little is known about the ways in which these seriously ill patients and their families experience financial hardship. To examine seriously ill patients’ and families’ experiences of financial hardship and perspectives on addressing
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Serious Health-Related Suffering Impairs Treatments and Survival in Older Patients With Cancer J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-08-13 Matthieu Frasca MD PhD, Claudia Martinez-Tapia PhD, Charline Jean MPH, Alex Chanteclair MD MPH, Angeline Galvin PhD, Valérie Bergua PhD, Meoïn Hagege PhD, Philippe Caillet MD, Marie Laurent MD PhD, Etienne Brain MD PhD, Simone Mathoulin-Pélissier MD PhD, Elena Paillaud MD PhD, Florence Canoui-Poitrine MD PhD
More than half of new cancer cases occurred in older adults. Older patients with cancer are particularly at risk of physical, psycho-existential or socio-familial suffering as defined by the concept of Serious Health-related Suffering (SHS). To assess the direct and indirect effects of physical, psycho-existential and socio-familial dimensions of suffering on cancer treatability, supportive care needs
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Parent-Clinician Communication and Prolonged Grief in Parents Whose Child Died From Cancer J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-08-12 Na Ouyang MSN RN, Justin N. Baker MD, Prasanna J. Ananth MD MPH, M. Tish Knobf PhD RN FAAN, Jennifer M. Snaman MD MS, Shelli L. Feder PhD FNP-C ACHPN FPCN FAHA
Parent-clinician communication is essential for high-quality end-of-life (EOL) care in children with cancer. However, it is unknown how parent-clinician communication affects parents’ experience in the first two years after their child's death. To examine the association between communication and prolonged grief among parents whose child died from cancer and to explore the mediation effect of preparation
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Gender Differences Regarding Palliative Care Consultation Among Persons Hospitalized With Heart Failure J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-08-08 Moritz Blum MD, Julia L. Frydman MD MS, Li Zeng MS, Karen Hiensch NP, Martha Abshire Saylor PhD MS RN, Emily Chai MD, Anuradha Lala MD, Nathan E. Goldstein MD, Laura P. Gelfman MD MPH
Palliative care is increasingly recognized as an important aspect of heart failure (HF) management, but data on gender differences regarding palliative care needs are scarce. We retrospectively studied patients hospitalized with a primary diagnosis of HF who received an initial palliative care consultation in the Mount Sinai Health System to examine gender differences. From electronic health records
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Race and Socio-Economic Status Impact Withdrawal of Treatment in Young Traumatic Brain Injury J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-08-07 Jessica Tran BA, Saskya Byerly MD MS, Jeffrey Nelson MD, Emily K Lenart DO, Andrew J Kerwin MD, Dina M Filiberto MD MS
Withdrawal of life-sustaining therapies (WDLST) in young individuals with traumatic brain injury (TBI) is an overwhelming situation often made more stressful by socioeconomic factors that shape health outcomes. Identifying these factors is crucial to developing equitable and goal-concordant care for patients and families. We aimed to identify predictors of WDLST in young patients with 1-TBI. We hypothesized
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Development and Piloting of a Bereaved Care Partner Survey to Inform Quality Improvement in ALS Supportive Care J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-08-06 Kara E. Bischoff MD, Daniela Liera BS, Janette Tang MD, Neha Madugala BS, Eve Cohen RN, Marinella D. Galea MD, Elizabeth Lindenberger MD, Steven Z. Pantilat MD, Catherine Lomen-Hoerth MD PhD
Bereaved care partner surveys typically focus on the experience with care in the final days of life. We sought to develop and pilot a novel bereaved care partner survey to understand experiences with ALS supportive care provided throughout the illness and identify opportunities for quality improvement. We developed the survey using a multisite, interdisciplinary consensus process involving ALS and
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Compassionate Ventilator Release in Patients With Neuromuscular Disease: A Two-Case Comparison J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-08-06 Jessica Curtisi MSN AGACNP ACHPN, Jamie Ellis-Wittenhagen DO, Timothy Kokanovich MD, Barbara Volk-Craft RN PhD
Dyspnea, the subjective sensation of breathlessness, is a distressing and potentially traumatic symptom. Dyspnea associated with mechanical ventilation may contribute to intensive care unit (ICU) associated post-traumatic stress disorder and impaired quality of life. Dyspnea is both difficult to alleviate and a cause of significant distress to patients, their loved ones, and care providers People living
