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Persistence in the Face of Ecological Challenges: A Phenomenological Study of Parents of Children With Disabilities in Turkey

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Abstract

In this qualitative study, we aimed to reveal the psychological experiences of parents of children with disabilities in Turkey. A focus group interview was conducted with nine parents (one father and eight mothers) of children with Autism spectrum disorder, Down syndrome, and developmental disabilities who were selected using criterion sampling. The psychological experiences of the parents included themes of anxiety, avoidance, guilt, burnout, and the child-centered life and self-neglect. Parents’ experiences are affected by familial, social, cultural, and economic factors. The results indicated that parents’ experiences need to be approached from ecological systems theory. We suggest the use of an ecological perspective in the investigation and determination of parents’ experiences and in the provision of clinical approaches to helping parents overcome challenges.

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Authors and Affiliations

  1. Department of Counseling and Guidance, Anadolu University, Faculty of Education, 26100, Tepebaşı, Eskişehir, Turkey

    Gamze Ülker Tümlü

  2. Anadolu University, Research Institute for Individuals With Disabilities, 26100, Tepebaşı, Eskişehir, Turkey

    Ramazan Akdoğan

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  1. Gamze Ülker Tümlü
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Correspondence to Gamze Ülker Tümlü.

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This study was supported by TUBITAK (Project no: 118K471)

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Tümlü, G.Ü., Akdoğan, R. Persistence in the Face of Ecological Challenges: A Phenomenological Study of Parents of Children With Disabilities in Turkey. Int J Adv Counselling 44, 17–38 (2022). https://doi.org/10.1007/s10447-021-09453-x

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