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‘Our biology is listening’: biomarkers as molecular vestiges of early life and the production of positive childhood experiences in behavioral epigenetics BioSocieties (IF 1.3) Pub Date : 2024-08-31 Robbin Jeffries Hein, Martine Lappé, Fionna Francis Fahey
The sciences of environmental epigenetics and the Developmental Origins of Health and Disease have become central in efforts to understand how early life experiences impact health across the life course. This paper draws on interviews with epigenetic scientists and laboratory observations in the United States and Canada to show how scientists conceptualize epigenetic biomarkers as molecular vestiges
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Anticipating and suspending: the chronopolitics of cryopreservation BioSocieties (IF 1.3) Pub Date : 2024-07-11 Thomas Lemke
The article brings together two disparate and so far largely disconnected bodies of research: the critical analysis of cryopreservation technologies and the debate on modes of anticipation. It starts with a short review of the state of the research on the concept of cryopolitics. In the next part I will suggest two revisions. I will problematize the idea of latent life and the focus on potentialities
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From brain “scar” to “bat shit crazy”: negotiating the madness of sexual violence discourse BioSocieties (IF 1.3) Pub Date : 2024-07-09 Emma Yapp
This article analyses how people who identify with psychiatric diagnoses in England and Wales make sense of and talk about their experiences of sexual violence. I examine how interview participants engaged with the hegemonic trauma discourse, as well as the consequences of this for meaning-making, affective pain, and the feminist imperative to ‘speak out’. The hegemonic trauma discourse is characterised
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What is the cure for absolute infertility? Biomedicalisation and routinisation of surrogacy and uterus transplantation in Nordic medical journals BioSocieties (IF 1.3) Pub Date : 2024-07-09 Lise Eriksson
This article investigates 20 years of discursive struggles in Nordic medical journals around the process of legitimating and routinising gestational surrogacy and uterus transplantation in Finland and Sweden. The comparative analysis through critical discourse analysis suggests that influential health care professionals have contributed to different levels of legal and cultural adaptation of the methods
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The politics of suspension suspended: the curious case of a cryopreserved cell product BioSocieties (IF 1.3) Pub Date : 2024-07-09 Ruzana Liburkina
Following recent discussions around suspended life, this paper focuses on an endeavor that sought to arrest biological material in time and space and render it available on demand. It depicts the attempt to establish a collection of cryopreserved donated cells. The study offers rare insights into how this initiative was at odds with familiar politics significant in its field, those of innovation and
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Cell freezing and the biology of inexorability: on cryoprotectants and chemical time BioSocieties (IF 1.3) Pub Date : 2024-07-07 Hannah Landecker
What can’t freezing hold still? This article surveys the history of substances used to protect cells and organisms from freezing damage, known as cryoprotectants. Dimethyl sulfoxide (DMSO) has since 1959 been the most widely used of these agents in cryopreservation. Here, its evolution from pulp and paper waste byproduct to wonder drug to all-but-invisible routine element of freezing protocols is used
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The repro-paradox of sustainable reproduction—debating demographic anxieties in the Danish media (2010–2022) BioSocieties (IF 1.3) Pub Date : 2024-06-22 Anna Sofie Bach, Michala Hvidt Breengaard
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Reproducing the normal and the pathological in personalized cancer medicine clinical trials BioSocieties (IF 1.3) Pub Date : 2024-06-16 Nadav Even Chorev, Dani Filc
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Harnessing the value of human bodily material: a bioconstitutional analysis BioSocieties (IF 1.3) Pub Date : 2024-05-18 Hadrien Macq, Céline Parotte, Pierre Delvenne
Human tissues and cells are now recognized as an important source of health and wealth. As such, public authorities have assumed responsibility for regulating their procurement, storage and use. Looking at the interactions between law and life through the lens of ‘bioconstitutionalism’, we specifically ask how human bodily material (HBM) is regulated and explore the resulting changing relationships
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What to do with the new molecular publics: the vernacularization of pathogen genomics and the future of infectious disease biosocialities BioSocieties (IF 1.3) Pub Date : 2024-04-13 Stephen Molldrem
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“Being useful, I think it's the result of a sick society”: Critical reflections on reproductive politics and markets by women freezing their eggs in Spain BioSocieties (IF 1.3) Pub Date : 2024-03-22 Sara Lafuente-Funes
