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Losing My Father Changed My Social Work Practice. Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2024-08-23 Melissa Wombwell-Twersky
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Always Politically Correct: Supporting Seriously Ill Older Populations and Their Families. Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2024-08-12 M Courtney Hughes,Erin Vernon
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What is This Job? Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2024-07-16 Catherine Pilling
Published in Journal of Social Work in End-of-Life & Palliative Care (Ahead of Print, 2024)
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The Family Talk Intervention Among Families Affected by Severe Illness: Hospital Social Workers’ Experiences of Facilitators and Barriers to its Use in Clinical Practice Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2024-07-05 Ingrid Thermaenius, Camilla Udo, Anette Alvariza, Tina Lundberg, Maja Holm, Malin Lövgren
Hospital social workers (HSW) play an important role in health care, providing psychosocial support to families affected by severe illness, and having palliative care needs involving dependent chil...
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Virtual Bereavement Support Program in a Children’s Hospice Care Center During COVID-19 Pandemic and Beyond Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2024-07-01 Sarah Allan-Wiseman, Nahal Yazdani, Shokoufeh Modanloo
In light of the COVID-19 pandemic, a pediatric hospice in Ottawa, Ontario, implemented a Virtual Bereavement Group Program, necessitating a reorganization of care delivery during the global crisis....
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“They Make the Will, But They Want the Food:” Staff Perspectives on Challenges in Implementing Dementia Advance Directives Related to Stopping Feeding Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2024-07-01 Meredith Levine, Mercedes Bern-Klug
Published in Journal of Social Work in End-of-Life & Palliative Care (Ahead of Print, 2024)
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Factors Influencing Perception of Social Support among Patients with Advanced Cancer Receiving Palliative Care in Bangladesh Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2024-06-16 Jheelam Biswas, A. K. M. Motiur Rahman Bhuiyan, Afroja Alam, Mostofa Kamal Chowdhury
The perception of social support among patients with advanced diseases is influenced by various factors. The socio-cultural context of Bangladesh significantly shapes the experience of patients wit...
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Editor Introduction Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2024-06-05 Ellen L. Csikai
Published in Journal of Social Work in End-of-Life & Palliative Care (Vol. 20, No. 2, 2024)
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Factors Influencing Palliative and End-of-Life Care for Adults with Intellectual Disabilities: A Scoping Review of Health and Care Workers’ Experiences Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2024-05-05 Romane Couvrette, É. Milot, G. Fortin
In developed countries, there has been an increase in the longevity of adults with intellectual disabilities. In the later stages of their lives, people with intellectual disability have specific n...
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Dreams in Gojoseon Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2024-04-23 Janice Kim
Published in Journal of Social Work in End-of-Life & Palliative Care (Ahead of Print, 2024)
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Psychosocial Distress Screening Among Interprofessional Palliative Care Teams: A Narrative Review Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2024-04-23 Chelsea K. Brown, Cara L. Wallace
With increased need for palliative care and limited staffing resources, non-social workers are increasingly responsible for screening for urgent psychosocial distress. The National Consensus Projec...
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High Financial Hardship among Patients with Advanced Ovarian Cancer Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2024-04-18 Elsa Maria Vasquez-Trespalacios, Jessica N. Rivera Rivera, McKenzie McIntyre, Waleska Santiago-Datil, Robert M. Wenham, Susan T. Vadaparampil, Andrea L. Buras, Claire C. Conley
Ovarian cancer is considered the most fatal and costly gynecologic cancer. Although personalized therapies have improved ovarian cancer prognosis, they have resulted in increased financial toxicity...
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Hospice Knowledge, Attitudes, and Preference among Older Chinese Immigrants in the United States Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2024-04-01 Xiaofang Liu, Cathy Berkman
Racial disparities in hospice use are a longstanding concern in the U.S. Asian Americans are among the least likely to receive hospice care and to be included in studies on this topic. This study e...
