The longitudinal evaluation of familial frontotemporal dementia subjects protocol: Framework and methodology,Alzheimer's & Dementia

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The longitudinal evaluation of familial frontotemporal dementia subjects protocol: Framework and methodology
Alzheimer's & Dementia ( IF 13.0 ) Pub Date : 2020-01-01 , DOI: 10.1016/j.jalz.2019.06.4947
Bradley Boeve ₁ , Jessica Bove ₂ , Patrick Brannelly ₃ , Danielle Brushaber ₁ , Giovanni Coppola ₄ , Rielly Dever ₅ , Christina Dheel ₁ , Bradford Dickerson ₆ , Susan Dickinson ₇ , Kelley Faber ₈ , Julie Fields ₁ , Jamie Fong ₅ , Tatiana Foroud ₈ , Leah Forsberg ₁ , Ralitza Gavrilova ₁ , Debra Gearhart ₁ , Nupur Ghoshal ₉ , Jennifer Goldman ₁₀ , Jonathan Graff-Radford ₁ , Neill Graff-Radford ₁₁ , Murray Grossman ₂ , Dana Haley ₁₁ , Hilary Heuer ₅ , Ging-Yuek Robin Hsiung ₁₂ , Edward Huey ₁₀ , David Irwin ₂ , David Jones ₁ , Lynne Jones ₉ , Kejal Kantarci ₁ , Anna Karydas ₅ , David Knopman ₁ , John Kornak ₅ , Ruth Kraft ₁ , Joel Kramer ₅ , Walter Kremers ₁ , Walter Kukull ₁₃ , Maria Lapid ₁ , Diane Lucente ₆ , Ian Mackenzie ₁₂ , Masood Manoochehri ₁₀ , Scott McGinnis ₆ , Bruce Miller ₅ , Rodney Pearlman ₁₄ , Len Petrucelli ₁₁ , Madeline Potter ₈ , Rosa Rademakers ₁₁ , Eliana Marisa Ramos ₄ , Kate Rankin ₅ , Katya Rascovsky ₂ , Pheth Sengdy ₁₂ , Les Shaw ₂ , Jeremy Syrjanen ₁ , Nadine Tatton ₇ , Joanne Taylor ₅ , Arthur Toga ₁₅ , John Trojanowski ₂ , Sandra Weintraub ₁₆ , Bonnie Wong ₆ , Zbigniew Wszolek ₁₁ , Adam Boxer ₅ , Howard Rosen ₅ ,

Affiliation

Mayo Clinic, Rochester, MN, USA.
University of Pennsylvania, Philadelphia, PA, USA.
Tau Consortium, Rainwater Charitable Foundation, Fort Worth, TX, USA.
UCLA, Los Angeles, CA, USA.
UCSF, San Francisco, CA, USA.
Harvard University/MGH, Boston, MA, USA.
Association for Frontotemporal Degeneration, Radnor, PA, USA.
National Cell Repository for Alzheimer's Disease and Related Dementias (NCRAD), Indiana University, Indianapolis, IN, USA.
Washington University, St. Louis, MO, USA.
Columbia University, New York, NY, USA.
Mayo Clinic, Jacksonville, FL, USA.
University of British Columbia, Vancouver, British Columbia, Canada.
National Alzheimer Coordinating Center (NACC), University of Washington, Seattle, WA, USA.
Bluefield Project, San Francisco, CA, USA.
Laboratory of Neuroimaging (LONI), USC, Los Angeles, CA, USA.
Northwestern University, Chicago, IL, USA.

It is important to establish the natural history of familial frontotemporal lobar degeneration (f‐FTLD) and provide clinical and biomarker data for planning these studies, particularly in the asymptomatic phase.

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