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Community views of neurodiversity, models of disability and autism intervention: Mixed methods reveal shared goals and key tensions Autism (IF 5.2) Pub Date : 2024-09-19 Patrick Dwyer, Ava N Gurba, Steven K Kapp, Elizabeth Kilgallon, Lynnette H Hersh, David S Chang, Susan M Rivera, Kristen Gillespie-Lynch
Controversies regarding the neurodiversity movement may be exacerbated by confusion over its meaning. For example, some suggest neurodiversity entails acceptance of the social model, whereas others describe it as more nuanced. We aimed to help resolve conflicting viewpoints by inviting insights from 504 autistic and autism community members (278 autistic, 226 non-autistic), including 100 researchers
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Autism and emotion recognition technologies in the workplace Autism (IF 5.2) Pub Date : 2024-09-17 Amelia Katirai
The use of emotion recognition technologies in the workplace is expanding. These technologies claim to provide insights into internal emotional states based on external cues like facial expressions. Despite interconnections between autism and the development of emotion recognition technologies as reported in prior research, little attention has been paid to the particular issues that arise for autistic
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Insistence on sameness, repetitive negative thinking and mental health in autistic and non-autistic adults Autism (IF 5.2) Pub Date : 2024-09-14 Kate Cooper, Ailsa Russell
Autistic people experience high rates of mental health problems. A tendency towards behavioural repetition in autistic individuals could contribute to repetitive negative thinking, which is a transdiagnostic risk factor for mental health problems. Our research aimed to add to the literature by using transdiagnostic measures of both mental health symptoms and repetitive negative thinking. We explored
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Comparing eating and mealtime experiences in families of children with autism, attention deficit hyperactivity disorder and dual diagnosis Autism (IF 5.2) Pub Date : 2024-09-14 Zoe Matthews, Donna Pigden-Bennett, Teresa Tavassoli, Sarah Snuggs
Shared family meals are associated with family functioning and thought to protect against disordered eating in families with neurotypical children. Limited research, however, has examined the mealtime structure or experience in families with children with autism (Autism spectrum condition) and/or attention deficit hyperactivity disorder, despite eating behaviour differences in these populations. This
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Can combining existing behavioral tools improve identification of infants at elevated likelihood of autism in the first year of life? Autism (IF 5.2) Pub Date : 2024-09-14 Meagan R Talbott, Gregory S Young, Sally Ozonoff
Identifying infants at elevated likelihood for autism and other developmental differences in the first year of life remains a significant challenge. This study explored associations between behavioral differences in infancy and developmental outcomes in toddlerhood. We conducted a secondary data analysis of 256 infants with an older autistic sibling followed from 6 to 36 months of age. We defined conceptually
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Parental experiences of raising an autistic child in Ireland: A qualitative thematic analysis Autism (IF 5.2) Pub Date : 2024-09-14 Sally Whelan, Niall Caulfield, Sinéad O’Doherty, Arlene Mannion, Geraldine Leader
The quality of life of autistic children and their parents is impacted by the stress they experience, their coping strategies and the availability of professional health, social and educational support services. Recent changes in the structural organisation of child disability professional supports in Ireland mean that in-depth knowledge about current experiences of parenting autistic children is necessary
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Barriers to healthcare predict reduced health-related quality of life in autistic adults without intellectual disability Autism (IF 5.2) Pub Date : 2024-09-14 Nicole David, Pascal Rahlff, Hannah König, Sophia Dückert, Petia Gewohn, Frank Erik, Kai Vogeley, Daniel Schöttle, Alexander Konnopka, Holger Schulz, Judith Peth
Autistic adults frequently show increased physical or mental health conditions and impairments in social, occupational, and other life domains. Accordingly, they often report reduced health-related quality of life. Yet, numerous barriers prevent effective healthcare for autistic adults. To date, the impact of healthcare barriers on health-related quality of life in autism has not been investigated
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The experiences of autistic adults who were previously diagnosed with borderline or emotionally unstable personality disorder: A phenomenological study Autism (IF 5.2) Pub Date : 2024-09-14 Bruce Tamilson, Jessica A Eccles, Sebastian C K Shaw
An increasing number of studies are investigating the links between autism and borderline personality disorder. Studies report overlapping differences and the challenges in differentiating between these two diagnostic labels. In practice, there are many people, especially autistic women, who feel that they were misdiagnosed with borderline personality disorder. This study aimed to explore the experiences