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Your Unwavering Presence Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2024-04-01 Carina Oltmann
Published in Journal of Social Work in End-of-Life & Palliative Care (Vol. 20, No. 2, 2024)
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A Prospective Study with Patients and Families on the Usefulness of Accurate Prognosis for Palliative Care Patients Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2024-03-06 Manuela Piovesan, Pauline Orr, Sarah Tevyaw, Emily Roussos, Chams Cherid, Sylvie Bouchard
Prediction of life expectancy in terminally ill patients is an important end-of-life care issue for patients, families and mental health workers during the last days of life. This study was conduct...
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Editor Introduction Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2024-02-27 Ellen L. Csikai
Published in Journal of Social Work in End-of-Life & Palliative Care (Vol. 20, No. 1, 2024)
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“Stop Imposing on Us”: A Critical Examination of Ethnocultural Considerations in the Canadian Volunteer Hospice Palliative Care Landscape Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2024-02-28 Cheryl-Anne Cait, Ginette Lafreniere
Volunteers are foundational in hospice programs. The purpose of this research was to address social, ethnic and demographic changes in Southwestern Ontario and understand how this may affect volunt...
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On Dementia Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2024-02-22 Tarek Zieneldien
Published in Journal of Social Work in End-of-Life & Palliative Care (Vol. 20, No. 2, 2024)
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Family History Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2024-02-12 Tarek Zieneldien
Published in Journal of Social Work in End-of-Life & Palliative Care (Vol. 20, No. 2, 2024)
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Inclusion of Social Work in Comprehensive Palliative Care to Address Psychosocial Needs of Advanced Cancer Patients in Vietnam Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2024-02-12 Quynh Xuan Nguyen Truong, The Ngoc Ha Than, Duong Le Dai, Khoa Duy Duong, Eric L. Krakauer, Bumi Herman, Surasak Taneepanichskul
The need for psychosocial care among patients with serious illnesses and available social work services continues to be great, especially in low- and middle-income countries. To evaluate the specif...
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Bereaved Family Caregivers Perception of Trust in Palliative Care Doctors by Patients with Terminal Cancer Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-12-06 Masaki Murahashi, Kaichiro Tamba, Tomoaki Takanashi
Trust is a key factor in achieving a good death. However, few studies have focused on factors that help patients with terminal cancer establish trusting relationships with their palliative care doc...
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Editor Introduction Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-12-01 Ellen L. Csikai
Published in Journal of Social Work in End-of-Life & Palliative Care (Vol. 19, No. 4, 2023)
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Social Workers as Leaders for Facilitating Trauma-Informed Palliative Care in the Outpatient Palliative Care Clinic Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-12-01 Jennifer DiBiase
Palliative care social workers are trained to identify how trauma manifests over the course of serious and chronic illness. This expertise can guide patients and team members to ensure a trauma-inf...
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Trauma Informed Care in the Neonatal Intensive Care Unit Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-12-01 Kara Hansen, Patty Davis, Dena K. Hubbard
Parents who have a baby receiving care in the Neonatal Intensive Care Unit (NICU) likely all experience emotional distress and are at elevated risk of experiencing trauma. The NICU environment is a...
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Situational Analysis of Barriers to Continuity of End-of-Life Care in Urban Areas, Bangkok Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-11-17 Nisa Wongchan, Kittikorn Nilmanat, Tippamas Chinnawong
This qualitative study was designed to describe the continuity of end-of-life care and identify barriers to continuity in urban Bangkok. Continuity of care is considered an essential part of pallia...
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Nonphysical Suffering: An Under-Resourced and Key Role for Hospice and Palliative Care Social Workers Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-11-10 Maxxine Rattner, Cheryl-Anne Cait
This article highlights recent research findings that have significance for hospice and palliative care social work in Canada, and for the field of hospice and palliative care more broadly. A 2020 ...
