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Supporting carers: health care professionals in need of system improvements and education - a qualitative study.
BMC Palliative Care ( IF 2.5 ) Pub Date : 2019-07-16 , DOI: 10.1186/s12904-019-0444-3
Ingebrigt Røen 1, 2 , Hans Stifoss-Hanssen 3 , Gunn Grande 4 , Stein Kaasa 5, 6, 7 , Kari Sand 1 , Anne Kari Knudsen 5, 6
Affiliation  

BACKGROUND Health care professionals should prevent and relieve suffering in carers of patients with advanced cancer. Despite known positive effects of systematic carer support, carers still do not receive sufficient support. Carers have reported to be less satisfied with coordination of care and involvement of the family in treatment and care decisions than patients. In a rural district of Mid-Norway, cancer palliative care services across specialist and community care were developed. Participants' experiences and opinions were investigated as part of this development process. METHODS The aim of this qualitative study was to explore and describe health care professionals' experiences with carer support from their own perspective. Data were collected in focus groups. Purposeful sampling guided the inclusion. Six groups were formed with 21 professionals. The discussions were audio-recorded, transcribed, and analyzed using systematic text condensation. RESULTS In the analyzis of the focus group discussions, ten categories emerged from the exploration of health care professionals' carer support, assessment of needs, and factors hampering carer support: 1) dependent on profession, role, and context, 2) personal relationship, 3) personal skills and competence, 4) adjusted to the stage of the disease, 5) informal assessment of carers' needs, 6) lack of education 7) lack of systems for carer consultations, 8) lack of systems for documentation, 9) lack of systems for involving GPs, and 10) lack of systematic spiritual care. CONCLUSIONS Health care professionals built a personal relationship with the carers as early as possible, to facilitate carer support throughout the disease trajectory. Systematic carer support was hampered by lack of education and system insufficiencies. Organizational changes were needed, including 1) education in carer support, communication, and spiritual care, 2) use of standardized care pathways, including systematic carer needs assessment, 3) systematic involvement of general practitioners, and 4) a system for documentation of clinical work with carers.

中文翻译:

支持者:需要系统改进和教育的卫生保健专业人员-一项定性研究。

背景技术卫生保健专业人员应预防和减轻患有晚期癌症的患者的护理者的痛苦。尽管有系统的看护者支持产生了积极的影响,但是看护者仍然没有得到足够的支持。据报道,与患者相比,护理人员对护理的协调以及家庭对治疗和护理决策的参与的满意度较低。在挪威中部的一个农村地区,开发了横跨专科和社区护理的癌症姑息护理服务。在此开发过程中,对参与者的经验和意见进行了调查。方法这项定性研究的目的是从他们自己的角度探讨和描述医疗保健专业人员在护理人员支持下的经验。数据是在焦点小组中收集的。有目的的抽样指导纳入。六个小组由21名专业人员组成。使用系统的文本压缩对讨论进行音频记录,转录和分析。结果在焦点小组讨论的分析中,从探索医疗保健专业人员的护老者支持,评估需求以及阻碍护老者支持的因素中得出了十个类别:1)依赖于职业,角色和环境,2)个人关系, 3)个人技能和能力,4)适应疾病的阶段,5)对护理人员的需求进行非正式评估,6)缺乏教育7)缺乏护理人员咨询系统,8)缺乏文档系统,9)缺乏让GP参与的系统,以及10)缺乏系统的精神关怀。结论卫生保健专业人员应尽早与看护人建立个人关系,在整个疾病发展过程中促进护理人员的支持。缺乏教育和系统不足阻碍了系统的护理人员支持。需要进行组织变革,包括1)护理人员支持,沟通和精神护理方面的教育,2)使用标准化护理途径,包括系统的护理人员需求评估,3)全科医生的系统参与,以及4)临床记录系统与照顾者一起工作。
更新日期:2019-07-16
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