BackgroundThe modified Rankin Scale (mRS) is a clinician-reported scale that measures the degree of disability in patients who suffered a stroke. Patients’ perception of a meaningful recovery from severe stroke, expected value of a stroke intervention, and the effect of disparities are largely unknown.MethodsWe conducted a survey of patients, their family members, and accompanying visitors to understand their personal preferences and expectations for acute strokes potentially eligible for acute endovascular intervention using a hypothetical scenario of a severe stroke in a standardized questionnaire.ResultsOf 164 survey respondents, 65 (39.6%) were the patient involved, 93 (56.7%) were a family member, and six (3.7%) were accompanied visitors (friends, other). Minimally acceptable disability after a stroke intervention was considered as mRS 2 by 42 respondents (25.6%), as mRS 3 by 79 (48.2%), and as mRS 4 by 43 (26.2%) respondents. Race was associated with different views on this question ( p < 0.001; Hispanic and Black patients being more likely to accept disability than Caucasian and Asian patients), while sex ( p = 0.333) and age ( p = 0.560) were not. Sixty-three respondents (38.4%) viewed minimally acceptable probability of improvement with an intervention as over 50%, 57 (34.8%) as 10–50%, and 44 (26.8%) as less than 10%.ConclusionsA wide range of acceptable outcomes were reported regardless of gender or age. However, race was associated with different acceptable outcome. This is an important finding to demonstrate because of the persistent racial and ethnic disparities in the utilization of endovascular therapy for acute stroke in the United States.

中文翻译：

---

患者对急性缺血性卒中机械取栓术后结局的看法

背景改良Rankin量表（mRS）是临床医生报告的量表，用于衡量中风患者的残疾程度。患者对严重中风有意义的康复的看法、中风干预的预期价值以及差异的影响在很大程度上是未知的。方法我们对患者、其家人和陪同访客进行了调查，以了解他们对急性中风的个人偏好和期望使用标准化问卷中假设的严重中风情况，评估可能符合急性血管内介入治疗条件的中风。 结果 在 164 名调查受访者中，65 名 (39.6%) 为患者，93 名 (56.7%) 为家庭成员，6 名 (3.7%) 为患者）有陪同访客（朋友、其他）。42 名受访者 (25.6%) 认为中风干预后的最低可接受残疾为 mRS 2，79 名受访者 (48.2%) 认为其为 mRS 3，43 名受访者 (26.2%) 认为其为 mRS 4。种族与对此问题的不同看法相关（p < 0.001；西班牙裔和黑人患者比白人和亚洲患者更容易接受残疾），而性别 (p = 0.333) 和年龄 (p = 0.560) 则不然。63 名受访者 (38.4%) 认为干预措施改善的最低可接受概率超过 50%，57 名受访者 (34.8%) 认为是 10-50%，44 名受访者 (26.8%) 认为低于 10%。 结论 可接受范围广泛报告的结果不分性别或年龄。然而，种族与不同的可接受的结果相关。这是一个需要证明的重要发现，因为在美国，急性卒中血管内治疗的利用方面持续存在种族和民族差异。