Patient reported outcomes for preschool children with recurrent wheeze.,npj Primary Care Respiratory Medicine

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Patient reported outcomes for preschool children with recurrent wheeze.
npj Primary Care Respiratory Medicine ( IF 3.1 ) Pub Date : 2019-03-26 , DOI: 10.1038/s41533-019-0120-3
Makrinioti Heidi ₁ , Keating Emily ₁ , Holden Benjamin ₁ , Coren Michael ₁ , Klaber Robert ₁ , Blair Mitch _{2,

3} , Griffiths Chris ₄ , Watson Mando ₁ , Bush Andrew _{3,

5}

Affiliation

Children with preschool wheeze regularly attend UK emergency departments. There is no international consensus on any specific personalised management approach. This paper describes the first attempt to co-design patient-centred outcomes with families. Preschool wheezers' parents participated in semi-structured interviews and focus-group discussions to air their concerns and identify potential additional support. Fifty-seven families participated in these interviews. From these, themes were defined through qualitative content analysis. Parental experience was mapped to the patient pathway and seven important personalised outcomes were described. These can be used to inform a tool which following further validation could potentially support management of children with preschool wheeze and provide an additional patient focused clinical outcome measure in audit and research.

中文翻译：

患者报告了复发性喘息的学龄前儿童的结局。

患有学龄前喘息的儿童定期去英国急诊室就读。关于任何特定的个性化管理方法，尚未达成国际共识。本文介绍了与家人共同设计以患者为中心的结果的首次尝试。学龄前喘息者的父母参加了半结构化访谈和焦点小组讨论，以表达他们的担忧并确定潜在的额外支持。五十七个家庭参加了这些采访。由此，通过定性内容分析确定了主题。父母的经历被映射到患者的途径，并描述了七个重要的个性化结局。

更新日期：2019-11-18

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