Many parents of infants with CHD find it difficult to recognise symptoms of deterioration in their children. Therefore, a personalised decision support application for parents has been developed. This application aims to increase parents’ awareness of their infant’s normal condition, help them assess signs of deterioration, decide who and when to contact health services, and what to report. The aim of this paper is to describe the concept and report results from a usability study.

An interprofessional group developed a mobile application called the Heart OBServation app in close collaboration with parents using an iterative process. We performed a usability study consisting of semi-structured interviews of 10 families at discharge and after one month and arranged two focus group interviews with nurses caring for these families. A thematic framework analysis of the interviews explored the usability of features in the application. Usability was assessed twice using the System Usability Scale, and a user log was registered throughout the study.

The overall system usability score, 82.3 after discharge and 81.7 after one month, indicates good system usability. The features of Heart OBServation were perceived as useful to provide tailored information, increase awareness of the child’s normal condition, and to guide parents in what to look for. To empower parents, an interactive discharge checklist was added.

The Heart OBServation demonstrated good usability and was well received by parents and nurses. Feasibility and benefits of this application in clinical practice will be investigated in further studies

许多患有先心病的婴儿的父母发现很难识别孩子病情恶化的症状。因此，开发了一款针对家长的个性化决策支持应用程序。该应用程序旨在提高父母对其婴儿正常状况的认识，帮助他们评估恶化迹象，决定谁以及何时联系卫生服务机构以及报告内容。本文的目的是描述可用性研究的概念并报告结果。

一个跨专业小组与家长密切合作，使用迭代过程开发了一款名为 Heart OBServation 应用程序的移动应用程序。我们进行了一项可用性研究，其中包括对出院时和一个月后的 10 个家庭进行半结构化访谈，并安排了两次与照顾这些家庭的护士进行焦点小组访谈。访谈的主题框架分析探讨了应用程序中功能的可用性。使用系统可用性量表对可用性进行了两次评估，并在整个研究过程中记录了用户日志。

系统总体可用性评分，出院后为 82.3 分，一个月后为 81.7 分，表明系统可用性良好。心脏观察的功能被认为有助于提供量身定制的信息，提高对孩子正常状况的认识，并指导父母寻找什么。为了赋予家长权力，添加了交互式出院清单。

心脏观察显示出良好的可用性，受到家长和护士的好评。该应用在临床实践中的可行性和益处将在进一步的研究中进行调查