Facioscapulohumeral muscular dystrophy Health Index: Japanese translation and validation study,Disability and Rehabilitation

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Facioscapulohumeral muscular dystrophy Health Index: Japanese translation and validation study
Disability and Rehabilitation ( IF 2.2 ) Pub Date : 2024-03-31 , DOI: 10.1080/09638288.2024.2322035
Haruo Fujino ₁ , Masanori P. Takahashi ₂ , Harumasa Nakamura ₃ , Chad R. Heatwole _{4,

5} , Hiroto Takada ₆ , Satoshi Kuru ₇ , Katsuhisa Ogata ₈ , Kiyoka Enomoto _{1,

9} , Yuto Hayashi ₁₀ , Osamu Imura ₁₁ , Tsuyoshi Matsumura ₁₂

Affiliation

United Graduate School of Child Development, Osaka University, Suita, Osaka, Japan
Clinical Neurophysiology, Department of Clinical Laboratory and Biomedical Sciences, Osaka University Graduate School of Medicine, Suita, Osaka, Japan
Department of Clinical Research Support, National Center Hospital, National Center of Neurology and Psychiatry, Kodaira, Tokyo, Japan
Department of Neurology, University of Rochester, Rochester, NY, USA
Center for Health and Technology, Rochester, NY, USA
Department of Neurology, NHO Aomori National Hospital, Aomori, Japan
Department of Neurology, NHO Suzuka National Hospital, Suzuka, Mie, Japan
Department of Neurology, NHO Higashisaitama National Hospital, Hasuda, Saitama, Japan
Pain Management Clinic, Shiga University of Medical Science Hospital, Otsu, Shiga, Japan
Department of Neurology, Graduate School of Medicine, Osaka University, Suita, Osaka, Japan
Faculty of Social Sciences, Nara University, Nara, Japan
Department of Neurology, NHO Osaka Toneyama Medical Center, Toyonaka, Osaka, Japan

The Facioscapulohumeral Muscular Dystrophy Health Index (FSHD-HI) is a patient-reported outcome measure developed for patients with FSHD. This study aimed to translate the FSHD-HI into Japanese (FS...

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