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Post-diagnostic support for adults diagnosed with autism in adulthood in the UK: A systematic review with narrative synthesis Autism (IF 5.2) Pub Date : 2024-09-10 Jade Eloise Norris, Rebecca Harvey, Laura Hull
Autism diagnoses in adulthood have risen substantially over recent years. While providing potential benefits, many autistic adults struggle to navigate their new diagnosis. Our review aimed to synthesise the evidence for post-diagnostic support for autistic adults without intellectual disability diagnosed in adulthood in the UK: investigating availability, efficacy, and autistic adults’ experiences
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Understanding the experiences of receiving and providing maternity care for autistic adults: A Multi-perspectival Interpretative Phenomenological Analysis study Autism (IF 5.2) Pub Date : 2024-09-07 Laura Moore, Sarah Foley, Fionnuala Larkin
Available research suggests autistic mothers experience greater dissatisfaction with maternity care compared to non-autistic mothers. Limited research exists exploring autistic mothers’ experiences of maternity care, and no research to date has considered maternity care professionals’ experiences of delivering care to autistic mothers. This qualitative study aims to explore the experiences of receiving
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Reporting community involvement in autism research: Findings from the journal Autism Autism (IF 5.2) Pub Date : 2024-09-07 Diana Weiting Tan, Laura Crane, Tori Haar, Melanie Heyworth, Rebecca Poulsen, Elizabeth Pellicano
Participatory methods are having sweeping effects on research across the globe. To facilitate transparency around these methods, Autism introduced mandatory reporting of community involvement in January 2021. Here, we sought to determine the impact of this policy. To do so, we – a team of Autistic and non-autistic researchers – searched for articles published in Autism in 2019, 2 years before policy
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Atypical vocal imitation of speech and song in autism spectrum disorder: Evidence from Mandarin speakers Autism (IF 5.2) Pub Date : 2024-09-07 Li Wang, Peter Q Pfordresher, Cunmei Jiang, Fang Liu
Vocal imitation in English-speaking autistic individuals has been shown to be atypical. Speaking a tone language such as Mandarin facilitates vocal imitation skills among non-autistic individuals, yet no studies have examined whether this effect holds for autistic individuals. To address this question, we compared vocal imitation of speech and song between 33 autistic Mandarin speakers and 30 age-matched
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Characterizing self-reported physical activity before and during a subsequent pregnancy among parents in a familial autism cohort Autism (IF 5.2) Pub Date : 2024-09-07 Megan G Bragg, Olivia Vesey, Jorge E Chavarro, Jaime E Hart, Loni Philip Tabb, Marc G Weisskopf, Lisa A Croen, Daniele Fallin, Irva Hertz-Picciotto, Craig Newschaffer, Rebecca J Schmidt, Heather Volk, Kristen Lyall
Parents of autistic children report barriers to engaging in physical activity, which may be exacerbated during subsequent pregnancies. We aimed to describe physical activity of parents caring for an autistic child, before and during a subsequent pregnancy, and to explore whether physical activity was associated with the autistic child’s Social Responsiveness Scale score, a measure of autism-related
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Trajectories of psychological distress for Australian fathers parenting a child on the autism spectrum: Evidence from early childhood to adolescence Autism (IF 5.2) Pub Date : 2024-09-07 Monique Seymour, Laura Pecora, Grace McMahon, Catherine E Wood, Mark Feinberg, Rob Hock, Rebecca Giallo
Most research on the mental health of fathers with children on the autism spectrum has been cross-sectional. Little is currently known about the trajectories of fathers’ mental health across their parenting journey. Using longitudinal latent class analysis, this study aimed to: (1) report on the estimates of fathers’ psychological distress across six timepoints, from when their children were aged 4–14
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Trauma diagnoses during emergency psychiatric evaluation among youth with and without autism spectrum disorder Autism (IF 5.2) Pub Date : 2024-09-06 Alexandra Junewicz, Sakshi Dhir, Fei Guo, Yuxiao Song, Cheryl R. Stein, Argelinda Baroni
Autistic youth are more likely to experience traumatic events and may be more likely to develop trauma-related symptoms. However, accurately identifying trauma-related symptoms in autistic youth can be challenging. We examined post-traumatic stress disorder (PTSD) and other trauma-related diagnoses in youth with and without autism spectrum disorder (ASD) in a large, pediatric psychiatric emergency
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(Re)thinking about self-harm and autism: Findings from an online qualitative study on self-harm in autistic adults Autism (IF 5.2) Pub Date : 2024-09-06 Sarah JE Marsden, Rachael Eastham, Alexandra Kaley