This piece analyzes the way in which women that froze, are considering freezing or are freezing their eggs in Spain think critically about broader reproductive politics in Spain and about assisted reproduction. Drawing partially on previous studies around egg freezing, Thomas Lemke has suggested that cryopreservation practices represent a “politics of suspension” characterized by both reversibility
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Accept no limits: biocontainment and the construction of a safer space for experimentation in xenobiology as a legacy of Asilomar BioSocieties (IF 1.3) Pub Date : 2024-03-16 Alberto Aparicio
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Challenges in public policy for the implementation of pharmacogenetic tests in Europe BioSocieties (IF 1.3) Pub Date : 2024-03-16 Bernice Azzopardi Meli, Anthony G. Fenech, Maria Cordina, Bridget Ellul, Emmanuel Agius
Pharmacogenetics innovation in biomedicine has fostered new hope in pharmacotherapeutics and in the prevention and management of adverse drug reactions. Proponents argue that pharmacogenetics will improve drug safety and efficacy while also revolutionising marketing. Integral to this survey is the recognition that pharmacogenetics has been hailed as a revolutionary frontier within biomedicine. This
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Guardians of ableist family formation: the legitimation work of Danish abortion committees in cases of termination for fetal anomaly BioSocieties (IF 1.3) Pub Date : 2024-03-16 Laura Louise Heinsen
In Denmark, pregnant persons have a statutory right to abortion on-demand in the first trimester of pregnancy, after which abortion must be sanctioned by a regional abortion committee and may be warranted if there is danger that the fetus will suffer a serious mental or physical disability, yet what precisely constitutes ‘danger’ and ‘seriousness’ are left in the hands of the juridical abortion system
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Hormonal stories: a new materialist exploration of hormonal emplotment in four case studies BioSocieties (IF 1.3) Pub Date : 2024-01-28 Sonja Erikainen, Andrea Ford, Roslyn Malcolm, Lisa Raeder
Hormones are complex biosocial objects that provoke myriad cultural narratives through their association with social activities and identities, and these narratives have the power to shape people’s lived realities and bodies. While hormones were historically conceptualised as ‘master molecules’ capable of controlling various life processes, their explanatory potential has now been overshadowed by technoscientific
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Formatting patient knowledge and channelling participation: how patient organisations work under authoritarianism BioSocieties (IF 1.3) Pub Date : 2024-01-04 Vlas Nikulkin, Olga Zvonareva
Patient experiential knowledge is important for the quality and responsiveness of healthcare systems. However, it is not rare for patients to struggle to have their knowledge recognised as credible and valuable. This study explores how patient organisations work to adjust patient knowledge to formats recognisable and acceptable by healthcare governance decision-makers. Using the case of patient organisations
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Sensing inequity: technological solutionism, biodiversity conservation, and environmental DNA BioSocieties (IF 1.3) Pub Date : 2023-11-22 Elaine W. Shen, Jessica M. Vandenberg, Amelia Moore
Environmental DNA (eDNA) has risen in popularity as a genetically-based method to enumerate species in natural ecosystems, and it is well positioned to be integrated into biodiversity monitoring and conservation initiatives. While the field has made great strides in methodological development, it has largely avoided discussion of its potential inequitable social outcomes. In this paper, we argue that
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Conceptualization of genotype–phenotype relationships and the assessment of risk in advertising of direct-to-consumer and preimplantation polygenic tests BioSocieties (IF 1.3) Pub Date : 2023-09-30 María Alejandra Petino Zappala, Lucía Ariza, Natacha Salomé Lima
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Figuring the ‘cynical scientist’ in British animal science: the politics of invisibility BioSocieties (IF 1.3) Pub Date : 2023-09-26 Tarquin Holmes, Carrie Friese
This paper investigates the ‘cynical scientist’ as a figure in British animal science discourse that developed in relation to the nineteenth-century emergence of the ‘sceptical scientist’. Here, efforts by scientists to demarcate their profession’s territory led to religious backlash against an alleged ‘divorce’ of British science from Christian morality. Animal experimentation became embroiled in
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The effects of COVID-19 on imagined reproductive futures BioSocieties (IF 1.3) Pub Date : 2023-09-23 Charlotte Abel
Macro-level crises affect individual lives and behaviors. One of COVID-19’s many effects was to disrupt the way people imagined their own and their children’s’ futures or imagined reproductive futures. Using 65 interviews collected between March and July 2020 with mothers who experienced pregnancy, childbirth, and the postpartum period at the onset of COVID-19 in the US, this study examines two elements
