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Academic and Private Partnership to Improve Informed Consent Forms Using a Data Driven Approach Am. J. Bioethics (IF 13.4) Pub Date : 2023-09-22 Craig Tendler, Patricia S. Hong, Conor Kane, Christa Kopaczynski, William Terry, Ezekiel J. Emanuel
Published in The American Journal of Bioethics (Ahead of Print, 2023)
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Reasons and Reproduction: Gene Editing and Genetic Selection Am. J. Bioethics (IF 13.4) Pub Date : 2023-09-11 Jeff McMahan, Julian Savulescu
Abstract Many writers in bioethics, science, and medicine contend that embryo selection is a morally better way of avoiding genetic disorders then gene editing, as the latter has risks that the former does not. We argue that one reason to use gene editing is that in many cases it would be better for the person who would develop from the edited embryo, so that not to have done it would have been worse
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Response to Open Peer Commentaries on “Do Clinicians Have a Duty to Participate in Pragmatic Clinical Trials?” Am. J. Bioethics (IF 13.4) Pub Date : 2023-09-05 Andrew Garland, Stephanie Morain, Jeremy Sugarman
Published in The American Journal of Bioethics (Ahead of Print, 2023)
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What Does True Equality in Assisted Dying Require? Am. J. Bioethics (IF 13.4) Pub Date : 2023-08-30 Scott Y. H. Kim
Published in The American Journal of Bioethics (Vol. 23, No. 9, 2023)
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Accommodating Aid-in-Dying Safeguards for Patients with Neurologic Disease Am. J. Bioethics (IF 13.4) Pub Date : 2023-08-30 David Orentlicher
Published in The American Journal of Bioethics (Vol. 23, No. 9, 2023)
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MAID in America: Expanding Our Gaze on the Ethics of Assistance Am. J. Bioethics (IF 13.4) Pub Date : 2023-08-30 Mara Buchbinder
Published in The American Journal of Bioethics (Vol. 23, No. 9, 2023)
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Distinguishing “Reasonable Accommodation” From Physical Assistance in Aid-in-Dying Am. J. Bioethics (IF 13.4) Pub Date : 2023-08-30 Isabel Astrachan, Benjamin E. Berkman
Published in The American Journal of Bioethics (Vol. 23, No. 9, 2023)
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Epistemic Value of Digital Simulacra for Patients Am. J. Bioethics (IF 13.4) Pub Date : 2023-08-30 Eleanor Gilmore-Szott
Published in The American Journal of Bioethics (Vol. 23, No. 9, 2023)
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Acknowledging Complexity and Reimagining IRBs: A Reply to Discussions of the Protection–Inclusion Dilemma Am. J. Bioethics (IF 13.4) Pub Date : 2023-08-30 Phoebe Friesen, Luke Gelinas, Aaron Kirby, David H. Strauss, Barbara E. Bierer
Published in The American Journal of Bioethics (Vol. 23, No. 9, 2023)
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Permit Assisted Self-Administration: A Response to Open Peer Commentaries on Neurologic Diseases and Medical Aid in Dying: Aid-in-Dying Laws Create an Underclass of Patients Based on Disability Am. J. Bioethics (IF 13.4) Pub Date : 2023-08-30 Thaddeus M. Pope, Lonny Shavelson, Margaret Pabst Battin, Alicia Ouellette, Benzi Kluger
Published in The American Journal of Bioethics (Vol. 23, No. 9, 2023)
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The Importance of Self-Administration of Aid-in-Dying Medication Am. J. Bioethics (IF 13.4) Pub Date : 2023-08-30 Neil Wenger
Published in The American Journal of Bioethics (Vol. 23, No. 9, 2023)
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Preventing the Slide down the Slippery Slope from Assisted Suicide to Euthanasia While Protecting the Rights of People with Disabilities Who Are “Not Dead Yet.” Am. J. Bioethics (IF 13.4) Pub Date : 2023-08-30 George J. Annas, Heidi B. Kummer
