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A comparison of the ASD experience of low-SES hispanic and non-hispanic white parents.
Autism Research ( IF 5.3 ) Pub Date : 2019-10-22 , DOI: 10.1002/aur.2223
Adriana Ferguson 1 , Debra C Vigil 2
Affiliation  

This study compared the experiences of Hispanic families, who were primarily of Mexican heritage, and non‐Hispanic White families from the United States both from low socioeconomic status (SES) backgrounds having a child with a diagnosis of Autism Spectrum Disorder (ASD). The Centers for Disease Control and Prevention (CDC) reports that Hispanic children are diagnosed with ASD 2 years later than non‐Hispanic White children [Baio et al., MMWR Surveillance Summaries 2018:67(SS‐6): 1–23]. However, there has been limited investigation in exploring how SES might impact both diagnosis and experience. A survey of basic demographic information and a qualitative survey were used for this study. Basic demographic information obtained included SES, parent educational level, age of diagnosis of the children, religious affiliation, and marital status. Hour‐long interviews were conducted to gather information about the personal experiences of these families relating to diagnoses and treatment. Comparative results of basic demographic information showed no difference in age of diagnosis between the two groups when SES was controlled. Although SES was controlled, the non‐Hispanic White families had a higher education level and were slightly wealthier. Qualitatively, similarities included family support, doctor response to parent concerns, and acceptance of diagnosis by family members and friends. Differences included religious views, acceptance of diagnosis, knowledge of developmental milestones, and finding resources. Most significantly, the findings indicate no difference in the age of diagnosis of ASD between the Hispanic and non‐Hispanic White children, which could be attributed to increased awareness and having access to a proactive parent organization. Autism Res 2019, 12: 1880–1890. © 2019 International Society for Autism Research, Wiley Periodicals, Inc.

中文翻译:

低SES西班牙裔和非西班牙裔白人父母的ASD经验比较。

这项研究比较了主要来自墨西哥血统的西班牙裔家庭和来自美国的非西班牙裔白人家庭的经历,这两种情况均来自于社会经济地位低(SES)且有孩子被诊断出患有自闭症谱系障碍(ASD)的儿童。疾病控制与预防中心(CDC)报告说,西班牙裔儿童被诊断出比非西班牙裔白人儿童晚2年的ASD [Baio等人,MMWR Surveillance Summaries 2018:67(SS-6):1-23]。但是,在探索SES如何影响诊断和经验方面的研究还很有限。本研究使用基本人口统计学信息调查和定性调查。获得的基本人口统计信息包括SES,父母的受教育程度,儿童的诊断年龄,宗教信仰和婚姻状况。进行了一个小时的访谈,以收集有关这些家庭与诊断和治疗有关的个人经历的信息。基本人口统计学信息的比较结果表明,控制SES后,两组的诊断年龄没有差异。尽管控制了SES,但非西班牙裔白人家庭的受教育程度较高,并且较富有。从质量上讲,相似之处包括家庭支持,医生对父母关注的反应以及家庭成员和朋友对诊断的接受。差异包括宗教观点,对诊断的接受,对发展里程碑的了解以及寻找资源。最重要的是,研究结果表明,西班牙裔和非西班牙裔白人儿童的ASD诊断年龄没有差异,自闭症研究2019,12:1880–1890。©2019国际自闭症研究会,Wiley Periodicals,Inc.
更新日期:2019-10-22
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