Cardiology in the Young ( IF 0.9 ) Pub Date : 2022-08-12 , DOI: 10.1017/s1047951122002517 Yuk M Law 1 , Elizabeth Jacobs-Files 2 , Scott Auerbach 3 , Ashwin K Lal 4 , Marc Richmond 5 , Kurt Schumacher 6 , Rakesh Singh 7 , Arti Desai 8
We conducted a scientific survey of paediatric practitioners who manage heart failure with dilated cardiomyopathy in children. The survey covered management from diagnosis to treatment to monitoring, totalling 63 questions. There were 54 respondents from 40 institutions and 3 countries. There were diverse selections of management options by the respondents in general, but also unanimity in some management options. Variation in practice is likely due to the relative paucity of scientific data in this field and lack of strong evidence-based recommendations from guidelines, which presents an opportunity for future research and quality improvement efforts as the evidence base continues to grow.
中文翻译:
对儿童扩张型心肌病心力衰竭治疗提供者的多地点调查
我们对治疗儿童扩张型心肌病心力衰竭的儿科医生进行了一项科学调查。调查内容涵盖从诊断到治疗再到监测的管理,共63个问题。共有来自 3 个国家 40 个机构的 54 名受访者。总体而言,受访者对管理选项的选择多种多样,但也有一些管理选项的一致意见。实践中的变化可能是由于该领域的科学数据相对缺乏以及指南中缺乏强有力的基于证据的建议,随着证据基础的不断增长,这为未来的研究和质量改进工作提供了机会。