Adolescents and young adults diagnosed with inflammatory bowel diseases (IBDs) in pediatric care are vulnerable during their transition to adult care. There are 6 core elements of transition from pediatric to adult IBD care. We identified gaps in this transition and make recommendations for clinical practice and research. There have been few studies of transition policy (core element 1) or studies that tracked and monitored patients through the transition (core element 2). Several studies have assessed transition readiness (core element 3), but instruments for assessment were not validated using important outcomes such as disease control, health care use, adherence, quality of life, or continuity of care. There have been no studies of best practices for transition planning (core element 4), including how to best educate patients and facilitate gradual shifts in responsibility. A small number of longitudinal studies have investigated transfer of care (core element 5), but these were conducted outside of the United States; these studies found mixed results in short- and intermediate-term outcomes after transition completion (core element 6). We discuss what is known about the transition from pediatric to adult care for IBD, make recommendations to improve this process, and identify areas for additional research.

中文翻译：

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将患有炎症性肠病的青少年成功过渡到成人护理的建议。

在儿科护理中被诊断出患有炎症性肠病 (IBD) 的青少年和年轻人在过渡到成人护理期间很容易受到伤害。从儿科到成人 IBD 护理的过渡有 6 个核心要素。我们确定了这一转变中的差距，并为临床实践和研究提出建议。很少有关于过渡政策的研究（核心要素 1）或在过渡期间跟踪和监测患者的研究（核心要素 2）。几项研究评估了过渡准备情况（核心要素 3），但评估工具并未使用疾病控制、医疗保健使用、依从性、生活质量或护理连续性等重要结果进行验证。没有对过渡规划的最佳做法进行研究（核心要素 4），包括如何最好地教育患者并促进责任的逐步转移。少数纵向研究调查了护理转移（核心要素 5），但这些研究是在美国境外进行的；这些研究发现过渡完成后的短期和中期结果好坏参半（核心要素 6）。我们讨论了关于 IBD 从儿科到成人护理过渡的已知情况，提出改进这一过程的建议，并确定需要进一步研究的领域。