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Foetal programming meets human capital: biological plasticity, development, and the limits to the economization of life BioSocieties (IF 1.3) Pub Date : 2023-09-16 Tessa Moll, Maurizio Meloni, Ayuba Issaka
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Medical markets for imagined futures: the framing of egg freezing on fertility clinic websites in Turkey BioSocieties (IF 1.3) Pub Date : 2023-09-04 Azer Kılıç
This article explores the use of future imaginaries in medical markets, examining the framing of egg freezing on fertility clinic websites. Egg freezing is a recent example of what medical sociologists term anticipatory medicalization. It primarily promises a measure against the anticipated risk of female infertility due to reproductive aging. Economic sociologists, on the other hand, see a focus on
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Uncertain commodities: egg banking and value in Ukraine BioSocieties (IF 1.3) Pub Date : 2023-08-17 Polina Vlasenko
The development of vitrification techniques has increased the use of donor ova by allowing for their cryopreservation, storage, and international transportation. However, the implications of egg banking for the valuation of eggs remain little studied. Building on ethnographic fieldwork in a Ukrainian egg bank, in this article I examine different mechanisms and calculations that allow the bank to transform
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In whose pockets? How small Danish patient organisations balance legitimacy, representation and dependency in collaboration with public sector medical researchers and the life science industry BioSocieties (IF 1.3) Pub Date : 2023-06-02 Charlotte Bredahl Jacobsen, Dorthe Brogård Kristensen, Birgitte Bruun
It is a commonly accepted idea that complex structural challenges can be solved if private actors, NGOs, and the public authorities collaborate (Brogaard in Politica 47(4):541–560, 2015), a view that has come to frame several publicly funded network activities in Denmark. This article takes its point of departure in one such project aimed at setting up a collaborative network between researchers, patient
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Allostatic load: historical origins, promises and costs of a recent biosocial approach BioSocieties (IF 1.3) Pub Date : 2023-05-26 Thibaut Serviant-Fine, Mathieu Arminjon, Yohan Fayet, Élodie Giroux
This article provides a critical and genealogical analysis of the allostatic load research framework. AL research is used as a case study to analyse how the current biosocial context is articulated in the field of health inequalities research. Providing a contemporary analysis of AL studies with a genealogy of the AL concept, we show that the ambition to use biological tools to improve measurements
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Citizenship in times of crisis: biosocial state–citizen relations during COVID-19 in Austria BioSocieties (IF 1.3) Pub Date : 2023-05-22 Isabella M. Radhuber, Christian Haddad, Katharina Kieslich, Katharina T. Paul, Barbara Prainsack, Seliem El-Sayed, Lukas Schlogl, Wanda Spahl, Elias Weiss
Drawing upon 152 in-depth qualitative interviews with residents in Austria carried out in the first year of the pandemic, this article discusses how people’s experiences with COVID-19 policies reflect and reshape state–citizen relations. Coinciding with a significant government crisis, the first year of COVID-19 in Austria saw pandemic measures justified with reference to a biological, often medical
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Navigating biosafety concerns within COVID-19 do-it-yourself (DIY) science: an ethnographic and interview study BioSocieties (IF 1.3) Pub Date : 2023-03-28 Anna Wexler, Rebekah Choi, Alex Pearlman, Lisa M. Rasmussen
Non-establishment or do-it-yourself (DIY) science involves individuals who may not have formal training conducting experiments outside of institutional settings. While prior scholarship has examined the motivations and values of those involved in the subset of DIY science known as “DIY biology,” little research has addressed how these individuals navigate ethical issues in practice. The present study
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Post-identifiability in changing sociotechnological genomic data environments BioSocieties (IF 1.3) Pub Date : 2023-03-28 Kaya Akyüz, Melanie Goisauf, Gauthier Chassang, Łukasz Kozera, Signe Mežinska, Olga Tzortzatou-Nanopoulou, Michaela Th. Mayrhofer
Data practices in biomedical research often rely on standards that build on normative assumptions regarding privacy and involve ‘ethics work.’ In an increasingly datafied research environment, identifiability gains a new temporal and spatial dimension, especially in regard to genomic data. In this paper, we analyze how genomic identifiability is considered as a specific data issue in a recent controversial
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Homo chimaera after homo sapiens?: the legal status of human–non-human chimaeras with human brain cells BioSocieties (IF 1.3) Pub Date : 2023-03-28 Vera Lúcia Raposo
