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What motivates informal caregivers of people with dementia (PWD): a qualitative study.
BMC Palliative Care ( IF 2.5 ) Pub Date : 2019-11-28 , DOI: 10.1186/s12904-019-0491-9
Shakiba Zahed 1 , Maryam Emami 2 , Shahrzad Bazargan-Hejazi 3 , Ahmad Ali Eslami 4 , Majid Barekatain 2 , Fereshteh Zamani-Alavijeh 4
Affiliation  

BACKGROUND The burden of caring for People with Dementia (PWD) is heavy; identifying incentives that motivate them in providing care is essential in facilitating and optimizing care. This study aims to explore and describe these motivating factors. METHODS We conducted this qualitative study between January 2016 and January 2017 in Isfahan, Iran. Data were extracted through in-depth, semi-structured interviews with 19 caregivers of PWD. These data were then examined through thematic content analysis. RESULTS We identified four categories of psychological motives based on the caregivers' feedback and experience. These include 1) Moral-based motives, 2) Religious, and spiritual motives; 3) Financial motives, and 4) Wicked motives. CONCLUSIONS Our results revealed several aspects of caregivers' motives. They include moral, religious, and spiritual aspects; sharing housing accommodations, and the likelihood of inheriting a portion of the patient's assets based on unspoken rules and informal arrangements in the family, and wicked and immoral aspects. These findings can inform future efforts in enhancing the experiences of caregivers of PWD, and subsequently, the quality of care these patients receive. It further suggests that family members, members of a religious and spiritual organization, as well as social media, could play important roles in setting the stage.

中文翻译:

促使痴呆症患者(PWD)非正式护理的动机:定性研究。

背景技术照顾痴呆症患者(PWD)的负担很重。确定激励他们提供护理的激励措施对于促进和优化护理至关重要。这项研究旨在探索和描述这些激励因素。方法我们于2016年1月至2017年1月在伊朗伊斯法罕进行了定性研究。数据是通过对19名PWD照护者进行的深入,半结构化访谈而提取的。然后通过主题内容分析检查这些数据。结果我们根据看护者的反馈和经验确定了四类心理动机。这些包括:1)基于道德的动机; 2)宗教和精神动机;3)财务动机,以及4)邪恶动机。结论我们的结果揭示了看护人动机的几个方面。其中包括道德,宗教,和精神方面;共享住房,并根据家庭中潜规则和非正式安排以及邪恶和不道德的方面继承患者资产的一部分的可能性。这些发现可为将来在增强PWD护理人员的体验以及随后改善这些患者获得的护理质量方面的工作提供信息。它进一步表明,家庭成员,宗教和精神组织的成员以及社交媒体可以在设置舞台上发挥重要作用。随后,这些患者获得的护理质量。它进一步表明,家庭成员,宗教和精神组织的成员以及社交媒体可以在设置舞台上发挥重要作用。随后,这些患者获得的护理质量。它进一步表明,家庭成员,宗教和精神组织的成员以及社交媒体可以在设置舞台上发挥重要作用。
更新日期:2019-11-28
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