BACKGROUND The ASCOT-Carer and Carer Experience Scale are instruments designed to capture aspects of quality of life 'beyond health' for family carers. The aim of this study was to compare and validate these two carer care-related measures, with a secondary aim to compare both instruments to the three-level EQ-5D (EQ-5D-3 L) measure of health-related quality of life. METHODS An interview survey was conducted with 387 carers of adults who used long-term care (also known as social care) support in England. Construct validity by hypothesis testing was assessed using Pearson correlation coefficient. Exploratory factor analysis was also applied to investigate the dimensionality of the combined items from the ASCOT-Carer and CES (as measures of carer quality of life 'beyond health') and the EQ-5D (as a measure of health-related quality of life). RESULTS In the construct validity analysis, hypothesised differences in correlations were observed with two exceptions. The exploratory factor analysis indicated that the ASCOT-Carer, CES and EQ-5D-3 L items loaded onto three separate factors. The first factor comprised the seven ASCOT-Carer items plus two CES items (activities outside caring, support from friends and family). The second factor comprised three of the six CES items (fulfilment from caring, control over caring and getting on with the person you care for). The third factor included four of the five EQ-5D-3 L items. CONCLUSION The findings indicate that the ASCOT-Carer, CES and EQ-5D-3 L capture separate constructs of social care-related quality of life (ASCOT-Carer) and carer experience (CES), which partially overlap in relation to activities outside caring and social support, and health-related quality of life (EQ-5D-3 L). The ASCOT-Carer and CES are both promising measures for the evaluation of social care support for carers that capture aspects of quality of life 'beyond health'. The choice of whether to use the ASCOT-Carer or CES depends on the study objectives.

中文翻译：

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衡量无薪护理人员的长期护理结果：比较ASCOT-护理人员，护理人员经验量表和EQ-5D-3L。

背景技术ASCOT护理人员和护理人员经验量表是旨在捕获家庭护理人员“超出健康”的生活质量方面的工具。这项研究的目的是比较和验证这两项与护理人员护理有关的措施，其次要目的是将这两种工具与与健康相关的生活质量的三级EQ-5D（EQ-5D-3 L）措施进行比较。 。方法对英国的387位长期护理（也称为社会护理）支持的成人护理人员进行了一项访谈调查。使用Pearson相关系数通过假设检验评估构建的有效性。探索性因素分析还用于研究ASCOT-Carer和CES合并项目的维度（作为“超越健康”的护理人员生活质量的衡量标准））和EQ-5D（作为与健康相关的生活质量的衡量标准）。结果在结构效度分析中，观察到假设的相关性差异，但有两个例外。探索性因素分析表明，ASCOT-Carer，CES和EQ-5D-3 L项目装载到三个单独的因素上。第一个因素包括七个ASCOT-Carer项目和两个CES项目（关怀活动，朋友和家人的支持）。第二个因素包括六个CES项目中的三个（从关怀，对关怀的控制以及与您所照顾的人的相处中获得的成就）。第三个因素包括五个EQ-5D-3 L项目中的四个。结论研究结果表明，ASCOT-Carer，CES和EQ-5D-3 L分别捕获了与社会护理相关的生活质量（ASCOT-Carer）和护理经验（CES）的结构，与关怀和社会支持以外的活动以及与健康相关的生活质量（EQ-5D-3 L）有关，这部分重叠。ASCOT护理人员和CES都是评估护理人员社会护理支持的有前途的措施，这些护理人员捕捉了“健康以外”生活质量的各个方面。是否使用ASCOT-Carer或CES的选择取决于研究目标。