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Exploring the Lived Experiences of Rural Hospice Social Workers in Navigating “Cracked” Systems Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-09-26 Jessica Curd, Michin Hong
Social workers often encounter health and resource disparities and caregiver challenges in support of hospice patients and families. Social workers also play a critical role in navigating systems a...
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After a Suicide Death in a High School: Exploring Students’ Perspectives Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-09-13 Rebecca G. Mirick, Larry Berkowitz
By the time they leave high school, 17% of adolescents will have experienced the suicide death of a friend, peer, or classmate. While some will be unaffected or experience a brief period of distres...
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Trauma-Informed Care for Inpatient Palliative Care Social Work: Applying Existing Models at the Bedside Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-09-12 Chelsea K. Brown, Jennifer DiBiase, Abigail Nathanson, Tamara J. Cadet
Coexisting serious illness and posttraumatic stress place hospitalized individuals at risk for complex pain, anxiety, and retraumatization. Hospital palliative care social workers increasingly reco...
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Editor Introduction Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-08-26 Ellen L. Csikai
Published in Journal of Social Work in End-of-Life & Palliative Care (Vol. 19, No. 3, 2023)
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Dignity of Identity Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-08-08 Viripun Gift Chowchuvech
Published in Journal of Social Work in End-of-Life & Palliative Care (Vol. 20, No. 1, 2024)
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The Experience of Living with a Chronic Illness: A Qualitative Study among End-Stage Renal Disease Patients Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-07-11 Ginu George Powathil, Anish KR
Abstract The prevalence of End-Stage Renal Disease (ESRD) has been rising over time and substantially affects morbidity and mortality. ESRD requires lifelong treatment, and as a result, patients experience multiple physical and psychosocial stressors. ESRD patients struggle to retain their jobs, social lives, financial flexibility, and diet restrictions of liquids and solid foods. The present study
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I Am a Hospice Social Worker Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-07-09 Reid M. Jacobs
Published in Journal of Social Work in End-of-Life & Palliative Care (Vol. 20, No. 1, 2024)
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Sitting with Helplessness Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-07-04 Catherine Olsen
Published in Journal of Social Work in End-of-Life & Palliative Care (Vol. 19, No. 3, 2023)
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Challenges and Innovations in Hospice Care during the COVID-19 Pandemic: A Scoping Review Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-06-30 Patricia Dobríková, Regina Scheitel, Audrey Roulston
Abstract In addition to addressing nursing and medical needs, the social needs of patients within hospice care require assessment (i.e., relationships, isolation, loneliness, societal inclusion or exclusion, negotiating adequate formal and informal support, or living with a life-limiting condition). The objectives of this scoping review are to examine the challenges of adult patients in receipt of
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Stretching a Penny: Completing a Rapid Needs Assessment for a Nonprofit Community-Based Hospice Wellness Center in Ontario, Canada Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-06-29 Michael R. Bennett, Carly Charron, Patricia Valcke
Abstract The literature pertaining to community-based hospice wellness centres, especially concerning program evaluation, is sparse. This article describes the development and implementation of a mixed-method, rapid needs assessment for a nonprofit community-based hospice wellness centre in Ontario, Canada. As part of the needs assessment, a survey and focus groups were performed to elicit responses
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Advanced Care Directives in Residential Aged Care for Residents with Major Neuro-Cognitive Disorders (Dementia): A Scoping Review Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-06-29 Raúl Hormazábal-Salgado, Abdi D. Osman, Margarita Poblete-Troncoso, Dean Whitehead, Danny Hills
The aim of this review was to identify, assess, collate, and analyze existing research that has made a direct contribution to aiding understanding of the ethical and decision-making issues related ...
