BACKGROUND Many national and regional clinical guidelines emphasise the need for good communication of information to young people and their parent/carers about what to expect during transition into adult services. Recent research indicates only a minority of young people in need of transition for Attention Deficit Hyperactivity Disorder (ADHD) experience continuity of care into adulthood, with additional concerns about quality of transition. This qualitative study explored the role that information plays in experiences of transition from the perspectives of parent/carers and young people. METHODS Participants were recruited from 10 National Health Service Trusts, located across England, with varying service configurations. Ninety two qualitative interviews were conducted: 64 with young people with ADHD at different stages relative to transition, and 28 with parent/carers. Thematic analysis of data was completed using the Framework Method. RESULTS Interviewees reported a range of experiences; however reliance on parent/carers to gather and translate key information, and negative experiences associated with poor communication of information, were universal. Three themes emerged: Navigating information with help from parents; Information on ADHD into adulthood; Information about the transition process. The first revealed the essential role of parent in the translation and application of information, the other two explored distinct types of information necessary for a smooth transition. Interviewees made recommendations for clinical practice similar to UK (United Kingdom) National Institute for Health and Care Excellence (NICE) guidelines, with an additional emphasis on providing nuanced information on ADHD as a potentially long term condition. It was important to interviewees that General Practitioners had a basic understanding of adult ADHD and also had access to information about service provision. CONCLUSIONS Our findings illustrate that the availability and communication of information to young people and their parent/carers is an essential component of the transition process between child and adult ADHD services. How and when it is provided may support or impede transition. This study constitutes a substantial contribution to the evidence base, drawing on interviews from a range of participants across England and from Trusts offering different types of services.

中文翻译：

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多动症的转型：信息在促进或阻碍年轻人向成人服务过渡方面的作用。


背景技术许多国家和地区临床指南强调需要与年轻人及其父母/照顾者进行良好的信息沟通，了解在过渡到成人服务期间会发生什么。最近的研究表明，只有少数因注意力缺陷多动障碍 (ADHD) 需要过渡的年轻人在成年后经历了连续性的护理，而且对过渡的质量还存在额外的担忧。这项定性研究从父母/照顾者和年轻人的角度探讨了信息在过渡经历中发挥的作用。方法 参与者是从英格兰各地的 10 个国家卫生服务信托机构招募的，这些机构的服务配置各不相同。进行了 92 次定性访谈：其中 64 次针对处于过渡阶段不同阶段的多动症年轻人，28 次针对父母/照顾者。使用框架方法完成了数据的主题分析。结果 受访者报告了一系列经历；然而，依赖父母/照顾者来收集和翻译关键信息以及与信息沟通不畅相关的负面经历是普遍存在的。出现了三个主题：在父母的帮助下浏览信息；有关成年期多动症的信息；有关过渡过程的信息。第一个揭示了父母在信息翻译和应用中的重要作用，另外两个探索了平稳过渡所需的不同类型的信息。受访者提出了类似于英国国家健康与护理卓越研究所 (NICE) 指南的临床实践建议，并额外强调提供有关 ADHD 作为潜在长期疾病的细致入微的信息。 对于受访者来说，重要的是全科医生对成人多动症有基本的了解，并且能够获得有关服务提供的信息。结论 我们的研究结果表明，向年轻人及其父母/照顾者提供和交流信息是儿童和成人 ADHD 服务之间过渡过程的重要组成部分。如何以及何时提供可能会支持或阻碍过渡。这项研究基于对英格兰各地参与者和提供不同类型服务的信托机构的采访，对证据基础做出了重大贡献。