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Exploring How Values of Colorectal Cancer Patients and their Caregivers Influence Treatment Decision-Making Patient. (IF 3.4) Pub Date : 2024-09-18 Raza M. Mirza, Sabrin Salim, Jennifer A. H. Bell, Mary Jane Esplen, Karen V. MacDonald, Barry D. Stein, Deborah A. Marshall
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Measuring and Demonstrating the Value of Patient Engagement Across the Medicines Lifecycle: A Patient Engagement Impact Measurement Framework Patient. (IF 3.4) Pub Date : 2024-09-16 Beyza Klein, Eleanor M. Perfetto, Elisabeth M. Oehrlein, Fay Weston, Trudie C. A. Lobban, Marc Boutin
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Stated Preferences of At-Risk Populations for the Treatment of Osteoporosis: A Systematic Review Patient. (IF 3.4) Pub Date : 2024-09-13 Eva-Lotta Hinzpeter, Lakshmi Nagendra, Nadja Kairies-Schwarz, Charlotte Beaudart, Mickaël Hiligsmann
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Validity and Responsiveness of EQ-5D in Asthma: A Systematic Review and Meta-analysis Patient. (IF 3.4) Pub Date : 2024-09-07 Ai-Ping Chua, Ling Jie Cheng, Zhi Yi Soh, Le Ann Chen, Nan Luo
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Appropriateness of the EQ-HWB for Use in Residential Aged Care: A Proxy Perspective Patient. (IF 3.4) Pub Date : 2024-09-05 Lidia Engel, Cate Bailey, Ekaterina Bogatyreva, Frances Batchelor, Nancy Devlin, Briony Dow, Andrew S. Gilbert, Brendan Mulhern, Rosalie Viney, Tessa Peasgood
Background and Objective The EQ Health and Wellbeing (EQ-HWB) is a new generic quality-of-life measure for use in evaluating interventions in health, public health and social care. This study aimed to explore proxies’ views regarding the appropriateness of the EQ-HWB for measuring residents’ quality of life living in residential aged care facilities. Methods Qualitative think-aloud and semi-structured
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Preferences for Neurodevelopmental Follow-Up Care for Children: A Discrete Choice Experiment Patient. (IF 3.4) Pub Date : 2024-08-29 Pakhi Sharma, Sanjeewa Kularatna, Bridget Abell, Steven M. McPhail, Sameera Senanayake
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Patient Preferences for First-Line Treatment of Locally Advanced or Metastatic Urothelial Carcinoma: An Application of Multidimensional Thresholding Patient. (IF 3.4) Pub Date : 2024-08-28 Andrea B. Apolo, Christine Michaels-Igbokwe, Nicholas I. Simon, David J. Benjamin, Mallory Farrar, Zsolt Hepp, Lisa Mucha, Sebastian Heidenreich, Katelyn Cutts, Nicolas Krucien, Natasha Ramachandran, John L. Gore
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Evaluating Comprehensibility of 157 Patient-Reported Outcome Measures (PROMs) in the Nationwide Dutch Outcome-Based Healthcare Program: More Attention for Comprehensibility of PROMs is Needed Patient. (IF 3.4) Pub Date : 2024-08-13 Attie Tuinenburg, Domino Determann, Elise H. Quik, Esmee M. van der Willik, Geeske Hofstra, Joannes M. Hallegraeff, Ingrid Vriend, Lisanne Warmerdam, Hester E. van Bommel, Gudule Boland, Martijn A. H. Oude Voshaar
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What Can Discrete-Choice Experiments Tell Us about Patient Preferences? An Introduction to Quantitative Analysis of Choice Data Patient. (IF 3.4) Pub Date : 2024-07-24 F. Reed Johnson, Wiktor Adamowicz, Catharina Groothuis-Oudshoorn
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The Performance of Kaizen Tasks Across Three Online Discrete Choice Experiment Surveys: An Evidence Synthesis Patient. (IF 3.4) Pub Date : 2024-07-20 Benjamin Matthew Craig, Maksat Jumamyradov, Oliver Rivero-Arias