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Transitional Palliative Care for Family Caregivers: Outcomes From a Randomized Controlled Trial J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-08-05 Joan M. Griffin PhD, Jay N. Mandrekar PhD, Catherine E. Vanderboom PhD, William S. Harmsen MS, Brystana G. Kaufman PhD, Ellen M. Wild RN CHPN, Ann Marie Dose PhD RN, Cory J. Ingram MD, Erin E. Taylor LICSW MSW, Carole J. Stiles LICSW, Allison M. Gustavson PT DPT PhD, Diane E. Holland PhD
Patients receiving inpatient palliative care often face physical and psychological uncertainties during transitions out of the hospital. Family caregivers often take on responsibilities to ensure patient safety, quality of care, and extend palliative care principles, but often without support or training, potentially compromising their health and well-being. This study tested an eight-week intervention
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Artificial Intelligence and Machine Learning in Cancer Pain: A Systematic Review J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-08-03 Vivian Salama MD PhD MS, Brandon Godinich MBA MHA, Yimin Geng MSIS MS, Laia Humbert-Vidan PhD, Laura Maule BA, Kareem A. Wahid PhD, Mohamed A. Naser PhD, Renjie He PhD, Abdallah S.R. Mohamed MD PhD MS, Clifton D. Fuller MD PhD, Amy C. Moreno MD MS
Pain is a challenging multifaceted symptom reported by most cancer patients. This systematic review aims to explore applications of artificial intelligence/machine learning (AI/ML) in predicting pain-related outcomes and pain management in cancer. A comprehensive search of Ovid MEDLINE, EMBASE and Web of Science databases was conducted using terms: “Cancer,” “Pain,” “Pain Management,” “Analgesics,”
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Quality of Care in the Last Two Years of Life for Children With Complex Chronic Conditions J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-08-02 Jori F. Bogetz MD, Bryan Strub MS, Miranda C. Bradford MS, Julie McGalliard, Kelly Shipman MS, Astan Jeyte, Arika Patneaude MSW LICSW APHSW-C, Emily E. Johnston MD MS, Prasanna Ananth MD MPH, Rachel Thienprayoon MD MSCS, Abby R. Rosenberg MD MA MS
Limited data exists about care received by children with complex chronic conditions (CCCs) in the final years of their disease and end-of-life (EOL). To examine hospital performance on EOL quality measures and to describe healthcare services during the last two years of life for children with CCCs who died in-hospital. Retrospective automated electronic health record review of children with ≥1 CCC
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Moral-Uncertainty Distress in Palliative Care: A Reflection on its Impact on Clinical Practice J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-08-02 Taryn L. Luitingh MD MForSc BSc, Molly Williams FRACP FAChPM, Sidharth Vemuri MBBS(Hons) BMedSci FRACP FAChPM PhD
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Recommendations for Deprescribing of Medication in the Last Phase of Life: An International Delphi Study J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-08-02 Eline E.C.M. Elsten MD, Iris E. Pot MSc, Eric C.T. Geijteman MD PhD, Christel Hedman MD PhD, Agnes van der Heide MD PhD, P. Hugo M. van der Kuy PhD, Carl-Johan Fürst MD PhD, Steffen Eychmüller MD PhD, Lia van Zuylen MD PhD, Carin C.D. van der Rijt MD PhD
Medications may become inappropriate for patients in the last phase of life and may even compromise their quality of life. To find consensus on recommendations regarding deprescribing of medications for adult patients with a life expectancy of six months or less. Experts working in palliative care or other relevant disciplines were asked to participate in this international Delphi study. Existing tools
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Nonpharmacological Intervention for Delirium in Patients With Cancer: A Scoping Review J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-07-31 Jun Kako, Masamitsu Kobayashi, Yoshinobu Matsuda, Shinichiro Inoue, Hitoshi Tanimukai, Saho Wada, Takaaki Hasegawa
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Medical Management of Refractory Haematuria in Palliative Patients J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-07-29 Jennifer Gardner MBChB, Emma Husbands MBChB
The management of haematuria, in patients with a palliative diagnosis, refractory to standard measures presents a significant challenge for multidisciplinary teams. Our experiences with two cases led us to review the literature and highlighted the limited evidence base. We describe the cases here and propose options for medical approaches to management. We also report on successful use of a nonconjugated
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Limitations With California Medicaid Data for Palliative and End of Life Care Quality Measures J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-07-29 Anne M. Walling MD PhD, J. Brian Cassel PhD, Kathleen Kerr BA, Neil S. Wenger MD MPH, Maria Garcia-Jimenez MD MHS, Kate Meyers MPP, David Zingmond MD PhD
