Because of insufficient asthma control in many patients, the collaboration between stakeholders is regarded as a promising strategy to improve asthma outcomes. This study explored the perceptions of French adult asthma patients on their care pathway. We conducted a qualitative study based on the interviews of 30 asthma patients aged 18-40 years, recruited in French primary care. We performed a thematic analysis of the data collected, using the NVivo software. According to the patients, the stakeholders involved in asthma management included those visible to healthcare professionals (patient, general practitioner, specialist(s), pharmacist, physiotherapist, family and friends) and those concealed by the patients (complementary and alternative practitioners); other stakeholders, such as nurses and occupational physicians, were not involved. Asthma management at diagnosis and follow-up phases proved to be unstructured, and were associated with poor patient education. This was supported by patients' ambivalence (in relation to illness and treatments), poor communication between patients and healthcare professionals (lack of listening and use of inappropriate vocabulary by physicians, underreporting of alternative medicine use by patients) and weak cooperation between professionals (limited to interaction between the general practitioner and the specialist, either pulmonologist or allergist). Asthma management would probably benefit from a more coordinated care pathway at each phase of the disease that is consistent with the expectations and goals of the patients. It should be based on improved organization (involvement of other healthcare professionals and the patient as partners) and processes (regular follow-up, specific tools such as peak flow meter or action plan).

中文翻译：

---

哮喘患者对其护理途径的看法：定性研究。

由于许多患者的哮喘控制不足，利益相关者之间的合作被认为是改善哮喘预后的有前途的策略。这项研究探索了法国成年哮喘患者在其护理途径上的看法。我们根据法国初级保健机构招募的30名18-40岁的哮喘患者的访谈进行了定性研究。我们使用NVivo软件对收集到的数据进行了主题分析。根据患者的情况，参与哮喘管理的利益相关者包括医疗保健专业人员（患者，全科医生，专家，药剂师，物理治疗师，家人和朋友）可见的利益相关者，以及患者隐瞒的利益相关者（补充和替代从业者）；其他利益相关者，例如护士和职业医生，都没有参与。诊断和随访阶段的哮喘管理被证明是无组织的，并且与患者的不良教育有关。病人的模棱两可（与疾病和治疗有关），病人与医护人员之间的沟通不畅（医生听不清和使用不适当的词汇，病人对替代药物的报道不足）以及专业人员之间的合作不力（受到限制）都支持了这一点。普通科医生和专科医师（肺科医师或过敏科医师）之间的互动）。在疾病的每个阶段，与患者的期望和目标相一致的哮喘治疗可能会受益于更协调的护理途径。