BACKGROUND Chronic diseases in childhood can affect the physical and mental health of patients and their families. The literature on pediatric chronic diseases has found important associations between the sociodemographic variables of children and their caregivers and negative health consequences in families. METHODS In this study, we aimed to design and validate a questionnaire on sociodemographic variables that would be useful for research on pediatric chronic diseases; and investigate the relationship between sociodemographic variables and psychosocial variables among family caregivers. First, we created a questionnaire that consists of 20 demographic, medical, and family-related items based on a literature review and expert evaluations. This questionnaire was then validated by 335 expert reviewers in the field of Social Work, who work daily with the families of patients with chronic diseases in 10 National Institutes of Health of Mexico. The validation was based on three empirical criteria created specifically for this study, and the reviewers evaluated the usefulness, relevance, and permanence of the items. In a second cross-sectional, correlational and comparative study, a total of 446 family caregivers of children with chronic diseases were interviewed, and they completed the Sociodemographic Variables Questionnaire for research on family caregivers of children with chronic sociodemographic diseases and four psychosocial measurement instruments for evaluating anxiety, depression, caregiver burden and quality of life. RESULTS Based on the results of the first study, we created the Sociodemographic Variables Questionnaire (Q-SV) for research on family caregivers of children with chronic diseases, and it includes 17 items that assess demographic, medical, and family characteristics. The results of the second study showed that the 17 sociodemographic variables obtained in the validation by expert judges are useful for measuring and evaluating the relationship between psychosocial variables in families of children with chronic diseases. CONCLUSIONS Psychosocial and sociodemographic factors are relevant for the development of research processes for families that care for children with chronic diseases.

中文翻译：

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一项社会人口统计学变量调查表（Q-SV），用于研究患有慢性疾病的儿童的家庭看护人。

背景技术儿童时期的慢性疾病会影响患者及其家人的身心健康。有关小儿慢性病的文献发现，儿童的社会人口统计学变量及其照顾者与家庭的负面健康后果之间具有重要的联系。方法在本研究中，我们旨在设计和验证有关社会人口统计学变量的调查问卷，这将有助于研究小儿慢性病。并调查了家庭护理人员中的社会人口统计学变量与心理社会变量之间的关系。首先，我们根据文献综述和专家评估，创建了一个由20个人口统计学，医学和家庭相关项目组成的问卷。然后，该问卷经社会工作领域的335名专家审阅者验证，他们每天与墨西哥10个国家卫生研究院的慢性病患者家属一起工作。验证基于专门为此研究创建的三个经验标准，而审阅者评估了这些项目的有用性，相关性和永久性。在第二项横断面，相关性和比较性研究中，总共采访了446名患有慢性疾病的儿童的家庭看护人，他们完成了《社会人口统计学变量调查表》，以研究慢性社会人口学疾病的儿童的家庭照顾者，并使用了四种心理社会测量工具评估焦虑，抑郁，照顾者的负担和生活质量。结果根据第一项研究的结果，我们创建了《社会人口统计学变量调查表》（Q-SV），用于研究慢性病儿童的家庭看护人，它包括评估人口，医学和家庭特征的17个项目。第二项研究的结果表明，专家法官在验证中获得的17个社会人口统计学变量对于测量和评估慢性病儿童家庭的心理社会变量之间的关系非常有用。结论社会心理和社会人口统计学因素与照顾慢性病儿童家庭的研究过程发展有关。第二项研究的结果表明，专家法官在验证中获得的17个社会人口统计学变量对于测量和评估慢性病儿童家庭的心理社会变量之间的关系非常有用。结论社会心理和社会人口统计学因素与照顾慢性病儿童家庭的研究过程发展有关。第二项研究的结果表明，专家法官在验证中获得的17个社会人口统计学变量对于测量和评估慢性病儿童家庭的心理社会变量之间的关系非常有用。结论社会心理和社会人口统计学因素与照顾慢性病儿童家庭的研究过程发展有关。