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Preferences of Recent Mums in Remote and Rural Areas for Type of Intrapartum Care: A Discrete Choice Experiment Patient. (IF 3.4) Pub Date : 2024-07-16 Luis E. Loría-Rebolledo, Hugo C. van Woerden, Helen Bryers, Seda Erdem, Verity Watson
Background and Objectives Pregnant women living in rural areas considering their preferred place of birth may have to ‘trade-off’ travel time/distance and other attributes of care (e.g. the full choice of birthplace options is rarely available locally). This study assesses the preferences and trade-offs of recent mothers who live in remote and rural areas of Great Britain. Methods An online survey
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Young People’s Barriers and Facilitators of Engagement with Web-Based Mental Health Interventions for Anxiety and Depression: A Qualitative Study Patient. (IF 3.4) Pub Date : 2024-07-13 Thi Quynh Anh Ho, Lidia Engel, Glenn Melvin, Long Khanh-Dao Le, Ha N. D. Le, Cathrine Mihalopoulos
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Preferences for the Societal Impacts of a Pandemic when it Transitions into an Endemic: A Discrete Choice Experiment Patient. (IF 3.4) Pub Date : 2024-07-09 Niek Mouter, Tom Geijsen, Aylin Munyasya, Jose Ignacio Hernandez, Daniel Korthals, Marijn Stok, Ellen Uiters, Marijn de Bruin
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The Role of Patient-Reported Outcomes to Measure Treatment Satisfaction in Drug Development Patient. (IF 3.4) Pub Date : 2024-07-08 Carolina Navas, Alexandra Palmer Minton, Ana Maria Rodriguez-Leboeuf
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Discrete Choice Experiments to Elicit Patient Preferences for the Treatment of Major Depressive Disorder: A Systematic Review Patient. (IF 3.4) Pub Date : 2024-07-05 Susan dosReis, Dafne Espinal Pena, Alexandra Fincannon, Emily F. Gorman, Alejandro Amill-Rosario
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A Framework to Promote Implementation of Patient-Reported Outcomes in Institutions Caring for Vulnerable and Underserved Cancer Populations. Patient. (IF 3.4) Pub Date : 2024-06-22 Anne L R Schuster,Norah L Crossnohere,Eric Adjei Boakye,Rebekah Angove,Billie Baldwin,Esteban A Barreto,Ronald C Chen,Theresa W Gillespie,Betty Hamilton,Nadine Jackson McCleary,Maimah Karmo,Tara Kaufmann,William Lee,Vikas Mehta,Larissa Meyer,Kriti Mittal,Leah Owens,Rachel Peterson,Andrea Pusic,Anne Marie Rainey,Angelique Richardson,Lauren Shapiro,Bethany Sibbitt,Cardinale Smith,Mary Vargo,Andrew Vickers
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Practices and Barriers in Developing and Disseminating Plain-Language Resources Reporting Medical Research Information: A Scoping Review Patient. (IF 3.4) Pub Date : 2024-06-15 Avishek Pal, Isabelle Arnet, Bernice Simone Elger, Tenzin Wangmo
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Patients’ Preferences for Sphingosine-1-Phosphate Receptor Modulators in Multiple Sclerosis Based on Clinical Management Considerations: A Choice Experiment Patient. (IF 3.4) Pub Date : 2024-05-15 Alexander Keenan, Chiara Whichello, Hoa H. Le, David M. Kern, Gabriela S. Fernandez, Vicky Turner, Anup Das, Matthew Quaife, Amy Perrin Ross
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Putting the Choice in Choice Tasks: Incorporating Preference Elicitation Tasks in Health Preference Research Patient. (IF 3.4) Pub Date : 2024-05-14 Jennifer A. Whitty, Emily Lancsar, Richard De Abreu Lourenco, Kirsten Howard, Elly A. Stolk
