BACKGROUND AND OBJECTIVE Transition from pediatric to adult care is associated with adverse health outcomes for many adolescents with chronic illness. We identified quality indicators for transition to adult care that are broadly applicable across chronic illnesses and health systems. METHODS Medline, Embase, and the Cumulative Index to Nursing and Allied Health Literature were searched, covering earliest available date to July 2021. The Gray Matters framework was used to search gray literature. Two independent reviewers screened articles by title and abstract, followed by full-text review. Disagreements were resolved by a third reviewer. Studies were included that identified quality indicators developed via consensus-building methods. Indicators were organized into a framework categorized by illness specificity, level of care, Donabedian model, and Institute of Medicine quality domain. Appraisal of Guidelines for Research and Evaluation tool was used for critical appraisal. RESULTS The search identified 4581 articles, of which 321 underwent full-text review. Eight peer-reviewed studies and 1 clinical guideline were included, identifying 169 quality indicators for transition. Of these, 56% were illness specific, 43% were at the patient level of care, 44% related to transition processes, and 51% were patient centered and 0% equity focused. Common indicator themes included education (12%), continuity of care (8%), satisfaction (8%), and self-management/self-efficacy (7%). The study was limited by quality indicators developed through consensus-building methodology. CONCLUSIONS Although most quality indicators for transition were patient-centered outcomes, few were informed by youth and parents/caregivers, and none focused on equity. Further work is needed to prioritize quality indicators across chronic illness populations while engaging youth and parents/caregivers in the process.

中文翻译：

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青年过渡到成人护理的质量指标：系统评价。

背景和目标 从儿科到成人护理的过渡与许多患有慢性病的青少年的不良健康结果有关。我们确定了过渡到成人护理的质量指标，这些指标广泛适用于慢性病和卫生系统。方法 检索 Medline、Embase 和护理及相关健康文献累积索引，最早可用日期为 2021 年 7 月。灰色问题框架用于检索灰色文献。两名独立审稿人按标题和摘要筛选文章，然后进行全文审阅。分歧由第三位评审员解决。纳入的研究确定了通过建立共识的方法开发的质量指标。指标被组织成一个按疾病特异性、护理水平、Donabedian 模型分类的框架，和医学研究所质量域。研究和评估工具指南的评估被用于批判性评估。结果 检索确定了 4581 篇文章，其中 321 篇进行了全文审查。纳入了 8 项同行评审研究和 1 项临床指南，确定了 169 项过渡质量指标。其中，56% 为特定疾病，43% 为患者护理级别，44% 与过渡过程有关，51% 以患者为中心，0% 以公平为重点。常见的指标主题包括教育 (12%)、护理的连续性 (8%)、满意度 (8%) 和自我管理/自我效能 (7%)。该研究受到通过建立共识方法开发的质量指标的限制。结论 尽管大多数过渡质量指标是以患者为中心的结果，青少年和父母/照料者很少了解情况，也没有人关注公平。需要进一步开展工作，优先考虑慢性病人群的质量指标，同时让青年和父母/照顾者参与这一过程。