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Addressing Privacy Concerns Surrounding Oocyte Donation in the United States: Gone With Anonymity.
Obstetrics and Gynecology ( IF 7.2 ) Pub Date : 2024-02-01 , DOI: 10.1097/aog.0000000000005523
Shelun Tsai , Jennifer L. Eaton

Oocyte donation has greatly expanded in the past several decades since the first procedure was performed in 1983. According to the Centers for Disease Control, the number of cycles using donor oocytes increased from 18,011 cycles in 2010 to 27,131 cycles in 2019. Oocyte donation has become an important reproductive option for women with diminished ovarian reserve, recurrent failed in vitro fertilization, or heritable genetic conditions. It is also particularly important for single men, same-sex male couples, and men with a transgender woman partner. More recently, societal changes accompanying the expansion of social media and broader access to direct-to-consumer DNA testing have raised concerns about privacy and anonymity. In this article, we review two specific aspects of donor privacy: privacy related to personal identifiers provided by clinics or donor egg bank websites and privacy related to direct-to-consumer genetic testing. We also provide clinical recommendations specific to the United States for working with oocyte donors and donor oocyte recipients.

中文翻译:

解决美国卵母细胞捐赠的隐私问题:不再匿名。

自 1983 年进行第一次手术以来,卵母细胞捐赠在过去的几十年里大大扩展。根据疾病控制中心的数据,使用捐赠卵母细胞的周期数量从 2010 年的 18,011 个周期增加到 2019 年的 27,131 个周期。卵母细胞捐赠已成为对于卵巢储备功能下降、体外受精反复失败或有遗传性疾病的女性来说,这是一种重要的生殖选择。对于单身男性、同性男性伴侣以及有跨性别女性伴侣的男性来说,这一点也尤为重要。最近,随着社交媒体的扩张和更广泛的直接面向消费者的 DNA 检测带来的社会变化引发了人们对隐私和匿名的担忧。在本文中,我们回顾了捐赠者隐私的两个具体方面:与诊所或捐赠卵子银行网站提供的个人标识符相关的隐私以及与直接面向消费者的基因检测相关的隐私。我们还提供针对美国的卵母细胞捐赠者和卵母细胞捐赠者接受者合作的临床建议。
更新日期:2024-02-01
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