Home nursing care is often warranted—but, too often, not reliably available¹—for children with medical complexity (CMCs) who live with serious and sometimes life-threatening conditions and who usually depend on medical technology for their well-being and safety. When these children reside at home, parents or guardians are expected to provide medical care during many, or even all, hours of the day and night. Parental duties might include administering medication, providing enteral tube feedings or parenteral nutrition, performing chest physiotherapy, and perpetually monitoring the child for signs of critical decompensation, among other tasks. Many of these caregiving activities involve sustained attention and physical labor and must be performed multiple times each day.

对于那些患有严重，有时甚至危及生命的疾病，并且通常依靠医疗技术来维持其健康和安全的医疗复杂性（CMC）儿童，经常需要家庭护理，但常常无法获得可靠的信息¹。当这些孩子住在家里时，父母或监护人应在白天或晚上的许多甚至全部小时内提供医疗服务。父母的职责可能包括管理药物，提供肠管喂养或肠胃外营养，进行胸部物理治疗以及永久监测孩子的严重失代偿迹象等。这些护理活动很多都涉及持续的关注和体力劳动，并且每天必须进行多次。