Recent health system initiatives and government legislation have enhanced electronic health information (EHI) sharing in the healthcare technology environment. These measures are favorably viewed by most patients and clinicians. The 21st Century Cures Act, whose final rules went into effect in the United States in 2021, prohibits information blocking practices except in the case of potential harm. The definition of such harm, particularly regarding psychosocial EHI, is unclear and little guidance has been published. No articles address the matter in solid organ transplantation (SOT) despite the crucial role of psychosocial data in organ allocation. This article describes the implications of patient and family access to psychosocial EHI in SOT, discusses potential mechanisms of harm, and suggests practical communication strategies relevant to clinicians of all disciplines to promote high quality care and favorable interactions with patients and families.

中文翻译：

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实体器官移植中的 21 世纪治愈法案和社会心理电子文档：潜在危害和实用策略

最近的卫生系统举措和政府立法加强了医疗技术环境中的电子健康信息 (EHI) 共享。这些措施受到大多数患者和临床医生的欢迎。最终规则于 2021 年在美国生效的《21 世纪治愈法案》禁止信息屏蔽行为，除非存在潜在危害。这种危害的定义，特别是关于社会心理 EHI 的定义尚不清楚，而且几乎没有发布指南。尽管心理社会数据在器官分配中起着至关重要的作用，但没有文章解决实体器官移植 (SOT) 中的问题。本文描述了患者和家庭在 SOT 中获得社会心理 EHI 的意义，讨论了潜在的伤害机制，