In 2014 the California legislature passed Senate Bill 1004 (SB 1004) that was designed to expand access to specialty palliative care for individuals served by California's Medicaid (known as Medi-Cal) Managed Care Plans (MCPs). The California Department of Health Care Services (DHCS) operationalized the legislation by developing minimum requirements for palliative care programs that all MCPs must meet
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Transitional Care of People With Dementia and Caregivers in the ADRD-PC Trial: A Mixed Methods Study J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-07-29 Mark Toles PhD RN, Ellen Ozier MSW LCSW APHSW-C OSW-C, Laura Briell BS PTA, Moriah Fender BSN RN, Laura C. Hanson MD MPH
People with late-stage Alzheimer's diseases and related dementias (ADRD) have high risk for postacute complications and readmission; however, minimal research describes hospital transitional care. Within the context of the ongoing ADRD-PC clinical trial, the purpose of this study was to describe the content and quality of transitional care of people with ADRD. Descriptive mixed methods using data from
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Start of the COVID-19 Pandemic and Palliative Care Unit Utilization: A Retrospective Cohort Study J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-07-29 Michael Bonares MD MSc, Kalli Stilos RN MScN, Madison Peters RN, Lise Huynh MD MSc (QIPS), Debbie Selby MD
People with noncancer diagnoses have poorer access to palliative care units (PCUs) or hospices compared to those with cancer diagnoses. The COVID-19 pandemic disrupted how specialist palliative care services were delivered and utilized. To determine the association between the start of the COVID-19 pandemic and PCU/hospice utilization in hospitalized individuals with cancer and noncancer diagnoses
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Utilizing Digital Tools for Self-Report Symptom Assessment and Management in Pediatric Oncology: A Systematic Review J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-07-25 Remziye Semerci RN MSc PhD, Eyşan Hanzade Savaş RN MSc PhD, Aslı Akdeniz Kudubeş RN MSc PhD
The evaluation of digital tools for measuring self-reported symptoms in children and adolescents undergoing cancer treatment is a critical area of research with significant implications for clinical practice and patient outcomes. This study aims to identify, evaluate, and summarize evidence on digital tools that enable self-reported symptom assessment and management for pediatric oncology patients
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Effects of Aromatherapy on Quality Of Life and Pain In Patients With Cancer: A Meta-Analysis J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-07-23 Hyunju Kang PhD RN, Yongmi Lee PhD RN, Myoungsuk Kim PhD RN
Cancer has become a chronic disease to which new therapeutic approaches are being applied and many patients are interested in the long-term consequences of these approaches. Aromatherapy is one approach that has been used as a safe and comfortable method to alleviate symptoms in patients with cancer, and its effects on various aspects of life have been reported. A systematic review and meta-analysis
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Dignity in the Pediatric Population: A Systematic Review J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-07-18 Allison Silverstein MD MS, Veronica Easton MD, Cory Barrows DO, Kimberly Sawyer MD MA, Rachel Coughlin MD, Nidhi Mali PhD MA, Amber Kessler CRA-RN, Matthew Robinson MD, Erica Sirrine PhD LCSW, Madison Spears BS, Jordan Wrigley MA MSLS, Justin N Baker MD, Erica C Kaye MD MPH
Children are a uniquely vulnerable patient population with restricted abilities for self-advocacy and autonomy, risking infringement upon their dignity. Yet the concept of dignity in pediatrics remains underexplored relative to the adult literature and other outcome measures. To characterize how dignity is defined, evaluated, and/or measured in pediatrics. We conducted a systematic review following
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What Does “Palliative Care” Represent in Research Using Secondary Data? J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-07-18 J. Brian Cassel PhD
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Exploring Pediatric Code Status, Advance Care Planning, and Mode of Death Disparities at End of Life J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-07-18 Keisha White Makinde MD MPH, Allison Silverstein MD MS, Erin Peckham-Gregory PhD MPH, Erin Kim BA, Jessica Casas M.D. MPH
Children from marginalized groups are at risk for worse medical outcomes, yet little is known about their end of life experiences. We examine the characteristics of deceased children with a focus on race, ethnicity, and preferred language. We conducted a cross-sectional study of patients who died at Texas Children's Hospital from 2018 to 2019. Demographics, date of death, and final code status were
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Psychological Interventions for Mesothelioma Patients and Their Caregivers: A Systematic Literature Review J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-07-17 Isabella Giulia Franzoi PhD, Maria Domenica Sauta PsyD, Alessandra De Luca PsyD, Francesca Barbagli PsyD, Antonella Granieri PsyD