Published in The American Journal of Bioethics (Vol. 23, No. 9, 2023)
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Beyond Words: Reconsidering the Moral Distinction of Action in Consent for Assisted Dying Am. J. Bioethics (IF 13.4) Pub Date : 2023-08-30 Matthew Cho, Liam G. McCoy, Connor T. A. Brenna, Sunit Das
Published in The American Journal of Bioethics (Vol. 23, No. 9, 2023)
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Can People Work Together to Create a Self-Administered Act? No. Should They Work Together to Repeal the End of Life Option Act? Yes Am. J. Bioethics (IF 13.4) Pub Date : 2023-08-30 Adam Omelianchuk
Published in The American Journal of Bioethics (Vol. 23, No. 9, 2023)
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Current Medical Aid-in-Dying Laws Discriminate against Individuals with Disabilities Am. J. Bioethics (IF 13.4) Pub Date : 2023-08-30 Megan S. Wright
Published in The American Journal of Bioethics (Vol. 23, No. 9, 2023)
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When Anti-Discrimination Discriminates Am. J. Bioethics (IF 13.4) Pub Date : 2023-08-30 Harold Braswell, Rosemarie Garland-Thomson
Published in The American Journal of Bioethics (Vol. 23, No. 9, 2023)
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Aid in Dying Unaided? Am. J. Bioethics (IF 13.4) Pub Date : 2023-08-30 Edwin Jesudason
Published in The American Journal of Bioethics (Vol. 23, No. 9, 2023)
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Value of and Value in Language: Ethics and Semantics in Physician-Assisted Suicide Laws Am. J. Bioethics (IF 13.4) Pub Date : 2023-08-30 Thomas J. Reilly, Lauren B. Solberg
Published in The American Journal of Bioethics (Vol. 23, No. 9, 2023)
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Ethics, First Am. J. Bioethics (IF 13.4) Pub Date : 2023-08-30 Melissa D. McCradden
Published in The American Journal of Bioethics (Vol. 23, No. 9, 2023)
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Integrating Social Determinants of Health into Ethical Digital Simulations Am. J. Bioethics (IF 13.4) Pub Date : 2023-08-30 Kristin Kostick-Quenet, Vasiliki Rahimzadeh, Sharmila Anandasabapathy, Meghan Hurley, Anika Sonig, Amy Mcguire
Published in The American Journal of Bioethics (Vol. 23, No. 9, 2023)
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Digital Simulacra, Bias, and Self-Reinforcing Exclusion Cycles Am. J. Bioethics (IF 13.4) Pub Date : 2023-08-30 Ana Bracic, W. Nicholson Price II
Published in The American Journal of Bioethics (Vol. 23, No. 9, 2023)
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Health Digital Twins, Legal Liability, and Medical Practice Am. J. Bioethics (IF 13.4) Pub Date : 2023-08-30 Andreas Kuersten
Published in The American Journal of Bioethics (Vol. 23, No. 9, 2023)
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Individuals and (Synthetic) Data Points: Using Value-Sensitive Design to Foster Ethical Deliberations on Epistemic Transitions Am. J. Bioethics (IF 13.4) Pub Date : 2023-08-30 Jean-Christophe Bélisle-Pipon, Vardit Ravitsky, Bridge2AI-Voice Consortium, Yael Bensoussan
Published in The American Journal of Bioethics (Vol. 23, No. 9, 2023)
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Enabling the Nonhypothesis-Driven Approach: On Data Minimalization, Bias, and the Integration of Data Science in Medical Research and Practice Am. J. Bioethics (IF 13.4) Pub Date : 2023-08-30 C. W. Safarlou, M. van Smeden, R. Vermeulen, K. R. Jongsma
Published in The American Journal of Bioethics (Vol. 23, No. 9, 2023)
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Digital Simulacra: Circumventing Diversity and Inclusion Am. J. Bioethics (IF 13.4) Pub Date : 2023-08-30 Benjamin Collins, Nora Jones
Published in The American Journal of Bioethics (Vol. 23, No. 9, 2023)
