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Exploring health care providers’ perceptions about home-based palliative care in terminally ill cancer patients
BMC Palliative Care ( IF 2.5 ) Pub Date : 2019-08-06 , DOI: 10.1186/s12904-019-0452-3
Heshmatolah Heydari , Suzanne Hojjat-Assari , Mohammad Almasian , Pooneh Pirjani

According to the World Health Organization, palliative care is one of the main components of healthcare. As the incidence of cancer is increasing in the world, home-based palliative care can be beneficial for many patients. This study was designed to explore health care providers’ perceptions about home-based palliative care in terminally ill cancer patients. This qualitative study was carried out using the conventional content analysis from October 2016 to September 2018 in Iran. Participants were home care providers who were selected using purposive sampling. The data were collected through 18 individual interviews, and a focus group meeting. Data were analyzed based on the method proposed by Lundman and Graneheim. from the data analysis, 511 initial codes were extracted, which were categorized into the two main categories of challenges and opportunities for home-based palliative care and 10 subcategories. The subcategories of challenges included deficiencies in inter-sectoral and inter-professional cooperation, lack of infrastructures for end-of-life care, challenges related to the management of death, challenges of transferring patients to home, providing non-academic palliative care, lack of political commitment of the government and Spiritual vacuum. The category of opportunities included subcategories of cost-effectiveness, moving towards socializing health, and structure of the health system. Home-based palliative care requires government and health system support. Structural and process modification in the healthcare can provide conditions in which terminally ill cancer patients receive appropriate care in home and experience death with dignity through support of family, friends and healthcare.

中文翻译:

探索卫生保健提供者对晚期癌症患者的家庭姑息治疗的看法

根据世界卫生组织的说法,姑息治疗是医疗保健的主要组成部分之一。随着世界范围内癌症发病率的增加,基于家庭的姑息治疗可能对许多患者有益。这项研究旨在探讨医疗保健提供者对晚期癌症患者的家庭姑息治疗的看法。这项定性研究是使用2016年10月至2018年9月在伊朗进行的常规含量分析进行的。参加者为家庭护理提供者,他们是通过有针对性的抽样选择的。这些数据是通过18次个人访谈和一次焦点小组会议收集的。根据Lundman和Graneheim提出的方法对数据进行了分析。从数据分析中,提取了511个初始代码,分为家庭姑息治疗的挑战和机遇这两个主要类别和10个子类别。挑战的子类别包括部门间和专业间合作的不足,临终护理基础设施的缺乏,与死亡管理有关的挑战,将患者送回家中,提供非学术性姑息治疗的挑战,缺乏政府的政治承诺和精神真空。机会类别包括成本效益子类别,朝着使健康社会化的方向发展以及卫生系统的结构。基于家庭的姑息治疗需要政府和卫生系统的支持。
更新日期:2019-08-06
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