Objective To describe the development and implementation of a web-based high-quality data collection tool to track the outcomes of glaucoma treatments in routine practice. Methods and analysis This is a prospective observational registry study. An international steering committee undertook an iterative structured process to define a minimum, patient-centred data set designed to track outcomes of glaucoma treatment. The outcomes were coded into a web-based programme allowing easy access for rapid data entry. Clinicians receive personal reports enabling instant audit of their outcomes. Analyses of aggregated anonymised data on real-world outcomes are analysed and periodically reported with the goal of improving patient care. Results The minimum data set developed by the international steering committee includes the following: a baseline visit captures 13 mandatory fields in order to accurately phenotype each patient’s subtype of glaucoma and to allow comparison between services, and a follow-up visit includes only four mandatory fields to allow completion within 30 s. Currently, there are 157 surgeons in 158 ophthalmology practices across Australia and New Zealand who are registered. These surgeons are tracking 5570 eyes of 3001 patients and have recorded 67 074 visits. The median number of eyes per surgeon is 22 eyes with a range of 1–575. The most common glaucoma procedure, excluding cataract surgery, is iStent inject, with 2316 cases. Conclusion This software tool effectively facilitates data collection on safety and efficacy outcomes of treatments for different subgroups of glaucoma within a real-world setting. It provides a template to evaluate new treatments as they are introduced into practice. Data are available upon reasonable request.

中文翻译：

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有效捕获有关青光眼治疗的高质量真实数据：对抗青光眼失明！登记处

目的 描述基于网络的高质量数据收集工具的开发和实施，以跟踪常规实践中青光眼治疗的结果。方法和分析 这是一项前瞻性观察性登记研究。一个国际指导委员会进行了一个迭代结构化过程，以定义一个最小的、以患者为中心的数据集，旨在跟踪青光眼治疗的结果。结果被编码到一个基于网络的程序中，可以轻松访问以快速输入数据。临床医生收到个人报告，可以即时审核他们的结果。对真实世界结果的汇总匿名数据进行分析并定期报告，以改善患者护理。结果 国际指导委员会开发的最小数据集包括以下内容：基线访问捕获 13 个必填字段，以便准确地对每个患者的青光眼亚型进行表型分析并允许在服务之间进行比较，而后续访问仅包括四个必填字段，以便在 30 秒内完成。目前，澳大利亚和新西兰的 158 家眼科诊所共有 157 名外科医生注册。这些外科医生正在跟踪 3001 名患者的 5570 只眼睛，并记录了 67 074 次就诊。每位外科医生的中位眼数为 22 眼，范围为 1-575。除白内障手术外，最常见的青光眼手术是 iStent 注射，共有 2316 例。结论 该软件工具有效地促进了真实世界环境中不同青光眼亚组治疗的安全性和有效性结果的数据收集。它提供了一个模板来评估新的治疗方法，因为它们被引入实践。可根据合理要求提供数据。