Psychosis is the most ineffable experience of mental disorder. We provide here the first co-written bottom-up review of the lived experience of psychosis, whereby experts by experience primarily selected the subjective themes, that were subsequently enriched by phenomenologically-informed perspectives. First-person accounts within and outside the medical field were screened and discussed in collaborative workshops involving numerous individuals with lived experience of psychosis as well as family members and carers, representing a global network of organizations. The material was complemented by semantic analyses and shared across all collaborators in a cloud-based system. The early phases of psychosis (i.e., premorbid and prodromal stages) were found to be characterized by core existential themes including loss of common sense, perplexity and lack of immersion in the world with compromised vital contact with reality, heightened salience and a feeling that something important is about to happen, perturbation of the sense of self, and need to hide the tumultuous inner experiences. The first episode stage was found to be denoted by some transitory relief associated with the onset of delusions, intense self-referentiality and permeated self-world boundaries, tumultuous internal noise, and dissolution of the sense of self with social withdrawal. Core lived experiences of the later stages (i.e., relapsing and chronic) involved grieving personal losses, feeling split, and struggling to accept the constant inner chaos, the new self, the diagnosis and an uncertain future. The experience of receiving psychiatric treatments, such as inpatient and outpatient care, social interventions, psychological treatments and medications, included both positive and negative aspects, and was determined by the hope of achieving recovery, understood as an enduring journey of reconstructing the sense of personhood and re-establishing the lost bonds with others towards meaningful goals. These findings can inform clinical practice, research and education. Psychosis is one of the most painful and upsetting existential experiences, so dizzyingly alien to our usual patterns of life and so unspeakably enigmatic and human.

中文翻译：

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精神病的生活经验：由经验和学者共同撰写的自下而上的评论

精神病是精神障碍最难以言喻的体验。我们在这里提供了第一个共同撰写的关于精神病的生活经验的自下而上的评论，其中专家根据经验主要选择了主观主题，随后通过现象学的观点丰富了这些主题。医学领域内外的第一人称帐户在协作研讨会中进行了筛选和讨论，该研讨会涉及众多具有精神病生活经验的个人以及家庭成员和照顾者，代表了一个全球组织网络。该材料由语义分析补充，并在基于云的系统中由所有合作者共享。发现精神病的早期阶段（即发病前和前驱阶段）以核心存在主题为特征，包括常识的丧失，困惑和缺乏沉浸在世界中，与现实的重要联系受到影响，突出性和一种重要的事情即将发生的感觉，自我意识的扰乱，需要隐藏动荡的内心体验。发现第一集阶段表现为与妄想发作、强烈的自我指涉和渗透的自我世界边界、动荡的内部噪音以及社会退缩导致自我意识的消散相关的一些暂时缓解。后期阶段的核心生活经历（即复发和慢性）包括悲伤的个人损失、感觉分裂以及努力接受不断的内心混乱、新的自我、诊断和不确定的未来。接受精神科治疗的经验，例如住院和门诊护理，社会干预、心理治疗和药物治疗，包括积极和消极方面，取决于实现康复的希望，被理解为重建人格意识和重新建立与他人失去联系以实现有意义目标的持久旅程。这些发现可以为临床实践、研究和教育提供信息。精神病是最痛苦和令人不安的存在体验之一，它与我们通常的生活模式如此令人眼花缭乱，如此神秘和人性化。这些发现可以为临床实践、研究和教育提供信息。精神病是最痛苦和令人不安的存在体验之一，它与我们通常的生活模式如此令人眼花缭乱，如此神秘和人性化。这些发现可以为临床实践、研究和教育提供信息。精神病是最痛苦和令人不安的存在体验之一，它与我们通常的生活模式如此令人眼花缭乱，如此神秘和人性化。