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Hearing Aid Loan Program for Hearing Loss at the End of Life Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-06-27 M. Courtney Hughes, Diane ScheckLong, King Chung
Abstract This article describes a hearing aid loan program to provide free amplification devices for patients at the end of life to help them communicate more effectively at this critical time. It includes steps for establishing such a program, addressing challenges, and the role of the informal caregiver throughout the intervention. Healthcare professionals and social workers are encouraged to develop
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Editor Introduction Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-06-19 Ellen L. Csikai
Published in Journal of Social Work in End-of-Life & Palliative Care (Vol. 19, No. 2, 2023)
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“The Health Caregivers Did Not Care about Me after the Loss”: Maternal Experiences of Perinatal Loss in the Kumasi Metropolitan Area, Ghana Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-06-19 Bridget Amankwah, Mary Ani-Amponsah, Mustapha Mahama, Alberta Gyepi-Garbrah, Doris Richardson, Olivia Nyarko Mensah, Hannah Acquah, Dzigbordi Kpikpitse, Rasheed Ofosu-Poku
Abstract One of the common undesirable outcomes of pregnancy is perinatal loss. Healthcare systems strive to reduce the incidence of perinatal loss but typically little attention is on the experiences of bereaved mothers following perinatal loss, particularly in low and middle-income countries where such deaths are common. This research explored the lived experiences of mothers with perinatal loss
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Pathways of Individuals Experiencing Serious Illness While Homeless: An Exploratory 4-Point Typology from the RASCAL-UP Study Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-06-18 Ian M. Johnson, Michael A. Light
Abstract The shifting age demographics of those experiencing homelessness in the United States expose shortcomings and barriers within homelessness response services and safety-net healthcare to address serious illness. The purpose of this study is to describe the common trajectories of patients concurrently experiencing homelessness and serious illness. As a part of the Research, Action, and Supportive
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Practicing Trauma-informed Care with Parents Expecting a Baby Diagnosed with Congenital Anomaly Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-06-14 Kara Hansen, Valerie Akerson
Published in Journal of Social Work in End-of-Life & Palliative Care (Vol. 19, No. 4, 2023)
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Perspectives on Social Justice among Hospice and Palliative Care Social Workers: Voices from the Field Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-06-08 John G. Cagle, Rachel Brandon
Abstract Hospice and palliative care are burgeoning fields of social work practice. Within the social work profession, the pursuit of social justice is a defining ethical value. While some research exists on social justice within palliative and hospice care, no studies have examined its meaning within the context of this highly specialized field. To date, there is an absence of empirical research examining
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Support and Informational Needs of Ultra-Orthodox Jewish Women Coping with Advanced Cancer: A Pilot Observational Study Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-06-05 Meital Simhi, Aviva Yoselis
Abstract In Israel, as in other countries, the emotional and physical needs of minority populations receiving palliative care, are largely unknown. The ultra-Orthodox Jewish sector is one such minority population. This study’s goal was to identify perceived social support, desire to receive information about illness and prognosis, and willingness to disclose information to others. Various measures
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Bearing Witness: The Power of Presence Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-06-02 Aline Demerjian
Published in Journal of Social Work in End-of-Life & Palliative Care (Vol. 19, No. 3, 2023)
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Agency as a Key to Identity Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-06-02 Elizabeth Abrahams
Published in Journal of Social Work in End-of-Life & Palliative Care (Vol. 19, No. 3, 2023)
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Suicide and Hospice Caregivers: A Case Study Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-04-08 Rebecca G. Mirick, Stephanie P. Wladkowski
Abstract In 2020, hospices supported 1.72 million Medicare patients and their caregivers. The end-of-life experience can be difficult for caregivers and many experience anxiety, depression, and suicidality. Little literature has explored the role of hospice social workers in addressing and treating caregivers’ suicidal thoughts and behaviors. This paper will explore the topic of hospice caregiver suicide
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Cardiac Related Psychosocial Distress and Traumatic Distress in Individuals with Advanced Heart Failure Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-04-08 Schuyler C. Cunningham, Anne Keleman, Rachel Brandon, Hunter Groninger, Karlynn BrintzenhofeSzoc
Abstract Guided by the Transactional Model of Stress and Coping, this study explored relationships between cardiac related psychosocial distress, traumatic distress, and the number of lifetime traumas in people with advanced heart failure. Utilizing a cross-sectional survey design, a convenience sample of participants with advanced heart failure who received treatment in Washington, DC, completed standardized
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A Social Worker’s Reflections on Responding to Traumatic Stress in Palliative Care Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-04-06 Sophie Hatzipashalis
Published in Journal of Social Work in End-of-Life & Palliative Care (Vol. 19, No. 4, 2023)
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Revisiting a Time of Study: Older Adults Learning Through Grieving Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-04-06 Paul J. Moon
Abstract A brief reflection of encountering four older adult women who claimed self-transformation through learning in late life grief.
