To understand whether they found a two-step decision process helpful and why, adolescent-parent dyads participating in a study investigating return of genomic testing results were asked about their decision-making experience. Responses were qualitatively coded and analyzed using thematic analysis. Adolescents and parents found both joint and independent decision-making stages helpful. Regarding independent decision-making, adolescents appreciated exercising independence, while parents valued both adolescent and parental independence. Joint decision-making allowed each to hear the other's viewpoints. Some found joint decision-making irrelevant but recognized it might help others. Overall, adolescents and parents had similar reasons for finding the two-step decision-making process helpful. Our findings support using such a process for engaging parents and adolescents in challenging research and clinical decisions.

中文翻译：

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青少年和家长对基因组研究结果返回的新颖决策过程的看法。

为了了解他们是否认为两步决策过程有帮助以及为什么，参与一项调查基因组测试结果返回的研究的青少年父母两人被问及他们的决策经验。使用主题分析对答复进行定性编码和分析。青少年和家长发现联合和独立决策阶段都很有帮助。在独立决策方面，青少年欣赏独立性，而父母则重视青少年和父母的独立性。联合决策使双方能够听取对方的观点。一些人认为联合决策无关紧要，但认识到这可能对其他人有帮助。总体而言，青少年和家长有类似的理由认为两步决策过程有帮助。我们的研究结果支持使用这样的过程来让父母和青少年参与具有挑战性的研究和临床决策。