Background Pediatric burns significantly impact the short-term health-related quality of life (HRQL) of children. Knowledge regarding the long-term impact is scarce. We therefore evaluated the parent-reported HRQL in pediatric burn patients 5 to 7 years after burns.

Methods We invited parents of eligible children admitted to a Dutch Burn Center between August 2011 and September 2012. This sample was enriched with children with severe burns (> 10% of total body surface area [TBSA] burned) admitted between January 2010 and March 2013. The EQ-5D was completed by parents 5 to 7 years postburn. Outcomes and predictive factors were studied and compared between children with minor/moderate and severe burns.

Results We included 130 children (mean TBSA burned 7%): 102 children with mild/intermediate burns and 28 with severe burns. Mean EQ-5D summary was 0.96 and EQ visual analogue scale (VAS) 93.1. These outcomes were significantly better in children with minor/moderate burns (0.97; 94.4) compared with children with severe burns (0.93; 88.3) (p < 0.05). Nineteen percent of the children with minor/moderate burns and 43% of those with severe burns reported any problems. The most frequently reported problem was anxiety/depression for both groups. Pain/discomfort (p = 0.012) and cognition (p = 0.035) were statistically significantly worse in children with severe burns compared with those with minor/moderate burns. Full thickness burns and number of surgeries were found to predict long-term HRQL impairment.

Conclusion Five to seven years postburn, the majority of children in our study (76%) did not experience long-term problems with HRQL. In a minority of the children, burns showed to have a prolonged negative impact, especially in those being severely burned and who had to undergo surgery for their burns. Most experienced problems were related to anxiety/depression. These important insights could be used to inform children and their parents about the expected long-term HRQL after pediatric burns.

背景 小儿烧伤显着影响儿童的短期健康相关生活质量 (HRQL)。关于长期影响的知识很少。因此，我们评估了烧伤后 5 至 7 年儿童烧伤患者家长报告的 HRQL。

方法 我们邀请了 2011 年 8 月至 2012 年 9 月期间入住荷兰烧伤中心的符合条件儿童的父母。该样本包含 2010 年 1 月至 2013 年 3 月期间收治的严重烧伤儿童（> 全身表面积 [TBSA] 烧伤的 10%） . EQ-5D 由父母在烧伤后 5 至 7 年完成。对轻度/中度和重度烧伤儿童的结果和预测因素进行了研究和比较。

结果 我们纳入了 130 名儿童（平均 TBSA 烧伤率为 7%）：102 名轻度/中度烧伤儿童和 28 名重度烧伤儿童。平均 EQ-5D 总结为 0.96，EQ 视觉模拟量表 (VAS) 为 93.1。与重度烧伤儿童 (0.93; 88.3) 相比，轻度/中度烧伤儿童 (0.97; 94.4) 的这些结果明显更好 ( p  < 0.05)。19% 的轻度/中度烧伤儿童和 43% 的重度烧伤儿童报告了任何问题。最常报告的问题是两组的焦虑/抑郁。疼痛/不适 ( p  = 0.012) 和认知 ( p = 0.035）与轻度/中度烧伤的儿童相比，严重烧伤的儿童在统计学上显着更差。全层烧伤和手术次数被发现可以预测长期 HRQL 损伤。

结论 烧伤后五到七年，我们研究中的大多数儿童 (76%) 没有经历 HRQL 的长期问题。在少数儿童中，烧伤显示出长期的负面影响，尤其是那些严重烧伤和不得不接受烧伤手术的孩子。大多数经历过的问题都与焦虑/抑郁有关。这些重要的见解可用于告知儿童及其父母小儿烧伤后预期的长期 HRQL。