There have been many attempts to improve how healthcare services are developed and delivered. Despite this, we know that there are many gaps and differences in practice and that these can lead to poor patient outcomes. In addition, there are also concerns that research is being undertaken that does not reflects the realities or needs of those using healthcare services, and that the use of research findings in practice is slow. As such, shared approaches to research, such as integrated knowledge translation, are being used. Integrated knowledge translation (IKT) is a research approach that brings together researchers, along with other stakeholders that have knowledge about a particular healthcare issue. Stakeholders may include healthcare providers and policy-makers. More recently, there has been a growing awareness of the need to include patients and members of the public within research processes. These collaborative and patient-oriented research approaches are seen as a way to develop research that tackles ongoing gaps in practice and reflect the insights, needs and priorities of those most affected by health research outcomes. Despite great support, little is known about how these major research approaches are connected, or how they may bring about improvements in the development and use of research evidence. In this paper, we examine how IKT and patient engagement processes are linked, as well as exploring where differences exist. Through this, we highlight opportunities for greater patient engagement in IKT research and to identify areas that need to be understood further. Healthcare organizations across the world are being increasingly challenged to develop and implement services that are evidence-based and bring about improvement in patient and health service outcomes. Despite an increasing emphasis upon evidence-based practice, large variations in practice remain and gaps pervade in the creation and application of knowledge that improves outcomes. More collaborative models of health research have emerged over recent years, including integrated knowledge translation (IKT), whereby partnerships with key knowledge users are developed to enhance the responsiveness and application of the findings. Likewise, the meaningful engagement of patients, in addition to the inclusion of patient-reported outcomes and priorities, has been hailed as another mechanism to improve the relevance, impact and efficiency of research. Collectively, both IKT and patient engagement processes provide a vehicle to support research that can address health disparities and improve the delivery of effective and responsive healthcare services. However, the evidence to support their impact is limited and while these approaches are inextricably connected through their engagement focus, it is unclear how IKT and patient engagement processes are linked conceptually, theoretically, and practically. In this paper, we will begin to critically examine some of the linkages and tensions that exist between IKT and patient-engagement for research and will examine potential opportunities for IKT researchers as they navigate and enact meaningful partnerships with patients and the public.

中文翻译：

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患者和公众参与综合知识转化研究：我们到了吗？

人们已经做出了许多尝试来改善医疗保健服务的开发和提供方式。尽管如此，我们知道实践中存在许多差距和差异，这些可能会导致患者预后不佳。此外，人们还担心正在进行的研究不能反映使用医疗保健服务的人的现实或需求，并且研究成果在实践中的应用进展缓慢。因此，正在使用共享的研究方法，例如综合知识翻译。综合知识翻译 (IKT) 是一种研究方法，它将研究人员以及了解特定医疗保健问题的其他利益相关者聚集在一起。利益相关者可能包括医疗保健提供者和政策制定者。最近，人们越来越意识到需要将患者和公众纳入研究过程。这些协作和以患者为导向的研究方法被视为一种开发研究的方式，可以解决实践中持续存在的差距，并反映受健康研究成果影响最大的人群的见解、需求和优先事项。尽管得到了大力支持，但人们对这些主要研究方法如何相互联系，或者它们如何改进研究证据的开发和使用知之甚少。在本文中，我们研究了 IKT 和患者参与流程如何联系起来，并探讨了存在差异的地方。通过这一点，我们强调了让患者更多地参与 IKT 研究的机会，并确定需要进一步了解的领域。世界各地的医疗保健组织在开发和实施基于证据的服务并改善患者和医疗服务结果方面面临着越来越大的挑战。尽管越来越强调基于证据的实践，但实践中仍然存在很大差异，并且在创造和应用改善结果的知识方面普遍存在差距。近年来出现了更多的健康研究合作模式，包括综合知识翻译（IKT），通过这种模式与关键知识用户建立伙伴关系，以提高研究结果的响应能力和应用。同样，除了纳入患者报告的结果和优先事项之外，患者的有意义的参与也被誉为提高研究相关性、影响力和效率的另一种机制。总的来说，IKT 和患者参与流程都提供了支持研究的工具，这些研究可以解决健康差异并改善有效和响应迅速的医疗保健服务的提供。然而，支持其影响的证据有限，虽然这些方法通过其参与焦点密不可分地联系在一起，但尚不清楚 IKT 和患者参与过程在概念、理论和实践上如何联系起来。在本文中，