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Persistence in the Face of Ecological Challenges: A Phenomenological Study of Parents of Children With Disabilities in Turkey
International Journal for the Advancement of Counselling ( IF 1.0 ) Pub Date : 2021-09-11 , DOI: 10.1007/s10447-021-09453-x
Gamze Ülker Tümlü 1 , Ramazan Akdoğan 2
Affiliation  

In this qualitative study, we aimed to reveal the psychological experiences of parents of children with disabilities in Turkey. A focus group interview was conducted with nine parents (one father and eight mothers) of children with Autism spectrum disorder, Down syndrome, and developmental disabilities who were selected using criterion sampling. The psychological experiences of the parents included themes of anxiety, avoidance, guilt, burnout, and the child-centered life and self-neglect. Parents’ experiences are affected by familial, social, cultural, and economic factors. The results indicated that parents’ experiences need to be approached from ecological systems theory. We suggest the use of an ecological perspective in the investigation and determination of parents’ experiences and in the provision of clinical approaches to helping parents overcome challenges.



中文翻译:

面对生态挑战的坚持:土耳其残疾儿童父母的现象学研究

在这项定性研究中,我们旨在揭示土耳其残疾儿童父母的心理体验。对九名自闭症谱系障碍、唐氏综合症和发育障碍儿童的父母(一名父亲和八名母亲)进行了焦点小组访谈,他们使用标准抽样选择。父母的心理体验包括焦虑、回避、内疚、倦怠以及以孩子为中心的生活和自我忽视等主题。父母的经历受到家庭、社会、文化和经济因素的影响。结果表明,父母的经历需要从生态系统理论来探讨。

更新日期:2021-09-13
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