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In Their Own Image: Ethical Implications of the Rise of Digital Twins/Clones/Simulacra in Healthcare Am. J. Bioethics (IF 13.4) Pub Date : 2023-08-30 Benjamin Amram, Uri Klempner, Yehuda Leibler, Dov Greenbaum
Published in The American Journal of Bioethics (Vol. 23, No. 9, 2023)
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Digital Simulacra Mark an Ontological Shift in Biomedicine with Far-Reaching Consequences for Real Patients Am. J. Bioethics (IF 13.4) Pub Date : 2023-08-30 Hazar Haidar, Luyba Encheva, Kalina Kamenova
Published in The American Journal of Bioethics (Vol. 23, No. 9, 2023)
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AI-Based Medical Solutions Can Threaten Physicians’ Ethical Obligations Only If Allowed to Do So Am. J. Bioethics (IF 13.4) Pub Date : 2023-08-30 Benjamin Gregg
Published in The American Journal of Bioethics (Vol. 23, No. 9, 2023)
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Should We be More Worried about Digital Simulacra in Healthcare Being Our “Caricatures,” Rather than Our “Replicas”? Am. J. Bioethics (IF 13.4) Pub Date : 2023-08-30 Brad Partridge
Published in The American Journal of Bioethics (Vol. 23, No. 9, 2023)
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Care Depersonalized: The Risk of Infocratic “Personalised” Care and a Posthuman Dystopia Am. J. Bioethics (IF 13.4) Pub Date : 2023-08-30 Matthew Tieu, Alison L. Kitson
Published in The American Journal of Bioethics (Vol. 23, No. 9, 2023)
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Digital Simulacra and the Call for Epistemic Responsibility: An Ubuntu Perspective Am. J. Bioethics (IF 13.4) Pub Date : 2023-08-30 Brandon Ferlito, Michiel De Proost
Published in The American Journal of Bioethics (Vol. 23, No. 9, 2023)
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Proposed Principles for International Bioethics Conferencing: Anti-Discriminatory, Global, and Inclusive Am. J. Bioethics (IF 13.4) Pub Date : 2023-08-07 Nancy S. Jecker, Vardit Ravitsky, Mohammad Ghaly, Jean-Christophe Bélisle-Pipon, Caesar Atuire
Abstract This paper opens a critical conversation about the ethics of international bioethics conferencing and proposes principles that commit to being anti-discriminatory, global, and inclusive. We launch this conversation in the Section, Case Study, with a case example involving the International Association of Bioethics’ (IAB’s) selection of Qatar to host the 2024 World Congress of Bioethics. IAB’s
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When Treatment Pressures Become Coercive: A Context-Sensitive Model of Informal Coercion in Mental Healthcare Am. J. Bioethics (IF 13.4) Pub Date : 2023-07-28 Christin Hempeler, Esther Braun, Sarah Potthoff, Jakov Gather, Matthé Scholten
Abstract Treatment pressures are communicative strategies that mental health professionals use to influence the decision-making of mental health service users and improve their adherence to recommended treatment. Szmukler and Appelbaum describe a spectrum of treatment pressures, which encompasses persuasion, interpersonal leverage, offers and threats, arguing that only a particular type of threat amounts
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AUTOGEN: A Personalized Large Language Model for Academic Enhancement—Ethics and Proof of Principle Am. J. Bioethics (IF 13.4) Pub Date : 2023-07-24 Sebastian Porsdam Mann, Brian D. Earp, Nikolaj Møller, Suren Vynn, Julian Savulescu
Abstract In this article, we explore the potential of enhancing academic prose and idea generation by fine-tuning a large language model (here, GPT-3) on one’s own previously published writings: AUTOGEN (“AI Unique Tailored Output GENerator”). We develop, test, and describe three distinct AUTOGEN models trained on the prior scholarly output of three of the current authors (SBM, BDE, JS), with a fourth
