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"I Used to be Scared to Even Like Stand Beside Somebody Who Had It": HIV Risk Behaviours and Perceptions among Indigenous People Who Use Drugs
International Indigenous Policy Journal ( IF 0.8 ) Pub Date : 2021-10-07 , DOI: 10.18584/iipj.2021.12.3.10878
Jennifer Lavalley , Western Aboriginal Harm Reduction Society , Christopher Livingstone , Melissa Steinhauer , Ashley Goodman , Thomas Kerr

Objectives: In Canada, and elsewhere, Indigenous people who use illicit drugs and/or alcohol (WUID/A) experience a disproportionate burden of HIV-related harm. This study examined HIV risk perceptions and behaviours among Indigenous people WUID/A living in the Downtown Eastside (DTES) and the policies and practices that shape inequities and vulnerabilities for them in HIV testing and treatment. Further, we aimed to situate the vulnerabilities of Indigenous people WUID/A in HIV care within the context of wider structural inequality and generate recommendations for culturally relevant and safe HIV treatment options.Methods: This research employed an Indigenous-led community-based participatory approach using talking circles to explore experiences of Indigenous people living with HIV. Under the participatory research framework, community researchers led the study design, data collection, and analysis. Talking circles elicited participants’ experiences of HIV knowledge, testing, and treatment, and were audio-recorded and transcribed. Data were coded line-by-line and codes were organized into themes. Results: Five key themes were identified via the talking circles: evolving HIV risk perceptions (e.g., HIV knowledge and testing, and “intentional exposure”); research as an avenue for HIV testing; HIV treatment and discussions about grief and loss; HIV-related stigma and discrimination; and the importance of culturally-relevant and safe HIV treatment options for Indigenous people WUID/A.Discussion: Our work reveals that Indigenous people WUID/A do not have adequate access to HIV knowledge and education, often limiting their ability to access HIV testing and supports. Participant stories revealed both internalized and community stigma and discrimination, which at times compromised connection with participants' home communities. Further, our findings point to a failure in the public health system to deliver accessible HIV information to Indigenous Peoples, hence, many participants have solely relied on participation in community-based research studies in the Downtown Eastside (DTES) for HIV education and knowledge. There is an urgent need for accessible, culturally safe, and community-based education and treatment options for Indigenous people WUID/A within HIV care.

中文翻译:

“我曾经害怕甚至喜欢站在拥有它的人身边”:使用毒品的土著人的艾滋病毒风险行为和认知

目标:在加拿大和其他地方,使用非法药物和/或酒精 (WUID/A) 的土著人承受着与 HIV 相关的伤害不成比例的负担。本研究调查了居住在市中心东区 (DTES) 的原住民 WUID/A 对 HIV 风险的认知和行为,以及在 HIV 检测和治疗中造成不平等和脆弱性的政策和做法。此外,我们的目标是在更广泛的结构性不平等背景下确定土著人 WUID/A 在 HIV 护理中的脆弱性,并就文化相关和安全的 HIV 治疗方案提出建议。方法:本研究采用土著主导的以社区为基础的参与式方法使用谈话圈来探索土著艾滋病病毒感染者的经历。在参与式研究框架下,社区研究人员领导了研究设计、数据收集和分析。谈话圈引出了参与者对艾滋病毒知识、检测和治疗的体验,并被录音和转录。数据被逐行编码,代码被组织成主题。结果:通过讨论圈确定了五个关键主题:不断发展的 HIV 风险认知(例如,HIV 知识和检测,以及“故意暴露”);研究作为艾滋病毒检测的途径;艾滋病毒治疗和关于悲伤和失落的讨论;与艾滋病毒有关的污名和歧视;以及土著人 WUID/A 与文化相关且安全的 HIV 治疗方案的重要性。讨论:我们的工作表明,土著人 WUID/A 无法获得足够的 HIV 知识和教育,这往往限制了他们获得 HIV 检测和支持。参与者的故事揭示了内在的和社区的污名和歧视,这有时会损害与参与者家乡社区的联系。此外,我们的研究结果表明,公共卫生系统未能向土著人民提供可获得的艾滋病毒信息,因此,许多参与者完全依赖于参与市中心东区 (DTES) 的社区研究来进行艾滋病毒教育和知识。在 HIV 护理中,迫切需要为土著人 WUID/A 提供可获得的、文化上安全的和以社区为基础的教育和治疗选择。我们的研究结果表明,公共卫生系统未能向土著人民提供可获得的艾滋病毒信息,因此,许多参与者完全依赖于参与市中心东区 (DTES) 的社区研究来进行艾滋病毒教育和知识。在 HIV 护理中,迫切需要为土著人 WUID/A 提供可获得的、文化上安全的和以社区为基础的教育和治疗选择。我们的研究结果表明,公共卫生系统未能向土著人民提供可获得的艾滋病毒信息,因此,许多参与者完全依赖于参与市中心东区 (DTES) 的社区研究来进行艾滋病毒教育和知识。在 HIV 护理中,迫切需要为土著人 WUID/A 提供可获得的、文化上安全的和以社区为基础的教育和治疗选择。
更新日期:2021-10-07
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