Malignant Mesothelioma (MM) has a striking impact on the somatopsychic balance of patients and their families, including physical, psychological, and interpersonal problems. The aim of this systematic literature review was to investigate what psychological interventions are offered to patients with MM and their caregivers worldwide. Methods: The review was conducted using the Preferred Reporting Items
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Content Analysis of Serious Illness Conversation Documentation: Structured vs. Free-Text Information J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-07-15 Brigitte N. Durieux BS, Seth N. Zupanc BA, Elise C. Tarbi PhD APRN, Christopher R. Manz MD MSHP, Joshua R. Lakin MD, Charlotta Lindvall MD PhD
Clear, accessible, and thorough documentation of serious illness conversations helps ensure that critical information patients share with clinicians is reflected in their future care. We sought to characterize and compare serious illness conversations recorded in two different ways in the electronic health record to better understand patterns of serious illness conversation documentation. We performed
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Timing of Palliative Care Consultation Impacts End of Life Care Outcomes in Metastatic Non-Small Cell Lung Cancer J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-07-14 Cameron J. Oswalt MD, Morgan M. Nakatani MD, Jesse Troy PhD, Steven Wolf MS, Susan C. Locke PhD, Thomas W. LeBlanc MDMA MHS FAAHPM FASCO
Early specialist palliative care (PC) involvement in metastatic non-small cell lung cancer (mNSCLC) is associated with improved quality of life, less aggressive end of life (EoL) care, and longer survival. As treatment paradigms for NSCLC have evolved, PC utilization remains low. This work examines how the timing and extent of PC involvement impacts outcomes and the patient experience in mNSCLC in
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Frequency of Comfort Care and Palliative Care Consultation after ST-Elevation Myocardial Infarction J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-07-14 Madeline Abrams MD, Matthew R. Carey MD MBA, Shunichi Nakagawa MD, Michael I. Brener MD MS, Justin A. Fried MD, Kleanthis Theodoropoulos MD PhD, Leroy Rabbani MD, Nir Uriel MD MSc, Jeffrey W. Moses MD, Ajay J. Kirtane MD SM, Megha Prasad MD MS
ST-elevation myocardial infarction (STEMI) remains a leading cause of death despite advances in revascularization and post-STEMI care. Especially for patients with a poor prognosis, there is increasing emphasis on comfort-focused care. We conducted a single-center retrospective cohort study of patients with STEMI at a large tertiary care academic medical center, abstracting patient-level data, causes
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Enhancing End-of-Life Care With Home-Based Palliative Interventions: A Systematic Review J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-07-14 Diana Rodrigues Feliciano MD MSc, Paulo Reis-Pina MD MSc PhD
Home-Based Palliative Care (HPC) interventions have emerged as a promising approach to deliver patient-centered care in familiar surroundings, aligning with patients' preferences and improving quality of life (QOL). This review aimed to systematically assess the impact of HPC interventions on symptom management, QOL, healthcare resource utilization and place of death among patients with severe, progressive
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Comparing the Need and Development of Pediatric Palliative Care in Mexico: A Geographical Analysis J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-07-14 Jorge Alberto Ramos-Guerrero MD MSc, Juan Esteban Correa-Morales MD, Miguel Antonio Sánchez-Cárdenas BSN PhD, David Andrade-Fonseca MSc, Luis Miguel Hernández-Flores MD MPH, Eduardo Javier López-Jiménez MD, Gregorio Zuniga-Villanueva MD MSc
The Global Atlas of Palliative Care (GAPC) ranked Mexico's palliative care services at a preliminary integration stage into mainstream healthcare services. However, this data does not reflect pediatric palliative care (PPC) development. To analyze the current need and level of development of PPC within Mexico. PPC need was estimated using causes of death associated with serious health-related suffering
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Bridge the Gap: Addressing Rural End-of-Life Care Disparities and Access to Hospice Services J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-07-14 Asif Anwar MD, Muhammad Kashif Amin MD, Sherezaad Anwar JD, Moazzam Shahzad MD
Rural hospices face many obstacles in delivering palliative and end-of-life care in the United States. We aimed to identify these barriers and their potential solutions. Following a systematic approach, a comprehensive literature search using relevant keywords was conducted on online databases. Additionally, we conducted a manual search to include policy documents and white papers. Key challenges reported