Recent scientific developments have made possible something that would once—not long ago—have seemed out of a science fiction film: the creation of a human and non-human chimaera with human brain cells and their eventual birth. This has posed novel challenges for lawmakers. Laws have been established to allow for the creation of these entities; the challenge now is to define their legal status. Such
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Science and democracy on stage at the Science and Technology Select Committee BioSocieties (IF 1.3) Pub Date : 2023-02-14 Rebecca Dimond, Neil Stephens
In this article, we explore the legalisation of mitochondrial donation in the UK as the latest iteration of an established sociotechnical imaginary of permissive yet highly scrutinised human embryo research in the country. The focus of our analysis is the work of the UK House of Commons Science and Technology Select Committee as it contributed to the debates and ultimately played a role in enabling
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Challenges facing the clinical adoption of a new prognostic biomarker: a case study BioSocieties (IF 1.3) Pub Date : 2023-01-21 Trine Schifter Larsen, Jesper Eugen-Olsen, Ove Andersen, Jeanette Wassar Kirk
In this article, we show how a particular biomarker comes into being in an emergency department in a hospital in Copenhagen, Denmark. We explore the contextual becoming of this biomarker, suPAR, through interviews with nurses and physicians and through relational ontology. We find that as a prognostic biomarker suPAR is challenged in it becoming as an object for clinical practice in the emergency department
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Feral pharmaceuticalization—Biomedical uses of animal life in light of the global donkey hide trade BioSocieties (IF 1.3) Pub Date : 2023-01-07 Mariana Bombo Perozzi Gameiro, Mathieu Quet
Medical and pharmaceutical uses of animal life have gone through vast changes in the past centuries. Although the commodification of animals and animal parts is by no means an invention of modernity, its procedures and practices have evolved in multiple ways across time. Most notably, the exploitation of non-human animal life has been increasingly segmented, industrialized, and globalized. The collateral
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Negotiating the necessity of biomedical animal use through relations with vulnerability BioSocieties (IF 1.3) Pub Date : 2023-01-07 Renelle McGlacken
In the UK, claims are often made that public support for animal research is stronger when such use is categorised as for medical purposes. Drawing on a qualitative analysis of writing from the Mass Observation Project, a national writing project documenting everyday life in Britain, this paper suggests that the necessity of using animals for medical research is not a given but understood relationally
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“It gives me time, but does it give me freedom?”: a contextual understanding of anticipatory decision-making in social egg freezing BioSocieties (IF 1.3) Pub Date : 2022-12-31 Michiel De Proost, Gily Coene
The ethics of social egg freezing is a much-debated topic, yet there is limited research using contextual approaches to understand the experiences and decision-making of women that have used this novel assisted reproductive technology. Based on a small-scale qualitative study in Belgium, this article explores how women’s social contexts have an impact on conceptions of time and anticipatory decision-making
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Epistemology of the side effect: anecdote and evidence in the digital age BioSocieties (IF 1.3) Pub Date : 2022-12-22 Antoine Lentacker
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The normal is pathological: semi-conscious brains, mindless habits, and the paradoxical science of mindfulness BioSocieties (IF 1.3) Pub Date : 2022-12-19 Nedim Karakayali
The article investigates the recent attempts to create a medical technique and a scientific object of knowledge out of ‘mindfulness’, paying particular attention to the paradoxical implications of these attempts for biosocial theorizing. The author compares the scholarly and non-scholarly works of mindfulness therapists to understand how they introduce their practice to the medical/scientific community
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Psychedelic innovations and the crisis of psychopharmacology BioSocieties (IF 1.3) Pub Date : 2022-12-15 Nicolas Langlitz
In the 2010s, psychopharmacological research and development experienced a crisis: since no genuinely new drugs for the treatment of mental illness had been successfully developed for decades, major pharmaceutical corporations decided to disinvest their neuropsychopharmacology departments. At the same time, however, one branch of psychopharmacology began to boom. The FDA declared psychedelic-assisted
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“Black race”, “Schwarze Hautfarbe”, “Origine africaine”, or “Etnia nera”? The absent presence of race in European pharmaceutical regulation BioSocieties (IF 1.3) Pub Date : 2022-12-14 Shai Mulinari, Anna Bredström
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Indentured clinical labor? An indigenist standpoint view of ‘forced surrogacy’ and reproductive governance in India BioSocieties (IF 1.3) Pub Date : 2022-10-19 Sanghamitra Das
