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An iterative design process to develop a randomized feasibility study and inform recruitment of minority women after stillbirth
Pilot and Feasibility Studies ( IF 1.5 ) Pub Date : 2019-11-27 , DOI: 10.1186/s40814-019-0526-2
Jennifer Huberty 1 , Jeni Green 1 , Katherine J Gold 2 , Jenn Leiferman 3 , Joanne Cacciatore 4
Affiliation  

Yearly, approximately 25,000 US women experience stillbirth and African American women have a 2.2 fold increased risk of stillbirth compared with white women. After stillbirth, women are subject to a sevenfold increased risk of post-traumatic stress compared with women after a live-birth. This paper presents findings from phase one of a National Institutes of Health funded, two-phase feasibility study to examine an online yoga intervention to reduce symptoms of post-traumatic stress in mothers after stillbirth. An iterative design was used to (1) inform the development of the online yoga intervention and (2) inform recruitment strategies to enroll minority women into phase two. Ten mothers (N = 5 stillbirth moms with no yoga experience, N = 5 nonstillbirth moms with yoga experience) participated in a series of online yoga videos (N = 30) and were assessed for self-compassion (SC) and emotional regulation (ER) before and after each video. An independent group of five minority women who had experienced stillbirth were interviewed about cultural barriers to recruitment and perceptions/opinions of yoga. A mean was calculated for SC and ER scores for each video at pre- and post-time points. The percent change of the mean difference between pre-post SC and ER scores were used to select videos for phase two. Videos with a negative change score or that had a 0% change on SC or ER were not used. A combination of deductive and inductive coding was used to organize the interview data, generate categories, and develop themes. Five of the 30 tested yoga videos were not used. An additional 12 videos were developed, filmed, and used in the prescription for phase two. Topics from interview findings included perceived benefits/barriers of and interest in yoga, preferred yoga environment, suggested recruitment methods, content of recruitment material, and recommended incentives. Online yoga may be beneficial for improving emotional regulation and self-compassion, but further testing is needed. Additionally, minority women express interest in online yoga but suggest that researchers apply culturally specific strategies regarding methods, content of material, and incentives to recruit minority women into a study.

中文翻译:


迭代设计过程,以开展随机可行性研究并为死产后少数族裔妇女的招募提供信息



每年,大约有 25,000 名美国女性经历死产,非洲裔美国女性死产的风险比白人女性高 2.2 倍。死产后,女性遭受创伤后压力的风险比活产后的女性增加七倍。本文介绍了美国国立卫生研究院资助的两阶段可行性研究第一阶段的结果,该研究旨在检验在线瑜伽干预措施,以减轻死产后母亲的创伤后应激症状。采用迭代设计(1)为在线瑜伽干预的发展提供信息;(2)为将少数族裔女性纳入第二阶段的招募策略提供信息。十名母亲(N = 5 名没有瑜伽经验的死产妈妈,N = 5 名有瑜伽经验的非死产妈妈)参加了一系列在线瑜伽视频 (N = 30),并评估了自我慈悲 (SC) 和情绪调节 (ER) )在每个视频之前和之后。由五名经历过死产的少数族裔妇女组成的独立小组接受了采访,了解招募的文化障碍以及对瑜伽的看法/看法。计算每个视频在时间点前后的 SC 和 ER 分数的平均值。 SC 和 ER 评分前后平均差异的百分比变化用于选择第二阶段的视频。不使用变化分数为负或 SC 或 ER 变化为 0% 的视频。演绎和归纳编码的结合用于组织访谈数据、生成类别和开发主题。 30 个测试的瑜伽视频中有 5 个未使用。另外 12 个视频被开发、拍摄并用于第二阶段的处方中。 访谈结果的主题包括对瑜伽的感知好处/障碍和兴趣、首选的瑜伽环境、建议的招聘方法、招聘材料的内容以及建议的激励措施。在线瑜伽可能有益于改善情绪调节和自我慈悲,但还需要进一步测试。此外,少数族裔女性表达了对在线瑜伽的兴趣,但建议研究人员在方法、材料内容和激励措施方面应用针对文化的特定策略,以招募少数族裔女性参与研究。
更新日期:2019-11-27
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