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Who, What, Where, and How? The State of Family Science in Pediatric Palliative Care J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-07-09 Elizabeth G. Broden PhD RN, Jackelyn Y. Boyden PhD MPH RN, Susan Keller MLS MS-HIT, Richard James MSLIS MBE, Kim Mooney-Doyle PhD RN CPNP-AC
Families are vital providers and recipients of pediatric palliative care (PPC) services. Understanding the scope and nature of evidence at the intersection of family science and PPC research is necessary to develop family-focused interventions that enhance child and family health. Explore and describe the family-level impact of pediatric serious illness. We conducted a librarian-assisted scoping review
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Challenges in Pediatric Home-Based Hospice and Palliative Care: A Case Series J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-07-06 Jill Ann Jarrell MD MPH, Daniel H. Grossoehme DMin MS, Sarah Friebert MD, Toluwalase A. Ajayi, Rachel Thienprayoon MS MSCS, Lisa Humphrey MD
Pediatric home-based hospice and palliative care is a growing and important sub-field within the larger pediatric palliative care landscape. Despite research demonstrating the clinical and systemic efficacy of pediatric home-based hospice and palliative care, there remain barriers to its optimal development, implementation, and dissemination as well as best clinical practice knowledge gaps. This case
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The Goal Inventory: An Innovative Digital Resource to Help Patients Identify and Evaluate Their Goals J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-07-05 Larry D. Cripe MD, Ann H. Cottingham MAR MA, Patrick O. Monahan PhD, Timothy E. Stump MA, Miranda G. Shuler MSc, Robert S. Comer MS, Caroline E. Martin BS, Margaret M. Uhrich BSN, Alexis Gilmore MPH CCRP
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Acute Urinary Frequency in a Cancer Patient on Olanzapine J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-07-03 Kristy Nguyen PharmD BCPS, Eduardo Bruera MD
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Assessing Pediatric Resident Needs in Grief and Bereavement Education J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-07-03 Hannah Reuman MD MS, Scott H. Maurer MD, Kelly Harris MD MS, Amanda W. Brown MD MS
Pediatric residents care for dying children during training. Few educational efforts focus on helping trainees better understand their own grief process and the supports available to them and their patients’ families. This work aims to assess pediatric residents’ needs and preferences for content included in a curriculum on grief and bereavement. Pediatric residents, at a single institution, completed
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The Spiritual Dimension of Parents’ Experiences Caring for a Seriously Ill Child: An Interview Study J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-07-02 Marije A. Brouwer PhD, Marijanne Engel PhD, Saskia C.C.M. Teunissen PhD RN, Carlo Leget PhD, Marijke C. Kars PhD
Parents of children with life-threatening conditions may have to balance their personal, family, and professional lives in the anticipation of child loss and the demands of providing medical care for their child. The challenges these parents are confronted with may lead to specific care needs. In this paper we explore the spiritual dimension of caring for a child with a life-threatening condition from
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Opioid Access among Advanced Cancer Patients in Low- and Middle-Income Countries in Asia J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-07-02 Ellie Bostwick Andres, Valen Yo, Ishwarya Balasubramanian, Louisa Poco, Semra Ozdemir, Maria Fidelis Manalo, Rubaiyat Rahman, Rudi Putranto, Wah Wah Myint Zu, Gayatri Palat, Lubna Mariam, Pham Nguyen Tuong, Chetna Malhotra
Most cancer-associated pain is experienced in low- and middle-income countries (LMICs) due to inequitable access to opioids. To determine opioid access as estimated by both patients and providers and to understand patient and facility-level factors influencing access among patients with advanced cancer in LMICs in Asia using the Behavioral Model of Health Services Use. The APPROACH cross-sectional
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Outpatient Training During Hospice and Palliative Medicine Fellowship: A National Survey J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-06-29 Harry J. Han MD, Michelle C. Ouellette MD, Jonathan C. Yeh MD, Laura E. Dodge ScD, Esme Finlay MD, Amelia M. Cullinan MD, Mary K. Buss MD MPH
Outpatient palliative care (PC) has strong evidence demonstrating impact across serious illnesses, resulting in growing demand for skilled outpatient PC clinicians. However, there is limited literature examining the existing state and quality of outpatient PC education during postgraduate training. Characterize the current state of outpatient training in United States (US) Hospice and Palliative Medicine