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Agri-food tech’s building block: narrating protein, agnostic of source, in the face of crisis BioSocieties (IF 1.3) Pub Date : 2022-10-19 Julie Guthman, Charlotte Biltekoff
Inventive producers in Silicon Valley and other innovations sectors are going beyond the simulated animal products of plant-based proteins and cellular technologies to produce a third generation of protein products, making protein the leading edge of high tech food innovation. Since innovators draw on sources not generally recognized as food these products are speculative as both foods and investments
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Epigenetic citizenship and political claims-making: the ethics of molecularizing structural racism BioSocieties (IF 1.3) Pub Date : 2022-10-19 Jessica P. Cerdeña
Epigenetics has generated excitement over its potential to inform health disparities research by capturing the molecular signatures of social experiences. This paper highlights the concerns implied by these expectations of epigenetics research and discusses the possible ramifications of ‘molecularizing’ the forms of social suffering currently examined in epigenetics studies. Researchers working with
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Care during ART scale-up: surviving the HIV epidemic in Ethiopia BioSocieties (IF 1.3) Pub Date : 2022-10-03 Makoto Nishi
Over the last decades, there has been a worldwide rise of new technologies for controlling the HIV epidemic by expanding antiretroviral medicines. This article examines how the pharmaceutical-driven model of public health, which emerged as a byproduct of antiretroviral treatment (ART) scale-up in Ethiopia, interplayed with local forms of actions, engagements, and voices through which suffering inflicted
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Chemical species: the art and politics of living with(out) drugs after addiction BioSocieties (IF 1.3) Pub Date : 2022-09-27 Fay Dennis
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The emergence of multimorbidity as a matter of concern: a critical review BioSocieties (IF 1.3) Pub Date : 2022-09-24 Esca van Blarikom, Nina Fudge, Deborah Swinglehurst
Multimorbidity is considered one of the greatest emerging challenges for contemporary health care systems. However, the meaning of the term ‘multimorbidity’ is not straightforward. Despite many attempts to clarify the definition and its measurement, the concept remains elusive. Still, academic interest in the study of multimorbidity has grown exponentially in the past ten years. In this paper, we trace
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Animal welfare chauvinism in Brexit Britain: a genealogy of care and control BioSocieties (IF 1.3) Pub Date : 2022-09-10 Reuben Message
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Device activism and material participation in healthcare: retracing forms of engagement in the #WeAreNotWaiting movement for open-source closed-loop systems in type 1 diabetes self-care BioSocieties (IF 1.3) Pub Date : 2022-04-22 Bianca Jansky, Henriette Langstrup
The #WeAreNotWaiting movement is a global digital health phenomenon in which people with diabetes, mainly type 1 diabetes (T1D), engage in the development and usage of open-source closed-loop technology for the improvement of their “chronic living” (Wahlberg et al. 2021). The characteristics of a digitally enabled and technologically engaged global activist patient collective feed into existing narratives
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Correction to: The other face of medical globalization? Pharmaceutical data, prescribing trends, and the social localization of psychostimulants BioSocieties (IF 1.3) Pub Date : 2022-04-16 Angela Marques Filipe
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Value-creation in the health data domain: a typology of what health data help us do BioSocieties (IF 1.3) Pub Date : 2022-04-12 Amelia Fiske, Alexander Degelsegger-Márquez, Brigitte Marsteurer, Barbara Prainsack
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Ectogenesis, inequality, and coercion: a reproductive justice-informed analysis of the impact of artificial wombs BioSocieties (IF 1.3) Pub Date : 2022-04-10 Claire Horn
A prototype artificial womb is anticipated to be ready for human trials within five years. This technology departs from previous forms of neonatal care. Rather than treating the complications of premature birth, if successful, it will prevent these complications from arising to begin with by extending the period of gestation and allowing the neonate to continue to develop in an environment analogous
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Diversity via datafication? Digital patient records and citizenship for sexuality and gender diverse people BioSocieties (IF 1.3) Pub Date : 2022-04-05 Mark D. M. Davis, Allegra Schermuly, Anthony K. J. Smith, Christy Newman
In 2018, the Australian Government adopted an ‘opt-out’ strategy to increase participation in My Health Record (MHR), the national digital patient record system. Opt out was rationalised through discourse on the universal right to health. Media controversy ensued due to privacy fears, security and commercial exploitation of patient information. LGBT community organisations warned that people with complex
