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A systematic review of how spinal cord injury impacts families.
Rehabilitation Psychology ( IF 1.9 ) Pub Date : 2022-05-05 , DOI: 10.1037/rep0000431
Catherine S Wilson 1 , Samantha DeDios-Stern 2 , Claire Bocage 3 , Anthea A Gray 4 , Bianca M Crudup 1 , Heather F Russell 5
Affiliation  

PURPOSE/OBJECTIVE This systematic review synthesizes the existing literature on the impact of spinal cord injury (SCI) on families, including parenting, marital relations, and caregivers' psychological adjustment. RESEARCH METHOD/DESIGN Seven databases were searched for relevant peer-reviewed studies. Dissertations, chapters, editorials, and review articles were excluded. Sixty-six studies that examined SCI's impact on caregivers and families were included. RESULTS The review included 55 quantitative studies, 10 qualitative studies, and one study that utilized both methodologies. Among the quantitative psychosocial adjustment studies, as well as the qualitative studies, lack of social support was associated with an increased sense of burden, stress, depression, anxiety, and poorer physical health in caregivers. In the family relationship studies (n = 7), few significant differences were found in family functioning. Marital relationship studies (n = 12) frequently examined intimacy (sex, partner affirmations, and emotional support) as an important facet for determining positive or negative outcomes when one partner had SCI. However, divorce rates appeared to increase over time postinjury. Though few studies investigated caregiver needs and interventions (n = 5), needs for social support and information were identified, and several interventions (e.g., family education, more social support, and problem-solving training) were beneficial for promoting caregivers' psychosocial adjustment. CONCLUSIONS SCI significantly impacts caregivers' sense of burden and psychological distress, with major implications for family functioning and caregivers' physical, mental, and social health. These issues occurred internationally and endured over time. Findings indicated the need for focused interventions to support caregivers' psychosocial adjustment after SCI. (PsycInfo Database Record (c) 2022 APA, all rights reserved).

中文翻译:

对脊髓损伤如何影响家庭的系统评价。

目的/目标 本系统评价综合了有关脊髓损伤 (SCI) 对家庭影响的现有文献,包括养育、婚姻关系和照顾者的心理调整。研究方法/设计 对七个数据库进行了相关的同行评审研究。论文、章节、社论和评论文章被排除在外。纳入了 66 项研究 SCI 对照顾者和家庭的影响的研究。结果 该评价包括 55 项定量研究、10 项定性研究和一项同时使用这两种方法的研究。在定量的心理社会适应研究和定性研究中,缺乏社会支持与看护者的负担感、压力、抑郁、焦虑和身体健康状况较差有关。在家庭关系研究中(n = 7),在家庭功能方面几乎没有发现显着差异。婚姻关系研究 (n = 12) 经常将亲密关系(性、伴侣的肯定和情感支持)作为确定伴侣患有 SCI 时的积极或消极结果的重要方面。然而,离婚率似乎在受伤后随着时间的推移而增加。尽管很少有研究调查照顾者的需求和干预措施(n = 5),但确定了对社会支持和信息的需求,并且一些干预措施(例如,家庭教育、更多的社会支持和解决问题的培训)有助于促进照顾者的社会心理适应. 结论 SCI 显着影响照顾者的负担感和心理困扰,对家庭功能和照顾者有重大影响 身体、心理和社会健康。这些问题在国际上发生并随着时间的推移而持续存在。研究结果表明需要有针对性的干预措施来支持照顾者在 SCI 后的社会心理调整。(PsycInfo 数据库记录 (c) 2022 APA,保留所有权利)。
更新日期:2022-05-05
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