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Hidden From Sight—From the Closet to the Paywall: A Rapid Evaluation of Restricted and Monetized Access to LGBTQ+ Inclusive Palliative, End-of-Life, and Bereavement Care Research J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-06-27 William E. Rosa PhD MBE APRN, Donna Wakefield MBChB FRCPE MClinRes, Hannah M. Scott MSc BA (Hons), Debbie Braybrook PhD, Richard Harding PhD, Katherine Bristowe PhD
LGBTQ+ people experience higher burdens of life-limiting illnesses, poorer health outcomes, and multilevel barriers to accessing palliative, end-of-life, and bereavement care. High quality evidence is needed to inform interventions to address these inequities, and inform inclusive practices and policies. Despite global initiatives to improve availability of peer-reviewed journal articles, the minority
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AI-Generated Content in Cancer Symptom Management: A Comparative Analysis Between ChatGPT and NCCN J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-06-26 David Lazris MD, Yael Schenker MD MAS FAAHPM, Teresa Hagan Thomas PhD RN
Artificial intelligence-driven tools, like ChatGPT, are prevalent sources for online health information. Limited research has explored the congruity between AI-generated content and professional treatment guidelines. This study seeks to compare recommendations for cancer-related symptoms generated from ChatGPT with guidelines from the National Comprehensive Cancer Network (NCCN). We extracted treatment
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The Home-Based Experiences of Palliative and Hospice Care for Children and Caregivers (EXPERIENCE) Measure: Evaluation of Psychometric Properties J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-06-26 Jackelyn Y. Boyden PhD MPH RN, Mary Ersek PhD RN FPCN, Kimberley A. Widger RN PhD CHPCN(C) FAAN FCAN, Judy A. Shea PhD, Chris Feudtner MD MPH PhD
Home-based pediatric palliative and hospice care (PPHC) supports the hundreds of thousands of children with serious illness and complex care needs and their families in the home setting. Considerable variation, however, exists in the provision and quality of home-based PPHC in the U.S. Ensuring equitable, high-quality home-based PPHC for all children requires the evaluation of families’ care experiences
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Codesign Use in Palliative Care Intervention Development: A Systematic Review J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-06-22 Karleen F. Giannitrapani PhD MPH MA, Kendall Lin BS, Ladees Al Hafi BS MS, Bhagvat Maheta BS, Sarina R. Isenberg PhD MA
Codesign is a methodology that includes active collaboration between stakeholders in designing solutions and has been used in the development and implementation of palliative care (PC) interventions. To synthesize the state of evidence for codesign in the development of PC interventions. We searched PubMed, EMBASE, and CINAHL for peer-reviewed studies published after 1995 that reported evidence of
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Changes Due to Patient Deaths: Medical Students’ Expectations vs. Health Professionals’ Experiences J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-06-19 Chuqian CHEN PhD, Weiying LI PhD
Preparing healthcare professionals for inevitable encounters with patient deaths is crucial to preventing maladaptive professional bereavement outcomes. This study aimed to explore the discrepancies between medical students’ pre-patient death expectations and healthcare professionals’ post-patient death experiences regarding accumulated global changes due to patient deaths (AGC), identify heterogeneous
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Patient Experiences of Specialty Palliative Care in the Perioperative Period for Cancer Surgery J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-06-19 Laura M. Holdsworth PhD, Rachel Siden MA, Anna Sophia Lessios MPH, Mae Verano MSW BA, Elizabeth Rickerson MD, Bridget Fahy MD, Fabian M. Johnston MD MHS, Brittany Waterman MD, Rebecca Aslakson MD PhD
Though patients undergoing treatment for upper gastrointestinal (GI) cancers frequently experience a range of sequelae and disease recurrence, patients often do not receive specialty palliative care soon after diagnosis and it is unknown in what ways they may benefit. To understand patient experiences of specialty palliative care in the perioperative period for patients seeking curative intent upper
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Erratum to “Quality of outpatient pediatric palliative care telehealth: a retrospective chart review.” J Pain Sympt Manag. 2024; 67:561–570 J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-06-18 Elisa Williams MD, Catrina White MS, Ankona Banerjee MSc, Melody Hellsten DNP APRN PPCNP-BC CHPPN, Kenneth J. Nobleza MS, Duc T. Nguyen MD PhD, Jessica Casas MD MPH, Jill Ann Jarrell MD MPH
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Making a Superhero for Improving the Quality of Life in Amyothrophic Lateral Sclerosis J. Pain Symptom Manage. (IF 3.2) Pub Date : 2024-06-14 Sebastiano Mercadante MD, Massimo Giuseppe Bellavia MD
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