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Investigation of patient and observer agreement on description of seizures at initial clinical visit.
Annals of Clinical and Translational Neurology ( IF 4.4 ) Pub Date : 2019-12-05 , DOI: 10.1002/acn3.50950
Maha N Saleem 1 , Christopher A Arencibia 1 , Kevin McKenna 2 , Sabrina Cristofaro 3 , Kamil Detyniecki 1 , Daniel Friedman 3 , Jacqueline French 3 , Hal Blumenfeld 1, 4, 5 ,
Affiliation  

There have been few studies of agreement between seizure descriptions obtained from patients and observers. We investigated 220 patients and observers who completed structured questionnaires about patients’ semiological seizure features at the initial clinical visit. Inter‐rater reliability was assessed using Cohen’s kappa and indices of positive and negative agreement. Patients and observers had excellent agreement on the presence of memory impairment and generalized shaking and stiffness during seizures. In addition, patients under‐reported seizure descriptions more easily observed externally, whereas observers under‐reported change in patient location at seizure end. These findings may guide interpretation of clinical histories obtain in epilepsy care.

中文翻译:

在首次临床就诊时对患者和观察者就癫痫发作描述达成的协议进行调查。

从患者和观察者获得的癫痫发作描述之间的一致性研究很少。我们调查了220位患者和观察者,这些患者和观察者在初次临床就诊时就患者的符号学癫痫发作特征完成了结构化问卷。使用Cohen的kappa以及积极和消极协议的指数对评估者之间的可靠性进行了评估。癫痫发作期间,患者和观察者对记忆力减退,全身性晃动和僵硬的存在达成了极好的共识。此外,在外部更容易观察到患者低估了癫痫发作的描述,而观察者低估了癫痫发作结束时患者位置的变化。这些发现可能指导对癫痫治疗中获得的临床病史的解释。
更新日期:2019-12-05
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