The field of haematology has benefitted greatly from registry-based observational research. Medical and technical advances, changes in regulations and events such as the global pandemic is changing the landscape for registries. This review describes features of high-quality registries, statistical approaches and study design needed, an overview of worldwide hematologic registries, and how registries are evolving and expanding. The importance of collaborations between biostatisticians and haematologists in designing and conducting registry-related research is highlighted.

中文翻译：

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全球血液学数据来源：临床医生与生物统计学家合作的重要性

血液学领域从基于登记的观察性研究中受益匪浅。医疗和技术的进步、法规的变化以及全球大流行等事件正在改变注册的格局。这篇综述描述了高质量注册中心的特征、所需的统计方法和研究设计、全球血液注册中心的概述以及注册中心如何发展和扩展。强调了生物统计学家和血液学家在设计和进行注册相关研究方面合作的重要性。