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Quality of Life and the International Convention on the Rights of Persons With Disabilities: Consensus Indicators for Assessment.
Psicothema ( IF 3.2 ) Pub Date : 2022-05-01 , DOI: 10.7334/psicothema2021.574
Laura E Gómez 1 , M L Morán , Susana Al-Halabí , Chris Swerts , Miguel A Verdugo , Robert L Schalock
Affiliation  

BACKGROUND The quality of life construct provides an ideal conceptual framework for translating such abstract concepts as self-determination, equity, accessibility, and inclusion. Through consultation with expert raters, we sought to develop and validate a bank of indicators and items, based on the quality of life conceptual framework, to be used as a means of evaluating and implementing the Articles of the Convention on the Rights of Persons with Disabilities (CRPD). METHOD Thirty-two experts in the field of intellectual and developmental disabilities participated, rating the suitability, importance, and clarity of a bank of 296 items, as well as the relevance of controlling for 70 sociodemographic variables. RESULTS After qualitative and quantitative analysis of the data, the final selection comprised 60 sociodemographic variables and 153 items that scored highly on all criteria and produced an excellent level of agreement between the experts. CONCLUSIONS This bank of items and set of sociodemographic variables constitute the pilot version of a CRPD assessment and monitoring instrument with sufficient evidence of content validity, which may be useful in developing evidence-based practices and in detecting rights violations.

中文翻译:

生活质量和《残疾人权利国际公约》:评估共识指标。

背景 生活质量概念为翻译诸如自决、公平、可及性和包容性等抽象概念提供了理想的概念框架。通过与专家评估员协商,我们试图根据生活质量概念框架开发和验证一组指标和项目,用作评估和执行《残疾人权利公约》条款的手段(CRPD)。方法 32 名智力和发育障碍领域的专家参与,对 296 个项目的适用性、重要性和清晰度以及控制 70 个社会人口变量的相关性进行评级。结果 在对数据进行定性和定量分析后,最终选择包括 60 个社会人口学变量和 153 个项目,这些项目在所有标准上得分都很高,专家之间的一致性很高。结论 这组项目和一组社会人口变量构成了 CRPD 评估和监测工具的试点版本,具有足够的内容有效性证据,这可能有助于开发基于证据的实践和检测侵权行为。
更新日期:2022-05-01
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