Choice-based preference elicitation methods such as the discrete choice experiment (DCE) present hypothetical choices to respondents, with an expectation that these hypothetical choices accurately reflect a ‘real world’ health-related decision context and that consequently the choice data can be held to be a true representation of the respondent’s health or treatment preferences. For this to be the
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Treatment Preference Research in Atopic Dermatitis: A Systematic Review of Quantitative Studies Patient. (IF 3.4) Pub Date : 2024-05-09 Katja C. Heinz, Charlotte Beaudart, Damon Willems, Mickaël Hiligsmann
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Eliciting Older Cancer Patients’ Preferences for Follow-Up Care to Inform a Primary Healthcare Follow-Up Model in China: A Discrete Choice Experiment Patient. (IF 3.4) Pub Date : 2024-05-03 Jiawei Geng, Ran Li, Xinyu Wang, Rongfang Xu, Jibin Liu, Haiyan Jiang, Gaoren Wang, Therese Hesketh
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Optimizing Communication on HPV Vaccination to Parents of 11- to 14-Year-Old Adolescents in France: A Discrete Choice Experiment Patient. (IF 3.4) Pub Date : 2024-05-01 Sandra Chyderiotis, Jonathan Sicsic, Amandine Gagneux-Brunon, Jocelyn Raude, Anne-Sophie Barret, Sébastien Bruel, Aurélie Gauchet, Anne-Sophie Le Duc Banaszuk, Morgane Michel, Bruno Giraudeau, Nathalie Thilly, Judith E. Mueller
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An Overview of Data Collection in Health Preference Research Patient. (IF 3.4) Pub Date : 2024-04-25 Semra Ozdemir, Matthew Quaife, Ateesha F. Mohamed, Richard Norman
This paper focuses on survey administration and data collection methods employed for stated-preference studies in health applications. First, it describes different types of survey administration methods, encompassing web-based surveys, face-to-face (in-person) surveys, and mail surveys. Second, the concept of sampling frames is introduced, clarifying distinctions between the target population and
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Evaluating the Preferences and Willingness-to-Pay for Oral Antidiabetic Drugs Among Patients with Type 2 Diabetes Mellitus in China: A Discrete Choice Experiment Patient. (IF 3.4) Pub Date : 2024-04-20 Ling-Hsiang Chuang, Huanlan Zhang, Tianqi Hong, Shitong Xie
Purpose To quantify the preferences for an oral antidiabetic drug (OAD) among patients with type 2 diabetes mellitus (T2DM) in China. Methods A discrete choice experiment (DCE) with hypothetical OAD profiles was performed among patients with T2DM recruited from both online and offline sources. Each patient completed 12 DCE choice tasks. The attributes, elicited through mixed methods, include blood
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Making Use of Technology to Improve Stated Preference Studies Patient. (IF 3.4) Pub Date : 2024-04-17 Caroline Vass, Marco Boeri, Gemma Shields, Jaein Seo
The interest in quantifying stated preferences for health and healthcare continues to grow, as does the technology available to support and improve health preference studies. Technological advancements in the last two decades have implications and opportunities for preference researchers designing, administering, analysing, interpreting and applying the results of stated preference surveys. In this
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Development of Patient and Caregiver Conceptual Models Investigating the Health-Related Quality of Life Impacts of Malignant Pleural Mesothelioma Patient. (IF 3.4) Pub Date : 2024-04-15 Adam E. J. Gibson, Waqas Ahmed, Louise Longworth, Bryan Bennett, Melinda Daumont, Liz Darlison
