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Community-based palliative care in two primary care settings – nursing homes and home care: a national survey
Scandinavian Journal of Public Health ( IF 3.4 ) Pub Date : 2024-03-06 , DOI: 10.1177/14034948241232461
Mette Raunkiaer 1, 2 , Tina B. Mikkelsen 1, 2 , Jahan Shabnam 1, 2 , Sofie R. Christiansen 2 , Lene Jarlbaek 1, 2
Affiliation  

Aims:Based on selected themes from a national survey, the study aims to describe and analyse similarities and differences in community-based palliative care provided to people living at home in two different care settings – the nursing home setting and the home care setting.Methods:Responses from four palliative care themes covered by a national survey sent to 717 managers in municipality-based care units were used. The themes were: (a) target groups in palliative care; (b) wishes for end-of-life care; (c) tools/guidelines in palliative care; and (d) palliative care provided to relatives.Results:The response rates were 53% in the nursing home setting and 69% in the home care setting (69%). Both settings had target groups for palliative care, in which significantly more units in the home care settings cared for people with other cultural backgrounds or children. Wishes for end-of-life care were addressed by more than 90% of the units in both settings. There were significantly more nursing home units that addressed questions regarding resuscitation, decision making when you are incapable of making decisions for yourself, and the level of medication. In both settings, around half of the units did not use or did not know if they used tools/guidelines to identify palliative care needs. Half of home care and 65% of nursing home settings did not/were unaware of providing palliative care to relatives.Conclusions:Both settings serve target populations for palliative care with few differences. Identifying palliative care needs seemed to be a low priority in both settings. A difference was found between the settings regarding end-of-life care questions and palliative care promotion to relatives.

中文翻译:

两种初级保健机构(疗养院和家庭护理)中基于社区的姑息治疗:一项全国调查

目的:根据一项全国调查的选定主题,该研究旨在描述和分析向两种不同护理环境(疗养院环境和家庭护理环境)中居住的人们提供的基于社区的姑息治疗的异同。方法:使用了向市护理单位 717 名管理人员发送的全国调查所涵盖的四个姑息治疗主题的答复。主题是: (a) 姑息治疗的目标群体;(b) 临终关怀的愿望;(c) 姑息治疗工具/指南;(d) 向亲属提供姑息治疗。 结果:疗养院的缓解率为 53%,家庭护理环境的缓解率为 69% (69%)。这两种环境都有姑息治疗的目标群体,其中家庭护理环境中有更多单位照顾具有其他文化背景的人或儿童。这两种环境中超过 90% 的单位都满足了临终关怀的愿望。有更多的疗养院单位解决了有关复苏、无法自己做决定时的决策以及药物水平等问题。在这两种情况下,大约一半的单位没有使用或不知道他们是否使用工具/指南来确定姑息治疗需求。一半的家庭护理和 65% 的疗养院环境没有/不知道为亲属提供姑息治疗。结论:这两种环境都为姑息治疗的目标人群提供服务,几乎没有差异。在这两种情况下,确定姑息治疗需求似乎都不是优先考虑的事情。在临终关怀问题和向亲属推广姑息治疗方面的设置之间发现了差异。
更新日期:2024-03-06
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