Archives of Osteoporosis ( IF 3.1 ) Pub Date : 2022-09-13 , DOI: 10.1007/s11657-022-01163-0 Ezequiel Monteverde 1 , María Diehl 2 , Magdalena Saieg 3 , María Beauchamp 1 , Jorge Luis Alberto Castellini 4 , Jorge Alberto Neira 5 , Roberto Félix Klappenbach 1 , Paula Rey 6 , Matías Mirofsky 7 , Rosana Quintana 8 , Bruno Rafael Boietti 9 , María Belén Zanchetta 10 , Evangelina Giacoia 11 , Betina Lartigue 1 , Ana Silvina Abbate 12 , Arnaldo Medina 13 , Verónica Silvina Matassa 14 , Roberto Olivetto 4 , Romina Dodero 7 , Ignacio Maglio 13 , Mercedes Bordes 1 , Julio Nemerovsky 9 , Laura Bosque 1
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Summary
Age expectancy has significantly increased over the last 50 years, as well as some age-related health conditions such as hip fractures. The development of hip fracture registries has shown enhanced patient outcomes through quality improvement strategies. The development of the Argentinian Hip Fracture Registry is going in the same direction.
Introduction
Age expectancy has increased worldwide in the last 50 years, with the population over 64 growing from 4.9 to 9.1%. As fractures are an important problem in this age group, specific approaches such as hip fracture registries (HFR) are needed. Our aim is to communicate the Argentinian HFR (AHFR) development resulting from an alliance between Fundación Trauma, Fundación Navarro Viola, and the Argentinian Network of Hip Fracture in the elderly.
Methods
Between October 2020 and May 2021, an iterative consensus process involving 5 specialty-focused meetings and 8 general meetings with more than 20 specialists was conducted. This process comprised inclusion criteria definitions, dataset proposals, website deployment with data protection and user validation, the definition of hospital-adjusted registry levels, implementation planning, and sustainability strategies.
Results
By June 2021, we were able to (1) outline data fields, including epidemiological, clinical, and functional dimensions for the pre-admission, hospitalization, discharge, and follow-up stages; (2) define three levels: basic (53 fields), intermediate (85), and advanced (99); (3) identify 21 benchmarking indicators; and (4) make a correlation scheme among fracture classifications. Simultaneously, we launched a fundraising campaign to implement the AHFR in 30 centers, having completed 18.
Conclusion
AHFR development was based on four pillars: (1) representativeness and support, (2) solid definitions from onset, (3) committed teams, and (4) stable funding. This tool may contribute to the design of evidence-based health policies to improve patient outcomes, and we hope this experience will help other LMICs to develop their own tailored-to-their-needs registries.
中文翻译：
阿根廷髋部骨折登记发展联盟
概括
在过去 50 年中，预期年龄显着增加，一些与年龄相关的健康状况（例如髋部骨折）也显着增加。髋部骨折登记处的发展表明，通过质量改进策略可以提高患者的治疗效果。阿根廷髋部骨折登记处的发展正朝着同一方向发展。
介绍
在过去的 50 年里，全世界的预期年龄都在增加，64 岁以上的人口从 4.9% 增长到 9.1%。由于骨折是这个年龄组的一个重要问题，因此需要特定的方法，例如髋部骨折登记 (HFR)。我们的目标是传达阿根廷 HFR (AHFR) 的发展，该发展源于 Fundación Trauma、Fundación Navarro Viola 和阿根廷老年人髋部骨折网络之间的联盟。
方法
2020 年 10 月至 2021 年 5 月期间，进行了迭代共识过程，涉及 5 次以专业为重点的会议和 8 次与 20 多位专家的一般会议。该过程包括纳入标准定义、数据集提案、具有数据保护和用户验证的网站部署、医院调整登记级别的定义、实施规划和可持续性战略。
结果
到 2021 年 6 月，我们能够 (1) 概述数据字段，包括入院前、住院、出院和随访阶段的流行病学、临床和功能维度；(2) 定义三个等级：基础（53个领域）、中级（85个）、高级（99个）；(3) 确定21项对标指标；(4)制定骨折分类间的关联方案。同时，我们发起了一项筹款活动，以在 30 个中心实施 AHFR，目前已完成 18 个。
结论
AHFR 的开发基于四大支柱：(1) 代表性和支持，(2) 从一开始就有明确的定义，(3) 忠诚的团队，以及 (4) 稳定的资金。该工具可能有助于设计以证据为基础的健康政策，以改善患者的治疗效果，我们希望这一经验将帮助其他 LMIC 开发自己的适合他们需求的登记系统。
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