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Consumer Preferences for a Healthcare Appointment Reminder in Australia: A Discrete Choice Experiment Patient. (IF 3.4) Pub Date : 2024-04-11 Shayma Mohammed Selim, Sameera Senanayake, Steven M. McPhail, Hannah E. Carter, Sundresan Naicker, Sanjeewa Kularatna
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Adverse Event Reporting in Cancer Clinical Trials: Incorporating Patient-Reported Methods. A Systematic Scoping Review Patient. (IF 3.4) Pub Date : 2024-04-08 Minna Grahvendy, Bena Brown, Laurelie R. Wishart
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Diabetes Research Matters: A Three-Round Priority-Setting Survey Consultation with Adults Living with Diabetes and Family Members in Australia Patient. (IF 3.4) Pub Date : 2024-04-06 Christel Hendrieckx, Sienna Russell-Green, Timothy Skinner, Ashley H. Ng, Chris Lee, Siobhan Barlow, Alan Davey, Caitlin Rogers, Elizabeth Holmes-Truscott, Jane Speight
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Perceptions and Acceptance of a Prophylactic Vaccine for Human Immunodeficiency Virus (HIV): A Qualitative Study Patient. (IF 3.4) Pub Date : 2024-04-06 Natalie V. J. Aldhouse, Eric K. H. Chan, Tamara Al-zubeidi, Stephanie McKee, Valérie Oriol Mathieu, Antoine C. El khoury, Helen Kitchen
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Health-Related Quality-of-Life Impacts Associated with Transfusion-Dependent β-Thalassemia in the USA and UK: A Qualitative Assessment Patient. (IF 3.4) Pub Date : 2024-03-26 Jennifer Drahos, Adriana Boateng-Kuffour, Melanie Calvert, Laurice Levine, Neelam Dongha, Nanxin Li, Zahra Pakbaz, Farrukh Shah, Antony P. Martin
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Community Preferences for the Care of Older People at the End of Life: How Important is the Disease Context? Patient. (IF 3.4) Pub Date : 2024-03-18 Patricia Kenny, Deborah J. Street, Jane Hall, Meera R. Agar, Jane Phillips
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A Novel Approach to Computing Preference Estimates for Different Treatment Pathways: An Application in Oncology Patient. (IF 3.4) Pub Date : 2024-03-15 Kathleen Beusterien, Oliver Will, Emuella Flood, Susan McCutcheon, deMauri S. Mackie, Stella Mokiou
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Studying How Patient Engagement Influences Research: A Mixed Methods Study Patient. (IF 3.4) Pub Date : 2024-03-15 Deborah A. Marshall, Nitya Suryaprakash, Danielle C. Lavallee, Tamara L. McCarron, Sandra Zelinsky, Karis L. Barker, Gail MacKean, Maria J. Santana, Paul Moayyedi, Stirling Bryan
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What Breast Cancer Screening Program do Rural Women Prefer? A Discrete Choice Experiment in Jiangsu, China Patient. (IF 3.4) Pub Date : 2024-03-14 Yanjun Sun, Yiping Wang, Huiying Zhang, Zhiqing Hu, Yuhao Ma, Yuan He
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The Limitations of EQ-5D as a Clinical Outcome Assessment Tool. Patient. (IF 3.4) Pub Date : 2024-03-11 Ari Gnanasakthy,Carla Romano DeMuro
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Differences in Preferences for Drug Therapy Between Patients with Metastatic Versus Early-Stage Breast Cancer: A Systematic Literature Review Patient. (IF 3.4) Pub Date : 2024-03-07 Lilly Sophia Brandstetter, Steffi Jírů-Hillmann, Stefan Störk, Peter Ulrich Heuschmann, Achim Wöckel, Jens-Peter Reese
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Using Patient Preferences in Health Technology Assessment: Evaluating Quality-Adjusted Survival Equivalents (QASE) for the Quantification of Non-health Benefits Patient. (IF 3.4) Pub Date : 2024-02-29 Kevin Marsh, Hannah Collacott, Jim Thomson, Jonathan Mauer, Stephen Watt, Koonal Shah, Brett Hauber, Louis Garrison, Mendwas Dzingina
