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Together they shall not fade away: Opportunities and challenges of self-tracking for dementia care
Information Processing & Management ( IF 7.4 ) Pub Date : 2022-07-28 , DOI: 10.1016/j.ipm.2022.103024
Ning Zou , Yu Chi , Daqing He , Bo Xie , Zhendong Wang

Dementia is a major public health concern, and mobile technologies have been identified as having the potential to improve the quality of life for individuals with dementia and their caregivers. Recent research, however, suggests that technology-based solutions are frequently driven by and beneficial to caregivers, not both. Emerging personal technologies that are equipped with self-tracking are an ideal option for accommodating person-centered care in light of the collaborative nature of dementia care. However, there is a lack of investigation on how tracking occurs in the context of dementia care. This article presents a thematic analysis of the types of tracking-related information desired in dementia care online communities, as well as how and by whom they are desired through adapting the Conceptual Model of Shared Health Informatics (CoMSHI) for tracking in chronic illness management. Our findings show that four types of tracking metrics are desired for nine types of information: safety alert for wandering, falls, and strangers, reminders of daily life activities and medical and health related activities, monitoring data related to daily life activities and data related to health status, and remote control for patients' daily life activities and financial safety. Family members, caregivers, community members, and persons with dementia involved in work with tracked data face specific challenges. We recommend that self-tracking technologies be implemented in dementia care through collaboration, with the recognition of different types of information as well as different roles involved and with particular attention paid to different types of data work and related roles in data work.



中文翻译:

它们不会一起消失:痴呆症护理自我追踪的机遇和挑战

痴呆症是一个主要的公共卫生问题,移动技术已被确定为具有改善痴呆症患者及其护理人员生活质量的潜力。然而,最近的研究表明,基于技术的解决方案经常由护理人员推动并有益于护理人员,而不是两者兼而有之。鉴于痴呆症护理的协作性质,配备自我跟踪的新兴个人技术是适应以人为中心的护理的理想选择。然而,缺乏关于在痴呆症护理中如何进行跟踪的调查。本文对痴呆症护理在线社区所需的跟踪相关信息类型进行了专题分析,以及通过调整共享健康信息学概念模型 (CoMSHI) 来跟踪慢性病管理的方式和对象。我们的研究结果表明,九类信息需要四种类型的跟踪指标:流浪、跌倒和陌生人的安全警报、日常生活活动和医疗健康相关活动的提醒、与日常生活活动相关的监控数据和与生活相关的数据。健康状况,远程控制患者日常生活活动和财务安全。家庭成员、护理人员、社区成员和参与使用跟踪数据的痴呆症患者面临着特定的挑战。我们建议通过合作在痴呆症护理中实施自我跟踪技术,

更新日期:2022-07-28
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