Autistic people experience a higher prevalence of self-harming behaviours than do the general population. Self-harm remains a stigmatised topic, and until recently, self-harming behaviours in autism were considered to be limited to self-injurious behaviours experienced by intellectually impaired autistic children and not to be experienced by cognitively able autistic adults. Because of the belief held
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Effects of autism spectrum disorder on parents labour market: Productivity loss and policy evaluation in Kazakhstan Autism (IF 5.2) Pub Date : 2024-09-06 Lyazzat Kosherbayeva, Laura Kozhageldiyeva, Yolanda Pena-Boquete, Aizhan Samambayeva, Maria Seredenko
Kazakhstan has witnessed a significant increase in the number of Autism Spectrum Disorder cases due to the implementation of mechanisms for early detection. At the same time, the government has implemented various policies to address the impact of Autism Spectrum Disorder on the labour market, especially for parents of children with Autism Spectrum Disorder and registered disability status. However
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Understanding autistic youths’ menstrual product preferences and caregivers’ product choices Autism (IF 5.2) Pub Date : 2024-08-31 Keely M Lundy, Aaron J Fischer, Chathuri R Illapperuma-Wood, Brandon Schultz
A growing body of evidence supports the applicability of reusable menstrual products for non-autistic menstruators; however, only a few studies have investigated menstrual product preferences for young autistic persons with a uterus. With recent research indicating greater menstrual challenges for autistic menstruators, this study aimed to (1) assess the impact of product features on caregivers’ decisions
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Application of the international classification of functioning, disability, and health in autism and attention-deficit hyperactivity disorder: A scoping review Autism (IF 5.2) Pub Date : 2024-08-26 Lovisa Alehagen, Sven Bölte, Melissa H Black
The International Classification of Functioning, Disability, and Health is a biopsychosocial framework of health-related functioning designed to provide a unifying system for health care, social services, education, and policy sectors. Since its publication in 2001, the International Classification of Functioning has been used to guide clinical practice and research in autism and attention-deficit
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Brushing away barriers: The healing touch of art as an intervention in children with autism Autism (IF 5.2) Pub Date : 2024-08-22 Sheffali Gulati, Gautam Kamila, Biju Hameed, Charles RJC Newton
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A multi-constituent qualitative examination of facilitators and barriers to caregiver coaching for autistic children in publicly funded early intervention Autism (IF 5.2) Pub Date : 2024-08-22 Jordan Albright, Jacqueline A. Shinall, Liza Tomczuk, Rebecca E. Stewart, David S. Mandell, Aubyn C. Stahmer, Rinad S. Beidas, Melanie Pellecchia
Caregiver coaching is an evidence-based practice for autistic children that is poorly implemented in community-based early intervention. Previous studies have identified factors that influence implementation of caregiver coaching in early intervention; however, multi-informant (e.g., caregiver, provider, leadership) qualitative research is lacking. As such, the purpose of this study was to simultaneously
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A critical hit: Dungeons and Dragons as a buff for autistic people Autism (IF 5.2) Pub Date : 2024-08-21 Gray Atherton, Rhys Hathaway, Ingela Visuri, Liam Cross
Tabletop role-playing games (TTRPGs) are increasingly used in therapeutic and educational settings to improve the well-being of autistic people. This study investigated the potential of TTRPGs to provide a safe space where autistic adults could develop relationships with others while also engaging in character and world-building. Eight autistic adults were split into two groups and taken through a
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Poor face recognition predicts social anxiety in autism: A short report Autism (IF 5.2) Pub Date : 2024-08-19 Bayparvah Kaur Gehdu, Katie LH Gray, Richard Cook
In the present study, we sought to examine whether face recognition problems impact the social anxiety experienced by autistic people. Many autistic people – perhaps between 15% and 30% – exhibit severe face recognition problems that closely resemble developmental prosopagnosia. At present, however, little is known about the psychosocial consequences of these difficulties. Autistic participants ( N
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Comorbidity rates of autism spectrum disorder and functional neurological disorders: A systematic review, meta-analysis of proportions and qualitative synthesis Autism (IF 5.2) Pub Date : 2024-08-17 Mark L Vickers, Rebecca Sue Menhinnitt, Yoon Kwon Choi, Eva Malacova, Lars Eriksson, Agesilaus W Churchill, Belinda Oddy, Kym Boon, Christopher Randall, Anastasia Braun, Jennifer Taggart, Rodney Marsh, Paul Pun