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Exploring Consumers’ Motivations and Experiences of Engaging as Partners in Cancer Research Patient. (IF 3.4) Pub Date : 2024-02-24 Jamie L. Waterland, Cassandra Beer, Rowan Forbes Shepherd, Laura E. Forrest
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From Qualitative Research to Quantitative Preference Elicitation: An Example in Invasive Meningococcal Disease Patient. (IF 3.4) Pub Date : 2024-02-23 Joshua Coulter, Chiara Whichello, Sebastian Heidenreich, Brett Hauber, Christine Michaels-Igbokwe, Joseph C. Cappelleri, Paula Peyrani, Jessica Vespa Presa, Malavika Venkatraman, Katharina Schley
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Pretesting Discrete-Choice Experiments: A Guide for Researchers Patient. (IF 3.4) Pub Date : 2024-02-16 Nicola B. Campoamor, Christi J. Guerrini, Whitney Bash Brooks, John F. P. Bridges, Norah L. Crossnohere
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Key Insights into Developing Qualitative Concept Elicitation Work for Outcome Measures with Children and Young People Patient. (IF 3.4) Pub Date : 2024-02-14 Samantha Husbands, Paul Mark Mitchell, Joanna Coast
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How to Present a Decision Object in Health Preference Research: Attributes and Levels, the Decision Model, and the Descriptive Framework Patient. (IF 3.4) Pub Date : 2024-02-10 Axel C. Mühlbacher, Esther W. de Bekker-Grob, Oliver Rivero-Arias, Bennett Levitan, Caroline Vass
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Exploring the Factors that Drive Clinical Negligence Claims: Stated Preferences of Those Who Have Experienced Unintended Harm Patient. (IF 3.4) Pub Date : 2024-02-01 Nyantara Wickramasekera, Arne Risa Hole, Donna Rowen, Allan Wailoo, Anju D. Keetharuth
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Stated-Preference Survey Design and Testing in Health Applications Patient. (IF 3.4) Pub Date : 2024-01-31 Deborah A. Marshall, Jorien Veldwijk, Ellen M. Janssen, Shelby D. Reed
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Patients’ Preferences for Systemic Lupus Erythematosus Treatments—A Discrete Choice Experiment Patient. (IF 3.4) Pub Date : 2024-01-25 Hannah Collacott, Andrea Phillips-Beyer, Nicolas Krucien, Bruno Flamion, Kevin Marsh
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Impact of Difelikefalin on the Health-Related Quality of Life of Haemodialysis Patients with Moderate-To-Severe Chronic Kidney Disease-Associated Pruritus: A Single-Arm Intervention Trial Patient. (IF 3.4) Pub Date : 2024-01-09 James Fotheringham, Julian Guest, Joerg Latus, Edgar Lerma, Isabelle Morin, Thilo Schaufler, Marco Soro, Sonja Ständer, Steven Zeig
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Attitudes Toward the Adoption of Remote Patient Monitoring and Artificial Intelligence in Parkinson’s Disease Management: Perspectives of Patients and Neurologists Patient. (IF 3.4) Pub Date : 2024-01-05 Carlos Antonio Godoy Junior, Francesco Miele, Laura Mäkitie, Eleonora Fiorenzato, Maija Koivu, Lytske Jantien Bakker, Carin Uyl-de Groot, William Ken Redekop, Welmoed Kirsten van Deen
Objective Early detection of Parkinson's Disease (PD) progression remains a challenge. As remote patient monitoring solutions (RMS) and artificial intelligence (AI) technologies emerge as potential aids for PD management, there's a gap in understanding how end users view these technologies. This research explores patient and neurologist perspectives on AI-assisted RMS. Methods Qualitative interviews
