BACKGROUND Health services have not provided adequate support for young people with long term health conditions to transfer from child to adult services. National Institute of Health and Care (NICE) guidance on transition has been issued to address these gaps. However, data are often sparse about the number of young adults who might need to transition. Using Attention Deficit Hyperactivity Disorder (ADHD) as an exemplar, this study used an existing surveillance system and a case note review to capture the incidence of the transition process, and compared and contrasted the findings. METHODS The Child and Adolescent Psychiatry Surveillance System (CAPSS) was used to estimate the incident transition of young people with Attention Deficit Hyperactivity Disorder (ADHD) from child to adult services. This involves consultant child and adolescent psychiatrists from the United Kingdom (UK) and Republic of Ireland (ROI) reporting relevant young people as they are seen in clinics. In parallel, a case note review was conducted using the Maudsley Biomedical Research Centre (BRC) Clinical Records Interactive Search (CRIS). The study period ran for twelve months with a nine month follow up to see how the transition proceeded. RESULTS CRIS identified 76 cases in the study period, compared to 18 identified using surveillance via CAPSS. Methodological issues were experienced using both methods. Surveillance issues; eligibility criteria confusion, reporting errors, incomplete questionnaires, difficulties contacting clinicians, and surveillance systems do not cover non-doctors and psychiatrists who are not consultants. Case note review issues using CRIS included the need for researchers to interpret clinical notes, the availability and completeness of data in the notes, and data limited to the catchment of one particular mental health trust. CONCLUSIONS Both methods demonstrate strengths and weaknesses; the combination of both methods in the absence of strong routinely collected data, allowed a more robust estimate of the level of need for service planning and commissioning.

中文翻译：

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如何衡量患有注意力缺陷多动障碍 (ADHD) 的年轻人向成人服务过渡的需求：监测与病例记录审查方法的比较。

背景 卫生服务尚未为患有长期健康问题的年轻人从儿童服务转向成人服务提供足够的支持。美国国家健康与护理研究所 (NICE) 已发布过渡指南来解决这些差距。然而，关于可能需要转型的年轻人数量的数据往往很少。本研究以注意力缺陷多动障碍（ADHD）为范例，利用现有的监测系统和病例记录回顾来捕捉转变过程的发生率，并对研究结果进行比较和对比。方法 使用儿童和青少年精神病学监测系统 (CAPSS) 来估计患有注意力缺陷多动障碍 (ADHD) 的年轻人从儿童服务到成人服务的事件转变。这涉及来自英国 (UK) 和爱尔兰共和国 (ROI) 的儿童和青少年精神病顾问顾问报告相关年轻人在诊所就诊的情况。与此同时，使用莫兹利生物医学研究中心 (BRC) 临床记录交互式搜索 (CRIS) 进行了病例记录审查。研究期持续十二个月，并进行九个月的随访，以了解过渡的进展情况。结果 CRIS 在研究期间发现了 76 例病例，而通过 CAPSS 监测发现了 18 例。使用这两种方法都遇到了方法学问题。监控问题；资格标准混乱、报告错误、调查问卷不完整、联系临床医生困难以及监测系统不涵盖非医生和非顾问的精神科医生。使用 CRIS 的病例记录审查问题包括研究人员解释临床记录的需要、记录中数据的可用性和完整性，以及仅限于某一特定心理健康信托基金范围的数据。结论 两种方法都显示出优点和缺点；在缺乏强有力的例行收集数据的情况下，将这两种方法结合起来，可以更可靠地估计服务规划和调试的需求水平。