This study evaluated the comorbidity rates of autism spectrum disorder (ASD) with functional neurological disorders (FNDs). A systematic review was conducted in accordance with Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. A subset of data was suitable for meta-analysis of proportions. Studies which assessed either the prevalence of ASD in patients with FNDs, or the
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Reduced P300 amplitude in children and adolescents with autism is associated with slowed processing speed, executive difficulties, and social-communication problems Autism (IF 5.2) Pub Date : 2024-08-15 Jonathan Lassen, Bob Oranje, Martin Vestergaard, Malene Foldager, Troels W Kjær, Bodil Aggernæs, Sidse Arnfred
Compared to their neurotypically developing peers, children and adolescents with autism spectrum disorders tend to have attenuated neural responses in the parietal lobe when attending sensory input, as reflected by a reduced P3b amplitude measured with electroencephalography. However, it is unknown whether a reduced P3b amplitude in autistic children and adolescents is associated with their autism
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Parent and professional perspectives on implementing the Pediatric Autism Communication Therapy: A mixed-methods analysis Autism (IF 5.2) Pub Date : 2024-07-31 Matea Balabanovska, Kathy Leadbitter, Lucie Jurek, Flavia Mengarelli, Bruno Falissard, Neo Ngan, Catherine Aldred, Jonathan Green, Marie-Maude Geoffray
This study examined factors of implementation in clinical practice across the world of the Pediatric Autism Communication Therapy, an evidence-based parent-mediated therapy. Data were gathered via a survey administered to professionals trained in Pediatric Autism Communication Therapy and parents with whom they worked. The study was a mixed-method design informed by the Consolidated Framework for Implementation
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Autistic and autism community perspectives on infant and family support in the first two years of life: Findings from a community consultation survey Autism (IF 5.2) Pub Date : 2024-07-31 Catherine A Bent, Alexandra Aulich, Christos Constantine, Esther Fidock, Patrick Dwyer, Cherie Green, Jodie Smith, Ava N Gurba, Lucas T Harrington, Katherine E Gore, Aspasia Stacey Rabba, Lauren N Ayton, Kathryn Fordyce, Jonathan Green, Rachel Jellett, Lyndel J Kennedy, Katherine E MacDuffie, Shoba S Meera, Linda R Watson, Andrew JO Whitehouse, Kristelle Hudry
Emerging evidence suggests parenting supports implemented in the first 2 years of life may influence developmental outcomes for infants more likely to be Autistic. Yet questions remain about acceptability of these supports to the Autistic and autism communities. Through mixed-methods participatory research – co-designed and produced by Autistic and non-Autistic researchers – we sought diverse community
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Emotion dysregulation in autism: A meta-analysis Autism (IF 5.2) Pub Date : 2024-07-31 Rachel G. McDonald, Mary Isaac Cargill, Sadaf Khawar, Erin Kang
Autism is associated with significantly higher rates of internalizing and externalizing disorders compared to neurotypical (NT) individuals. Emotion dysregulation (ED) is prevalent in autistic individuals and has been proposed to underlie both internalizing disorders and behavioral challenges in autism. This study sought to use a meta-analytic approach to examine the magnitude of ED severity in autistic
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Toward better outcome measurement for insomnia in children with autism spectrum disorder Autism (IF 5.2) Pub Date : 2024-07-30 Lawrence Scahill, Luc Lecavalier, Michael C Edwards, Megan L Wenzell, Leah M Barto, Arielle Mulligan, Auscia T Williams, Opal Ousley, Cynthia B Sinha, Christopher A Taylor, Soo Youn Kim, Laura M Johnson, Scott E Gillespie, Cynthia R Johnson
This report presents a new parent-rated outcome measure of insomnia for children with autism spectrum disorder. Parents of 1185 children with autism spectrum disorder (aged 3–12; 80.3% male) completed the first draft of the measure online. Factor and item response theory analyses reduced the set of 40 items to the final 21-item Pediatric Insomnia Autism Rating Scale. In this online sample, Pediatric
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Examining an integrated path model of psychological and sociocultural predictors of camouflaging in autistic adults Autism (IF 5.2) Pub Date : 2024-07-27 Sici Zhuang, Mackenzie Bougoure, Dawn-Joy Leong, Lydia Dean, Susan Reddrop, Kristin Naragon-Gainey, Murray Maybery, Diana Weiting Tan, Iliana Magiati
Camouflaging involves various strategies employed by autistic individuals to modulate the visibility of their autistic characteristics in social situations and is thought to be primarily motivated by psychosocial factors. Most studies to date have examined a limited number of psychosocial factors related to camouflaging. This study tested an integrated model encompassing several hypothesised individual
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Short report: Examining race, ethnicity, sex, and gender among autistic youth and their educators who participated in school-based research Autism (IF 5.2) Pub Date : 2024-07-26 Olivia Linkous, Katherine Soon, James D Lee, Adora Du, Wendy Shih, Karen Bearss, Connie Kasari, Jill Locke