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Openness in donor conception families BioSocieties (IF 1.3) Pub Date : 2022-04-04 Caitlin M. Macmillan
Dempsey, Nordqvist and Kelly’s recent publication in BioSocieties highlights the complexity of disclosure in donor conception, which is legally, ethically, and morally challenging. However, contemporary society means that donor-conceived people’s awareness of their conception history can no longer be controlled by their parents. Late, accidental, and non-parent disclosure is becoming more prevalent
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Dynamic pharmaceuticals: how stimulant compounds changed the ADHD profile BioSocieties (IF 1.3) Pub Date : 2022-04-04 Jonathan Ruiz
This article contributes to ongoing scholarship examining how drug investment and development shape medical and psychiatric classification. Whereas scholars have largely explained pharmaceutical development and expansion in terms of unidirectional flows of power from drug companies and medical experts, this article demonstrates a more dynamic process. Drawing on an in-depth case study of a series of
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Analysing bio-art’s epistemic landscape: from metaphoric to post-metaphoric structure BioSocieties (IF 1.3) Pub Date : 2022-03-26 Diaa Ahmed Mohamed Ahmedien
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Making epistemic goods compatible: knowledge-making practices in a lifestyle intervention RCT on mindfulness and compassion meditation BioSocieties (IF 1.3) Pub Date : 2022-03-08 Mareike Smolka
Mindfulness and compassion meditation is a popular lifestyle intervention in randomised controlled clinical trials (RCTs), which examine its efficacy to ameliorate health and well-being. Studying meditation in an RCT poses the challenge of standardising an intervention that relies on a mix of people, skills and activities. This article describes how, in meeting this challenge, researchers engage in
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The other face of medical globalization? Pharmaceutical data, prescribing trends, and the social localization of psychostimulants BioSocieties (IF 1.3) Pub Date : 2022-03-08 Angela Marques Filipe
The last two decades have seen an exponential growth in the consumption and prescription of psychostimulants for the treatment of attention deficit hyperactivity disorder (ADHD) worldwide. While much has been said in the literature about the medicalization and globalization of ADHD, comparatively less is known about how these processes play out on the ground and outside English-speaking countries,
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‘Healthy’ for whom? ‘Healthy’ food’s effectivities, avocados, and the production of differentiated bodies BioSocieties (IF 1.3) Pub Date : 2022-03-08 Myriam Durocher
Current ‘healthy’ food knowledge revolves around characterizing food by its purported direct, causal effects on the body that ingests it, following a biomedical approach informed by nutritionism (Scrinis, Nutritionism: the science and politics of dietary advice. Columbia University Press, New York, 2013). As long as the focus is on the effects given foods or nutrients have on the ingesting body, a
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The life and death of confidentiality: a historical analysis of the flows of patient information BioSocieties (IF 1.3) Pub Date : 2022-01-29 Sarah Wadmann, Mette Hartlev, Klaus Hoeyer
Health data can contain sensitive information. People who consult a doctor seek help on issues that matter to them: they typically expect some form of confidentiality. However, the notion and practices of confidentiality have changed dramatically over time. In this article, we trace the history of confidentiality in the Danish healthcare system, which has one of the world’s most integrated patient
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Making it happen: data practices and the power of diplomacy among Danish organ transplant coordinators BioSocieties (IF 1.3) Pub Date : 2022-01-25 Jensen, Anja M. B.
Danish transplant coordinators handle all data and logistics involved with the removal and transfer of organs from the body of an organ donor into several recipients in other Scandinavian hospitals. This entails a wide range of data work, not only in relation to sudden organ donation cases, but also to documenting transplantations, providing feedback on donation outcomes, and facilitating the data
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It’s all about kids, kids, kids! Negotiating reproductive citizenship and patient-centred care in ‘factory IVF’ BioSocieties (IF 1.3) Pub Date : 2022-01-25 Kvernflaten, Birgit, Fedorcsák, Peter, Solbrække, Kari Nyheim
This article provides novel insights into how the values placed on patient-centred care in an in vitro fertilization (IVF) setting are shaped by discourses and practices on what counts as ‘normal family life’ in society at large. Based on an ethnographic study drawing on observations and interviews in a Norwegian IVF clinic, we show how patients place great value on interpersonal aspects of care and