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The Use of Psychodynamic Modalities in the Provision of Trauma-Informed End of Life Care Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-04-06 Laura Moynihan
Published in Journal of Social Work in End-of-Life & Palliative Care (Vol. 19, No. 4, 2023)
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Awaiting Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-04-06 Dalvani Marques
Abstract The poem portrays the wait and expectations of the family member about the outcome of hospitalizations of a patient in palliative care.
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Editor’s Introduction Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-03-08 Ellen L. Csikai
Published in Journal of Social Work in End-of-Life & Palliative Care (Vol. 19, No. 1, 2023)
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Supporting Caregivers of Veterans with Dementia Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-03-01 Nicholas S. Koufacos, Eve M. Gottesman, Eugenia Dorisca, Judith L. Howe
Abstract As the number of veterans with dementia continues to increase, support services for those veterans and their caregivers must also increase. Caregivers of veterans with dementia often report high levels of emotional distress in the form of anxiety, exhaustion, and burden that negatively impacts their health and quality of life. This brief descriptive report highlights a Veterans Health Administration
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The Vital Role of Palliative Care Social Workers in Providing Trauma-Informed Palliative Care Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-02-24 Jennifer S. Freud
Published in Journal of Social Work in End-of-Life & Palliative Care (Vol. 19, No. 4, 2023)
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Equitable Death Care for Sexual and Gender Minorities: The Role for Social Workers Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-02-03 Jennifer L. Wright-Berryman
Published in Journal of Social Work in End-of-Life & Palliative Care (Vol. 19, No. 1, 2023)
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A Separate Peace Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2023-01-12 Aysha Jawed
Published in Journal of Social Work in End-of-Life & Palliative Care (Vol. 19, No. 1, 2023)
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Editor Introduction Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2022-12-21 Ellen L. Csikai
Published in Journal of Social Work in End-of-Life & Palliative Care (Vol. 18, No. 4, 2022)
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Searching for the ‘Aha Moments’: Healthcare Social Workers’ Experiences of Hope and Meaning-Making during COVID-19 Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2022-11-04 Jennifer Currin-McCulloch, Juliana Borrego, Shivani Kaushik, Qi Chen, Barbara Jones
Abstract While serving as the leading mental health providers in healthcare systems during COVID-19, social workers have faced numerous career-defining moments, both negative and positive; however, limited research highlights how healthcare social workers process these pivotal professional and personal encounters to find hope and meaning. The purpose of this study was to gather a deeper understanding
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Evaluation of a Routine Psychosocial Screening for Patients Receiving Inpatient Specialist Palliative Care: Feasibility and Outcomes Journal of Social Work in End-of-Life & Palliative Care (IF 1.6) Pub Date : 2022-11-04 Anneke Ullrich, Said Bahloul, Carsten Bokemeyer, Karin Oechsle
Abstract This prospective one-year cohort study aimed to assess the feasibility and outcomes of a routine psychosocial screening at patients’ admittance to specialist inpatient palliative care. Patients admitted to an academic palliative care ward were routinely screened for self-reported distress and psychological morbidity, psychosocial stress factors, and subjective need for help from psychosocial