OBJECTIVE To examine how relatives evaluate the quality of communication with the treating physician of a dying resident in long-term care facilities (LTCFs) and to assess its differences between countries. DESIGN A cross-sectional retrospective study in a representative sample of LTCFs conducted in 2015. Relatives of residents who died during the previous 3 months were sent a questionnaire. SETTINGS AND PARTICIPANTS 761 relatives of deceased residents in 241 LTCFs in Belgium, England, Finland, Italy, the Netherlands, and Poland. METHODS The Family Perception of Physician-Family Communication (FPPFC) scale (ratings from 0 to 3, where 3 means the highest quality) was used to retrospectively assess how the quality of end-of-life communication with treating physicians was perceived by relatives. We applied multilevel linear and logistic regression models to assess differences between countries and LTCF types. RESULTS The FPPFC score was the lowest in Finland (1.4 ± 0.8) and the highest in Italy (2.2 ± 0.7). In LTCFs served by general practitioners, the FPPFC score differed between countries, but did not in LTCFs with on-site physicians. Most relatives reported that they were well informed about a resident's general condition (from 50.8% in Finland to 90.6% in Italy) and felt listened to (from 53.1% in Finland to 84.9% in Italy) and understood by the physician (from 56.7% in Finland to 85.8% in Italy). In most countries, relatives assessed the worst communication as being about the resident's wishes for medical treatment at the end of life, with the lowest rate of satisfied relatives in Finland (37.6%). CONCLUSION The relatives' perception of the quality of end-of-life communication with physicians differs between countries. However, in all countries, physicians' communication needs to be improved, especially regarding resident's wishes for medical care at the end of life. IMPLICATIONS Training in end-of-life communication to physicians providing care for LTCF residents is recommended.

中文翻译：

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欧洲 6 个国家长期护理机构临终居民亲属对医生沟通质量的看法：PACE 横断面研究

目的 研究亲属如何评估与长期护理机构 (LTCF) 中垂死居民的主治医生的沟通质量，并评估其在国家之间的差异。设计 在 2015 年对 LTCF 的代表性样本进行了一项横断面回顾性研究。向过去 3 个月内死亡的居民的亲属发送了一份问卷。背景和参与者 比利时、英国、芬兰、意大利、荷兰和波兰的 241 个 LTCF 中的 761 名已故居民亲属。方法 使用家庭医生-家庭沟通（FPPFC）量表（评分从 0 到 3，其中 3 表示质量最高）的家庭感知来回顾性评估亲属如何看待与治疗医生的临终沟通质量。我们应用多级线性和逻辑回归模型来评估国家和 LTCF 类型之间的差异。结果 FPPFC 评分在芬兰最低 (1.4 ± 0.8)，在意大利最高 (2.2 ± 0.7)。在由全科医生服务的 LTCF 中，FPPFC 分数因国家/地区而异，但在有现场医生的 LTCF 中没有。大多数亲属报告说，他们充分了解居民的一般状况（从芬兰的 50.8% 到意大利的 90.6%），并感到被医生倾听（从芬兰的 53.1% 到意大利的 84.9%）和理解（从 56.7%）芬兰为 85.8%）。在大多数国家，亲属认为最差的沟通是关于居民临终就医的意愿，芬兰亲属满意度最低（37.6%）。结论 亲属对与医生临终交流质量的看法因国家而异。然而，在所有国家，医生的沟通都需要改进，尤其是关于居民临终医疗的愿望。影响 建议对为 LTCF 居民提供护理的医生进行临终沟通方面的培训。