Racial/ethnic minoritized youth are underrepresented in autism research. Documented inequities in accessibility to and utilization of autism-specific services highlight the importance of better understanding for whom and under what conditions autism evidence-based practices (EBPs) work. This report examines the race, ethnicity, sex, and gender of school-based autism research participants (e.g. educators
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Trajectories of positive affect in autistic individuals during the transition to adulthood Autism (IF 5.2) Pub Date : 2024-07-26 James B McCauley, Elaine B Clarke, Hillary K Schiltz, Catherine Lord
Longitudinal analyses have revealed informative patterns about health, mental health, adaptive skills, autism symptoms, and social skills during the transition to adulthood for autistic individuals. This study expands on these findings by investigating the trajectories of positive affect from age 15 to 30 years using a heterogeneous cohort ( n = 253) of individuals first referred for autism at an early
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‘Does that mean you will be violent?’: A qualitative exploration into Autistic women’s experiences of relationships with lecturers at university Autism (IF 5.2) Pub Date : 2024-07-26 Sophie Phillips
The experiences of Autistic1 women students at university are seldom explored. In this paper, women refers to anyone who self-identifies as a woman. Eleven Autistic women students participated in artefact creation and semi-structured interviews exploring their experiences with university lecturers. All data centred on their opinions and lived experiences. Five participants were undergraduate students
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Oral care interventions for autistic individuals: A systematic review Autism (IF 5.2) Pub Date : 2024-07-26 Lucía I Floríndez, Dominique H Como, Evelyn Law, Christine F Tran, Robert Johnson, José C Polido, Sharon A Cermak, Leah I Stein Duker
Oral care–related challenges are well documented in the autistic community. This review examined interventions designed to improve oral health in autistic individuals across the lifespan. Through a systematic process, 36 studies were identified which focused on improving home-based oral care skills and routines, and reducing fear, anxiety, and/or negative behaviors in the dental clinic. Studies incorporated
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The long-lasting benefits of pre-kindergarten education on autistic children’s working memory development Autism (IF 5.2) Pub Date : 2024-07-26 Sohyun An Kim
Working memory functions as an underlying force for school readiness, yet many autistic children have difficulties with it. Similarly, autistic children tend to start kindergarten with less school readiness compared with their peers. In addition, children from lower socioeconomic status (SES) backgrounds face additional barriers in working memory and school readiness. Preschool-age children with autism
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Reporting participatory methods and author positionality in autism Autism (IF 5.2) Pub Date : 2024-07-25 Sue Fletcher-Watson
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Autism interventions designed or adapted for the Black/African American population: A systematic review Autism (IF 5.2) Pub Date : 2024-06-24 Amber M Davis, Gyasi Burks-Abbott, Octaviano Merecias, Bonnie K Swenor
The needs of the Black/African American population in the United States have historically been neglected in research, including in the development of therapies and services to support people with autism. The scope of interventions to support autistic people that are designed or adapted to be culturally responsive to the Black American population is not known. The state of these interventions systematically
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Short report: Integrated evaluations for autism spectrum disorder in pediatric primary care clinics Autism (IF 5.2) Pub Date : 2024-06-22 Serene Habayeb, Anne Inge, Erica Eisenman, Sheina Godovich, Maria Lauer, Amanda Hastings, Vanessa Fuentes, Melissa Long, Xavier Marshall, Alexis Khuu, Leandra Godoy
Primary care providers are often the first to identify concerns for autism through routine screening in the first 2 years of life. However, most children do not receive a diagnosis until years later resulting in delays accessing appropriate intervention. Delays in diagnosis disproportionately impact those who are otherwise disadvantaged by society based on race or socioeconomic status. Embedding mental
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The meaning of autistic movements Autism (IF 5.2) Pub Date : 2024-06-22 Stephanie Petty, Amy Ellis
Movement of the body is an essential way to characterise autism, according to diagnostic criteria. However, qualifying descriptions of what autistic movements are, their functions and personal value, are missing from academic literature and clinical guidance. We systematically searched for autistic adults’ descriptions of their body and its movement within autobiographical narratives in blog data.