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Development and Testing of a Chronic-Disease Patient Experience Mapping Toolbox Patient. (IF 3.4) Pub Date : 2024-01-03 Elisabeth M. Oehrlein, Silke Schoch, Kelsie Majercak, Laura Elisabeth Gressler, Ryan C. Costantino, T. Rosie Love, Eleanor M. Perfetto
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Prosocial Behaviour and Antibiotic Resistance: Evidence from a Discrete Choice Experiment Patient. (IF 3.4) Pub Date : 2023-12-20 Mirko Ancillotti, Samare P. I. Huls, Eva M. Krockow, Jorien Veldwijk
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Research Priorities to Increase Confidence in and Acceptance of Health Preference Research: What Questions Should be Prioritized Now? Patient. (IF 3.4) Pub Date : 2023-12-16 Rachael L. DiSantostefano, Ian P. Smith, Marie Falahee, Aura Cecilia Jiménez-Moreno, Serena Oliveri, Jorien Veldwijk, G. Ardine de Wit, Ellen M. Janssen, Conny Berlin, Catharina G. M. Groothuis-Oudshoorn
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Preferences of Patients with Amyotrophic Lateral Sclerosis for Intrathecal Drug Delivery: Choosing between an Implanted Drug-Delivery Device and Therapeutic Lumbar Puncture Patient. (IF 3.4) Pub Date : 2023-12-14 Jaein Seo, Sandeep Saurkar, Gabriela S. Fernandez, Anup Das, Stephen A. Goutman, Sebastian Heidenreich
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Patient Preferences for Pharmacy Services: A Systematic Review of Studies Based on Discrete Choice Experiments Patient. (IF 3.4) Pub Date : 2023-12-13 Margaux Riboulet, Anne-Laure Clairet, Mohamed Bennani, Virginie Nerich
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A Review of the Use of EQ-5D for Clinical Outcome Assessment in Health Technology Assessment, Regulatory Claims, and Published Literature Patient. (IF 3.4) Pub Date : 2023-12-12 Caroline Shaw, Louise Longworth, Bryan Bennett, Louise McEntee-Richardson, James W. Shaw
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Current Practices and Challenges When Submitting Patient Experience Data for Regulatory Decisions by the US Food and Drug Administration: An Industry Survey Patient. (IF 3.4) Pub Date : 2023-12-12 Cathy Anne Pinto, Tommi Tervonen, Cecilia Jimenez-Moreno, Bennett Levitan, Montse Soriano Gabarró, Cynthia Girman, Josephine M. Norquist, Brett Hauber
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Exploring the Preferences of Parents of Children with Myopia in Rural China for Eye Care Services Under Privatization Policy: Evidence from a Discrete Choice Experiment Patient. (IF 3.4) Pub Date : 2023-12-10 Wen Lin, Xiaodong Dong, Jack Hennessy, Junling Zhao, Xiaochen Ma
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A Best–Worst Scaling Study of the General Population's Preferences for Activities in Living Arrangements for Persons With Dementia Patient. (IF 3.4) Pub Date : 2023-12-08 Christian Speckemeier, Carina Abels, Klemens Höfer, Anke Walendzik, Jürgen Wasem, Silke Neusser
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Quality of Life in Adults with Chronic Cough: A Mixed Methods Study Informing the Development of a Quantitative Patient Preference Study Patient. (IF 3.4) Pub Date : 2023-12-07 Theresa Coles, Molly McFatrich, Helen Ding, Nicole Lucas, Erin Daniell, Aparna Swaminathan, Jonathan Schelfhout, Reed Johnson
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Preferences for Monitoring Comprehensive Heart Failure Care: A Latent Class Analysis Patient. (IF 3.4) Pub Date : 2023-11-29 Axel C. Mühlbacher, Andrew Sadler, Christin Juhnke
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Preferences and Willingness to Pay for Medication in Patients with Renal Cell Carcinoma in China: A Discrete-Choice Experiment Patient. (IF 3.4) Pub Date : 2023-11-29 Ruilin Ding, Rong Shao, Lingli Zhang, Jianzhou Yan