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Ethics Education for Healthcare Professionals in the Era of chatGPT and Other Large Language Models: Do We Still Need It? Am. J. Bioethics (IF 13.4) Pub Date : 2023-07-24 Vasiliki Rahimzadeh, Kristin Kostick-Quenet, Jennifer Blumenthal Barby, Amy L. McGuire
Abstract In this paper, we contend with whether we still need traditional ethics education as part of healthcare professional training given the abilities of chatGPT (generative pre-trained transformer) and other large language models (LLM). We reflect on common programmatic goals to assess the current strengths and limitations of LLMs in helping to build ethics competencies among future clinicians
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Pragmatic Research and Clinical Duties: Solutions Through Precision AI-Enabled Clinically Embedded Research Am. J. Bioethics (IF 13.4) Pub Date : 2023-07-14 Emma Friedman, Matthew John Baumann, Shruti Sehgal, Justin Starren, Russell Steans, Amanda Venables, Kelly Michelson
Published in The American Journal of Bioethics (Vol. 23, No. 8, 2023)
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Canceling Tuskegee Am. J. Bioethics (IF 13.4) Pub Date : 2023-07-14 Jerry Menikoff
Published in The American Journal of Bioethics (Vol. 23, No. 8, 2023)
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Ethically Alluring but Legally Destructive Am. J. Bioethics (IF 13.4) Pub Date : 2023-07-14 Charles Foster
Published in The American Journal of Bioethics (Vol. 23, No. 8, 2023)
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Refusal of Dialysis: Context Matters Am. J. Bioethics (IF 13.4) Pub Date : 2023-07-14 Nekee Pandya, Debjani Mukherjee
Published in The American Journal of Bioethics (Vol. 23, No. 8, 2023)
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Response to Open Peer Commentaries on “Think Pragmatically: Investigators’ Obligations to Patient-Subjects When Research is Embedded into Care” Am. J. Bioethics (IF 13.4) Pub Date : 2023-07-14 Stephanie R. Morain, Emily A. Largent
Published in The American Journal of Bioethics (Vol. 23, No. 8, 2023)
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Challenges in the Ethics and Implementation of Learning Health Care Systems Am. J. Bioethics (IF 13.4) Pub Date : 2023-07-14 Robert M. Califf, Ruth Faden, Nancy Kass, Stephanie Morain, Matthew Crane
Published in The American Journal of Bioethics (Vol. 23, No. 8, 2023)
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Blurred Boundaries: Toward an Expanded Ethics of Research and Clinical Care Am. J. Bioethics (IF 13.4) Pub Date : 2023-07-14 Meghan C. Halley, Nate W. Olson
Published in The American Journal of Bioethics (Vol. 23, No. 8, 2023)
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Progressing from “Whether to” to “How to” Conduct Pragmatic Trials Am. J. Bioethics (IF 13.4) Pub Date : 2023-07-14 Jonathan D. Casey, Todd W. Rice, Matthew W. Semler
Published in The American Journal of Bioethics (Vol. 23, No. 8, 2023)
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Ethical Pragmatic Clinical Trials Require the Virtue of Cultivated Uneasiness Am. J. Bioethics (IF 13.4) Pub Date : 2023-07-14 Joel Pacyna, Jon Tilburt
Published in The American Journal of Bioethics (Vol. 23, No. 8, 2023)
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Distinguishing Clinical and Research Risks in Pragmatic Clinical Trials: The Need for Further Stakeholder Engagement Am. J. Bioethics (IF 13.4) Pub Date : 2023-07-14 Benjamin S. Wilfond, Sinem Toraman Turk, Stephanie A. Kraft, Elliott M. Weiss, Philip I. Tarr, David Schnadower, Stephen B. Freedman
Published in The American Journal of Bioethics (Vol. 23, No. 8, 2023)
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More-Than-Partial Entrustment in Pragmatic Clinical Trials Am. J. Bioethics (IF 13.4) Pub Date : 2023-07-14 Henry S. Richardson
Published in The American Journal of Bioethics (Vol. 23, No. 8, 2023)