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Sleep problems and circadian rhythm functioning in autistic children, autism with co-occurring attention deficit hyperactivity disorder, and typically developing children: A comparative study Autism (IF 5.2) Pub Date : 2024-05-30 Elena Martinez-Cayuelas, Beatriz Moreno-Vinués, Isabel Pérez-Sebastián, Teresa Gavela-Pérez, Genoveva Del Rio-Camacho, Carmen Garcés, Leandro Soriano-Guillén
Sleep problems are prevalent in autism spectrum disorder (ASD) and have a range of causes, including circadian rhythm misalignment. However, little is known about sleep in autistic children with co-occurring attention deficit hyperactivity disorder (ADHD). A cross-sectional descriptive and analytic study was conducted in 87 autistic children and adolescents (10.22 ± 3.36), 27 of whom had a diagnosis
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Associations between autistic and comorbid somatic problems of gastrointestinal disorders, food allergy, pain, and fatigue in adults Autism (IF 5.2) Pub Date : 2024-05-30 Yiran Li, Tian Xie, Harold Snieder, Catharina A Hartman
Autistic children often have comorbid somatic problems. However, in adulthood, this has been much less studied. We investigated the associations between autistic symptoms and irritable bowel syndrome, food allergy, pain, and fatigue in adulthood and examined sex and life-course differences herein. A total of 35,048 adults aged from 18 to 90 from the Lifelines Cohort Study reported autistic symptoms
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Equine-assisted services for motor outcomes of autistic children: A systematic review Autism (IF 5.2) Pub Date : 2024-05-30 Benazir Meera, Beth Fields, Sean Healy, Luis Columna
The purpose of this systematic review was to synthesize the research literature on equine-assisted services for motor outcomes of autistic children. Eligible articles published between June 2012 and June 2023 were identified through electronic database searches, including PubMed, PsycINFO, CINAHL, and Web of Science. The Preferred Reporting Items for Systematic Reviews and Meta-analyses guidelines
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Impact of adverse childhood experiences and family resilience on sleep duration in autistic children Autism (IF 5.2) Pub Date : 2024-05-29 Eleonora Sadikova, Jim Soland, Michelle Menezes, Micah Mazurek
Autistic children are at higher risk of experiencing adverse childhood experiences, which lead to negative health outcomes such as sleep difficulties. In the general population, family resilience can help reduce the negative impact of adverse childhood experiences on child functioning. The aim of this study was to examine the impact of adverse childhood experiences on sleep duration, and whether family
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Predicting autism traits from baby wellness records: A machine learning approach Autism (IF 5.2) Pub Date : 2024-05-29 Ayelet Ben-Sasson, Joshua Guedalia, Keren Ilan, Meirav Shaham, Galit Shefer, Roe Cohen, Yuval Tamir, Lidia V. Gabis
Early detection of autism spectrum condition is crucial for children to maximally benefit from early intervention. The study examined a machine learning model predicting the increased likelihood for autism from wellness records from 0 to 24 months. The study included 591,989 non-autistic and 12,846 autistic children. A gradient boosting model with a threefold cross-validation and SHAPley additive explanation
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Early trajectories and moderators of autistic language profiles: A longitudinal study in preschoolers Autism (IF 5.2) Pub Date : 2024-05-21 Kenza Latrèche, Michel Godel, Martina Franchini, Fiona Journal, Nada Kojovic, Marie Schaer
Both expressive and receptive language difficulties in autism emerge early and significantly have an impact on social functioning and quality of life. Despite their wide heterogeneity, autistic language abilities can be stratified into three distinct profiles. Language unimpaired exhibit near-typical verbal performance, language impaired show significant alterations in language structure, and minimally
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Feasibility and preliminary efficacy of behavioral activation for treatment of depression in autistic adolescents Autism (IF 5.2) Pub Date : 2024-05-20 Michelle Menezes, Christina Burroughs, Jessica Pappagianopoulos, Eleonora Sadikova, Emily Fuhrmann, Genevieve Bohac, Robert Cross, Lauren Witte, Gabrielle Brinkmann, Rachel Lemley, Denis G Sukhodolsky, Micah O Mazurek
Depression is common among autistic youth and is associated with worse quality of life in this group. Despite significant need for high-quality efficacious treatments, there has been very limited research on interventions for depression in autistic youth. This single-arm pilot study examined the feasibility and preliminary efficacy of a novel, behavior-based approach for treatment of depression symptoms
