当前位置: X-MOL 学术BMC Med. Ethics › 论文详情
Our official English website, www.x-mol.net, welcomes your feedback! (Note: you will need to create a separate account there.)
What Egyptians think. Knowledge, attitude, and opinions of Egyptian patients towards biobanking issues.
BMC Medical Ethics ( IF 3.0 ) Pub Date : 2019-08-09 , DOI: 10.1186/s12910-019-0394-6
Ahmed S Abdelhafiz 1 , Eman A Sultan 2 , Hany H Ziady 2 , Ebtesam Ahmed 3 , Walaa A Khairy 4 , Douaa M Sayed 5 , Rana Zaki 6 , Merhan A Fouda 1 , Rania M Labib 7
Affiliation  

BACKGROUND Biobanking is a relatively new concept in Egypt. Building a good relationship with different stakeholders is essential for the social sustainability of biobanks. To establish this relationship, it is necessary to assess the attitude of different groups towards this concept. The objective of this work is to assess the knowledge, attitude, and opinions of Egyptian patients towards biobanking issues. METHODS We designed a structured survey to be administered to patients coming to the outpatient clinics in 3 university hospitals in Egypt. The survey included questions estimating the level of knowledge about the term "Biobank", together with questions about the attitudes and opinions about related issues. RESULTS Two hundred and fifty-nine patients participated in the survey. Eighty-one percent of participants reported that they never heard about the term before. About 85% expressed that they would be willing to donate their samples for research and about 87% thought that sample donation did not contradict their religious beliefs. Fifty eight percent were willing to participate in a genetic research project, 27.8% supported sharing their sample with pharmaceutical companies, and 32.4% agreed to share their samples with institutions abroad. CONCLUSION Although there is limited knowledge about biobanking among Egyptian patients, many had a positive attitude towards sample donation and didn't show religious concerns against it. However, they showed concerns regarding participation in genetic research and with sharing their samples across borders or with pharmaceutical companies. Public education about biobanking is possible, taking into consideration the specific cultural and legal framework in Egypt.

中文翻译:

埃及人的想法。埃及患者对生物库问题的知识,态度和见解。

背景技术在埃及,生物银行是一个相对较新的概念。与不同利益相关者建立良好关系对于生物库的社会可持续性至关重要。为了建立这种关系,有必要评估不同群体对这一概念的态度。这项工作的目的是评估埃及患者对生物库问题的知识,态度和见解。方法我们设计了一项结构化调查,对埃及3所大学医院的门诊患者进行管理。该调查包括估计有关“生物库”一词的知识水平的问题,以及有关相关问题的态度和观点的问题。结果259例患者参加了调查。81%的参与者报告说他们从未听说过该词。大约85%的人表示愿意将自己的样品捐赠给研究,大约87%的人认为捐赠样品与他们的宗教信仰没有冲突。58%的人愿意参加基因研究项目,27.8%的人愿意与制药公司共享样本,32.4%的人愿意与国外机构共享样本。结论尽管埃及患者对生物储库的了解有限,但许多人对样品捐赠持积极态度,并没有表现出对此的宗教关注。但是,他们对参与基因研究以及跨境或与制药公司共享样本表示担忧。
更新日期:2019-08-09
down
wechat
bug