Objectives To document the work situation, the work ability and the expectation of returning to work among adult patients with systemic autoimmune myopathies (SAMs), and to identify the factors associated with each of these outcomes. Methods Cross-sectional study. The work situation (performing paid work vs out of work) was ascertained via a structured questionnaire. For those who were working, we applied the Work Ability Index (WAI; scale 7–49); and for those who were out of work, we applied the Return-to-Work Self-Efficacy questionnaire (RTW-SE; scale 11–66). Results Of the 75 patients with SAMs included, 33 (44%) were doing paid work and 42 (56%) were out of work. The work situation was independently associated with physical function, assessed by the Health Assessment Questionnaire-Disability Index (HAQ-DI). A 1-point increase in the HAQ-DI (scale 0–3) decreased the chance of doing paid work by 66% (95% CI: 0.16, 0.74; P = 0.007). Patients performing paid work had a mean WAI of 33.5 (6.9). The following variables were associated with a decrease in the WAI score in the regression model: female sex (−5.04), diabetes (−5.94), fibromyalgia (−6.40), fatigue (−4.51) and severe anxiety (−4.59). Among those out of work, the mean RTW-SE was 42.8 (12.4). Cutaneous manifestations and >12 years of education were associated with an average increase of 10.57 and 10.9 points, respectively, in the RTW-SE. A 1-point increase in the HAQ-DI decreased the RTW-SE by 4.69 points. Conclusion Our findings highlight the poor work participation in a well-characterized sample of working-age patients with SAMs. Strategies to improve work-related outcomes in these patients are urgently needed.

中文翻译：

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系统性自身免疫性肌病患者的工作情况、工作能力及重返工作岗位期望

目标 记录成年系统性自身免疫性肌病 (SAM) 患者的工作情况、工作能力和重返工作岗位的期望，并确定与这些结果相关的因素。方法 横断面研究。通过结构化问卷确定工作情况（从事有偿工作与失业）。对于那些正在工作的人，我们应用了工作能力指数（WAI；等级 7-49）；对于那些失业的人，我们应用了重返工作自我效能问卷（RTW-SE；量表 11–66）。结果 在纳入的 75 名 SAM 患者中，33 名 (44%) 从事有偿工作，42 名 (56%) 失业。工作情况与身体机能独立相关，由健康评估问卷-残疾指数 (HAQ-DI) 评估。HAQ-DI（等级 0–3）每增加 1 分，从事有偿工作的机会就会减少 66%（95% CI：0.16、0.74；P = 0.007）。从事有偿工作的患者平均 WAI 为 33.5 (6.9)。以下变量与回归模型中 WAI 分数的降低相关：女性 (-5.04)、糖尿病 (-5.94)、纤维肌痛 (-6.40)、疲劳 (-4.51) 和严重焦虑 (-4.59)。在失业者中，平均 RTW-SE 为 42.8 (12.4)。在 RTW-SE 中，皮肤表现和超过 12 年的教育分别与平均增加 10.57 和 10.9 分相关。HAQ-DI 每增加 1 分，RTW-SE 就会减少 4.69 分。结论 我们的研究结果强调了一个具有良好特征的 SAM 工作年龄患者样本的工作参与度低下。