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Canonical babbling trajectories across the first year of life in autism and typical development Autism (IF 5.2) Pub Date : 2024-05-17 Helen L. Long, Gordon Ramsay, Edina R. Bene, Pumpki Lei Su, Hyunjoo Yoo, Cheryl Klaiman, Stormi L Pulver, Shana Richardson, Moira L. Pileggi, Natalie Brane, D. Kimbrough Oller
This study explores vocal development as an early marker of autism, focusing on canonical babbling rate and onset, typically established by 7 months. Previous reports suggested delayed or reduced canonical babbling in infants later diagnosed with autism, but the story may be complicated. We present a prospective study on 44 infants later diagnosed with autism spectrum disorder compared with 127 infants
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‘Building our own house’ as an insider-only Community-Partnered Participatory Research Council: Co-creating a safe space for Autistic knowledge production Autism (IF 5.2) Pub Date : 2024-05-17 Gemma L Williams, Rebecca Ellis, Willow Holloway, Selena Caemawr, Monique Craine, Kathryn Williams, Aimee Grant
This article describes and reflects on the first six meetings of a newly established Autistic community council, founded to steer a participatory, longitudinal qualitative study investigating the reproductive health of Autistic people with wombs. The two key aims of these initial six meetings – involving four Autistic community leader members and three Autistic researchers – was to (1) guide the start
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Do you feel me? Autism, empathic accuracy and the double empathy problem Autism (IF 5.2) Pub Date : 2024-05-17 Rachael TS Cheang, Maya Skjevling, Alexandra IF Blakemore, Veena Kumari, Ignazio Puzzo
Empathy deficits in autism, particularly cognitive empathy, have been a long-held, but much debated assumption. An alternative perspective challenging this deficit model is the ‘double empathy problem’, proposing that empathy difficulties are bidirectional between autistic and non-autistic people. Despite this view gaining popularity, there has been limited research examining whether non-autistic people
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Being able to be myself: Understanding autonomy and autonomy-support from the perspectives of autistic adults with intellectual disabilities Autism (IF 5.2) Pub Date : 2024-05-17 Jackie Ryan, Heather M Brown, Anne Borden, Christina Devlin, Adam Kedmy, Austin Lee, David B Nicholas, Bethan Kingsley, Sandy Thompson-Hodgetts
Self-determination enhances a person’s quality of life and is a fundamental human right. According to self-determination theory, autonomy is one of three basic psychological needs that must be met to experience self-determination. The overarching aim of this exploratory study was to learn about autonomy from the perspective of autistic adults with intellectual disability, including what autonomy meant
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‘It’s not always textbook social anxiety’: A survey-based study investigating the nature of social anxiety and experiences of therapy in autistic people Autism (IF 5.2) Pub Date : 2024-05-14 Alexander C Wilson, Fiona Gullon-Scott
Little is known about the nature of social anxiety in autistic people: What is similar and different about factors contributing to social anxiety in autistic and non-autistic people? There is also very limited research about autistic people’s experiences of therapy for social anxiety in current routine clinical practice. This study investigated these issues by analysing responses to an online questionnaire
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‘We have so much to offer’: Community members’ perspectives on autism research Autism (IF 5.2) Pub Date : 2024-05-14 Tori Haar, Charlotte Brownlow, Gabrielle Hall, Melanie Heyworth, Wenn Lawson, Rebecca Poulsen, Tamara Reinisch, Elizabeth Pellicano
Autism research is on the cusp of significant change. There are mounting calls from Autistic self-advocates, researchers, and other scientists for a paradigm shift in autism research. Yet little is known about what non-academic members of the Autistic and autism communities think about autism research. We – a team of Autistic and non-autistic researchers – addressed this gap by conducting a secondary
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Development of a school-age extension of the Modified Checklist for Autism in Toddlers through expert consensus and stakeholder input Autism (IF 5.2) Pub Date : 2024-05-10 Andrea Trubanova Wieckowski, Georgina Perez Liz, Ashley de Marchena, Deborah A Fein, Marianne L Barton, Giacomo Vivanti, Diana L Robins