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End-to-End Integration of Pragmatic Trials Into Health Care Settings Am. J. Bioethics (IF 13.4) Pub Date : 2023-07-14 Sarah M. Greene
Published in The American Journal of Bioethics (Vol. 23, No. 8, 2023)
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Is There a Doctor in the House? Am. J. Bioethics (IF 13.4) Pub Date : 2023-07-14 Donna Chen, Lois Shepherd
Published in The American Journal of Bioethics (Vol. 23, No. 8, 2023)
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Special Considerations When Research is Embedded within Community Health Centers Am. J. Bioethics (IF 13.4) Pub Date : 2023-07-14 Carolyn Neuhaus, Johanna Crane, Danielle Pacia
Published in The American Journal of Bioethics (Vol. 23, No. 8, 2023)
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A Paradigm of Investigator Duty to Multiple Stakeholder Participants Am. J. Bioethics (IF 13.4) Pub Date : 2023-07-14 Kimberly Foss, Gail E. Henderson, Kriste Kuczynski, Megan Clarke Roberts
Published in The American Journal of Bioethics (Vol. 23, No. 8, 2023)
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“A Community-Engaged Approach to Address Collateral Findings in Embedded Research” Am. J. Bioethics (IF 13.4) Pub Date : 2023-07-14 Emma Tumilty, Elise Smith
Published in The American Journal of Bioethics (Vol. 23, No. 8, 2023)
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Seizing the Opportunity to Improve Ethical Oversight of Clinical Research Am. J. Bioethics (IF 13.4) Pub Date : 2023-07-14 Kirstin Borgerson
Published in The American Journal of Bioethics (Vol. 23, No. 8, 2023)
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A Neuroethical Analysis of Pragmatic Clinical Trials: Balancing Diverse Interests associated with Collateral Findings Am. J. Bioethics (IF 13.4) Pub Date : 2023-07-14 Michael O. S. Afolabi, Ikeolu O. Afolabi
Published in The American Journal of Bioethics (Vol. 23, No. 8, 2023)
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Pragmatic Research and Quality Assessment/Improvement Initiatives: Kindred Spirits Am. J. Bioethics (IF 13.4) Pub Date : 2023-07-14 Ilene Wilets, Glenn Martin, Theodore Bania
Published in The American Journal of Bioethics (Vol. 23, No. 8, 2023)
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Reasons for Not Participating in PCTs: The Comparative Case of Emergency Research under an Exception from Informed Consent (EFIC) Am. J. Bioethics (IF 13.4) Pub Date : 2023-07-14 Katherine Sahan, Mark Sheehan, Ethan Cowan
Published in The American Journal of Bioethics (Vol. 23, No. 8, 2023)
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Medicine’s Commitment to Science and the Duties That Bind Clinicians Am. J. Bioethics (IF 13.4) Pub Date : 2023-07-14 Rosamond Rhodes, Daniel A. Moros
Published in The American Journal of Bioethics (Vol. 23, No. 8, 2023)
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Clinicians’ Duty to Participate in Pragmatic Clinical Trials: Further Considerations Am. J. Bioethics (IF 13.4) Pub Date : 2023-07-14 Susannah L. Rose, Georgina Morley
Published in The American Journal of Bioethics (Vol. 23, No. 8, 2023)
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Participation in Pragmatic Clinical Trials: A Matter of Physicians’ Professional Ethics? Am. J. Bioethics (IF 13.4) Pub Date : 2023-07-14 Sabine Salloch
Published in The American Journal of Bioethics (Vol. 23, No. 8, 2023)
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Why Clinicians Do Not Have a Duty to Participate in Pragmatic Clinical Trials Am. J. Bioethics (IF 13.4) Pub Date : 2023-07-14 Bryan Pilkington
Published in The American Journal of Bioethics (Vol. 23, No. 8, 2023)
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Patient Ineligibility as a Barrier to Participation in Clinical Trials Am. J. Bioethics (IF 13.4) Pub Date : 2023-07-14 Ryan Lawrence
Published in The American Journal of Bioethics (Vol. 23, No. 8, 2023)