Universal autism screening is recommended by the American Academy of Pediatrics at 18 and 24 months. However, many children are not identified until after the age of 4 years, and some not until adulthood, either due to mild or no indication of symptoms early in development, or to co-occurring conditions which may overshadow autism symptoms. This indicates a need for universal autism screening measures
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Telehealth-delivered parent-based sleep-focused intervention for insomnia in preschool children with autism spectrum disorder: A randomized controlled study Autism (IF 5.2) Pub Date : 2024-05-10 Brian Yee Ting Ip, So-Lun Lee, Shirley Xin Li
Sleep problems are common in children with autism spectrum disorder. Although previous research has shown the positive effects of parent-based sleep intervention, it was mainly focused on face-to-face modality, which might limit accessibility. This study aimed to examine the efficacy of a telehealth-delivered parent-based sleep-focused intervention in treating insomnia in preschool children with autism
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Time is of the essence: Age at autism diagnosis, sex assigned at birth, and psychopathology Autism (IF 5.2) Pub Date : 2024-05-10 Jessica V Smith, Goldie A McQuaid, Gregory L Wallace, Emily Neuhaus, Andrea Lopez, Allison B Ratto, Allison Jack, Alexis Khuu, Sara J Webb, Alyssa Verbalis, Kevin A Pelphrey, Lauren Kenworthy
Age at autism diagnosis is associated with sex assigned at birth (hereafter, “sex”), such that girls/women are more likely to be delayed or “missed” entirely in the diagnostic process compared to boys/men. Later diagnosed individuals, especially girls/women, demonstrate increased anxious/depressive symptoms. Data on autistic youth from clinic-based ( n = 1035; 22.9% assigned female) and sex-balanced
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‘Autism is the Arena and OCD is the Lion’: Autistic adults’ experiences of co-occurring obsessive-compulsive disorder and repetitive restricted behaviours and interests Autism (IF 5.2) Pub Date : 2024-05-10 Hannah Long, Kate Cooper, Ailsa Russell
Obsessive-compulsive disorder commonly co-occurs with autism. Research characterising the interplay between restricted, repetitive behaviours, activities and interests related to autism and obsessive-compulsive disorder symptoms has used theory-driven, bottom-up methodology. This study aimed to interview autistic adults about the subjective experience of differentiating between these phenomena. Semi-structured
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Considerations for effective dissemination of evidence-based early intervention approaches Autism (IF 5.2) Pub Date : 2024-05-06 Sophia R D’Agostino, Kyle M Frost, Katherine Pickard
Dissemination efforts play an important role in bridging the gap between research and practice. Many evidence-based early intervention programs for young autistic children have yet to be widely disseminated to the early childhood workforce. The purpose of this letter is to discuss how packaging and branding early intervention approaches may facilitate or hinder widespread dissemination to community-based
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Embracing gestalt language development as a fundamental neurodiversity-affirmative practice Autism (IF 5.2) Pub Date : 2024-05-02 Amanda Haydock, Louisa Harrison, Katy Baldwin, Kathy Leadbitter
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The Neurodiversity Attitudes Questionnaire: Development and Initial Validation Autism (IF 5.2) Pub Date : 2024-04-29 Rachel K Schuck, Sunghee Choi, Kaitlynn MP Baiden, Patrick Dwyer, Mirko Uljarević
Neurodiversity refers to the idea that all brains—no matter their differences—are valuable and should be accepted. Attitudes toward the neurodiversity perspective can have real-life impacts on the lives of neurodivergent people, from effects on daily interactions to how professionals deliver services for neurodivergent individuals. In order to identify negative attitudes toward neurodiversity and potentially
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Probiotics in autism spectrum disorder: Recent insights from animal models Autism (IF 5.2) Pub Date : 2024-04-26 Navid Golbaghi, Saeideh Naeimi, Afra Darvishi, Niloofar Najari, Sofia Cussotto
Autism spectrum disorder is a neurodevelopmental disorder characterized by a wide range of behavioral alterations, including impaired social interaction and repetitive behaviors. Numerous pharmacological interventions have been developed for autism spectrum disorder, often proving ineffective and accompanied by a multitude of side effects. The gut microbial alterations observed in individuals with